Latinas/Hispanics with Breast Cancer

islandmom

VVH sorry you are dealing with constipation. I had the same problem.  I ate boxes of dried apricots, it seemed to help me. I found out that "stool softeners" were my friends.  

You mentioned going to gym I want to say YEAH .  If I was to pick one thing that helped me the most it would be Exercise.  I started during chemo.  It has been over a year I look and feel much better.  I lost all the chemo weight and some.  Now exercise is part of my routine I do not think about it I just go.

 

Dreaming You are a LONG term survivor good for you.  So great of you to help other people dealing with cancer. 

nandia sorry you are dealing with this nasty disease.  When are you having surgery? is that the second opinion for?  Do not let the TNBC info scare you.  Our bodies are all so different.  An older lady I know is a TNBC survivor.  It has been at least 20 years for her, poor lady ended up taking Tamoxifen due to an error in her file but she is doing great.  

About changing like loosing hair, loosing the boobs it sucks but a new and stronger you will emerge.  When you are all done you might feel and look better than before.  How old are your children? Are you married?.

Un abrazo grande!!

dreaming

 VVN, nice to hear from women of different points of view , I am not a feminist, I am very traditional,but have friends that are , I do not  mark the little box for Latins, in forms or questions . When I attended college in my time, it was not done,I prefer than since I chose a second country not to be put in a pre conceived box, because our cultures united only by a common language  have lots of differences in foods, that I enjoy learning, music, values, treatment of women, etc  even t words have different meaning in different countries, sometimes we can insult with a word that means something else in ones country, and gets funny when we speak about vegetables and produce.

I have lived all over the world, attended boarding school in England, British Boarding school in Santiago Chile.  I have friends all over, I think that we should not accept a label as we are a "new race"that is given only in the USA. I dislike to be used politically.

 I love to learn from others, and in my present career I have the chance of meeting people of many places that are facing cancer, finally in many places people can see that there is life after the big C.

It is nice that this is a melting pot support group, the larger one and this smaller  one, maybe we can also exchange cooking recipes, by the way , even that  I am a long term survivor, I know I am not out of the woods, and at present I am living with non melanoma skin cancer.

Anonymous

Thanks all.  I am grateful.  This blaoting and C stuff and the taste problems are incredible to deal with.  I actualyl found myself only able to consider eating/drinkign a milkshake.  So odd.

thanks!! V

Anonymous

Hey Dreaming,

I understand. We all come to this from diferent places and ways and need to find what is right for us.  I don't agree with your views and that is okay.  I hope that you will enjoy dropping by occassionally.

Saludos,

Vielka

islandmom

VVH How are you doing?  Are the side effects going away? Hope they are.

Anonymous

Hi Island Mom,

You are so nice to remember me.  I thought that Wednesday night into Thursday things had cleared up but unfortunately that was not the case.  I am no longer nauseous or dizzy but have really bad constipation.  I have tried senna, lots of water, prune juice, fiber rich foods, everything I can think of including a greasy breakfast meal, very hot black coffee and hot water with lemon.  All offer a very small amount of relief but do not resolve the issue.  I've called the nurse and am waiting for a response.  Suggestions?  I appreciate your concern.

VVH 

dsv

Vielka,

Sorry you are still not feeling well.  Sounds like you have tried everything.  I hope the nurse calls back before the weekend with some suggestions and/or medication for you.  Positive thoughts being sent to you through "cyber space".

Dora

dreaming

Hello everybody, hope all of  you are feeling better, Vielka, I will pop from time to time, I have a very stressful job, I am working lately more with pediatric cancer patients and transplants. I agree to disagree, this is what makes the world and people more interesting.

 I also was very sick with chemo, nothing worked for nausea, vomiting and blisters in my mouth and throat. I had friends that did not have not even nausea. My hearth goes to the ones going though it. In Spanish "Un mal necesario" that is chemo.

All my patients speak only Spanish,or the parents, they need a lot of support,I admire how they face this difficult time.

It gets to me,but I think also it makes me appreciate more ,because  to have a child sick is the hardest thing to face. You take care.

Anonymous

Thanks.  I sam beginning to feel better. VVH

Anonymous

Hi,

I hope that you are all doign well.  Any suggestions for creams or other guidance re: radiation?  I have read that radiation can be challenging if you have tan or darker skin but have also read the opposite. any input?

VVH

dcis2012153346

I was soooo happy to find this forum but I guess we latinas dont like to share as much!. We need to get involved so we can support each other during this difficult time.

starella

bump, yes we need to share our stories!  i'm from Cali, no spanish, shame on me.  I am involved in a study re: the growing incidence of bc among latinas.  Sorta scarey..my mom was er+ her2+, she discovered it at the age of 70, she is 84 now.  I am very glad I found this forum.

apacheco2069

New to the board.  From Pueblo, CO.  I have a mam and ultrasound tomorrow. This would be a reoccurance if it is bc.  I have lump found during my annual onco exam last week. I am frightened to even think of going thru this again. It had been 7 years since the first time.

dreaming

Sorry about it, in 20 years I had several biopsies and removal of microcalcifications that were taken out on time.

I think that having had BC my doctors are more careful on the follow up and it is found on time.

There also is a group here with second cancers.

Hope all goes well.

dsv

Sorry you are going through this again!  I went through the same as you back in 2006 and that I was all done but found a lump in opposite breast in 2011.  It was a new cancer.  Had bilateral mastectomy and chemo and since I was Her2 positive, I finished Herceptin in October.

I hope all goes well for you.  Come back and let us know.                 

p.s.  I'm in Fort Collins

Dora

naiviv

Buenas y Saludos a todas,

Encontre este forum, pero veo que no tiene actividad desde Enero 2013. Yo so de Miami, descendencia Cubana nacida aqui.

Tengo un mes desde la doble mastectomia salvando piel y la area del peson/con expandores y me removierion 13 nodos del lado izquierdo, recien hace 4 dias tuvieron que abrir las izquierda limpiar el vacio y poner un expandor nuevo por una bacteria. So empiezo de nuevo de ese lado. Todavia no he empesado la chemo. Tengo cita con O en 10/11. Mi diagnosis fue de IDC o C invasivo de 1 cm con una pequena micro mestastisis a un nodo.

Si alguien tiene algun interes en seguir este forum tanto en ingles como espanol or spanglish, dejenme saber.

Perdonen las faltas de otografia.

Les deseo salud y felicidad en estos momentos.

Vivian

Enerva

Hola Vivian, Creo que tenemos mucho en comun yo tambien tuve la sirugia salvando mi piel y los pesones. Mi sirugia fue en Marzo de este ano , termine Rad en Junio 27 2013, tengo los expanders y mi proxima sirugia es en Diciembre, Savez me encantaria chatear con tigo tengo mucho gusto en saver que hay alguien que tiene una experiencia similar a la mia porque la verdad no conosco muchas mujeres con esta operacion. porfa mandame un mensaje privado, gracias te deseo mucha suerte y espero logremos converser.

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naiviv

Enerva,

Estas en lo cierto, en Miami es poco comun y aun son pocos los medicos que la ofrecen. Te pregunto si usted se hizo la mastectomia porque rads? A mi me habian dicho que con mastectomia no tenia que hacerme rad en el pecho solo chemo. Pero si me dijieron que si habian mas de tres nodos positivo entoce hacian rads en la axila. Tuvo que hacer chemo? Yo necesito porque soy triple positiva por estrogeno,progesterona y her positiva.

De donde eres ? Te escribo mas adelante al email, cuando tenga acesso a la pc.

Buenas Noche

Vivian

Enerva

Hola Vivian, Bueno si yo hice Chemo lo cual termine en Feb 2013. pero en Marzo cuando me hicieron la sirugia mi reporte patologico arrojo que el margen no estava completamente libre de celulas y tambien un lymph node fue positive. Entonces no tuve manera de escaper la radio terapia. En realidad por mi tumor ser tan grande de 5.25 cm asi fuse arrojado un margen clean igual me fuesen obligado a pasar por rad. Pero bueno ya lo hice termine la rad en Junio. Y ahora solo espero para que me remplacen los expanders por los implantes lo cual sera en Diciembre. Ya no soporto los expanders y es mas que todo el ceno derecho donde recibi rad. Siento dolor y la piel se a endurecido muchicimo tengo esperanza que la sirujano logre reparar ese dano interno. Me alegra que no tuvistes que pasar por rad. En mi caso a mi se me expuso a chemo primero para reducer el tamano de mi tumor y luego la sirujia y tercero la rad. Ok Cuidate y disculpa mi ortografia en espanol es pesima yo soy de Venezuela pero vivo en Canada.

Take care

naiviv

Enerva, Como estas?

No se preocupe de la otografia. Si te es mas facil tambien hablo ingles. Manana tengo primera cita con oncologo y sabre que me recomiendan de chemo o de rad. He leido mucho aqui y hay muchas mujeres con mastectomia que reciben rad. Tengo entendido que cuando hagas el camio pueden arreglar/ayudar algun dano causado por rads. Yo estoy pensando hacerme el DIEP flap, donde te hacen como un tummy tuck y usan la grasa de la barriga para rellenar los senos. Pero eso sera para el ano que viene, posiblemente en verano. Me da chance de bajar una cuantas libritas que tengo de mas. Por mi tumor ser positivo en todo tengo que tomar el herceptin tambien por un ano y tambien una partilla para bloquear los receptores de estrogeno. Canada, usted esta en invierno, mandanos un poco de frio por favor .

Buenas noche

Vivian

Cammychris

Hola, Unfortunetly my spanish sucks(shame on me)  I am sorry we are here but happy to find a hispanic forum.  From Ny and getting ready to start treatment.

starella

bump

KillTheCancer

hi!

Enerva

Hola buen día casi nadie chatea x aqui

Les envío un abraso y mucho coraje y suerte a todas con sus tratamientos

Moderators

¡Hola chicas! ¿Os animáis a participar también en los foros de discusión en español? Hay nuevas miembros ahí que buscan apoyo e información, y vosotras con vuestra experiencia seguro que las podríais ayudar, os esperamos!!

PD: El nombre de usuario y contraseña deben de ser distintos de los utilizados en los foros de discusión en inglés, pues son independientes.

¡Gracias!

Moderadores