DIEP 2013

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  • christina0001
    christina0001 Member Posts: 1,491
    edited August 2013

    Sherry, I hope your fever is all gone by now and you are resting comfortably. Smile

    Tracy, I hope you are feeling better. It's so hard to keep the pain under control.

    Saw my PS today for my 3-week check up. Everything looks great she says. In about two months she will lipo my foob a bit so it matches the size of my natural breast more. I am scared of more pain so I am still hoping it shrinks quite a bit and no lipo is necessary. I'll see her again in two weeks. She agreed to let me go back to work halfdays next week, and then fulltime the following week. Sounds good to me. Oh and I told her I was still really hurting and it's keeping me up at night, so she had me taking a drug called toradol for the next five days, and then I am to switch to advil. I hope it helps! 

    Wow lots of talk here about hysterectomies. I found out 3 weeks before surgery that tamoxifen has caused a great big fibroid to grow off of the back side of my uterus. My gyn wants to do a hysterectomy once I am 100% recovered from DIEP. I'm not in any rush, it's not bothering me any and I'm tired of hurting. My oncologist is REALLY encouraging me to have the ovaries taken out with the uterus. Easy for HIM to say!

  • SheChirple
    SheChirple Member Posts: 954
    edited August 2013

    Oh, I give up.  I simply cannot keep up with the posts.  I do not have time to pop in every day and when I do there are pages and pages. I do scan, but I surely do not get it all.

    Here's my update.  BUMMER OF A SUMMER.  DIEP was May 24th, so I was in the hospital for Memorial Day weekend and missed throwing my annual pool party BBQ.  The I had my July 4th BBQ, but was unable to swim or do much of anything actually.  Today I had my 12+ wk follow up with PS. Still not allowed to swim.  Because of my history of infections he wants every open sore/scab incision 100% healed before I can submerge in any water. uuuuuhhhhhhhhhhhhhhh

    I LIVE for summer.  I have a party house where we have BBQ pool parties almost every weekend, grill our dinners most nights in the back yard, don't go on many vacations because we really enjoy the resort in our own back yard.  Not this year.

    I don't have any deep wounds open, just surface scabs on the incision lines.  I use neosporin twice daily, bandage during the day, leave open at night to air.  I just take forever to heal. Always have.

    On a positive note, all my tissue is doing really well.  I go back in 4 months to talk about Stage II.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited August 2013

    Sherry, how are you today? Better, I hope.

    You too, Mamma.  I hope you wound is doing better also.

    Christina, glad you are doing so well, and ready to go back to work.  You go girl!! 

  • Gotcha13
    Gotcha13 Member Posts: 25
    edited August 2013

    Great quote Bailey, Thank u :)

  • FierceBluebird
    FierceBluebird Member Posts: 758
    edited August 2013

    Hi girls. Hoping to catch up with all the posts tomorrow or next day. Going back in for surgery tomorrow. Finally saw PS today and scheduled me for surgery first thing tomorrow. Need to clean, debride and revise right breast. Finger's crossed he can actually pull it back together.

    love to all,

    Kristine

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2013

    Prayers for you, Bluebird....2nd time is the charm ;) you got this!

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited August 2013

    Bluebird,

    He can fix it.  I know he can. You hang in there.  I have been thinking about you.  We are all in your pocket tomorrow.  Remember, even if he has to remove some dead skin, there is always to fill it up.  I am glad he finally decided to debride.  That is what fixed my incision. 

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited August 2013

    Kristine, praying for you!



  • Janet_M
    Janet_M Member Posts: 1,068
    edited August 2013

    Hrf - I'm so glad you're home and that your sister is with you. I know it's exhausting, but it will get a little better each day. And the boob size will change during the the few weeks. It's all a work in progress, so if you get discouraged, remember that it's all in settling right now. 

    Movie & Nihahi - You girls are glorious! Such amazing scenery and so wonderful to put a faces to names. Movie, I've seen your pick in your avatar and knew what to expect, though you look bigger and better on Mount Wilbur. Nahahi - you're a wonderful surprises. Must confess, pictured you with short brown hair but after seeing you it all makes sense, and  your photo matches the energy in your posts.

    sbelizabeth - I'd like to borrow your husband

    Bluebird - Wow, that was fast! Appointment one day, surgery the next. I'll keep my fingers crossed too.

    SheChriple - I hear ya, sister. I'm joining you on 'Bummer of a Summer'. Well, actually, my summers been nice, but I haven't been able to swim. And spending lots of time attending to my 10 wk old incisions.  Went camping. No swimming. Went on a chicktrip to Florida. No swimming. Went cottaging. No swimming. Mind you - I don't have the temptation of a pool in my backyard, but Canadian summers are so friggin' short, and times running out.

    If I miss the swimming season I'm putting my money on fall, and  heading to the Scandancian spa a few hours north of her. fantastic!

  • nihahi
    nihahi Member Posts: 3,841
    edited August 2013

    bluebird....hpping for great things for you tomorrow. Sending postive vibes your way.

    sherry...huh, boring day....aka no complications. Please, do it again tomorrow....boring can be a good thing!

    shechirple....I can't keep up either, and I'm supposed to be the "lister"! No worries, it's not a contest of who is the fastest reader or who posts the most.....just good to hear things are healing up for you.

    sbe....A.D.O.R.A.B.L.E......and YES, Movie's hubby hikes in his chacos. Nothing wrong with a little dust between the toes!

    Movie....missing you! Part of me regrets that we didn't spend more time chatting about flaps, part of me is thrilled that we could so easily move "beyond" it, and just be "normal"....relatively speaking! I'll send you some more photos as I sort through them....say hi to hubby for me!

    The mods have gotten the list sorted out with the updates people pm'd me. If anyone is missing or needs corrections, just let me know. 

    Have good nights....no pj parties tonight...everyone needs a good sleep!

  • marieann1020
    marieann1020 Member Posts: 44
    edited August 2013

    Hi Ladies. such good information on  this board, 

    my pre-op is all  done, insurance is all done, I requested 6 weeks off work ( I hope its enough time )

    i just need to get my house in order Undecided

    Sept 5 is a confirmed date... I am anxious, happy, worried, all in one

    need your prayes

    Anne

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited August 2013

    Anne, the waiting and the worrying are the hard part! It is so weird how one minute you are heading for OR and the next minute you are waking up, even though it's been hours! They will take good care of you in the hospital.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited August 2013

    Welcome Ann. You have come to the right place. You will have a lot of questions.  We love to answer questions.  You might worry, we will help you not worry too much.  We are here for you!

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited August 2013

    Hi, Anne!  Sept 5 is just around the corner!  It's like dreading it and waiting for Christmas morning, all rolled into one, isn't it?  Are you doing a delayed DIEP or do you still have both breasts right now?

    I had arranged to take six weeks off and then went back after five, and I was fine.  I work at a desk, though, and the heaviest thing I lift is the telephone.  I'm a nurse, and if I were still slinging patients around it would have been much longer.  

    Don't worry too much about the house.  We've all done it, gotten ourselves all spun up about getting things perfect before the surgery, and it just doesn't matter that much.  Do you have help at home--older kids, a husband, significant other?

    We'll get you on our list, you'll be in our hearts and prayers, and we'll all be in your pocket through this whole rodeo.  

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited August 2013

    Jeannie, I'll carry your pack, or we'll bring the hubsters along as sherpas.  Or maybe we'll rent a llama.

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited August 2013

    Sbel, what a wonderful offer! I am touched. All of those ideas sound good! Maybe we could corral one of those mt. goats.

  • hrf
    hrf Member Posts: 3,225
    edited August 2013

    Anyone have tips for sleeping on your back? I can't sleep like this.

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited August 2013

    Ugh, Hrf, I struggled with that, too. I used a long wedge pillow to lie back on with a regular pillow under my knees and a pillow on the floor side of the bed, too. I just started sleeping on my side this week!

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited August 2013

    HRF...drugs.  I am not kidding.  When i first got home from my bmx I had to take my pain meds at night to sleep on my back. Did you have an mx and recon, or just recon.  if you had both you probably will not be back on your side for at least 6 weeks.  You will eventually be able to do it, and it helps with wrinkles.  i believe Faith and i were talking about that.  You will notice a difference.  It's amazing.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited August 2013

    BTW...we really haven't heard from Faith since she got her path report back on her thyroid.  I know she has a lot on her plate, but i wish she would drop us a quick line.

  • kuka21174923
    kuka21174923 Member Posts: 427
    edited August 2013

    It's looks like another sleepless night for me. I don't know what else I could take to be able to sleep all night, ugh!

    My heartburns continues and I have to take medication for it every 12 hours. It really stinks not being able to lay down when I'm tired.

    I was going to start the gym this week, but got so busy with school and cub scouts stuff that I didn't. But next week I will! I can't wait to get in that trade mil and run!

    Bluebird, I wish you the best for tomorrow. I know everything will turn out just fine.

    Ann, the waiting is the worst. If you're anything like me go shopping for clothes to wear after surgery and a few sports bras. Retail therapy always helps!

    Sbe, that baby is adorable! I wish I could hold her.

    Nihahi, I didn't picture you like that at all!! You look so young and full of energy!! And movie looks great! Much better than her avatar picture! I'm trying to decide if I want to go camping with my son and the Cub Scout in October. I think physically I'll be ok, but I've never liked to sleep in a tent without the luxuries I have at my house. But we'll see!

    Meet the teacher is tomorrow and I cannot wait to find out who my kids teacher is going to be.

    Shechirple, I feel the same way you do about summer. I had my DIEP in April, and I was able to swim in June, but since I had my stage 2 two weeks ago I won't be able to get in the water for the rest if the summer. That's all we do during the summer, is cookouts and pool parties. Now I'm stuck sitting outside in the heat and watching everybody get refreshed😞. But next summer I'll be wearing a bikini with a hot body!

  • klanders
    klanders Member Posts: 244
    edited August 2013

    Hrf... Recliner! It became a best friend for months because I could never fall asleep on my back and I couldn't lie flat anyways. To support my head and neck I wore one of the travel pillows upside down- so the thick middle part was under my chin instead of behind my neck. It really worked!



    Hi, I'm a lurker! I can never keep up so I just read the posts that I can. I'm a NOLA girl. When I went to NOLA I didn't know that I would be having DIEP because the docs at Univ. of Michigan all said I was too thin and they would only do implants. I'm so thankful my surgery at Michigan was delayed and that gave me time to find other options - thanks to the forum boards. I'm four months out from my bilateral mastectomy with immediate reconstruction doing an extended DIEP. I'm very happy that I was able to do skin and nipple sparing. My stage 2 is on Sept 4th.

    I had a DaVinci robotic hysterectomy this past December and kept my ovaries - not knowing that 2 months later I would be diagnosed with cancer in each breast that is 98% estrogen driven. I have an aunt who had breast cancer but we both tested negative for BRCA. I've read that a good way to avoid cancer is by not drinking alcohol, losing weight, and stopping smoking - well - never done any of those things and never been overweight so no guarantees there! My husband thinks it is all the Oreos I've eaten over the years. ;-)



    So thanks for everyone's posts and encouragement even to those of us who don't have time to write or keep up. My firstborn heads off to college next week so this has been quite the year for us. DIEP was not easy but I'm glad I'm on this path.

  • sweetpickle
    sweetpickle Member Posts: 749
    edited August 2013

    Hrf- pillows, lots and lots of them. I sleep with seven to eight propped up all around me. It allows me toturn over in my sides without feeling all the pressure.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited August 2013

    Congrats, Klanders,

    Sounds like all the stars lined up for you, and everything turned out perfect.  I have also been told I am too thin for diep, and to gain some weight.  I have other things come up, and I am still waiting.  I am curious, how big of breasts were they able to give you?  Are you smaller than you were before?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2013

    sbelizabeth:  At first my ps said he would take (if needed) a large vein from my calf probably at least 8-9 inches long.  I said no way -- I don't need a huge scar running down my leg and quite noticeable!!  That is when I also declined the intermammary vessel although if the one under the armpit wasn't viable, I told them to close me up and not do the diep.  Now scheduled for phase 3 - a 2nd revision to even out -- WISH ME LUCK !!  Decided long ago not to do tattoos. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2013

    Sbelizabeth:  Just wondering in your profile you have two separate lumpectomy dates?  Then also left mastectomy?  What were the details to warrant 3 surgeries?  If you want to PM please go ahead. 

  • nihahi
    nihahi Member Posts: 3,841
    edited August 2013

    ann.....We totally understand where you're "at" right now....the best advice is to try to eat well, rest and relax, (with meds if necessary), and do things you enjoy while waiting for surgery. The house will look after itself....it's not like you won't be allowed to go home, if you don't pass "inspection"! Liefie is the queen of the "house ain't ready" scenario and will back me up, I'm sure! We all have you in our thoughts, no need to ask.

    speaking of Liefie.....where is she????

    Goats......did someone mention Mountain Goats????

    Back sleeping.....sucks if you're normally a side sleeper, but, you can get used to it. I had to stay off my sides for months before my flap surgery, because of crappy shoulders. The recliner does help for sure. 

    Kuka...you are too funny.....now I'm wondering what you thought I looked like....bent over and with a cane??????? You're as old/young as you "live", in my book! You should see me get out of bed in the morning....probably closer to your "image" of me! Sorry to hear about the heartburn....but if you're having that, and not sleeping, and still healing, and getting kids ready for school.....maybe that's enough for this week, and the workouts could wait a bit longer????? 

    sweetpickle....what have you tried to ease the hip pain??? Have you mentioned the pain to your doc? Ever tried glucosamine??? I have taken a really pure form of it for several years now, and it has helped my "old" knee lots! The kind I take is called "Ultimate Glucosamine", and is a white powder you stir into coffee, mix into yogurt, etc. 

    Welcome klanders...sounds like things are well with you! 

    Faith....thinking of you, sending prayers. If you are just reading, that's ok too. You'll pop in when it's right for you.

    Time to pour that second cup of coffee then get on with the day. Have good ones everyone  ((((((((X))))))))

  • sweetpickle
    sweetpickle Member Posts: 749
    edited August 2013

    Ill look into that Nihahi, love the goats! :-) I havent said anything to my doc yet because I have really only been up and around for about three weeks, after spending so much time in bed from chemo and surgery. I am scheduled to see my PS in two weeks so if its still bad then, Ill mention it. I can still function, it just takes me a minute to move, lol. I am also starting to do some stretches and leg lifts which hopefully will help.

  • kuka21174923
    kuka21174923 Member Posts: 427
    edited August 2013

    Nihahi, haha! Didn't picture you with a cane, but didn't picture you so hip either! You just look like a lot of fun! And soooooo skinny! Where did your ps get any fat for your new noobs from? That is a compliment, by the way;)

    You're right, it's probably better that I didn't start my work outs this week. I can't wait to send my kids to school on Monday! My house is going to be so quiet.

  • Goodie
    Goodie Member Posts: 244
    edited August 2013

    hrf - I second the recliner.  I'm a huge side sleeper and I love, love, love my recliner.  I bought it at the beginning of this journey thinking I'd need it for my BMX which I did but more so for my DIEP.  

    My stage 2 is schedule for Sept 5th.  Any advice from the veterans who've done this stage?  I'm starting a job on the 17th (12 days post surgery.)   It's desk work so I'm thinking I should be fine.  Thoughts?  Am I crazy to think I can start that soon after surgery?

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