DCIS not detected by mammogram

Mcall44

I was just dx w DCIS today. I knew something was awry around Memorial Day when somehow I ended up naked in the mirror and raised my r arm to brush my hair (I can't say I did the most through self breast exams:). Anyhow I noticed a slight dimple ( or skin retraction as the called it on the path report). Ended up w neg mammo and US. Saw a BS (surgeon and oncologist) who didn't seem convinced but did order a MRI. That's how they found it. Bx last tues w the rest down in history!

She even said today I was fortunate.

Would have never felt fortunate to be dx w BC, but after the waiting and wondering, I am happy to say I will be a mother, daughter, girlfriend, sister, aunt, friend and boss BC survivor!

Looking to have a lumpectomy next mo and rads to follow. If they find IDC, I will deal w Chemo too.

Finding comfort in this site and feel like a weight has been lifted...

LAstar

Your BS is awesome for ordering the MRI.  I had to ask for one.  I'd read that MRI is more accurate for high-grade DCIS, but yours is intermediate-grade -- very interesting.  Yay for multiple sources of imaging!  Your attitude sounds great -- you are going to get through this just fine.  Best wishes for a smooth treatment!

juliet62

where in fl are you? i live in cape coral, similar diagnosis so far,had rads last year.these are a great group of people, sorry you had to join the club though!

Mcall44

I'm so of Jacksonville. Going through UF shands Jax. Figured they Offer the most up to date treatments etc... Will p

Be getting the party started in a few weeks. Feel so much less anxiety since dx. Going through telling my coworkers since they are my frriends and like family. Feels good to know I can tell them their boss will be a BC SURVIOR!!.

Bar65

I was diagnosed with intermediate grade DCIS using an MRI.  I had requested an MRI because mammograms are extremely painful for me.  After getting the MRI and having 2 highly suspicious areas, I then had the most up-to-date mammogram (only 10 in the country) on the market and an ultrasound which showed nothing.  Everyone said I was so lucky I got an MRI.  For my follow-up I will always have MRI's.  By the way, only one of the two areas ended up being DCIS.  I wish they would change the standard of care for people who have dense breasts that they are allowed an MRI along with the mammo.

Mcall44

I must have had one of those uptodate mris as it is the only one in the area. I am certainly going to request this (and hopefully ins will approve it) from now on.. Not that I don't trust mammo's but one you have something that didn't show previously, I think they should be standard. My md said 80% show in MRI. Not sure if I want to take the chance or wait till it grows into a larger mass in hopes it shows up. Currently guessed at 1.6 cm on MRI, which is kinda big to me!!!