STFU (Shut the F*** UP)

duckyb1

Chick.....38 rad treatments......it's not scary......of course everyone is different, but the worst thing I got was fatigue about 2 weeks after I finished.......a little pinkish....kind of like sunburn, but used Aloe 99% pure, Aquaphor lotion, salve or cream, also emu oil........



The biggest pain is going everyday.........the hardest thing was the prep....positioning for your mapping and that was staying in one position for a while...but that is done once in the beginning......,,,,your gonna do fine.......you will hear and read "horror" stories...I did......but ignored the bad ones, and focused on the uplifting ones.....



There are good threads out there about Rads.............here is what I did.....on my first Rad day I purchased $1.00 scratch -off lottery tickets 38 of them, (all the same kind, was advised that was the best way by the store clerk).....and each day when I came home from Rads would scratch one off...........in the end I won $ 93.00.........and had fun to boot..........Good Luck......

Chevyboy

Chicki.... The girls are right.... If you have gone through chemo, without pulling all your hair out after what's left, you can DO radiation.  Being tired was probably the worst.   Ducky had some really good points...... Of course that Pilot was with her, so that took care of the boredom.

That's IT!!!!  Ask if you can bring a buddy..... but I think not.

Ah geez Cammi!  Another Italian.... that's right!  You and Flowers..... I KNOW all about you gals.... I mean men..... guess they are different.  You know Italians can't marry Italians....  they would simply kill each other.....   Two people under the same roof, of the Italian persuasion, just do not get along for more than 10 min. at a time.... unless you are in bed.....  eating.... spaghetti. 

ChickaD

Hi Miss Duck...LOVE the scratch off thing...totally gonna do that...



But..bad news...my Onc just added 2 more cycles of chemo and put off rads...ugh AND the chemo nurse had a fit about Cooper...and sent Caitie home with him...I have Service Dog papers for him...STFU....so disappointed right now.....every single nurse and my Onc were gaga over Cooper and so happy I brought him...ugh

duckyb1

Actually I had "Mark" my blue-eyed honey that greeted me that first day......near shit.....said to my on......"oh boy", "we'll maybe he is just the one taking me back"...,,,,wrong ........when we got to the radiation room there were 2 ladies there......thought.....phew, thank God, he will be leaving........wrong again........he said......"ok Genevieve, take off your robe, and get on the table"..........to that I answered ......."OK! HONEY, IF YOU CAN HANDLE THIS, SO CAN I"..............broke the ice, everyone roared, and it was business as usual........he was the same age as my grandsons........adorable, and told him.......TODAY I FELL IN LOVE AGAIN.....the day I was done and "rang the bell" Mark said with glassy eyes........I WILL NEVER FORGET YOU, YOU MADE MY JOB FUN........he made my Rad days something to look forward to..........

savgigi

Chickie, so sorry you're having such a disappointing day.

Anonymous

Slept all morning. Roommate has her tv on low. The nurses outside my door are loud.

sas-schatzi

veggy, just woke up (again) if their hanging their hat on your D dimer--d-dim's are positive in the presense of a blood clot, surgical wounds, wounds(your chest). So a dimer in your case would /could be a false positive. What does the ring CT say. If the CT is negative with ddimer positive, ask them if they considered the wound on your chest? Ddimer measures activity of fibrin.  The words you used at first post was "they think I have a blood clot in the lung". Damn I will be pushy---are they checking your heart out.

sas-schatzi

Ducky 2nd guessing medical care or at least asking the right questions saves lives. One of the bigger problems in the country is that women with heart complaints are misdx'd, ignored, managed wrong. Google it. Actually the problem was identified as a problem about 10-12 years ago.  AND I wouldn't hang my hat on them making the connenction between her wound and a positive d-dimer.

duckyb1

Veggy glad you to some rest..........relax Sweetie, and let the Pro's handle this......I am sure they are looking at everything........having confidence in your Doctors, (while still being your own advocate), is so important.......yes they put their pants on one leg at a time like we do, but they have the Medical Degree, we don't........always ask questions, no matter what.....but you have to "love" you Doctor's, not like........"love"........and confide in them..........mine were wonderful.......hugs

Anonymous

ducky - LOVE the lottery ticket idea!  I will try that with my rads in September. 

chicklet - I agree with ducky and others about rads.  My first time around, I read what I could and concentrated on the good stuff, but still had a feeling of dread in my stomach.  Have to say though, that it was unfounded. I had to take a nap every afternoon, but I might have done that anyway!  I had very minimal pinkness and did not even have to lotion it up more often than usual.  I was very lazy about that.  After my rads appt, I would go have lunch with whatever friends or former coworkers that might be available on a particular day.  Got to eat lots of great food that isn't available here in the wilds of Nebraska.

Chevy - gee, that approach doesn't work with DH anymore???  Spaghetti in bed?  Why the hell NOT?

Beatley - you are so sweet!  I feel a little crumbly today - got the shakes a bit.  HOWEVER, I feel good and have energy!  Must be the combo of decadron and fentanyl.  I've done more around the house this morning than in the past week.  I even took 10 minutes to sit on the porch and watch the kids in the park across the street.

I have an MRI this afternon of my right hip/groin area where I've been having a lot of pain with this chemo.  I'm almost positive they will tell me it's old age.  I had my port accessed on Monday for labs and left it accessed for chemo yesterday and again for the MRI contrast today.  I do NOT like sleeping with a needle thingy taped into my chest.  I can get it out this afternoon.  YIPPEE!

I want Maggie Smith or Susan  Sarandon to play me in our movie because Maggie has a tounge like a sword.  She can tilt her head a little and smile and cut them off at the knees.  Susan because I think she's great and men love her!  When I was a a young thing in my 20's I used to tell people that when I grew up I wanted to be a character.  I think it's happened and both those ladies can do that.  Hahahahahah, plus they both look better than me.

blondiedear, cammi and vegetating - I hope your pain is better today.  PAIN Sucks!

I had some very fun and insightful stuff to say to Wren, cammi, and others but.....gone now!

I watched "Michael" with John Travolta and Andie McDowell again last night.  Love that movie.  I was laughing and sniffling through the whole thing.  It's just a nice movie with some standout scenes.  "My, my, I love pie".

Here is what my niece had to say on my FB page that I updated yesterday and is just one of the many reasons I LOVE that girl!  "Go gettem' girl! You tell that cancer to suck it!!!"

duckyb1

Philly.......Good answer...tell it Ike it is.......

camillegal

ChickaD---Ducky is so right it's nothing to be concerned about--but now u have 2 more chemos--I'm sorry--buy a lottery ticket a day good idea.

Oh my DD was an extra on that movie Michael, she had a great time and was treated very well.

gardengumby

chickaD - I thought that if you had the paperwork you could keep your service animal with you.  If ever you need 'em it's in the hospital!!!  That chemo nurse should be read the riot act - send her our way.  We'll tell her what's what!!!

sas-schatzi

Gumby, what is that beautiful flower in your avatar?

camillegal

I'm baaaack--whew I'm in my comfortable clothes and it is beautiful out. Best day we've had all summer here.

OK here's the scoop---my colon is moving around and has some very thin spot, that have moved where my liver should be, so my liver is now further and pushing into my ribs (she was showing me my test) of course she said the configuration of what she was lookin at was very rare but she's not a surgeon so altho she's never seen this before or my primary has never seen it before doesn't mean a surgeon has never seen this. She said there is no tumor visible but the surgeon will have to determine just what to remove and have it tested. Then I told her I was allergic to anastisha (sp) she put her head down and said everything u've been thru is all so strange LOL u really fall into a low % of people who have dealt with cancer--I think that wasn't so good. hahaha First my B/P was 184/124---they had to do it gain then it was 124/55 the leg is trickier than u think I told the girl that so she got a nurse. Now I have to go thru my Primary and(she also said surgery) but I have to call my brother first---I told u one of his good friends is The chief of staff there and I want a good surgeon. I had the best at the other hospital--I'm in a little quandry here only because I can't be put out. Can they do an epadermal or something like that? There has to be other people in this situation. And I told her my theory about another bladder infection--I think it never goes away and satys dormant for maybe a week then comes roaring back with all that pain. ho hum--I've thought entirely to much today. That's not for me. 

gardengumby

Sas, it's a plumeria, also known as frangipani. They are so pretty and smell like heaven. One of my favorites. They are used to make leis in Hawaii.

juliaanna

Cami, happy to hear there is a plan being formulated. You deserve a restful evening.



Mary, did you have some more tests today? How are you doing?



Chicklet, bummer about Cooper and extra chemo.

sas-schatzi

cami what a scoop, Good luck. At least you have an answer. I talked about an anethesia consult awhile back. Maybe Chevy saved it.

Gumby, Thanks, I would love to color wash a bedroom with those colors, they are sooo soothing

Veggy try jeff dunham on you tube if you need something to amuse yourself. Peanut, Walter, and Achmed are the best. Not fond of Melvin or Bubba

Lezza13

Veggy, I hope you get a new room and will say a prayer for your healing.

Chevyboy-thanks for the warm welcome.  It's Lezza with two z's not ll's. LOL.  I love this crazy group and appreciate your kind thoughts. I am fine on tami and am post op and doing ok

camilegal- thanks for your kind thoughts too.  I think you would want to be out for exploring the colon but I have heard of people being on that "happy" light anethesia.  Glad they have a plan to work with you. I have had 5 colonoscopies over the years and not so bad. wish you call the best.

gardengumby-nice to see you visting over here. Have seen you on other boards.  love you avatar too

ladies, I peek in once a day on these boards. It is fun for me during my healing and this board I like.  So call me what you like just call (sorry old joke from a younger lady who will now STFU)

marywh

Cami, my mom couldnt do anesthesia either, so when she had her hip replaced they did an epi. Just had chemo today, so will probably be mia for a little while, we'll see. I hate this stuff. I was trying to keep up with Philly on the tricks to pull during chemo, but the only things I could think of was to unplug the blanket warmer or snatch the last couple pieces of the jigsaw puzzle...but that wouldnt have bugged the nurses, just the patients so I didnt do it.....

blondiex46

Veggy OMG I am so sorry.....pain? How annoying is that are you feeling any better, is the pain subsiding?

dwiiii...let us know how it turns out, fingers crossed

Chickie I am so sorry about the chemo and as far as Cooper I thought the point of having the papers was to prevent this, WTF....

Thanks Sassie!!!

Hope everyhing is  going well for most of you, I think about you all....

HUGS, MARY, CAMMIE, CHEVY, DUCKY, GRANNY, PHYLLIE, SHELLIE, CMB, AND ALL OTHERS THAT i HAVE FORGOTTEN....

Everything is doing ok now, my week off from chemo soooo if it wasn't for the oxygen I would be ok...feeling good, nauseous but that is always....supposed to be in the 70's tomorrow that is exciting....miss talking to you guys as much as I was.....I think also I decided that I just can't work at Macy's anymore....can't be dragging a portable oxygren around and wonder if I will be able to do it anymore, very depressing, in my head I am 32 and able to do all kinds of things, physically I can't...although I can spend time with grandchildren, Friday is mom mom and Andrew day so going to the movies is what he wants to do....trying to look at the postives but in september would have been my 5 year anniversary.....maybe I shouldn't write them off just yet, it just feels like it...

camillegal

Mary I would unplug the stand and when for a minute or 2 the nurses were getting things from the back I'd sit by the phones and if they range I answered it. One of the things I used to do

And Mary I thought the same thing about an epi they will remove some of my colon so as long as I'm like frozen and I can sill sing I'll be fine.

juliaanna

Anyone hear from Sweet Pea recently? I remember Austin was ill last time I remember her checking in.



Mary, hope the chemo is kind this time.

ChickaD

I sent Miss SweetPea a PM and she has not responded yet..

Shellshine

LEZZA, Chevieeeee - you spelled it wrong. All my poetic energy wasted. Let's see here, Lezzette, Lezzaria, L'ezzance..... 

VEGGY - Get better and get your skinny butt out of there NOW. Pls tell us what your diagnosis is and if they have any ideas about the cause.

Chicklette, so, so sorry about your chemo. Please tell us what the schedule will be and when he thinks you will be done. Ask the chemo nurse what the process is for comfort dogs, you don't want to get her grumpy at you, so ask her to help you, that the pup really helps you feel better.

Garden Gumby - I had PE's so many times I had to get a pulmonary artery thromboendarterctomy when I was 38. It was scary. Found out a couple of years ago I have antithrombin-3 deficiency, hence the propensity for clots. Been on warfarin for 20 years.

I had my procedure done at UC San Diego, there's a short video about it: http://heartcenter.ucsd.edu/pte/Pages/default.aspx

Thinking of you Philly and Blondiee, hope you are holding your spirits up.

Spookiesmom

Hey Sas, we can grow plumeria here. I have a bunch of it in my yard.

ChickaD

Forgive me Miss Garden and Lezza...not sure if I said welcome and hello...BIG chemo brain.......

Anonymous

I think sassy told me she has spoken to sweetpee. I think...always dangerous!

Spookiesmom

What? Thinking? That's a bad thing for me!

sas-schatzi

Sweat Pea called me on monday about the thyroid stuff. She had her herceptin shot which she said doesn't bother her like the regular chemo. Austins better. Teething molars. Walking up a storm:)