In shock

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  • liefie
    liefie Member Posts: 2,440
    edited April 2013

    Edi, sorry that I missed you on skype. Will try to skype tomorrow - was just thinking today we should do that again. So glad that you feel better. Sweet of DH to get rads girls cookies, they must have enjoyed that! Sorry he did not like your soda bread, but it's his loss. Talk to you tomorrow - YAYYY for last chemo!!!! Champagne is in order!!! Will defo celebrate on skype!

    Movie and Nihahi, thank you so much for your encouragement re DIEP. I'm taking notes of all the handy tips. I will keep up the exercise. Nihahi, I hope my drains come out just as quickly as yours. With my mastectomy and SNB, I had the drain in for 17 days . . . hope it comes out sooner this time. It is a royal pain in the backside. Those bowed ribs sound serious. No wonder you were in such pain!

    Well, it's off to bed for me. Sweet dreams, everybody!

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited April 2013

    One more quick post-then to bed.....



    Nihahi-I am sooooo foggy.....how did I miss the part about your bowed-in rib????? I read it in someone else's post! Duh!!!!! So sorry you have had to deal with that s**t for all this time, and VERY glad the little bugger is out and gone for good! Makes my chest hurt just thinking about it! :-(



    Edi......I hope tomorrow is a better day for you......story about DH not liking your dinner.....grrrrr! I might have been considered armed and extremely dangerous had my DH pulled that on me! (Death by pot roast, or something to that effect!). Sending another cyber (((hug))) your way......Namaste



    Love to all....

    Namaste and God bless - Jackie

  • Traii
    Traii Member Posts: 1,138
    edited April 2013

    Yeh edi....exciting times. Congrats girl u did it. Cant say i will be with you in your pocket today.. lol but will be thinking of you xx

    Went to mail box. Only bills no surgery date :(

    Im patient!!!!



  • Dakota212
    Dakota212 Member Posts: 1,153
    edited April 2013

    Hi Bella's !!!!

    Movie - I am feeling great thanks !!! Go back for my two week check up Thursday but so far so good. Nipples ( TMI sorry) in July.

    Nahahi - congrats on being drain free that's a huge step !!! Keep up the good work !!!

    Traii - sorry Hun no surgery date :( keep smiling it will come !!!

    Liefie - hope u had a great night sleep and the sweetest of dreams :)

    Edi - love the f*•¥kit list !!! Congrats on the ending of rads and so sweet of DH to do that. He loves his dear Edi so. He really does !!! U r very lucky it may not seem it all the time. Have a great lunch !!

    I am at work awaiting patients..... Lacrosse and soccer and hockey tonight !!! Glass if wine in my future.... Shhhhh !!!

    Have a great day u Georgeous women !!! Love to u all!!!!

  • nihahi
    nihahi Member Posts: 3,841
    edited April 2013

    Dakota....nips are not TMI..between you, Movie, Liefie, maybe Traii, and me....there WILL be nip talk in the future! Glad to hear you are doing so well, but none of us are surprised at your superwoman routine anymore. Hopefully you've got another Girl's Night Out planned soon?

    Edi...cut yourself some slack, woman. You are still in active tx, remember! Sweet gesture on hubby's part. So glad you have good friends that also can do the alternative stuff like reflex and reiki....I so believe in that stuff. Maybe you had the tears, because she helped release some "gunk" messing around with you??? Hope today goes easier for you.

    Traii.....maybe it's just me, but you defo seem less energized...you ok??????

    Websister....I have a "jacki" (post-breast surgery top with pockets for drains) that I ended up never using. I'd like to pass it on....any suggestions where would be the best place in Calgary??? Is there any news re: Benny, or has she found it better for her, to stay away from this site. I can understand that some people need to filter their focus, so that they don't dwell in the difficult places. Please let her know she is loved, where ever her paths take her.

    Caitlin...How's it going with hubby away? Hoping for a good day for you.

    Carla.....same to you...hope things are going well. I'm still abit  fogged.....are you now through with the chemo??

    Movie....my mountain sister. I can tell you, when I got my first glimpse of the mountains while driving home after discharge, I almost started bawling. I missed them so much. Slept the whole night in my own bed, with the help of some extra pillows and Flexeril. Had some wakeful moments, but a better sleep than in the recliner. However, sure needed the chair handy to get out of bed....used it to pull myself up with. Didn't want to wake hubby for my bathroom trips. Today I get to start some gentle exercises with the arms, and I already know I have lost a fair bit of ROM in my right shoulder, but it'll come back (fingers crossed). I had forgotten about the post-breast surgery type weakness/tightness, but am just about where I was 20 years ago again. sigh.......

    Liefie....I think you are scheduled for another lovely day....get out there and enjoy it. Stay busy, it'll help the waiting go faster, but stay busy doing things you love as much as possible. Movie and I will be so glued to your pockets, you won't be able to sit down!!!!!

    Have a Belle day ladies. (((((((x)))))))) to all

  • scouser47
    scouser47 Member Posts: 963
    edited April 2013

    Photo

    For my warrior SISTERS xx

  • MariaNL
    MariaNL Member Posts: 118
    edited April 2013

    Wow what a couple of months it has been. I found out I have BC March 5th the day after my 47th birthday. With multiple spots and two positive biopsies in my right breast it was best to have a full mastectomy. I had my surgery April 4th they ended up taking lymph nods as well which 2 out of the 8 tested positive. They have started my reconstruction which I'm finding very uncomfortable.

    I Start my Chemo May 9th the unknown of what that is going to do is so frustrating. I know I will lose my hair so I did go wig shopping last weekend with my bff, mom and daughter it was nice to have a girls day.

    I am a full time bartender so they are frowning on me working at all thru chemo, having a hard time with that notion no work no pay ugh. It all seems like so much.

    I am lucky I have a wonderfull husband to help me through this his strength is amazing. I feel for him because I know he is hurting so bad right now but is putting on a brave face as to not upset me.

    I have two children who have been my world as I raise them by myself, they have been great but I can tell they are hurting as well. Not sure how to help them with this and that is killing me.

    Thanks for liistening it feels good to get it out.

  • scouser47
    scouser47 Member Posts: 963
    edited April 2013

    Maria, welcome to he Warrior Sisters, we will hold you and comfort you through all this.
    You have been through so much and it is such a shock to you and the family.
    We DO know how you feel and have travelled the same journey and can answer most of your question, or just be there for you if you want to rant or cry .
    Know how it affects your DH there is a fantastic book available via Amazon called" the breast cancer husband,".  written by a journalist called Silver.His wife had BC and he was lost so he wrote the book to help other men. I bought it for my DH  who was so lost and he read it and changed completely. He knew what was happening and how to help.
    Please keep posting you have found the best place for help and comfort.

    BIG (((hug))) Edi xx


     

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited April 2013

    Hi welcome Maria !!!

    Ask away as Edi said we are here for ya !!! What type of chemo are u having ????

  • Traii
    Traii Member Posts: 1,138
    edited April 2013

    Nihahi...you read me like a book..just a lil tired and got this damn cold again :(



    Not TMI Dakota..I'll be with u girls chatting away re nipples...lol



    Maria welcome. As the girls have mentioned vent away on here..we are here to help you get through this.



    On phone so will keep short n sweet xx love to all my fav girlies♥♥

  • liefie
    liefie Member Posts: 2,440
    edited April 2013

    Maria, welcome here! You will find lots of encouragement, humour and laughter here. A year ago I was just finishing up chemo after mastectomy. Lost all my hair - I think you will too with the combo you will be getting. Then had rads till beginning of July. Gradually my hair and my energy came back, and today I am well and healthy again. Life is so good. This is a temporary bump in the road, and you will finish this marathon. Having the loving support of a good DH is a wonderful privilege, and you are so blessed to have that. I've had a TE in now for over a year, and it was so uncomfortable in the beginning especially after fills. Took pain medication for that. Now I don't even notice it anymore, and I sleep on that side, swim, run, do yoga - it will get way better as you get further out from your surgery. Give it some time. ((((HUGS!!!)))

    Traii, I'm with Nihahi. You seem quiet lately. I know you want this surgery to come and be over, and I'm giving that PS a hard cyber kick in the backside this very moment to get moving already! Hope it works . . . Hugs to you too!

    Nihahi, it is indeed another beautiful day. I'm taking the dog for a walk now, can't waste this!

  • Traii
    Traii Member Posts: 1,138
    edited April 2013

    Thanks liefie! Ive called them yet heard nothing. I think this is harder than chemo!!!
    Enjoy your walk.

    Gorgeous day here too might go tor a play in the park with ds!

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited April 2013

    Hi besties !!!

    Yahoo can't believe it all sports cancelled for the night not a thing to do but hang with the kidos !!! Sometimes the rain is a great thing :)

  • nihahi
    nihahi Member Posts: 3,841
    edited April 2013

    Hi to Maria....there are some incredible ladies on this thread. Hope we can help you along. 

    Traii.....yep, the waiting......plays havoc with energy and sleep. Do you think that might be why you are sleeping so little? Hope Liefie's kick does some good and you hear something soon.

    Dakota....Glad to hear you're having a rain delay night. You so deserve it! Sounds like you're recovering well from surgery, not that we are surprised.

    Edi....doing ok?? Any word yet on shedman?

  • MariaNL
    MariaNL Member Posts: 118
    edited April 2013

    Thank you so much ladies. Dakota I'm having ATC I think it is the same as you looking at your profile. Liefie Thanks for the info about TE I'm glad there is a light at the end of that tunnel. Scouser Thanks for the book info I will have to get it for him as a little gift.

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited April 2013

    Maria - yes !!!!

    I am 41 now started chemo at 40 and it was no problem for me. I had 4 A/C and 4 Taxol. No radiation. I was very lucky. I was able to work and go do everything with my kids. Please use us as a resource. I had double mastectomy with implants. Honestly we are here for u. Ask away our new friend !!! Hugs :)

  • MariaNL
    MariaNL Member Posts: 118
    edited April 2013

    Dakota I am havin 4 A , 4 T and 4 C then a month break before radiation. So glad to hear it went smooth for you I think the not knowing how my body is going to react is the most nerve racking.

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited April 2013

    Maria - i totally understand. I was nervous also. My oncologist (MO) said to me if u are sick it's my fault tell me everything. Please tell them. There are so many meds they can change. I can't speak for radiation but as I said it was fine for me !!!

  • Traii
    Traii Member Posts: 1,138
    edited April 2013

    Nihahi..could be anxiety thats stopping me from sleeping properly :(



    Yehhh dakota...no sports, rain, time with kiddos at home...total shock to your system...lol have fun ..enjoy x



    Maria...u are set you have your wig ready for your new look and your fighting gloves on...you can do this girl :)

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited April 2013

    Traii - I love that !!!



    U GOT THIS MARIA !!!

    We all do !!!

  • scouser47
    scouser47 Member Posts: 963
    edited April 2013

    photo SAM_0486_zps2f1d19ee.jpg

    Morning/middle of the night. Flippin steroids got me wired Frown  road drill in full force too, so checking how everyone is.
    Pic above taken after final rad. Angels without wings is the only way to describe radiologist.
    Got a hug off everyone of them and shed a tear, I will miss them, If I get accepted for WRVS will see them now and thenSmile.
    Having a hopefully restful day today, waiting for new water feature to be delivered so need to stay home for next few days.
    DH then back at work so can go and have some fun with friends for a few days.
    Hope better weather continues, plants need to be put in place.
    SE's don't usually kick in until tomorrow so will just eat and rest.
    Next Tuesday last dose of chemo, yay, won't know what to do with myself then. Never thought it would all pass so quickly.

    Maria, glad you have joined us, keep posting. Chemo and Rads has totally different effects on each and everyone of us, hopefully you will have no problems but if you do GET

     HELP!! Do not soldier on ,your treatment team have seen it all and have pills and potions to sort you out.xx

    Nihahi, you sound amazing considering everything, your mountains will give you strength.
    Shedman should have results of scan/biopsy maybe next week. They are besides themselves with worry and he can hardly swallow anything due to this lump. We are all praying it is scar tissue.
    You do an Edi and rest and eat. How is DD coping, hope she is helping DH look after you. xx

    Liefie, enjoyed skype chat immensely, DH fascinated that I can be nattering to someone in Canada and he isn't bankrupt lol. Get out and about in that lovely weather and build up your strength for Diep xx

    Traii baby girl, Cyber Mummy very worried about you Frown  This being tired must be so much worse for you with DS and work to contend with.
    Hope liefie's kick up butt works on PS and you can all start comparing girls and tats etc xx

    Dakota, rain is handy sometimes lol. you are amazing, does nothing stop you ? Avatar gorgeous by the way. xx

    Movie, how you feeling now ? you do sound more positive with every post and will be such a help to the others. Namaste xx

    Luvmy, too quiet !! are you ok dear sister xx

    Carla/Caitlin/Bearcub/Jennie and ALL other sisters love and blessings xx

  • liefie
    liefie Member Posts: 2,440
    edited April 2013

    Awww, Edi, lovely photo! I'm sure you had those girls in stitches all the time, and they will sorely miss you! Ditto on the skype chat - so enjoyable, and you do feel like I've known you for a long time already. At least some things are still cheap. Skype is just wonderful when you live as far from your family as I do. Took the dog for a walk earlier today, then DH came home, and we took him for another walk. Weather is supposed to be this glorious for the rest of the week. I walked in short sleeves, and it felt sooo good. Hope Johnny Cash behaves, or I'll kick him in the backside too. . . and give him some of his own medicine - lol.

    Traii, I hope you got outside with that little boy. Fresh air and sunshine is always good for you. I'm ready to deliver another kick, and I don't take any responsibility for where this one will land.

    Dakota, enjoy the quiet night with your kiddos!

    Nihahi, hope you have a good night in your own bed.

    Maria, come back here often, and share your load with us. We are here for you.

    Everybody else, hope you are all doing well!

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited April 2013

    Bellies.....very tired - ready for bed, but had to say hello to you all !

    Edi!  So relieved to hear from  you!  Love your pic with the hospital crew......I understand you missing THEM, but surely not the rads?  :-)  Let us know how water feature goes with DH.....maybe you could ship him over here for me to borrow to clean up my yard......I have a swimming pool in the back yard and I call it "The Swamp"...poor DH barely know one end of a rake from the other, and I am too damn tired after working out in the morning to do it!

    Nihahi....you really sound amazing for as close to surgery as you are!  Wonderful!  I still possess tadpole brain myself, so I forget a lot of stuff and I'm just "dozey".....afraid it will last a while with me. :-)  glad you are able to sleep in your bed....ours was too high for me to climb into, but once I got there, I DID sleep better.  Just don't try to sleep on your side!  I still cant spend the whole night on my side.....kind of gotten used to it, I guess.   So worried that my Stage 2 will interfere with some serious hiking/biking this summer...I'm kind of bummed.  Want to do Glacier, and ride the Trail of the Hiawatha between Montana and Idaho.....but, surgery comes first, b/c I have met my deductible (Liefie?-spelling?) and everything from now until the end of the year is free....Yippee!(sarcasm) Maybe I'll do double nipples!  Undecided Keep walkin', soul sista!

    Traii keeping my fingers crossed that your surgery will be decided VERY SOON.......I can imagine how stressful that could be......but at least you aren't facing a huge recovery time-frame.  I think if this had happened to me when I was younger, I would have done implants....and come back to DIEP later....it is a long(6 weeks) recovery....hard when you have kids to look after.  Hope DS is doing well....would love to see pics of your trip....guess I'll have to facebook you. :-)

    Dakota-glad you got a night off!  I remember when I would breathe a secret sigh of relief when games would be cancelled......after a while your whole life feels like a merry-go-round........going going going all the time.  It's nice to have the kids to yourself once in a while, ALONE...  :-)  Hope you are healing well-you sure sound like you are.

    Liefie-did your dog enjoy the walk(s)?  Beautiful down here in Portland area as well...got up to 75* today.  I worked out at the gym this morning....2.25 miles in 40minutes with 1750 verticle feet elevation gain....I.Am.Pooped.  but dogs (2 chocolate labs)wanted a walk tonight so we (dogs and I) did 1.5 miles in @25 minutes....I.Am.Really.Pooped.   Going to bed will be my reward!  Can't believe your turn is coming so soon, but you will sail through it b/c you are so well prepared! 

    Websister-hope you are well.....and that your mother is, too.  You had 4 boys...I had 4 girls.  Oldest is 33, youngest is 24.  Lots of estrogen in our house-even the dogs are girls!  

    Maria-welcome!  This is the best thread on the board.....these Warrior Sisters are the BEST!  I can't wait to read what they post here every day.....there is so much compassion, courage, love, understanding and encouragement here.  I feel blessed to be included....they are the best!  Love'em all!  Hang around, and they will help you through the minefields ahead.....awesome women!

    Carla, Caitlin, Scottiee and all....hope you have a good night!  (((Hugs)))

    Namaste and God bless - Jackie

  • liefie
    liefie Member Posts: 2,440
    edited April 2013

    Movie, nothing wrong with your spelling - lol. Yes, my dog enjoyed the walks. This morning I tied him up outside for an hour because it was such a nice day (can never turn him loose because he chases cars), and he immediately proceeded to dig a big hole in the nearest flower bed. Let's just say DH was very upset when he came home this afternoon, and saw the destruction. Oops! Dog and I not very popular to say the least.

    You are amazing with all the exercise! I am impressed. Tomorrow I will do a good cardio session in the gym. Maybe I should try some elevation too. At the moment I am just running/walking a level 3 miles in 40 minutes. Will help to strenghten the quads too.

    Sweet dreams, Movie! Love your posts.

  • scouser47
    scouser47 Member Posts: 963
    edited April 2013

    Never a truer word said.

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited April 2013

    Haha Edi !!! Love it :)

  • nihahi
    nihahi Member Posts: 3,841
    edited April 2013

    Edi....LOVE the photo and the other "poster". I have no doubt you will be a source of comfort and compassion to the people you meet doing your volunteer work. Why didn't hubby want you to do it????? Hope the last of the se's are easy on you.

    Traii....I understand totally about the "waiting" for the surgery....then, once you get your date, it will still seem too far away....and at some point...it'll feel like it's just rushing at you. It's another one of those "out of your control" scenarios, that are so common during treatment. Hang in there, stay active and busy. Liefie and I will combine forces to deliver the next kicks!

    Dakota...you'll be so much help to Maria!!!!!

    Liefie....oh no.....your dog is a "digger"!!!!! I can imagine how unhappy hubby is. Hopefully not too many plants got in doggies way?? Your exercise routines sound awesome.....you'll be so prepared for the surgery. 

    Movie...I sent you some words on the Diep thread. Just want you to know you are such a source of strength and encouragement for me. We'll get there sister....we both have trails to get back to! I think the wildflowers around here are going to be late this year. Mountains still have tons of snow, and the temps have been way below seasonal, too. Maybe they're waiting for me to be able to get up the trail???????

    Have good days ladies. ((((((x))))))))

  • carlads
    carlads Member Posts: 241
    edited April 2013

    Hi Ladies,

    Edi- Love the picture of your last rads, and love the post..

    Well everyone my last Chemo tomorrow.  I am happy and sad all at the same time.  So happy to be done with the Chemo. However, at least going through the Chemo I knew I was doing something to kill the beast!  No radiation for me so this is it.  I will be put on Tamoxifen for at least 5 years maybe longer.  Still concerned about my low hormone receptors.  But my oncologist assures me I will still benefit from the Tamoxifen.

    Traii- I hope you get a date soon for your surgery! I think I am going to make an appt for another consult regarding Reconstruction..  I will go with the TE if I decide to do it.  My surgeon did such a beautiful job on my BMX I could live being flat..  Just not sure..

    Maria- Welcome to the family!   Sorry you're here but you will find so much strength with all these amazing women!

    Everyone else have a wonderful day!  It sounds like everyone is doing good!! 

    Love you all,

    Carla

  • scouser47
    scouser47 Member Posts: 963
    edited April 2013

    just getting ready for Bingo !! need a laugh with the mad women there.

    Carla, good luck tomorrow. End of a treatment is weird. Felt so cast adrift when Rads finished.
    Last chemo next Tuesday then I will deinitely be lost.
    You are feeling the same but sure we must have kicked the bitches ass.
    In your pockets tomorrow. xx

    Off to win some money xx

  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited April 2013

    Hi all - Most everything is fine here.  Thanks Edi for asking/missing me.  I know I'm a sporadic poster.  Just have a few weeks when all hell breaks loose around the house, then retreats again.  Goats all finally taken care of, dehorned and boys neutered.  BUT had to have my oldest goat put down yesterday.  She was the last of my original herd. Had a really bad coughing spell, DH described almost seizure like while trying to breathe.  It was time.

    Cold here again yesterday relative for Texas. 40s and misty.  Much nicer today, sunny 60s though heat on periodically in house and it might have gotten close to freezing last night.  AC was out last week when it was upper 80s so that was my job to sit/wait for service call all d**n day.  Then gyno visit on Friday, yearly, then shopping.  DD and I went to Ft. Worth on Sat. with friends out for Mexican food.  SOOO looking forward to some down/alone time after last week.  I actually see an almost free May coming up.  Though I did promise to take 2 goaties to my vet's on May 4th for a playday.  Do you think I can arrange discount services for that?  LOL.

    Edi - last chemo next week?  WOW and done with rads.  Love that DH bought cookies for techs.  Don't they surprise you sometimes.  DH was so sweet yesterday with goatie; so glad it was his day off.  I pulled back Saturday bathing dog and cleaning out her crate.  Just today able to get around a little better without muttering with every step.

    Traii - even though I'm only just reading along here I could tell you were not as vocal.  Hang in there dear sister.  Kick that PS office for me.

    Edi or Liefie - PLEASE send your DHs for yard cleanup.  DH thinks it means get on riding mower, end of story.  I have ragweed taking over in places as well as giant thistles and some alien cactus/thistle cross thing I've never seen b4.  Looks like it could take your leg with one bite.  Jealous of water feature in yard Edi.  I barely remember to occasionally fill up birdbath.  I've lost some seed packets in house I just bought.  Dare not ask DH if he has seen them.

    Carla - You're done tomorrow?  WOW, TOO.  Lots to celebrate on here.

    Maria - Welcome here.  Lovely bunch of ladies.  Chatty, nutty, naughty and lovely.  They are the best at encouraging.

    Dakota - Rain came at just the right time for you for nice evening off.  Sounds like you're recovering from exchange nicely.  Love the pretty avatar.

    Nihahi - bye-bye alien and it sounds like just in time.  Oweee!  Sounds like you too are recovering.  Love that you, Movie and Liefie can share surgery tips.

    Websister - sounds like you have an even busier time than usual coming up.  How is your mom getting on?

    Will try to keep up better taters (or bellies per Movie).

    Benny, we miss you.  Hope rads is treating you as well as can be expected.  And that you are getting lots of time with giant plushed toy.

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