new here, 2nd time around

nikibird

new here, 2nd time around

nikibird

Hi there,

this is the last place i hoped to find myself, no offence, but here i am and i know you are all a wonderful, supportive group.

8 years ago i had stage 1b breast cancer, no lymph nodes, dcic and mucinous carcinoma, strongly ER+. i had a mastectomy and oophrectomy, and no further treatment, it wasn't felt it was necessary.

for the past few months i felt a burning, itching sensation a little above the site. 2 weeks ago it grew into a very large lump, on the sternum i think. or supraclavicular. not sure.  anyway, they rushed me through to biopsy and sure enough it is a large well differentiated ER+ breast cancer.

i dont understand yet whether it is a local recurrence, or metastates.  they have booked a bone scan and ct scan, and i see a radiologist tomorrow morning. this is much different than the last time, last time i went for mastectomy first, not radiation.

the last couple of days i am beginning to have a lot of chest pain that radiates to the back and neck muscles.

does this sound familiar to anyone?

thanks!!!

S

nikibird

i'm wondering why no one has responded, did i say something wrong?

rjbaby69

S:

No I don't think you said anything wrong.  The weekend is usually slow around here.  I just wanted to say how sorry I am that you find yourself in this situation again.

I have completed all my active treatment and am now on Tamoxifen.  This is my first occurance with BC and I hope it's my last.

I sure some other ladies will drop by that know a lot more than I do.  Just wanted you to know that you're in my thoughts.

HUGS!

pupmom

S, I'm also very sorry you are in this situation again. As you can see I'm a relative newbie, so I don't have any experience with recrrence. A lot of ladies here do, however. Best wishes!

dogsandjogs

I am so sorry you are going through this. I found a lump in my other breast 28 years after the first time. I was told it was a new primary; not a recurrence. I had a mastectomy the first time and a lumpectomy the second time (last year) I wish I could help you with your situation - probably more people will chime in tomorrow. On the week-ends there are not a lot of postings.

I wish you all the best! 

Denali

So sorry you've had to revisit the BC world.  In 8 yrs I'm sure the protocols have changed and improved.  For some reason I had to visit the Radiologist soon after diagnosis too.  I don't know why because I had surgery (mastectomy) and then chemo.  I never needed radiology.

I wonder if your pain in your chest is due to stress??  Xanex (my best friend) might be helpful.  No doubt your nerves are on end with your new diagnosis.  I was just diagnosed with kidney cancer and it's a big double whammy, isn't it?  I can sure relate.

Please keep us updated.  We care. 

30DEBBIE

Hi I just saw your post I'm retty new to this site also. I am so sorry to know you are going thru this again. I also thought I. Would be fine for an extremely long time or maybe forever as miracles happen every day and I know of some. I was diagnosed 6 1/2 years ago 7 years this April. First I had a lumpecclear tween not having a clear margin and then my pathology report I had a radical mastectomy and tram flap surgery right after. Who would believe that my MRI was reviewed by two doctors with NY Presbyterian hospital and it did not revel what the desease was like until I had the lumpectomy. A top oncologist in Dana Farber even said my type does not show on an MR I. After ACT , herceptin, tamoxofin and femara I am back now galso. You can view my diagnosis from my name. My reoccurrence so far is confined to the pretionneal wall. An unusual place. I totally understand how you feel. Unfortunately there is no set science. We do what doctors say as we trust there expertiece. Hang in there and pull your strengths. I have been looking at many posts I have determined we can so many good living years. Even when things get rough we need to think about what one of my doctors just said to me. " control the part of your life you can". He said that becauuse I am a controlling person who controls my own life and can turn things on and off whenever I choose. I am on chemo treatments which affect my blood coy nts and. I do what the doctors tell me. Many doctors think differently so you want two different opinions. I a tally had three opinions after my reoccurrence. Have faith and trust. Oh, by the way ,I had no obligation to my first oncologist and it was he who referred me to another oncologist . Thing of you

ibcmets

S,

Sorry you have not gotten many replies.  I usually don't catch this thread as I was stage IV from the start back in 6/09.  I will tell you that I get back pain & joint pain and I think it's back; but have found that it could have  been from  medication or bladder infection.  Lucked out again recently while going through  a lot of back pain from a bladder infection.

They will most likely put you on an AI now.  I'm on Femara for the last 2 years.  Sending wishes for you to get stable again.

Terri

bevin

Dear Sharon,

I'm so sorry you are here again but it's good your doctors took all the quick action they should

Sending you prayers for strength as you wait for your further results and a tx plan.  Given you are now ER+ they will likely give you an antihormonal and the hormone positive gives you a lot of long term treatment options. Let us know how you are.

Bevin

voraciousreader

Sorry...I didn't notice your post last week.  We have a "Mucinous Carcinoma of the Breast" thread devoted to mucinous breast cancer... Lots of support and information at that thread.  I hope you will join us....

Thoughts and prayers to you.

Angelfalls

Hello S,



I had a regional recurrence in/behind my sternum 3 1/2 years after my initial dx which was treated with rads, an ooph and Arimidex. It kept me NED for almost 5 years. Feel free to PM me if I can help at all.



Good luck, Angelfalls xx