LE Summit in Ohio in August

kira66715

This is sponsored by Ohio State, and has amazing speakers:

http://cancer.osu.edu/research/researcheducation/meetingsconferences/les/pages/index.aspx

Tuesday, August 14, 2012
9:00 am - 3:30 pm (registration begins at 8:30 am)
4-H Center
2201 Fred Taylor Drive | Columbus, Ohio 43201

What do we know and where do we go from here?

What we know: Lymphedema is an incurable medical condition characterized by lymphatic fluid retention, resulting in tissue swelling, which can be caused by certain cancer treatments that involve lymph nodes. Although there is no cure, symptoms of lymphedema can be controlled if the condition is diagnosed and treated before it worsens. The prevalence of secondary lymphedema is increasing as improvements in cancer detection and treatment have led to a growing survivorship population.

Where do we go from here: This summit will bring together experts in the field of lymphedema prevention, assessment, diagnosis and treatment. Together, they will discuss current issues in lymphedema detection, surveillance and management, as well as ongoing research to improve the quality of life of cancer survivors.

Who should attend: Healthcare providers, researchers, physical therapists and other lymphedema treatment providers, cancer survivors with and without lymphedema, their family and caregivers and interested community members.

Registration for the conference will begin in mid July. A nominal registration fee will be charged.

Summit speakers include:

Jane Armer, RN, PhD

Michael Bernas. MS

Janice Cormier, MD, MPH, FACS

Joseph Feldman, MD, CLT-LANA

Nicole Stout, MPT, CLT-LANA

Electra Paskett., PhD

Anonymous

Just maybe the stars will align for me to attend this. I have one potential conflict, but otherwise there's no reason I couldn't go, especially with only a nominal fee charged. Are you planning to go, Kira?

kira66715

Tina, I don't live near it, and I'm not planning on going to the NLN this year due to the employment situation, but these are the luminaries of the NLN lectures, IMO.

And, the NLN is quite pricey.

If I was near Ohio, I'd be there in a heart beat.

Even as a Michigan alum (we hated OSU in football, it's very silly)

BoobsinaBox

Thanks, Kira! I might be able to do that!



Dawn

carol57

I am planning to go.  My daughter and son both live spitting distance from that campus, so I have many reasons to go to Columbus.  The program looks really great. 

kira66715

Jane Armer sent me an email to make me aware--she's so great--and I sure wish I was closer. It's all the best speakers.

vlnrph

Just checked the website - registration is free and does not close until the Thursday prior, August 9. 

Might decide to visit my sister in Cincinnati and then go see my brother's place in Columbus: like me, she's a Purdue grad (and also married one). Perhaps they can help me get over my aversion to the Buckeyes long enough to attend the program...

Anonymous

Since I had a good experience with our road trip to TN this past week, I am definitely up for a drive to OH. Just need to check with a friend of mine who is finishing chemo and rads and wants me to visit once he's on his feet. Not sure when that will be, but it is my priority. Otherwise, it looks like I will be attending the conference. Husband will drive out with me but won't be attending conference. He knows if I run into other BCO gals I will need to be footloose!

carol57

I registered and will definitely be there!

BeckySharp

I am considering coming.  Six hour drive for me.  I am also going to Lighthouse Lymphedema's presentation on October 27 in Atlanta.  Any other takers?

ohio4me

I'm registered and hoping my sisters come along. This is only 3 hours from home so would be a nice sisters overnight trip.

carol57

There is something very special about having LE be the centerpiece of a sisters' trip!

Anonymous

Looks like I am available for the conference! Hee hee!!

carol57

Who else is going?  It will be great to meet!

vlnrph

Ten more days to register! Is anyone bringing a spouse/significant other?

We're booked at the Hilton Garden Inn Monday night: if our schedule permits, I will get some aquatic therapy done in the pool that evening.

Otherwise, look for a short 50-something with chemo curls & glasses at the program.

Mary 

GottaloveNED

So... I'd like to go... But I'm in Northern WI and a 14 hour trip is not on my agenda. What is on my agenda is a bunch of medical appointments, including getting measured for a new glove and sleeve to start the school year and hopefully keep out some of this accursed summer swelling... Any of you attenders going to be posting thoughts or live blogging the event? Maybe start a new lymphedema thread for those of us not able to attend??

vlnrph

If this conference becomes an annual or regular event, perhaps we could carpool! I don't mind driving...

Carol57 is an excellent writer/communicator so I nominate her to be our correspondent 

carol57

Well, by my count, there will be at least five of us there, so perhaps at the summit, we can each take a topic or a speaker's presentation to agree to report on.  Tina337 always has such astonishingly detailed recaps of what she heard at a Dr. Massey presentation, I just KNOW she was a reporter in an earlier life!  I went to another of Dr. M's forums, and I did not retain an eighth of what Tina did.

Anonymous

Mary, my husband and I are driving out over the weekend and will explore and relax. He may give me a ride back and forth to places, but other than that, he needs a break from lymphedema talk. No offense to any of the gals who will be present, but he's just had his fill. Personally, I actually prefer not having to worry about him being bored, etc, so I'd rather go solo anyway. I am registered and we are staying at a new Holiday Inn just over a mile north of the 4H building. I'm planning to walk there. Really looking forward to meeting, as I have never attended a program on LE with more than one speaker.



Carol, you are too kind about my memory. I think Dr. Massey's presentations can vary depending on size of crowd. As far as retention, for me it comes down to how material is presented, how distracted I am, and how well I can hear. I forget tons of stuff, so I guess it's a selective thing, probably also based on mood and how much sleep I've had. I will be taking notes, for sure, but I'll let you know how much I retain of stuff after.

Nitocris

Carol, Tina and all the lucky ones attending the conference,   I am green with envy and really looking forward to reading your reports.  Does anybody know if they will be video-taping the conference?

carol57

Nitocris, fly on over...life should be that simple, no?

Anonymous

Nito, I will be green with envy of anyone who travels to Finland to see you without taking me along!!

BeckySharp

Maybe one day.... The closest I have come to Finland is Denmark.  Yeah Nitocris--come on over.  We will treat you to a summer sauna!

Laural136669

I would love to join you all in Columbus. My LE therapist will be there, but I will be at the Leukemia & Lymphoma Society's night at the Cincinnati Reds game as I am one of their patient "heroes". So many opportunities and so little time 

vlnrph

I'm half Finn so I'd be up for a trip to Helsinki! My mom & siblings have all been there but circumstances never worked out for me...

Laural, you're a "double dipper"? One kind of cancer must not be enough for some people  Glad that you've got things under control.

ohio4me

I am officially in - my return to work is Wednesday, August 15 so that means I can attend the conference. Actually, when my BS found out my plans to attend, she was in total agreement with my return to work date. She is one fantastic lady.

I do feel a bit guilty because I know I could be back at work but I think I deserve this one. I worked every day during radiation and chemo (only took off chemo days) so I think a few extra days off at the end of my journey is not too much to ask.

I know I am going to be busy upon my return and I am sure they are sending me to the west coast so these few days are my last 'days off' before my head starts spinning with work.

carol57

Hooray! You do deserve this opportunity. See you there!

BeckySharp

Hooray Ohio!  I look forward to meeting you on Monday.

ohio4me

My massage therapist is going to try to make this meeting. She is LE trained but not certified and has very helpful with Little Martha.

Also sent the info to the Club Manager at Concorde Health and Wellness Center (multiple locations in our area). I stopped by Concorde looking for a personal traininer that knows PAL protocol and the manager didn't know what I was talking about.  He also got the website for Univ of Penn to research/obtain the information.

Oh - and a friend of mine has daily massage for cerebral palsy and she found out her therapist knows several patients in need of an LE therapist.

I think I found a mission. LOL

cookiegal

Wish I could swing it. I need some hope right now.

carol57

The Summit is coming up in just a few days!  Tina337, BeckySharp, Ohio4me, Vlnrph and I will be there, and we are all looking forward to meeting each other in person.  And...we're planning a get-together on Monday evening, the night before the summit.  I'm posting this just in case anyone else in this wonderful LE forum is planning to attend.  If you'd like to join us for dinner on Monday, PM me and I'll get you the details.