I am screaming, swearing and crying

cinnamonsmiles

I have been writing on here multiple times on my lack of adequate care for my LE.

I went to the local mastectomy boutique for two sleeves and two gloves with fingers. I TOLD them how my fingers swell. Well they gave me half finger gloves. So now when I wear the damn things my exposed fingers get cold and swollen. Now I learn that Juzo makes gloves with longer finger portions. Why is my job to make sure all these people do THEIR jobs.I AM NOT the expert!! They are!! They are supposed to be certified fitters. Certified my ass. They charged me $150 per glove!!! I found them much cheaper on the internet!

I got the bill. I CAN NOT BELIEVE IT. THEY TOLD ME EACH SLEEVE WAS $62 AND EACH GLOVE WAS $82. THE BILL SAYS $150 PER FUCKING GLOVE THAT IS THE WRONG KIND AND $105 PER FUCKING SLEEVE. BIG DISCREPANCY IN PRICING HERE.

Friday I found out that there was ANOTHER  huge mistake made on my medicaid decductible plan for WI. First I had to go over every single damn line with the agent cuz she can't read and count the amounts in the patient responsibility portion of the itmeized bills I submitted. Now I get a call that they made a fucking $500 error!!! I need another $500 in medical bills before they will start to pay. I only make $960 a month and had I known that, I wouldnt have borrowed fucking $1600 to get my damn car fixed.

I just can not fucking win. SO many drs, nurses, therapists have fucked up with me. I can not take anymore.

The horrible care I am receiving is far worse than the cancer and surgeries themselves.

Update: The gal who sent met the bill wrote down the wrong information regarding MY cost for the sleeves. I wil get the cheaper price they originally quoated me. AND I HAVE BETTER NEWS.....They must have felt bad for me for the predicament and stress I have been in. Evidently there is a group of women who do fundraising for women who have had a single or double mastectomy and need monetary help getting the products they can't afford. I was one of the women chosen to receive help.

It is so hard not react so negatively for me in the first place, and seems like everything about cancer is so damn complicated and there is so much crap besides the cancer itself, treatments, and side effects. Luckily, I had you guys to unload on and I didn't go crazy bitch all over the ladies at the store.

On last Tuesday night, I started cyring in the shower, cried through the house and went to bed hysterically crying. My brain doesn't work right to begin with cuz of benign lesions on it, anxiety, and all the stupid meds I am on. I really felt like I was having another nervous breakdown and pretty sure I did. Even my partner, Brian, was worried.

One problem down....Now I have a call into the Medicaid supervisor to discuss the major mistakes being made with my account.

I am so mad at stupid cancer. I truly agree with the lady that said cancer is the gift that keeps on giving....

Moiralf

Wow, that is bad Especially when they come one on top of each other.

It's hard enough dealing with the problem without having to deal with the people who are suppose to help us fix the problem. They are suppose to be there to help and support us to get better.

I know you don't expect us to be able to fix it but it's really important to vent the frustration here. Getting good service for lymphedema is very hit and miss. I live in New Zealand and am finding it difficult to find people who know what they are talking about. My arm seems resistant to compression but the LE therapists don't seem to have too many other options for me. I use the sleeve I got custom made but it doesn't make a difference and my hand swells more if I wear the glove. Working out my own treatment now and finding aqua walking and arm movements might be helping.

Insurance is a big issue I hear in America, here most stuff is through public health but they don't fund everything and there can be long delays in treatment. Then we can pay privately if we can afford it. Can get private health insurance but it is costly and not offer through employment.  Not until you need it that you realise how difficult dealing with anything attached to it can be. 

Hope this gets sorted for you but yeah, it's just something else you don't need. What do they say?? "Cancer, the gift that just keeps giving."

Moira

Binney4

Oh, Cinnamon, what a horrible start to the New Year--carried-over insurance battles! Please know we're all here for you, hoping we can help lift your spirits at least enough to keep up the good fight with these impossible people.

Gentle hugs,
Binney

cookiegal

ARRRGH!

Oh Cinnamon, I wish I could fly out to WI and do something to help.

Curds and a beer?

Hugs

mab

I'm so sorry you are going through this!
I have a full-time job, but I could easily spend a 1/4 of a day on the phone with the cancer center billing and the medical insurance billing. And in order to get insurance to pay for the measly 2 sleeves and gloves a year, I have to go out to practically the middle of nowhere (I don't have a car) and then the gloves they give me cut off circulation in my thumb and they tell me to just come back in and they'll re-measure, then they STILL don't fit and I have now had to take two 1/2 days off work for nothing. I understand your frustration. Sometimes dealing with Lymphedema feels like the "last straw" and I get so tired with the constant work it involves. I just try to remind myself that I'm still around to complain about it and that sometimes helps. I am glad we have this forum to vent - it really helps!!

camillegal

Cinnamin this all sucks, I know--I reall got taken I was told they only make them in Germany and each sleeve and glove cost over 500.00 and my ins. only paid 150.00???So I know what u meanGRRRRRRR--all this stuff after (for a while for me) is still costly and many trips to somewhere that is inconvenient. I'm sorry for u with all this confusion-

Tomboy

 {7}  i fucking hate it too and its dangerous and can lead to cellulitis which is life threatening. my neighbor loaned me her reid sleeve which i have been wearing for 2 nights, and it seems to really be helping. i just cant figure it out, is it too much activity or not enough?  12*24*12