Pagets disease of the nipple or breast under 50?

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Dlia
Dlia Member Posts: 191
edited June 2014 in Middle Age 40-60(ish) Years Old With Breast Cancer

Has anyone under 50 been diagnosed with pagets disease?

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  • Snobird
    Snobird Member Posts: 593
    edited March 2012

    Sorry I was 56 whendx as a recurrence.

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  • Dlia
    Dlia Member Posts: 191
    edited March 2012

    Can I pm you?

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  • Dlia
    Dlia Member Posts: 191
    edited March 2012

    Is there a forum for pagets disease of the breast?

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  • Dulie
    Dulie Member Posts: 26
    edited March 2012

    Hi Dlia,

    I was just looking for a forum with other bc sisters with Pagets.  I'm 47 and am recovering from a bilateral mastectomy (I can't remember all the abbreviations the forum uses and the pain pills are making me fuzzy) and had both my nipples removed.  My path report says Paget's, IDC and DCIS.

     From what I have been reading Paget's is uncommon and I am not sure there is a specific support group on this site.  maybe one could be made?  Anyway, I had never heard of Paget's and I had no symptoms... well, an occassional slight itch but not even on a daily basis.  Surgeon is just as stunned... 

    I mostly lurk and with all going on here and recovery I don't reply much but after today I realize I'm not doing so well winging this pretty much alone though many caring people are about me...

    Let me know if you discover a group or such... Take care!

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  • SandyInNj
    SandyInNj Member Posts: 48
    edited March 2012

    I did and was diagnosed at the age of 39.  I was bleeding from the nipple, no other symptoms.

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  • EileenKaye1
    EileenKaye1 Member Posts: 469
    edited March 2012

    I had paget's==irritation on nipple--15 years ago.  Lesion was .6cm--I felt this tiny mass 1 1/2 years before my doctor recognized it.  He said I was imaging little lumps.

    I'm more aggressive in making sure I get proper medical care these days.  Eileen

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2014


    I had it in my 20s. First, at 23, a benign mass--left.

    At 26, and six months apart, bloody discharge from R and L nipples, so back in the OR twice to have all milk ducts removed. Negative with cell changes.

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