A synopsis of our journey

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floogendad
floogendad Member Posts: 41

Been lurking for a bit now and thought it time to put our story (Cliff's notes version vice war and peace)...Original Dx Stage 1 grade 3 in January 2009 right before DW's 39th birthday. Bilateral with immediate reconstruction St. Paddy's day (no green beer for me) followed by Cytoxan/Taxotere cocktails.  Life was good until Late 2010 Stage 3 grade 3 recurrence, removal of one implant.  This time around Rads for 12 weeks.  Life starts running again.  Night before St Paddy's Day 2012 (she really must not want me drinking green beer) seizure.  Weekend in the hospital revealed mets to chest wall, lungs and brain.  GammaKnife for the 10 lesions in the brain followed by Xeloda for the chest/lungs.  2 month followup more brain mets (still too small for GammaKnife) and progression in lungs/chest.  Now finished first cycle of Paclitaxel (one more to go until progression CT) with MRI coming up to gauge treatability of brain mets.

I have become the velvet rope guy controlling (that sounds so bad) access so she can focus on treatment, the kids (we share 5) and at her request work.  She has only missed 4 days since the latest issues popped up. Reading everyone's stories and struggles it is nice to know that I am not the only one who struggles with self-doubt and the questions of am I doing enough.

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