Sjogrens Syndrome and Breast Cancer

mkmware

Anyone like me have Sjogrens Disease and DCIS Breast cancer that had lumpectomy, completed radiation therapy and on SERMs (Selective Estrogen Receptor Modulators) Tamoxifen: Please share your experiences-symptom flares? How have others coped and what did you do?

hydeskate

I have Sjogren's but I was official dx while on a Chemo Break, and I am Triple Negative IDC.  I am still off Chemo and I am having a time trying to keep the flares under control, the biggest thing is not to rest (sit) too long,  Its hard but the more exercsie or moving around the better.

MMac

I have Sjogrens and fibromyalgia.  During chemo I had severe dry mouth, but most of my problems were with my eyes.  I had chemo tears for 3 months and then I started getting flashes of light.  I now have problems with pain because of the Arimidex.  I just stay positive and thankful there are better cures now.

3jaysmom

mary, the dr. suggested that my dysphagia, and the dry eyes, no saliva and down there may be sjorgens, so he wants me to see the rhuemo.

  i wouldn't have known anything about it, but HAD googled it, reading here, about you having it...

 my ms is flaring, and i have hypothyroid, so it'll take a phycic to fig. out all the symptoms!!!3jays

MMac

3jaysmom - Good luck with figuring all that out.  My eyes are finally doing better.  Also I had Graves Disease many years ago, thyroid was destroyed by radioiodine, so I am hypothyroid as well - controlled by medication.  Seems like somehow it's all connected, doesn't it?  The best help for me was when I retired in June of 2011 but right before my last day I found out I had BC.

 This last year has been a journey and a blessing to meet so many wonderful people.  It is hard to keep all the pain and stiffness under control, but we just take one day at a time.

BUNKIE10

Hi

I am newer here and have Sarcoidosis, SJS and am on 5mgs of prednisone. I have DCIS and had to have 2 surgeries to get clear margins. I start rads today and am scared to death. I am sure you ladies are well into your recovery but I wanted to know how you did.