Post your tech glitches, errors, issues, etc. here.
Comments
-
I'm back to staying logged in! Now ya see it, now ya don't! Sheesh.
I joined in the summer of 2018. I don't think I've read a single article in almost four years. My oncologist always mentions anything recent that would apply to me, so I trust her expertise on keeping up with the latest. Not only can I Google, I know the difference between a peer-reviewed research paper and a load of crap from some dubious doctor of bullshittery. So I, like many others, don't need that wheel reinvented and dumbed down for me. I'm here for the community. As horribly sad and distressing as it is when we lose a beloved member to the disease, I find it unconscionable that this site is so goddamn cavalier about losing living members who are dropping off because the site is so difficult to navigate, and that the administrators are so unwilling to admit they fucked up royally.
-
Wow! That redesign in the article sounds so far different from reality. This is the worst example of that over-promised-under-delivered project. How's that transparent data collection going? So far my user profile displayed doesn't match what I've entered. I don't expect I'll re-enter all my details anymore.
As a developer I would be embarrassed to be part of this redesign. Work & Co should be fired.
-
is anyone paying attention? I think not.
-
-
-
I asked Work & Co to fix the discussion forum that they broke.
-
I'm so pissed off, aggravated and sad! I can't even go to bed I'm so worked up!
Wren, I'm with you, what the hell is that purple thing?
debwew, great detective work!!!! Thank you.
Sadiesservant, you say it well! "What was extremely helpful and what continues to drive me to the site over and over are the experiences and learnings of other members who have supported me as I have dealt with side effects, guided me as I have contemplated treatment decisions and been there for me when I just needed a shoulder. We don't always agree but we respect each other's views and are always there when times get tough. That is the biggest value BCO brings which, unfortunately, appears to have been disregarded in a desire to point people to a bunch of pretty limited resources. Now that's depressing."
Ceanna, you too say it well, thank you!
Wonderland, right? About the logo. BC is not a joke, nor is it funny.
Beesie, you are so right on, I'm just so angry right now. I'm surprised I was even able to go to a previous page.
Wren, relationships have been made is an understatement. I've met so many wonderful women here, which is why I stay. And I have other platforms for which I can stay in contact with them.
Alicebastable, I've been here since 2008 and have NEVER read an article. Love the "bullshitery". And you say it well "As horribly sad and distressing as it is when we lose a beloved member to the disease, I find it unconscionable that this site is so goddamn cavalier about losing living members who are dropping off because the site is so difficult to navigate, and that the administrators are so unwilling to admit they fucked up royally."
I'm not her for information here anymore, but what about the newbies that are. Those that are scared, looking for information? You can't hardly go back to any prevous pages without getting "site down". I feel bad for new gals and men looking for information. And has anyone ever said "we are sorry". NO, just please be patient.
I type my responses in notepad just in case I get the "site down" and then have to type again.
Serenitystat, can't wait to hear what they tell you.
Boycott NO, we can't do that, because we are here for one another and those that come look for help/compassion.
ARGH, rant over, going to try and sleep! ........but still angry and sad.
-
Beesie re"And how do they explain a design that is so out of touch with their user base?". I looked at their client list and they have no experience in healthcare, clients listed are Ikea, Gatorade, Disney, Philz Coffee, Apple.
-
Any redesign would need to be approved by BCO. The planning and implementation is on Work & Co.
-
I don’t really expect to hear directly from Work & Co. I also replied to Fast Company. The one who wrote the article didn’t spend a great deal of time on this site.
-
Cowgirl, true, but the objective of the redesign was to improve tne user experience. They were supposed to learn about the needs, likes and dislikes of the users. That was their job.Looking at the content pages, I find the restructuring around who the user is (newly diagnosed, in treatment, caring for someone, etc.) to be extremely confusing. If I want to find information about endocrine therapy, does it matter if I'm newly diagnosed or finished treatment? And if I'm on endocrine therapy for 5 or 10 years, does BCO consider me to be in treatment or have I finished (active) treatment? If you come here looking for information on a specific topic, how do you find it now? I also don't think most of us want BCO to be determining what information is important to us based on how we filled out our profiles or whether we are "in treatment" or "finished treatment". I know I sure don't. I have the ability to think for myself.
Serenity, the screen shot that Work & Co. posted on their twitter feed looks like something from a 3 year old child's picture book. "Which option describes you best." followed by silly graphics. Do they have pictures of elephants and giraffes on the next page?
As for the purple breast graphic, it may represent "caring for someone" but it pops up on my screen whenever I sign out and often when I move around between sections. Here's the screen I get every time when I sign out; it's part of the reason why I now avoid signing in.
-
Wren, thank you for your comment on the stylized people. I kept thinking how tacky because I kept seeing two breasts. Then it hit me, two people. I also see a goofy smile. I can't believe the powers to be and Mods like it. SMH
-
Debew thank you so much for your research on the website update. The thought that leaving white space and stark print/graphics would be welcoming is extremely puzzling to me. This design group and the BCO leadership team have not perhaps spent an inordinate amount of time in hospitals and doctors offices. Nor do they perhaps suffer from the effects of medications that make your eyes much more sensitive.
Wrenn - I agree with your assessment of the whole thing being cold. Cold in presentation, but more importantly coldly dismissive of the vibrant, helpful, essential community that once existed here. I, too worry about those newly diagnosed not receiving the support that I found so crucial in the early days of my diagnosis.
I am struggling with how to move this process forward. We have not had any measurable change to the clinical presentation of the community forum to date, nor any indication from BCO that efforts will be made to make this portion of the site more navigable to tired sick users. I feel we will lose the vitality of voices and that loss is incalculable.
-
goldie, your post commenting on the comments of others is how I feel, too; thank you for that.
Will we get a “stay logged in" box to check like we had before?
I am UNABLE to access My Favorites. Currently I have four threads in there with new content but for two days I've tried to open it and continue getting SITE DOWN.
I am one of those who has not gone into the stage iv section this entire month to read or post because the aggravation of simply accessing any of those threads leads me down a black hole. There's no way to actually concentrate on the content of what others are posting when my frustration increases with every SITE DOWN page I encounter.
-
My imagination takes me here:
-
On THEIR page....
How We Deliver
20 days to market feedback
For most projects, we complete a full design cycle and prototype early, enabling clients to begin validating strategic assumptions and ideas well before deployment.
-
The Fast Company article (and Thank You!, debbew) prompted me to take a look at the rest of the BCO site. If the objective was to make it easier for users to find information, here again Work & Co and BCO have failed.
Over the years when I've posted on the discussion board, I have tried to include links with BCO information where appropriate, so I have familiarity with that side of the site. I admit that I usually found better information on other sites (NIH, Mayo Clinic, Cancer.org, etc.) but over the past couple of years BCO has made an effort to improve their content. So, what I did was pick a couple of common topics that came to mind, and I tried to find the information on the new site. That was an exercise in frustration.
Let's say someone is newly diagnosed and they want to know about their stage and their type of breast cancer (DCIS or ILC, for example). How easy is it to find that information? Looking at the home page, logically a newly diagnosed person would click "Newly Diagnosed" under "About You" (although note that I had to scroll down 2 screens to even find that). Is any of the information on staging and types of breast cancer there? No. Well, maybe that information is in the "In Treatment" section. No. Guess where I found it? Under "Caring for Someone". Well, that makes sense!
After struggling to find any of the topics that I was interested in, I reluctantly decided to watch the video about the wonderful new features of the site. I almost missed it in the video, but there was a reference to 6 "About You" categories and 6 "Information Categories". Well, where the heck are the information categories? I finally found them! Check out the very small "Learn" at the top of the page. That is a drop-down menu which then features Types of Breast Cancer, Side Effects, etc., - all the information that used to be so easy to find on the site. How many people are going to figure out that all this information is under a tab called "Learn"? I'm pretty good at navigating websites and there is nothing intuitive about this. Will an anxious newly diagnosed person go to the effort to find this information or will they just leave in frustration?
Here are 5 screen shots that show, in sequence, the entire home page as I scroll down, as seen on my PC (it will look different on an iPad or phone). See the "Learn" right there at the top? That's where all of the information on the site is hidden. Once you figure that out, you can navigate somewhat similarly to how you were able to access information before.
-
This community is the heart of our organization and we truly respect your input. As a nonprofit, we do our very best to meet the needs of our community members every day. We always welcome and appreciate constructive feedback. We are listening.
To keep our community respectful and safe for everyone, we ask you to follow the Rules of Conduct.
Although we'd like to please everyone, we understand not everyone will feel the same about the design decisions we've made. Breastcancer.org did testing with a great number of people who have had or have breast cancer, and that feedback and testing informed the design changes.
We are working very hard to quickly improve functionality and performance. We've made great progress already, and will continue to resolve the technical issues. To help with this process, please report your glitches and feedback HERE.
Warmly and respectfully yours, Melissa, Community Director (mjenkins@breastcancer.org) -
I'm wondering if you did your initial testing with actual members of this community. I think that maybe you should run a poll on the site as to the desired color scheme and site layout. I think the color scheme would be an easy thing to modify if it turns out that most members prefer something different. I for one would enjoy the option of a different background color. I stare at my computer all day, the white background is very hard on the eyes. This is why most apps have an available "dark mode" these days. Personally, I can't understand how black and white is more "inclusive".
-
I can guarantee that I will NEVER allow my medical records to be accessed by this organization. How absurd to think I'd let private information get into the hands of people who can't even run a website.
That said, I am once again experiencing "negative" Unread Posts notifications. Another example...
-
Melissa/Moderator, as Director of our "Community" I'm disappointed in your last post. I feel like I'm a little child and you gave me a pat on the head and sent me on my way even though we're trying to tell you about a serious situation!! I don't see that anyone violated any "rules of conduct", and you refer us to the release notes page which hasn't even been updated in the middle of a crisis for almost a week! We're trying to tell you how important BCO is to us and want to make it useable. Instead, we're now at DAY 18 and it still took me a number of "site down" errors before the long wait to get to a thread I want to read.
Please, treat us with respect, be accountable, and tell us when we can expect to see a workable site again.
-
summergal, yes, it was tested on BCO members. lw422, yes, we'll send that to the techs immediately. Thank you for reporting. Beesie, all good points, and it will be shared with the tech team as well.
Editing to add: ceanna, not our objective at all. We're just trying to remind everyone that a respectful tone to us mods as well as to one another is also important in constructively moving the feedback forward. We're all here for and with you.
-
I am not in active treatment but when I was first diagnosed I was stunned to receive the help and support from many generous and knowledgable women. I am still here 9 years later because I am interested in these woman and want to stay connected. I am very frustrated by the last weeks of this disaster. I can't even begin to imagine how difficult it is for the later stage people who have built up relationships and sometimes over many years and some in frightening situations with treatments and worries are handling this. Have any died? Tried to reach out to their community in their last days? dunno.
Forget newcomers. That isn't happening.
Given all this I think the "tone" is mild. That we haven't just left is proof that there are very strong connections made here. To keep posting fluff about reporting to tech team is so insulting. Good grief. STOP
-
LW422, I thought the same thing... I would never give my medical records to this site.
-
wrenn, we know how frustrating it has been, and we're working on it, truly! We are asking everyone to please email community@breastcancer.org or mjenkins@breastcancer.org if you know of anyone who is not able to get in. We are helping each and every person we hear from. We are pleased to see so many new people are able to join, and are getting support. Thank you All for your help with this! And please, only share what you are comfortable with here. We are here to support you.
-
Ceanna, as promised, we will be updating the release notes page on a weekly basis and will be posted by the end of day, today. Thank you!
-
"We are pleased to see so many new people are able to join, and are getting support."
Really? I may have missed them but I have not seen many new people.
-
Wow, I couldn't log in for days and then I came here to read some posts and somehow I am now logged in, without even wanting to be. Who knew? Guess I'll post something while I'm able. Random thoughts below.
Just want to say that I agree with about 95% of everything that the community members have posted above over the last few pages. This "soft launch" or whatever you call it, has been a complete disaster and BCO does not seem to want to own it. They blame the "old source code" or whatever, and now it's about people not following rules or something. I think BCO should take full responsibility for what happened, get another company, and start all over again. I sure hope this Work.co place can't use this as some sort of charity tax write off either. They don't deserve it.
Debbew, thank you so much for locating just who the mysterious "tech team" is and letting the rest of us know. And I agree, they seem to want to model this site off of their own. Very strange.
Thanks also to so many members who have posted above, because it shows that I am not alone. I don't know if I will return to and be actively involved on this site at any point. This has been so deeply disappointing. If I do come regularly again, I'd hardly upload stuff from MyChart onto here! What are people thinking???!!!
There have been several posts (not about glitches) that people have made that I would have loved to have responded to, because I sympathized with the posters and thought I might be able to offer some meaningful thoughts to them, but so many of those were over a week ago and the opportunity to maybe help has passed. It's a sad feeling.
Well, even if I do decide to "come back" or whatever, it will never be with the trust, confidence, or respect that I had previously had for BCO. I'll continue to check in once in awhile to see what's going on, but that's about all. I cannot recommend this site to anyone at this point. I had found this place so very helpful over the last 3 years and I don't know what I would have done without all of the wonderful members who post and respond on here, share their stories, offer advice, and who have contributed so much to my ability to get through this. It was wonderful while it lasted.
-
There is obvious reduced activity since the redesign. The site is slow and prone to error. How many of the new users are current users having trouble signing in? I know I registered at least twice to test if my issues were due to my browser or device (they were not).
I also will not be sharing my medical info.
-
Just a few observations:
*I am not comfortable giving anything more than very general health information to any organization (which is why I'd rather pay for my fitness membership instead of getting it free through my insurance company who asks too many questions).
*For the newly diagnosed or those having specific problems due to their cancer and/or treatments, it is crucial that the information is easy to find.
*For those of us who have stayed around for the long term, it's because we've built relationships and/or want to help others out of our own experiences. For us (and for new people who are checking out the Community Forums); easy, understandable access, quick loading times, the lack of glitches (such as site down notices, having to click multiple times to get in, not being able to scroll back to a previous page etc.) are critical if the forums are to continue to be a place of friendship and support. The fonts, white color, logo etc. are annoying to many (me included), but it's the difficulty getting in and the glitches that, if not fixed, will be too frustrating for people to choose to deal with and will cause people to throw in the towel, IMO.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team