Neulasta and Tinnitus (Ringing/buzzing in the ears) ???

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CatFromFL
CatFromFL Member Posts: 105

I received Neulasta about 25 hrs after receiving my TC last week.

A few days later I had many severe side effects, most more severe at the time than this incessant Tinnitus.

The tinnitus started a few days into it and has not left since. My MO says it should be temporary. Please tell me that this is not permanent or I will be ready for the loonie bin!



Has anyone else experienced Tinnitus after Neulasta? How long did it last?

Comments

  • SpecialK
    SpecialK Member Posts: 16,486
    edited May 2012

    The tinnitus may actually be from the Carboplatin, if that is the "C" in your cocktail.

    http://www.ncbi.nlm.nih.gov/pubmed/16419684

  • Moderators
    Moderators Member Posts: 25,912
    edited May 2012

    Hi Cat,

    Sorry you're experiencing this! Must certainly be annoying :) There's some great info on the main Breastcancer.org site on Hearing Problems, with tips on how to manage.

    Hope this helps!

    --The Mods

  • CatFromFL
    CatFromFL Member Posts: 105
    edited May 2012

    SpecialK,



    The TC is Taxotere And Cytoxan. ( I also got Aloxi, Emend, Sancuso patch, and IV and oral Dexamethasone, as well as Claritin 24hr, Advil, Tylenol and Tramadol since 5/8, oh and a host of my regular medicines, that I had been on)



    I spoke with a fellow at Amgen, the makers of Neulasta. Or as I am calling it these days "NewNasty"



    He said that they have had reports " here and there" of tinnitus, but that its not listed as a "side effect" in their literature. I put in an official " report of adverse drug reaction" but I was wondering how prevalent it is with so many cancer patients getting it. That is breast cancer plus most other cancers too.





  • fedfan
    fedfan Member Posts: 44
    edited May 2012

    I am currently undergoing chemotherapy. 4 rounds of Adriamycin/Cyclophasphamide then 4 rounds of Taxol (each round every two weeks). I have just finished my 2nd round of Taxol. I have also had a Neulasta shot 24 hours after each treatment.

    I too have had ringing ear problems, although I have described it as crickets...like the sound around dusk in the trees on a summer evening. Sometimes I can't tell if it's the crickets or in my head. I figured this was a side effect of the chemo. My brother-in-law who is a neurologist said that the chemo could have that kind of effect. I never thought about the Neulasta shot as being the cause. Whatever is causing it, I am looking forward to it being gone when I finish chemo in June.  

  • Lezza13
    Lezza13 Member Posts: 957
    edited May 2012

    Hi  I too have tinnitus after his neulasta shot- mine in the heartbeat in my head.  Never thought it would be a side effect of TC chemo.  Is it supposed to go away after chemo?

  • blessednalabama
    blessednalabama Member Posts: 1
    edited May 2012

    While taking Chemo & Neulasta, noise in head was loudest when received treatment. Every third Friday. Side affects were so bad I stopped after four of six treatments. I continued to take Herceptin for a total of eighteen (one year). Doctor said if noise continued after treatments finished, he would do something about it. The noise is intermittent still. The doctor told me that the noise had nothing to do with Chemo & I should see an ENT. It has been a year since I had Neulasta and the bad Chemo. I still have Neuropathy in my feet. I take Gabapentin (mild seizure med) & B6 every night. My fingers have cleared up except ocasional mild numbness & I don't have any cuticles. Permanent? I hope not!

  • camillegal
    camillegal Member Posts: 16,882
    edited May 2012

    I also have Tinn., but I really never thought about it being connected to chemo or anthing else related to treatment??? I still have it, so I always sleep withT V on or something-It's worse at sometime better at other times???? It's funny when u go thru years of surgeries and treatments and ur'e done---u think u'r done. but things keep happening cuz of meds or whatever. It tires u out.

  • Crich2
    Crich2 Member Posts: 2
    edited January 2018

    I have had Tinnitis mostly on the right since the 90's. I have had a great deal of chemo in the past for 2 Hodgkin's lymphomas, AML Leukemia, and a Bone Marrow Transplant. So much chemo I can't get what what I need now because "I maxed out". Have already had more than the max dose for Rads. Had Taxol, massive total body hives, switch to Abraxane, altered level of conscienceness, whoo, I couldn't even talk! And pneumonia. Stuck in the hospital for 10 days. Followed by Pneumonitis and home O2 for 10 weeks. Told by Pulmonary to "never have that chemo again!" Too bad, it seemed to help. Just requested a biopsy after the 1st mo of Ibrance & Faslodex . The NP told me last week when I requested a biopsy for the lumps on my side that if the biopsy was positive I was already on the chemos. I said it is one thing to be getting the chemos given to women with mets, and having mets. Just saying. But after having my 6 injections of Faslodex, both ears have this steady rush and high pitched squeal that is unreal! And loud! Much worse. I came on this site, surfing for this. Wasn't thinking about the Faslodex at all. I've been on Estrogen blockers for a year with no extra Tinnitis. But it is BAD! Thanks to all posting, first tip I've had that helped narrow it down. I use ear buds and Pandora and sleep meds. The meds are to help me sleep through the pain from severe neuropathy from all the chemos in the past . Which I can no longer get pain meds for since I moved from CA to VA. Don't think I would have moved if I had known that. Opiate crisis. Yeah. Great. Crich2 RN

    10/15 Lump, Left

    7/16 - IDC, 4.4 cm, 2,3 cm, 3 nodes positive Stage IIIb

    IBC (Inflammatory Breast Cancer)

    9/16 Taxol, Hives

    9/16 Abraxane, ALOC, Pneumonitis.

    1/16 Anastrozole,

    3/17 Disease progression.

    3/17 5-FU. 9/17 Xeloda,

    11/17 Disease progression.

    12/17 Skin lumps found

    12/17 Ibrance and Faslodex

    1/18 Skin biopsy, positive for mets. Stage IV.




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