In shock
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Good morning everyone! I still have a bit of the mucositis but otherwise I'm doing better. Saw the doctor on Friday and he said my lungs are still inflamed but to stay with the amoxicillin and report back on Friday again. He's thinking it might require another round of antibiotics. Holy hannah, in the past two months I've been on more antibiotics than I have in my entire life. Anyway, onwards and upwards.
Okay, for uploading pictures..... you need to have your pictures already uploaded to an image host like Photobucket. It is free and a really good site to store digital photos. Once you have that, you simply find the photo you want on Photobucket and copy the direct link. Then once you're at the BCO window where you reply, you will see a picture of a little tree to the left of the smiley face at the top of the reply window. Click on the tree and you'll get a pop-up window that gives you some options. Where it says 'image url' paste your link from your Photobucket picture, then click 'insert'. Done! Would love love love to see photos!
Okay, I'm going to catch up on my reading...... picture of Diamond with her new warrior saddle pad from yesterday.....
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Benny, soooo glad you are improving. Di looks stunning.
Thank you for photo info too.
Like you have had more antibiotics than ever before since all this sxxt started but hey all part of the journey.
My friend has a beautiful mare called Black and she is so fed up with people thinking she is a boy she has bought some pink glittery hoof polish, then someone said it is good for our nails as it is really hard. Don't think I will risk it lol.Are you chemo next week ? It can only get better from now on. :-) x
Hug Edi X
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Liefie, welcome back from South Africa! Would love to hear a report on things you saw/did?
Traii, I love spiders! I know I'm a bit batty but I think they're cute, what with all those legs and everything. I had one living in my bathroom for about 4 days (Herbert). He's gone now (RIP Herbert) but it was fun checking up on him every day. Re the CMF, are you saying Taxotere was worse? Oh dear, I'm in trouble
I am barely making it through A/C let alone Taxotere.Edi, it sounds like you and I have the same thing. My pain is from my esophagus downward. It scares me because the second round was worse than the first so will the third round be worse still? Oh dear. I will try the baked egg custard, thank you! What is number 1 on the oven? 325? I don't know if I could do the mashed banana as that's how I got through round one of FEC and I swore off bananas after that LOL Also, my nails are stronger than they've ever been! And my skin on my face is so soft since the chemo. It's sagging more
but it's soft. But I am shocked at how strong my nails have become since chemo.Bearcub, glad to hear the rads treatment is going so well. I too am terrified of sunburn because I'm blue eyed, red-blond hair, VERY fair skin, and get a sunburn if I stand too close to a BIC lighter. I will have 25 to do after this is all over. I've read that aloe vera gel is helpful.
Websister, thank you (again!) for the info on the keffir. I'm picking some up today. I hope your dear mom is doing okay, it's been a real trial for her the past while. How are you doing with the Herceptin? Did the headache last long? Are you sure the head cold sensation is from that as there are some nasty head colds going around Calgary right now. It was even on the news. Do you still get the Neulasta shot before Herceptin? I'm heading out to see the giant plush toy today but with winds at 63 km an hour I hope I don't blow away. Hope you're enjoying your day.
MSSWISS, I'm sorry you have to join this board but I'm glad you found us. Yes, it is very shocking to get this news. I got my diagnosis on August 28 and some days I still don't fully believe it all. I know what you mean about fear of disability. Before this I spent my days at a farm hoisting 50 pound bales of hay onto tractors and feeding 32 horses. I could barely lift the saddle onto my horse yesterday and it REALLY bothers me. But you will manage okay. You will get your treatment plan and gradually pick away at it. You might have to modify your routine a bit but it's temporary. I had 15 nodes removed and was warned about the lymphedema thing but so far I've had no problems, and I routinely use my arm the same way I always did. Please stay in touch here as this board has some wonderful women who relate to everything you're feeling.
Scottiee1, did I thank you for the advice on the keffir? If not, thank you! I am zipping over to the health food store this afternoon and picking some up. Had never heard of it before?
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Edi, I have red glitter polish for Di! There are a few products for livestock that are actually good for us too. Hoof polish is one of them, Bag Balm (for cow's udders) is another really good one. It is moisturizing and has an antiseptic in it. Really really good for dry skin. Your friend could also braid her horse's tail tand weave a pink ribbon through it. Would love to see pictures of GD on her horsey!
Ugh, tried to eat a half a bagel this morning and it's not going down. Rats, two steps forward and one step back this morning. Man I can hardly wait til I can have REAL food!! I've started a list of food I am going to eat as soon as I am able:
- onion rings
- scallopped potatoes
- french fries with gobs of ketchup
- spicy East Indian food like aloo mutter and dhal
- potato chips
- fried ANYTHING
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Benny, Mark 1 is 300 deg. Hope you like the baked egg custard. If you can do spice nutmeg on top is lovely.
Understand about the banana, but you try and stock up on baby/toddler food as already suggested on here if you can find gluten free of course. At least will slip down those pipes easily.
The club soda is such a help and the baking soda baths too, for the Johny Cash lol.
Don't worry about Taxotere, Traii was amazing on it considering she has a tiny DS to run around after. Epirubicin hasn't been a walk in the park but hopefully less se's with CMF.
Thought you may be interested to know that my Reiki client was Lisa of the Baldy Birds for Lisa.Her tumours have shrunk by one third and she is amazing. You and she would so get on, she has FIVE horses and four dogs !
Her chemo regime finished soon and all systems go for Florida trip in maybe March. She is strong and positive and even though chemo knocks her sideways she has never given up hope that she will live her dreams for years to come .
We are all inspired by her as is everyone that knows and loves her.XEdi x
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Benny - love your list of food that you plan on when able! Don't think about Taxotere right now, remember your MO changed your regimen from FEC to AC, may just be playing it by ear with you. I actually preferred Taxotere to FEC re: side effects, still not fun but made it through. Taxol is an alternative that is not supposed to be as hard on you as Taxotere. Remember - everyone responds differently
Re: Herceptin - stuffy head - it could be the flu that is going around here but head became 'stuffed up' fairly suddenly during the infusion and has stayed that way since, temp only 37.5; I also had stuffy head and runny nose with last three chemo's which included the Herceptin, it does seem a little worse this time
Nihahi - glad you are able to get out snowshoeing, sounds wonderful, hope the shoulders behave for you
Traii - how are you doing post chemo?
Edi - I feel confident your bloodwork will be good tomorrow
Liefie - I know you are probably very busy getting settled back in and catching up, can't wait to hear from you again -
Traii, Just for my cyber baby girl . I tried to kill a spider with hairspray today. It is still alive but its hair looks outstanding !!
Hope you have a lovely Monday, se free xWebsister, thanks hope you are right x
Benny, Websister is right ! Just have faith x
Edi x
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Hi Ladies,
Like Scottiee1, I've been lurking in the shadows for over a month now, finding inspiration in the way you encourage each other through trials, and celebrate triumphs large and small - and of course, checking in almost daily to see how Benny is doing. So glad that you seem to be doing much better Benny!
I figured it was finally time to take the plunge and join you - so this is my first post. I'm Canadian, but I have lived in the U.S. for the past 8 years. I was diagnosed with IDC on Nov. 30th, but due to additional testing (including a PET/CT scan), the holidays, and a snow storm, I won't be starting neoadjuvant chemotherapy until this coming Friday (Jan. 11th). My port will be surgically placed on Wednesday. Of course, I'm apprehensive, but at this point I just want to get going with it - seems like it has been a long wait, much longer than I had hoped.
My oncologist has recommended 6 cycles of Taxotere/Cyclophosphamide (then surgery, then radiation, then hormone therapy). Have been reading all I can about how to minimize side effects and trying to decide in advance what to incorporate. Has anybody here, if you've been on Taxotere, iced your fingers and/or toes during infusion? Willing to try anything if it will help.
Re: kefir, I've had it a few times in the past, and find it quite tasty. Based on the discussion here, I picked up a little 4-pack of it today, advertising its probiotic properties. I've been reading "Life Over Cancer" by Dr. Keith Block and trying to improve my nutritional habits in preparation for chemo - but I realize the focus might shift to just getting anything down and keeping it down once I start treatment. I'd appreciate any nutritional tips any of you might have. Like Benny, I've been a vegetarian for decades, although I reintroduced fish to my diet a few years ago. To be honest though, I haven't been a "good" vegetarian recently - too much junk food/fast food. Now it's back to lots of veggies and beans - my husband is LOVING it, to say the least.
Anyway, I hope the coming week goes well for all of you!
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Caitlin, Welcome to the warrior sisters !!
No more lurking just jump in lol.
As you will have realised the waiting for everything is the awful part. We have all had it with knobs on. My surgery was delayed because surgeon on his holiday !! but as you will also see it doesnt seem to make any difference to the outcome. It will happen and then you are off on the journey with us all here to hold your hand.
Traii on here has done the icing of fingers for Tax sure she will fill you in with the details.As you have a hubby I can recommend great book. " The Breast Cancer Husband " author think his name is Silver. Bought it off Amazon. My chap was besides himself with worry, and is not a bookworm but he read this in a week and was a changed man. He understood so much more about BC and the various treatments. The author is an American so probably more relevant to you as well.
Any queries just ask, someone on here will have an answer or will tell you where to find one.
Edi ((( HUG )))
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Benny, something weird happens on here !! some of your posts appear a good while after you must have posted them, so I am a bit out of sync.
Your real food list contains everything I love too.
I indulged in onion bhajis last week with raita dip and holy cxxp was I sorry ! should have known better :-( still going on my future food list for later.just realised what has happened, we both must have posted at exact same time 3 hrs ago.
Will tell my friend about the pink ribbon for tail, good idea. going to experiment with photos and pic of GD on her horse will follow.Taken on board the udder cream too for future ref. Nice to know Di is a sparkly girl too.
Edi x
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Edi, thanks for the welcome and the book recommendation - I will check into it right away. You know, my husband was just wonderful during the week or so leading up to my diagnosis and during the few weeks of additional testing afterwards when I had so much anxiety - truly my knight in shining armor and I don't know how I could have coped without him. However, once all the tests were in, somewhat surprisingly a relative calm came over me - but he seems to have slipped into a bit of a funk. He has other stresses in his life right now, not just this one - and he has difficulty expressing how he feels which, makes it more difficult. Perhaps this book will help him like it did your man - thanks again!
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Caitlin, my hubby was exactly the same !! Think when they realise how long and drawn out the treatment can be, they tend to feel really lost and helpless. Book will explain so much.
Edi x
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Hi ladies !!!
Welcome Caitlin.
Benny so glad ur doing so good!!!
Busy weekend for us with soccer and hockey. My hands feel very strange after the taxol in Thursday. Almost like a burn and chapped at the same time. Motrin has helped hoping it gets better before my hect treatment.
Edi-
Good luck with the bloodwork
Hope everyone is doing well!! So good to hear from u all !!! Hugs -
Caitlin - I iced my hands during Taxol treatment by freezing water bottles and holding the frozen bottles in my hands during the infusion! I didn't have to buy anything special and they bottles were easy to hold. While I was on Adriamycin and Cytoxin my nails darkened a little and I got some pins and needles in my finger tips so I was worried that the Taxol would make it much worse but it all cleared up quickly when I started using the iced bottles. Never lost my nails and they didn't turn black. My oncologist also recommended Vit B complex 3 times a day and Tea Tree oil on my nail beds (toes and fingers) so I tried that too.
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@Edi, Cyber Mummy, hairspray, spider...you're a hoot......well good thing it's hair looks good....lol Your blood work will be fine...I go for mine tomorrow. (not every 3 weeks for me anymore) is this your 4th one right ? So CMF in 3 weeks ?
@Benny, you like spiders, hmmm....If I had a 'herbert' in my bathroom he wouldn't be lasting 4 days thats for sure...lol....came home today and hubby said he saw a huntsman outside but it got too high so its still lurking out there somewhere...eek! (thats what was in my kitchen re the story I posted about last time, they are ugly ) !!!
The list of food you've made sounds yummy.......you will get there soon enough to eat all that.....( I won't tell you that I had some onion rings from Hungry Jacks the other day ok!! )
Now you ask re Taxotere, I didn't like it one bit, not to say that you may like it more than a/c, we are all different and remember I only had x 3 of Taxotere so mine could have been more intense...how many rounds are you having of the Taxotere ?? Don't stress, just get through your A/C now and like Websister said there are other options so perhaps your onc will suggest Taxol instead.....hope the antibiotics is working for you. With the CMF I'm on now, mucicitos is very common too!
@Websister, I'm doing great hun post chemo, have another one scheduled for Wednesday so that will complete 1 round then 2 more rounds to go (4 chemos) and I'm done !! so counting down.....
How are you going ? headaches gone or still lingering because of that Hercipren? Hows your mum doing, did she venture out to that common area after you dolled her up with her hair ?? (god bless her, she sounds so cute).
@Caitlin, I'm glad you stopped 'lurking' and joined in......we're all a little whacky in our own ways but that's what makes us all special.....lol.......
Husbands are funny things aren't they......mine too doesn't show he's feelings...its hard to try and read there minds on the best of days let alone what they are thinking through this toughest part of our lives....but I guess that's life and we will all get through it and so will our hubbys. ( I just wish mine read books because I would have brought him the book Edi (Scouser) recommends!!
Re : Taxotere, I iced the finger nails and toes......I used frozen Ice packs .. you can take peas and even what Maureen suggested, frozen ice bottles......they will all do the same trick. Make sure you moisturise your feet and hands as Tax does make you peel...I peeled and peeled like a shedding snake....it got bad at one stage felt like I burnt myself but more ice will make them feel better. Use a nail hardner on your nails too....I used the Sally Hansen Hard as Nails.....Nails can lift off....mine were ok, as they are growing out I have 1 that feels like its coming off and 2 that are a little higher than the normal part of the nail ( looks like when you need Acrylic refills) now I just colour my nails and can't really tell...they don't look that bad !
I did get Neuropathy, I went 1 week where I couldn't really walk all that well....well I had no choice but to walk well actually run, with a 3 year old...lol.....but that was BEFORE I iced my feet and toenails so hopefully it won't happen to you.
There is a Taxotere thread on here also incase you want to jump on that and see what the other ladies wrote, you are more than welcome to PM me with any questions too I'll be happy to help.
Nihahi, hope your shoulders are better today
Carlads, hows things going ?
Dakota, soccer, hockey, did you have time to scratch your behind ... lol ( its a funny saying in aust land) lol.??
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Maureen, hi great input re the water bottles for icing. sure Caitlin will take on board along with the peas.
Dakota, wish my Mum had been like you, was in school play once and remember peeping through the curtains and their seats were empty :-( Happened all the time. Your kids will not have that with you. I go to as much as possible for the GD's especially if their Mum's have work issues.Hope you are keeping well.
Traii, Glad you keeping well. Watching tv " wanted down under " brits who are thinking of emigrating are shown homes and jobs in Aus and then decide what to do.
They are in Melbourne today !! They have looked at properties in Meadow heights and a really gorgeous one in Roxburgh park. He is a policeman and shifts etc seem better than here.
General opinion is that people there are really friendly and welcoming. They are picnicing on the beach at the moment.
Now at the end of the programme and they have decided to stay here, only because they can't bear to leave their families behind.
That is why DH and I didn't do it 40 years ago but now so wish we had.
No good crying over spilt milk.Is your CMF more frequent than the other chemo ? I will find out new regime of it tomorrow on last epirubicin
Half way through now. Gosh it really does go so fast.By the way Traii, the fact that some spiders are actually called huntsman, soooo not funny ! My Aunt who lived in Aus a long time ago was writing a letter once when she explained that she had to take a break as she could hear a clanking noise on the veranda outside. She then explained that it was some kind of beetle ! OMG. lol.
Hope all you sisters have a good day.
Edi X
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Edi, Good Morning Cyber Mummy, how funny you were watching the show 'wanted down under'. Roxburgh Park is actually the next suburb from where I live in Craigieburn !! Meadow Heights is the pits though, thats prob why the brits decided to stay where they were....lol not because they would miss their families !!! Imagine you became an Aussie, 40 years ago, you'd be talking like an Aussie not with your 'funny' accent....lol.
Whoo hoo Cyber Mummy's half way there tomorrow.....how exciting it is.... let me know what your regime is tomorrow with CMF....I have the C part orally for 14 days straight......I feel queezy for half hour (about 2 hours into having them) and then nothing....I actually don't mind going in on Wednesday to have the 2nd bit of the 1st cycle of MF!!
I agree, time is going fast ..... as they say, 'time flies when you're having fun' !!!!!!!
Lol at your Aunt.....some beetles we have here are large and do make a clanking sound ...... blah...anything creepy crawly gives me the jitters !
Oh by the way have you heard from your friend in Tasmania ? The news has been showing devestating pictures of towns demolished in the fires......still power outtages there and they don't know when they will have power again in most parts.....
Good Luck with your last epirubicin, may this give you no SE's xx
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Hi ladies -
Good luck to everyone having treatments this week.
Edi-
I try so hard to get to everything because I had parents like u, I was the last of 4 and they were never around. As u know my kids are my world. I hate spiders to. I try to remind myself I am bigger than them -
Traii, didnt like to say but Meadow heights did look a bit yuck, Roxburgh was gorgeous tho and the house was beautiful. perhaps Meadow heights did put them off.lol
They had some views of Melbourne and it looks wonderful.No news from Tas going to try and fb his bro here in England to see if he has heard anything.
Is it hot again there ? really pleasant here hope it lasts.
Dakota, Think when your parents are not the best it makes you a much better one.
I praise my children and the GD's all the time, tell them I love them and hug them tight couldn't bear it if there only memories of me were negative ones.DH thinks I am too soft with them but he was one of 9 kids and had an even worse time than me so he thought everyone had a lousy childhood.
Hope you hands ease today and you have time to chill out a little bit.
The one thing about spiders I heard is that it is unlucky to kill one ? so I just cover them with a jar, slide card underneath and carry them outside to freedom.Right now don't need anymore bad karma lol.Just going to slap on the old warpaint to go for bloods, then off to supermarket for easy to cook and eat foods.
Laters Edi X
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Traii, Just f/b friend in Tas and they are fine ! thanks for your concern xx
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Edi-
I hear ya with the karma. I feel 2013 will be better for all of us!!! Good luck with the bloods!!! So glad everyone is fine in the fire area!!! -
I have to agree with all of you, this is going fast....I cannot believe most of you are halfway done chemo.
I just want to say you ladies all have the best attitude going through all of this stuff. I find this thread really refreshing.
Good luck today Edi with the blood, hope you bought some yummy easy food to cook.
I am off to #3 rad today...of course it is snowing, you have to love driving in January in the winter EH! As we say in Canada. -
Bearcub
Be careful driving. Good luck. -
Good Morning from Sunny Alberta to all you ladies.
Snowshoe went great yesterday and the pesky shoulders held up much better too. The friend I was with I have nominated many times as "best friend in the universe", as she lets me whine without judgement, and gets me laughing, at the same time. I hope everyone of you has a similar friend. Lesleyanne....hope you are ok after getting hit by all those "snow bombs"! Good thing they were soft, eh!
I hope your day goes well, whatever it brings you.
Carlasbd.....are you ok?
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Nihahi
So glad u held up snowshoeing !!!
It must have felt great to be out with ur beastie. We definately all need a break from this at times!!! -
ABSOLUTELY......doing what we love, makes the reality that life goes on feel more possible. Though none of us would ever chose to go through this, the one "side effect" that is a bonus, is that you will at some point be more aware of how special the "good things" really are. Also, you find yourself connecting to "special people" that you likely would never have found.
Edi - Qigong is very similar to Tai Chi, but is usually a much less complex series of movements, and tends to be more directed to finding physical and emotional balance. The class I am going to start is called "Radiant Lotus" and is specific to women's health and bodies. I have done tai chi in the past, but lack the "brain power" to remember all the sequences unless I did it all day, every day!
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I did get the Breast Cancer Husband book for my honey. He is an ONCOLOGY NURSE and it still helped him a great deal. It is different when you are the person adminitering chemo but you typicaly do not go home with those ladies and see what unravels the next two weeks day to day. Infusion day is usually the best day in terms of how you feel plus we do not often tell strangers all we really feel...
Hugs
Lesley
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Thanks to everybody for welcoming me back. You are such a warm, friendly group of people.
For those who asked, my visit was wonderful. Visited with all our family on both sides, enjoyed the foods that I grew up with, had many barbecues, did a trip up the coast to visit my brother-in-law and family who has a beach house there, enjoyed the (very!) warm, sunny weather. A special treat was to meet with 8 of my old high school friends whom I haven't seen in 40 years; there were many memories, joking and much laughter. For Edi: The wedding was lovely, and the organ playing went well. The practise I put in before leaving home did pay off. It was a beautiful instrument, and I fell in love with it immediately. The party went on till 3.30 am...The airline managed to lose our luggage, but we had packed our wedding clothes into our hand luggage just in case. Fortunately the lost luggage arrived two days later.
On the day we left I said goodbye to my mother who only recognized me for the first time the previous day. She is in frail care now, and is much weaker and thinner since I saw her last. I don't think I will see her again, and has been feeling sad since our return. She and my dad had given us a wonderful, loving home, and they were amazing parents. The cycle of life has truly been brought home to me. The dark, grey, rainy weather here does not help either. Hopefully I will get back into my normal routine and rhythm soon, but I don't have much in the tank at the moment.
Best wishes to you all.
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Im STILL in shock i hsve no one to talk to about my cancer and its DRIVING me crazy my one son thats 17 I just told him and hrs in shock also my DAUGHTER acts like she dont even care im just GOING threw so MUCH my gas cut off im getying depressed EVERY day I really dont HAVE to many FRIENDS tu o talk to I feel so all alone
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Welcome Valo - trouble never seems to come as just one thing, does it? Children all deal with hearing about our diagnosis differently, give them time. You are welcome to come here and talk to us any time, day or night - there's usually someone on. Initially there is a lot to deal with and it is overwhelming, then once a plan is put into place things seem to settle into a bit of a routine and are a little easier to deal with.
Liefie - so good to hear from you. Sending hugs re: your Mom, just visited mine this a.m. after my MUGA scan, she is a little more confused than she was last month and it is difficult to come to terms with. So glad that you put your wedding clothes in your carryon luggage and so happy that your practicing paid off for you on the big day. Sounds like a wonderful time, give yourself some time now that you are home to take it all in and grieve as you may need to. ((()))
Edi/Traii - Mom was moved to a room just beside a kitchen/patient lounge area. There is a phone and a TV for patients to use and tables to sit around and have coffee and snacks. I think this is a good move. She has a wonderful view from this room of the mountains which are beautifully 'iced' with snow.
Dakota - hope the side effects settle down
Bearcub - I hope you did OK getting to and from radiation, one of the ladies on one of the other threads was called and told it to venture out to work this a.m. due to white out conditions
Nihahi - sounds like you had a great day snowshoeing, lovely that you have such a good friend to share everything with
Caitlin - welcome
Lesleyanne - sounds like your husband will be an even better oncology nurse after this experience and reading the book
Off to have lunch and a bit of a rest before I tackle grocery shopping.
Take care everyone
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