ibc and lung mets just dx

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lollypop59
lollypop59 Member Posts: 123
edited June 2014 in IBC (Inflammatory Breast Cancer)

hi ladies,

      i have just bee dx with lings mets two weeks ago on my my third taxol and second herceptin next wed, is there anybody else with the same.

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  • chester2010
    chester2010 Member Posts: 101
    edited March 2012

    Hi Lollypop59:  I'm so sorry to hear you've been diagnosed with lung mets.  I can't offer any advice but I do hope the treatment works well for  you - keep strong and kick butt.

    Kathy

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  • menan
    menan Member Posts: 37
    edited March 2012

    I also have IBC and lung mets.  I just started treatment for a second occurrence of the mets in my lung lymhs.  I am also TN so my options are limited.  My initial tx was with TC which gave me about a year of NED.  The first recurrence was tx with Xeloda (oral) and Ixebepilone  and I went into remission for 6 months.  My PET scan last month was clear except for fluid on the right lung which had cancer cells in it!  I just started Eribulin (Halaven) last Friday.  Hope your combination is a winner for you!

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  • lollypop59
    lollypop59 Member Posts: 123
    edited March 2012

    hi bon, and the rest of the ladies,

                       my herceptin was stop because of my heart i had three more left to go, but now i am back on the herceptin, i started last week, i am also on taxol every week, my third one tomorow, hope everyone is feeling fine. x

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  • lollypop59
    lollypop59 Member Posts: 123
    edited May 2012

    hi chester2010,

    i hope you are feeling well, me myself is feeling well considering i am on my 12th taxol this week, my herceptin have been stopped yet again because it have affected my heart  again, so now waiting for tykerb hopefully, but the good news is my ct scan results plenty if shrinkage hooray!

                                        best wishes to you

                                          lorraine xx

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  • chester2010
    chester2010 Member Posts: 101
    edited May 2012

    Hi Lorraine:  Glad to hear that the CT scan shows shrinkage and you are doing well and tolerating the Taxol chemo.  Too bad you had to stop Herceptin again.  There is an internet site called bcmets.org for people who are dealing with metastatic breast cancer.  It is a very active list and lots of good advice.  You may be interested.

    Best wishes to you, keep strong.  Kathy m, Toronto

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