Treated at 29, Recurred at 30...
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CloserToFine
Member Posts: 9
Posted this on the recurrence thread but I wanted to reach out to all my young women too!! -I had a VATS yesterday for an enlarged internal mammary node (in the chest under the breastbone) and it's a recurrence. The first time around in 11/2010 I had a Stage IIa Grade 1-2 ER+/PR+/Her2- IDC treated with mastectomy, negative SNB, and was on tamoxifen since then. Also had a TE and implant exchange in May. I was 29 at initial treatment and am 30 now. I'm definitely facing radiation and chemo but not sure yet in which order or when they'll start.I know I should feel scared but instead I feel angry and tired. I can't believe this is happening again - I did everything you're supposed to do! Having a BMX wouldn't have changed anything since this is the same tumor back again on the same side. I also had a "wimpy" cancer as my MO called it (who I do like a lot, she's one of the best in the country) and nobody thought this had any chance of ever coming back. Oncotype was 17 so no chemo. I feel so bad for my husband too - we got engaged 6 mos before diagnosis and married last August after treatment, and now 6 months later recurrence and he has a newly bald burned wife in his future. He is amazing and loving and supportive and has done/will do so well with all of this but I feel so bad! He bought a lemon! Anyway I guess there's no point to this post but I wanted to say hi to those of you who are going through this hell too and to those of you wonderful enough to support us. If nothing else, at least we're all in this together!
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I also replied on your other thread, but forgot to say I was 31 at initial dx, 35 at 1st recurrence and am now 40. You can do this! Feel free to PM me if I can help. Sending hugs xx
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Hi Angelfalls - Thanks for pointing me over to this thread and the hugs! Back when I was first diagnosed I used to lurk on Young Survival a lot, but I feel like everyone has deserted those boards since the format changed, which is such a shame because they were such a great resource. I'm just hanging in there and waiting for a plan - I need something to tackle other than healing my VATS incisions, which seem to be doing fine without any help from me! Funny how I know control is an illusion but I still keep thinking a plan will make me feel better
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I've been fighting a recurrence that started in my internal mammary nodes as well. It's such a sucky place to have cancer because surgery does no good.
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Dear Closer to Fine,
I'm sorry to see your about your recurrance. Were you detecting any pain in that area or was it picked up on scan alone? I'm also a grade 1-2er and under 40. Good luck w all and if u like, keep us posted. My thoughts are w you.
Raych
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