IBC, SURGERY, RADS! PLS HELP!

suzilla

Hello Ladies! Hope you are all getting by with chemo with few side effects.  I have been thinking alot which is something I shouldn't do cuz I sbegin to think negatively.  Well I have two more rounds of taxol to go or maybe one if my neuropathy doesnt get too bad. Has anyone stopped taking taxol early due to neuropathy not getting worse so it wont interrupt your quality of life? How much of a difference will it make if I dont do the last taxol? I have completed all 4 rounds of A/C treatments and 2 taxol treatments..so far my neuropathy is ok i feel it from time to time but my right shoulder joint aches constantly, is this from chemo? Also, since I have a tendency to think way ahead sometimes.....and since surgery is just around the corner, I am seeking advice on some questions I have, so if any of you ladies have any information it is greatly appreciated.

Questions:

1. Do we have to write a will out for bilateral mastectomy with axilla lymph node dissection? This brings tears to me for so many reasons.

2. How painful is the post op? How long should healing take? Will I be able to have motion in my arms?

3. Should I ask my oncologist or surgeon for a physical therapist to increase healing in my arms and in case of lymphedema?

4. I hear beaing nauseous is a side effect from the anesthetics, what can I take prior to surgery is there a patch that prevents this?

5. How long does surgery take? How long will I be in the hospital?

6. Should I be scared?

7. What list of items should I take to the hospital? what types of clothes should I wear? Where can I get a post op camisole with pockets for drains?

8. Also any information on Radiation?

I have IBC, stage IIIb, estrogen and progesterone negative,  cancer did not spread, but I do have the gene. so that's probably how I have this.

I await anyone whom can respond. Thank you all and God bless you all each and every day!! HUGS!! to all.