DIEP 2013
Comments
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phew....didn't lose the last message. Now want to add YEAH 2TIMER!!!! Wonderful news on the negative nodes. You should be fine on your own for a few hours at a time....good time to nap!
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You in Ohio I had mine at the Cleveland clinic , I'm good just a lot of burning not taken pain med a will not since 3:45 am today .
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sbe....NO..DO NOT PLACE IN MY MIND THE NOTION OF LEGLESS REPTILES IN MY MOUNTAINS!!!! I confess, I was once viciously pursued by a demented garter s***e while walking in a park near my former home...it had me in its sights...was 98 feet long....fangs like a mother*****r......took me over a month before I could walk down that path again!!!! hmmm...I wonder if bear spray would have fought it off???
crazy info...the community I lived in for many years before moving here, was......Lake CHAPARRAL!!!! We were destined to meet!
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RE shower chair: just realized my kneeling bench for weeding turns over for sitting! It is locked in position so sturdy. Might have to put a towel on the shower floor to protect it. Just sharing the idea.....(getting ready for surgery/recovery costs do add up...)
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perfect solution, as long as it is high enough so that getting up from sitting is doable when you are a bit "compromised" in energy and flexibility. You can also sit on a couple thick towels stacked on top, but they will "compress" when wet. Yup, towel underneath works well.
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I think the rectal swab is to check for c-dif. It is really making the rounds in the hospital these days. If you have it, or are carrying it, they will make sure you are treated for it.
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Thinking of Movie and all the girls who are going in tomorrow. Sleep well and we are all with you.
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Janet_M, you crack me up, you pillow lover! I'm glad they helped you.
Movie! Wilbur needs to stay away from the computer! I hope you get good rest tonight.
As for compression, I wasn't given any until a couple weeks after surgery when my tummy on the left side started to swell. I was given a binder. Now at 6 1/2 weeks it's more for my comfort, they say. I'm not looking forward to spending a lot of money for compression garments for stage 2. Does insurance cover it? I already get LE compression garments--not sure how much compression they'll allow. Meantime, I feel like a sausage!
DebDylan, I am so relieved that you got good news!
Christina, I hope you get good "hair" answers tomorrow.
Good luck to the soon-to-be flappers and 2nd timers! -
Just checking in to extend good wishes to this week's DIEP girls, and those doing Stage 2. May your recovery go smoothly, and may you heal well. As we've seen on here, things can go wrong, so take care.
My heart goes out to all those of you who are struggling to heal. It is hard enough to have cancer, go through treatment for that, and get your courage up for this final surgery only to go through more hardship.
2timer, hope your pathology will be favourable.
Cstrong, I'm also in Canada, and compression was never mentioned when I had DIEP surgery. Never wore it, and had no problems. It seems to differ from surgeon to surgeon.
I'm going through some worry myself at the moment. Had an X-ray and bloodwork done today because of a tender spot on my left chest wall, the DIEP side where the ca was. X-ray is clear, and bloodwork normal. So now still facing a bone scan and an MRI. Hopefully it can be scheduled soon so that I can relax. Paranoid, I know, but I just don't take these things for granted anymore like I did before bc found my address . . .
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I have oncology tomorrow. Man, I'm tired of doctors, but thank God for them every day.
Immediately post op I had a true surgical binder, like a 1920's girdle, that stayed on 24/7 until my 2 wk follow up. After that, I was allowed to take it off twice a day to let my skin breathe, until my next follow up. Then, just wear it during the day as long as I laid on my back. I think it was about 6 or 8 wks that I stopped wearing that monster and started wearing just simple "spanx", basically elastic gentle support. At my 12 wk f/u my PS said I should wear the spanx all the time for now because I have a fluid pocket, not quite a seroma, but fluid build up, just the same. At the end of the day, if I don't wear the spanx, my belly swells very weirdly and I look about 4 months pg, just on the left side of my belly button! Very weird.
My surgery was May 24, so 14 1/2 wks post op, my incisions are almost healed, with just a few 'scabs' trying to heal up, but no deep wounds. I have belly swelling and stand 99% upright, with occasionally feeling like I'm bent over, mostly shoulder fall.
If you read my older posts, I went through the period of questioning "why did I do this", "they should not be allowed to do this to people, EVER" etc....It was a rough time. No two ways about it. At 14 + wks I can say, you will make it through. Set backs, maybe. Regrets, only short lived.
My breasts are not the 21 y/o breasts my PS joked about (never promised), but, they are slightly better than pre-mastectomy and I have Stage II and more to look forward to.
Showers: I was not allowed to shower for weeks after surgery. Not until my drains were out. I went to hairdresser for hair washes. My husband washed my hair in the kitchen sink, me leaning forward bent over (I'm tall enough), almost every other day. I did not have a stool, or seat, in the shower. Just leaned forward and let the water run over my back.
Recliner: I never did get a recliner. I could have used one, though, and do recommend it. Rentals are available from some medical supply companies.
Most important pre-surgery prep: re-arrange your home so that you can reach everything without raising hands over head, or standing up straight. IN other words, everything about waist level. Seriously. Pull a stack of dishes down onto the counter, not up in a cupboard. I couldn't even lift a gallon of milk!
LET PEOPLE HELP YOU!!! I had my husband and my sister trading off. I owe them big time!!
Best of luck and prayers for this weeks surgeries. We are here for you.
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I am 12 days out and things seem to be going pretty well (touch wood). My drains all came out in hospital (the last on day 5)and no infected drain sites. Phew. Right nipple looks a little battered but it's getting better each day. For the main, I am pleased with my new foobs. I am happy to have a cleavage at all. After living with a deflated TE for 3 months, I feel like a new woman! I suspect the foobs will need to ‘settle’ before any tweaks to shape are thought about.
Saw PS yesterday. Abdominal binder for 6 weeks. I have just ordered some SPANX singlet tops on the net. I wonder if these could be a substitute? My binder has three massive Velcro tabs and is a pain in the ar$e to get on and off. I am hoping the SPANX may be a more pragmatic alternative. I feel like I am about to lift some extreme bar weights every time I put it on!
PS has given me the OK to have my gallbladder out in 5 weeks along with my scheduled oophorectomy. More surgery – yippee- NOT! I have been having gallbladder attacks for the past 6 months and had one 5 days after surgery. He’d like me to wait longer to reduce the risk of severing internal stitches when they do the keyhole surgery but it’s a catch 22. Gallbladder attacks coupled with this abdominal pain are no fun!
I have started wearing a wire free shelf bra and wonder if this is OK? Ladies, who is wearing a bra and what type? I have a couple of post mastectomy bras with straps as thick as seatbelts. I would prefer to stay in the tweenie style crop bras as they are much more comfortable. I forgot to ask PS yesterday for his views about the best bra.
My biggest gripe throughout this ordeal has been sleep. It’s so hard to back sleep and I think general anaesthesia must have mucked up my biorhythms a bit. It takes me forever to get comfy and drop off. Young kids awake at the crack of dawn doesn’t help much either.
Good luck to all of you with surgery coming up and for those of you with healing woes. May painfree recoveries be on the horizon for you all!
Jubby
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jubby: I can't even imagine gall bladder issues post op DIEP. I had my gall bladder out years ago, but remember those attacks. ouch!
I use spanx. Yes, a comfortable but compressed alternative. Wear one to your next appt and let the surgeon comment.
I wear simple, front closure sports bras by Fruit of the Loom. $8-10 each at Walmart. (I see you are in Australia. Not sure what you have there now).
On a non-treatment note: I lived in Australia as a child, from 1973-1975/6. We lived in Gosnells, outside Perth, WA. Small world.
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Deb - so glad to hear it's all okay.
hrf - I hope your foob is okay!
Hi to all the new ladies, gentle hugs to this week's Wilbur Warriors
Sleep is currently my biggest struggle. I didn't notice at the time, but I didn't have restless legs while I was taking the narcotic painkillers. Now that I'm off them completely, it is worse than it has ever been before. I spend most of the night getting up and wandering around the apartment and am averaging about 3 to 4 hours sleep a night. I guess it's largely due to the horrible back-sleeping position. Hate, hate, hate it!!!
I feel bad complaining about such minor issues when some of you are facing huge struggles with healing. I wish I had a magic wand to wave that could make all of us better.
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Big Wilbur "Hellos" at 2AM.....want to wish ALL going in today, AND rest of this week sweet dreams, speedy healing, and no complications, which, as Liefie pointed out, are always lurking.....
Woke up from Stage 2 with THREE drains.......1 in each foob, and 1 in abdomen.....which PS promised to put in existing crotch eye. However, I am bound up in compression from neck to crotch, so I have no idea WHERE any of them are. Still a little fuzzy on the deets of this surgery, but I DO know he ended up not needing to do mesh in my abdomen, and a part of me is relieved, as my body has been so weird about foreign objects (like drains) throughout this fandango.....other part is curious about what he DID do.....will find out at follow up either Thursday or Friday. I knew I would have no lipo this surgery because I am such a slow healer, and so he put off that procedure until 2b in December.....fine with me! I have lost 18 pounds since stage 1' and will try to lose 10 more by stage 2b.....maybe there will not be a need for ANY lipo.....Haha......Hope I get out of this compression monkey suit before warmer weather returns to Portland ( Goldie, here in Portland, Oregon, ANYTHING over 80* qualifies as warmer, and 90* is downright HOT!).
I am so damn sore in upper foob/chest area, and between there and armpit.....I feel like my girls have been rotated 180*! ( which I am sure is NOT the case-but it feels like I have been doing those chest exercises where you are flat on your back and your arms are spread-eagled and then you bring them together over your chest......with at least 30 pounds too much weight....yikes!) Nihahi , not sure I could hold my hiking sticks, and I sure as hell won't be doing elliptical training for a few weeks......lol.
Abdomen-not much if any pain there.....verdict still out as to how wide open he took me for this, but it feels like about 4".....I know he rummaged around in there, but don't know exactly what he did to flatten me out, but flat I am......yay!
Please put me in the sore throat category.....still feels a little raw, too......
With all the healing complications some of our dear sisters have encountered, and the outright flap failures, I went into this surgery with a broken heart.....so not much communication from me. I was reading, and crying, a LOT. I want you sisters to know you are in my thoughts and prayers, constantly. Like someone else (Lahela?) said, I wish I could wave a magic wand and make everything better for all of you. XO
Well, Wilbur is knocking at the door...ready to take me back to the Land of Nod.......yawn.......
Love you all.....couldn't imagine making this journey without you......
XO -
Goldie - 5HTP did work for me, it converts seratonin into melatonin. I was wired all night for the 2nd night in a row...argh...cant recommend it:( I read if your seratonin levels are normal it can affect you this way...use with caution. Didnt work well for me, sleepy initially and then wired for the night!
I am gonna go back to good ole fashioned normal "no help" sleep. It just gets frustrating - hate my menopausal sleep....fall asleep, wake up, fall asleep...repeat. Now I am finished venting.
All the ladies going into surgery this week, may you have a nice long sleep with no complications.
Movie - great to hear that things went well!
Jubby - cant imagine having to deal with galbladder issues along so soon after this surgery - YUCK. I had an ooperectomy done lapriscopically in 2009. Three little incisions, one by bellybutton and two down below in the nether region. Some pain and bloating due to how much air they have to pump into you to get at the ovaries. Was off work for two weeks but probably could have gone back after a week.
Hrf - hope things are okay with the flap..its hard enough dealing with the recovery and then having to worry if things are okay.
She - glad to hear that your regrets were short lived about the surgery, makes me feel better that I am making the right decision to plow ahead with this.
Liefie - crossing my fingers that all turns out okay with MRI.
Nihahi - dont have a surgery date yet, believe the office is still on vacation. They were off all last week too.
Thinking of all the ladies in waiting and those struggling post surgery!
Michele
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Ugh, hit the wrong buttons and lost the beginning of my post going from the last page to this one.
sbelizabeth - lol'ed @ your camping story. This is why I don't even want to learn to shoot a gun... and my DH agrees. lol
oh liefie I hate waiting for tests, and test results. I hope your results will come back totally benign and boring.
Jubby, sorry to hear about the gallbladder pain and the sleep issues, but overall you sound like you have a fabulous attitude about things and are doing well! That is wonderful, especially at only 12 days out!
wow Movie, sounds like you've had an intense stage II. I hope you have gotten some rest and are feeling okay. This is such a rough process.
Hope everyone feels well physically and emotionally today!
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Nahahi ... I had internal dissolvable stitches. The skin just ripped thru them. They feel due to tension and possibly infection
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It's always a good morning when there's a message from Movie on the thread! So good to hear from you girl...take the dang pain meds if you need them! FLAT TUMMY!!!! WHOO HOOO YIPPEE AWESOMENOUS!!!!!! I know you sooo wanted that "se", glad it finally has happened for you. Tell Dave, you now need to shop for some fab clothes, including fancy shoes, since you can now look down and see those pretty toes!!!!
Sleep...wonderful when it happens, terribly common when it doesn't. I think, in general, women have more sleep issues than the guys. Given what everyone on the thread has been/going through, it is mind blowing to me, that any of us get any sleep at all!
Turning slowly into fall here....nights are cooling down to around 10F, but days are still hot (for us) mid-20'sC. A few leaves are showing fall colour. This time last year, I was miserable with a painful, alien implant....time does heal.
Have great days ladies....Wilbur....you are busy today....look after our ladies.
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Jubby - ugh gallbladder;( can't imagine at the same time as DIEP. Stay strong!
Curly locks - hugs to your sister! Don't want to say welcome;(
Barbmal - your dream had me cracking up and wincing!! I have been jerking hard in my sleep since I've been home. Hubby keeps asking what my dreams are!!;)
Day 19 Breast are still Large. Still bruised. Still tingle and burnish. Incisions look great. I change my bra 4x a day because I feel nasty.crazy I know.
My stomach SMILE looks great! My stomach is flat and I think I'm gonna leave my hips alone because I use to them!;) GOT a 1 in PUFF (my words) that I may want my PS to fix that but no infection! So glad!
**Ladies up at the school today for my 1st grader 1st day said I look the same. Not if they saw my FLAT DISC Boobs!! Lol
Gonna nap because taking my son to school made me tired. That I can't wait to go away...
Got me a 24oz PUMPKIN SPICE latte!!!!!!!!!!!!!! So good. Having a healing day all! -
Monday started my 4th week out from my surgery and I think I am doing pretty darn good all thing considered, no complications or any major issues so far (knock on wood,rub the rabbits foot, and everything else). I just wanted to wish the women who are going in for their proceedure all the best and I know it's really hard but try to stay positive. We are here are here to support you.
My PS told me get out there and start walking...but walk half as fast and half as far. So today I am going to make it 10 houses and back. I can't do the half as far yet, (before surgery i was at 3mi/day) but I am on pace for the half as fast. Small victory, but I'll take it. -
I found this article, and think it is a really good basic info source for anyone interested.
How Your Diet Can Aid In Wound Healing
Without proper nutrition, the whole process of wound healing can be negatively impacted. Your diet during recovery plays a critical role in how fast your wound heals, how strong the wound tissue becomes, the duration of the recovery period and how well your body fights off infection. A poor diet can turn a normal wound into a chronic wound that never seems to be get better.
The Catabolic Phase
Even a small wound can alter the way your body metabolizes nutrients. As the body attempts to heal itself from a wound, it will create stress hormones and divert extra resources – carbohydrates, fats, proteins, antioxidants and more – to the creation of new tissue. This is referred to as the catabolic phase of healing. Your metabolism essentially speeds up during this process.
If the catabolic phase drags on too long, protein energy malnutrition (PEM) can set in. This begins a negative cycle which slows wound healing and deteriorates your health. Your body sends extra protein to deal with the wound and, as a consequence, other important body systems and organs don't receive enough protein. This leads to reduced muscle mass and delayed wound healing.
Proper Nutrition in Wound Healing
Protein is the most important aspect of your diet when healing from a wound. Energy (calories from carbohydrates and fats), amino acids, antioxidants and minerals (zinc) are also important. Your dietary needs will be calculated on an individual basis, and your doctor or nutritionist may adjust the levels of each nutrient to facilitate healing. The following guidelines are only generalizations, but will give you an idea of what your diet should include.
Protein
Protein helps repair the damaged tissue from your wound. You'll want to take in more protein than usual to help the healing process. This means 2 to 3 servings of protein a day, with each serving containing at least 2 to 3 ounces of meat (1 cup of beans or 2 tablespoons of peanut butter are alternatives). Your doctor will want to monitor your diet closely. If you don't take in enough calories, the body might convert more of your body's protein to energy instead of healing.
Fats
Fats from dairy products are essential for wound healing. Cell membranes are created with the use of fatty acids, and you'll need to take in extra sources of these to maintain healing. Cooking oils and meats are also a good source of fats. One cup of milk or yogurt or an ounce of cheese would be good examples of how much you should include in your daily diet during the healing process.
Carbohydrates
Taking in plenty of carbohydrates is essential, to prevent the body from using other nutrients and protein for energy. Cereals, breads, rice and pasta are good sources of energy, and should be included in your daily diet.
Vitamin C
Vitamin C is an important antioxidant for wound healing. It increases the strength of the wound as it heals, and it helps with the creation of collagen in the skin. Vitamin C is also important in the creation of new blood vessels, and it helps with iron absorption. Citrus fruits and leafy green vegetables are great sources of vitamin C. You should be taking in up to 200 mg of vitamin C daily, which is fairly easy with at least one serving of these foods per day.
Vitamin A
Vitamin A is another crucial antioxidant. The body needs additional vitamin A to help with wound healing. It can help fight off infection, and aids in controlling the inflammatory response. Vitamin A levels have to be monitored closely, because toxicity can occur if too much is consumed. Red fruits and vegetables, eggs, fish and dark green vegetables are all good sources of vitamin A.
Zinc
Zinc helps the body synthesize proteins and develop collagen, so it is an important mineral for wound healing. As long as you are taking in sufficient amounts of protein from meats, you should be getting enough zinc in your diet. The level recommended by your doctor will vary from 15 to 50 mg per day.
Take extra care to follow your physician's dietary advice, especially if it is a prescribed diet. Diabetic patients will have additional considerations when devising a nutritional plan with their doctor. A final note is needed to emphasize the importance of hydration for wound healing. Drink plenty of water and fluids throughout the healing process to help facilitate proper circulation and detoxification.
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Nihahi, great article. Thanks for posting it.
Tracy, sounds like you are doing great. I still have a drain.....yuck!
I didn't realize that so many were having trouble sleeping. I thought it was just me.
To all who are getting ready for surgery, best wishes. We are here for you. -
Ladies, I forgot the most important part of my surgery yesterday.......on the way to the hospital.......car got a flat tire.........SO GLAD I TOOK THE XANAX BEFORE I LEFT THE HOUSE!!!!...........
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Movie- So glad to hear from you! Speedy recovery!!!
Good luck to all the new ladies going this week and other stage two folks. Im doing a drive by posting and waving at all my wonderful diep sisters! -
Ladies got word my surgery is in November 2013! Omg not far away...will get date very shortly. We are going away for a week to Mexico Nov 9-16...ps knows about trip . so it will most likely be end of November. I am very,very nervous:)
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Wow, Movie. Sounds like you had a huge stage 2. I know you will be back on your feet very soon. You have been taking such good care of yourself.
Lahela, I don't know what it is about the insomnia, but it seems we all get it about a month, or so after a long anesthesia. There were some nights where we were all on here at 3 in the morning. I don't get it hardly at all anymore. Maybe it has something to do with the anesthesia leaving your system, plus weening off pain meds, and your brain has to learn to go to sleep by itself again.
Curly, LOL...thanks, but no thanks I guess on the natural sleeping aid. Glad you got your date pinned down, sort of.
Nihani, thanks for the article.
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Movie....flat tire tale is unbelievable!!!! Not nice Wilbur, next year no timtams for you!
Sweet.....love the phrase "drive by posting"!!!! Hope things are going well for you.
Kiddie...just had a thought re: pain. I wonder if it is your ribs/chest "resetting" now that the pressure of the TE is gone? I was stunned, as was my surgeon, to discover what the alien had done to my ribs. Going over past chest xray reports, showed the deformity was evident, but never commented on. -
Movie....flat tire tale is unbelievable!!!! Not nice Wilbur, next year no timtams for you!
Sweet.....love the phrase "drive by posting"!!!! Hope things are going well for you. -
Craps...posting on my phone and think I lost part of my message.
Liefie....I wonder if your chest pain is due to your ribs/chest resetting" now that the pressure from the TE is gone? Both I and my PS were stunned to discover the impact the alien had on my ribs. Reading back on previous chest xray reports, the deformity was present for quite awhile, but never commented on. -
Phone is possessed..kiddie is supposed to be liefie..now putting phone down until I get home.
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