Bone Mets Thread

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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited October 2016

    Sherri - based on my personal experience, pain is not a good indicator and it can be sharp, more generalized, both or none. I also have spinal mets and radiation would be used only for severe pain or if it caused problems, such as spinal cord compression. Healing bone mets can also cause pain. But as Kaption said, guidelines could be different in a clinical trial. Your overall results are very encouraging.

    I finally got my results and I'm still stable. The long wait and reviews and re-reviews of scans were certainly worth it.

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  • Kaption
    Kaption Member Posts: 3,192
    edited October 2016

    Yay LindaE. Celebration!!


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  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited October 2016

    lindae. Stable !! Beautiful words. Congrats !

    Dee. Great to see you and to hear stable for you also. Yea. !!!

    Aurora. Hoping exloda is as kind to you as it has been for me. No major side effect ts excepts some mouth sores that magic mouthwash fixes. I still have some bad days but def feel better in this tx than any of the previous 2 tx's

    Lynne. Come out for dinner anytime. No invite needed. Tonight was chili ( yea Crock-Pot easy ), yellow cake with peaches and raw broccoli and carrots with dip. You are right it is sometimes hard for me to see all the positive when I am fa in a hard day. Thanks for the reminder. I am counting my blessings Indeed

    Hugs to all. Only 2 more hours until The Great Pumpkin Charlie Brown. So excited !!!!



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  • 50sgirl
    50sgirl Member Posts: 2,527
    edited October 2016

    LindaE, Woohoo for your results. Stable is wonderful. Happy dance for you! It is unfortunate that you had to experience the long wait and stress before you received the final results, but that doesn't diminish the good news. WOOHOO again!

    Lynne

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  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,284
    edited October 2016

    LindaE, congrats on your good news! Love hearing stable!

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  • Lindalou
    Lindalou Member Posts: 647
    edited October 2016

    Linda, So happy for you! Stable is indeed the best news.

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  • zarovka
    zarovka Member Posts: 3,607
    edited October 2016

    Cure-ious - I am mountain biking all the time this fall. Lifting my bike and my kids bike on and off the car. We're having awesome weather. I am having so much fun. But my balance, strength and reaction time are all off from the drugs. In addition to the biking itself and swinging bikes this way and that I fall more that I should. Took a little face plant just today. The obvious thing is strain, but my mind goes where it will. Thank you so much for sharing your experience. I could have a PET scan now since my last one was 3 months ago, but I don't like the scans, the contrast or the radiation. Given that I seem to be doing well, I want to delay until December. My onc is on board, that's the plan. I think I'll stick with it. ....

    Linda - Yeah.

    Sherri - I am so glad that your oncs are taking a wait and see approach regarding that one met as the immunotherapy seems to be knocking back most of the cancer. I hope you can stay on for 8 more weeks and get the full benefit of the immunotherapy. I have a whole rant about scans, but basically a 1 cm bone met is in fact something a scan can miss. They missed mine. Mine never showed up until it was healing. Not usual, but not impossible. Radiologists love their technology and don't embrace it's uncertainty. Smart oncologists, however, do. They don't often directly contradict the radiologist but that can be what is behind the "wait and see". Let us know how it goes.

    >Z<

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  • jensgotthis
    jensgotthis Member Posts: 937
    edited October 2016

    Good news Linda! As I told my best girlfriend the other day, that stable boy is a sexy beast!

    (hope no one is offended by that)

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  • Iwrite
    Iwrite Member Posts: 870
    edited October 2016

    Linda,

    So glad you got good news on the scans!!! Relax and enjoy the holidays!

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  • Wendy3
    Wendy3 Member Posts: 1,012
    edited October 2016

    Sherri for myself I would never get radiation if I'm not having any pain. Spots can only be radiated twice that's it. I would us it when you need it. Besides the fact that radiation is not good for you😊

    Linda great news you made my day🍾

    Stable boy Jen your funny.

    So off to do some winter paddling brrr, what's that saying " no bad weather only bad clothing). Have a great weekend all.

    Yes Dee we will have to hook up for lunch would love to see you again.

    Wendy


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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited October 2016

    I agree Jen, sexy beast indeed!

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  • babs6287
    babs6287 Member Posts: 2,021
    edited October 2016

    Linda. Loved hearing the word stable for you. Great news!!!!

    I had my second CMF chemo Thursday night and then a Liver biopsy yesterday to get enough tissue for genome and mutation testing. Looks like the third time may be the charm. Drs think they got enough tissue this time!!! My TMs went up a lot in just 3 weeks. Im hoping they're right. I'd like a treatment geared towards what is really going on inside me!

    Bab

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  • jensgotthis
    jensgotthis Member Posts: 937
    edited October 2016

    Babs, my TMs doubled during chemo and ten took a nose dive afterward. Glad to hear you got a good biopsy! How long for your results

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  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited October 2016

    hello ladies

    My fil is 84 and not doing well in hospital on ventilator since yesterday. Mil says if no better by morning g they are taking ventilator off. He always had her promise not to allow one. In all the quick shuffle and terror she allowed it. Dss having a hard time esp ds2. They live in TX about 8 hours away. Ds2 wants to leave immediately to be with him when he dies. Dh and I agree we don't want him seeing I'm in that setting. Not a memory I want him to have. So dh and dss will leave after he has died. No way can I make that ride. Ill stay home. Sure hate not being there for my family esp dss but it's out of my control. Ugh. The complications of living with stage IV.

    Hugs

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  • dlb823
    dlb823 Member Posts: 9,430
    edited October 2016

    Oh, Patty, I'm so very sorry. What a terrible situation -- and when you DH and boys have been through so much in recent months. You and your family are in my prayers tonight.

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  • Lita57
    Lita57 Member Posts: 2,437
    edited October 2016

    Patty, sorry to hear about your fil. You've had so much on your plate these days, and the kids are feeling it, too.

    Prayers for peace and comfort about this,

    Lita


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  • jensgotthis
    jensgotthis Member Posts: 937
    edited October 2016

    Patty, Holding you and your family in my heart tonight.

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  • 50sgirl
    50sgirl Member Posts: 2,527
    edited October 2016

    Patty, I am sorry to hear about your fil. You and your family are in my thoughts and prayers.

    Lynne

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  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,284
    edited October 2016

    Patty, prayers going up for your family at this difficult time.

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  • Lindalou
    Lindalou Member Posts: 647
    edited October 2016

    Patty, Sending love and comfort to you, as you and your family go through this very difficult time.

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  • annieoakley
    annieoakley Member Posts: 870
    edited October 2016

    Patty, thinking of you and your family during this difficult time. I'm so sorry to hear about your fil. Sending you love and hugs

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  • babs6287
    babs6287 Member Posts: 2,021
    edited October 2016

    Patty so sorry to hear of your fil. Sending you and your family hugs

    Babs


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  • Kaption
    Kaption Member Posts: 3,192
    edited October 2016

    Patty,

    Prayers and hugs for you and your whole family.


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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited October 2016

    Patty - Joining my voice and prayers.

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  • AnimalCrackers
    AnimalCrackers Member Posts: 701
    edited October 2016

    Oh Patty - you and your family are in my thoughts. Your MIL must be beside herself with grief and as you said terror. Does your DH have siblings who are there to comfort her? Your DS2 is a very sensitive and brave soul to want to be with his Grandpa now. How old is he? Stay strong and take care of yourself. You may not be able to be with your family physically but you are there for them emotionally and spiritually. Sending love and hugs.

    Cathy

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  • auroaya200882
    auroaya200882 Member Posts: 942
    edited October 2016

    Patty, so sorry you're going through this. Prayers for you and your family

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  • KDs-Husband
    KDs-Husband Member Posts: 107
    edited October 2016

    Patty,

    I join the others in my prayers for you and all of your extended family. I pray for a peaceful passing for your father-in-law, and acceptance for all of his loved ones.

    I understand what you are going through having experienced the passing of my step-dad and father-in-law six days apart this past June.

    For me, it was all about how KD and my two young boys would handle it. I was amazed at how well each of them did through that week and a half.

    Hugs,

    Louis

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  • zarovka
    zarovka Member Posts: 3,607
    edited October 2016

    hang in there patti.

    >Z<

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  • BonnieMen
    BonnieMen Member Posts: 13
    edited October 2016

    Hi,

    I wanted to introduce myself. I'm Bonnie and I have been officially diagnosed with Stage IV BC that has made its home in my bones. It's spread all over, not wanting any part to feel left out. Heels, right knee, right shoulder, left femur, and skull, have company, showing up as bright spots on my PET. There is a large infestation in my pelvic area and of course my entire spine is involved. There are random spots elsewhere but not worthy of mention next to these others. Good times, good times.

    I'm glad to have found this place - there are questions and complaints I'm not able talk about with my family. For example, no one wants to look at my scans to see how speckled I am on the inside. Not that you do either but you get why I'm freaking outHappy

    I had fun filling out the diagnosis and treatment section of my profile. I was wondering how you all had such neatly formatted signatures. I'll add more and share my details after I dig out the paperwork from my first go-round.


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  • auroaya200882
    auroaya200882 Member Posts: 942
    edited October 2016

    Welcome to the thread Bonniemen it's too bad you have to joins us but I hope you'll find support and information here like I have. The first days after dx are full of anxiety but once you have a treatment plan in place you'll begin to adjust to the new normal. There are many people with bone mets living many years after dx. Don't listen to statistics.

    Aurora

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