February 2012 MX
Comments
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Thanks for all the encouragement...Glad the TE are working for ya,hope to get mine monday and hope we can go smoothly with no infections. I have been doing a lot of crying now that its getting closer...dunno how those other ladies got the Xanax/Zanax?? I am gonna ask for that cause I need something for my nerves more than anything. Maybe I can get the Tylenol Arthri,I got the regular Tylenol for my biopsy and took as much as allowed on pkg and absolutely no good...didnt even get the placebo effect. I dont think the pain will be too bad,PS says I get the Q pain pump. If I cant drink wine,will definitely need something for depression and anxiety! Who should I ask? My BS says she is gonna do the sentinel node radioactive solution herself and she said she no longer uses the blue dye cause someone had a reaction to it. She is meeting me at 7:30am Monday morn to do that then its off to surg,they should be changing my parts by 10am. My friend got breast augmented and I never wanted any operations cuz some idiot gave me Pitocin when I had my son and I had a uterine rupture went into a coma for 5 days,never wanted to see another dr or nurse or hospital as long I lived.
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I had my BMX this past Monday, Feb. 6. Right side has CA, none in left but did it prophelactically. (sp?) Dealing with a few issues post surgery. Mainly with the pain meds. They mess up the digestive tract! The TE's are uncomfortable but getting better. Pathology of 25 nodes removed show CA in 2 nodes. Not looking forward to chemo.
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Hi Ladies-
I wanted to give you my two cents. I did a lumpectomy on 12/13/11 & then afterwards opted for a double mast which I just did on 2/2.
My tips for post lumpectomy is to have bags of ice, peas, etc and to ice the node and incision area... It really helped me. The first 3-4 days were uncomfortable, but it got better quickly. By week 3, I felt great. By week 4- I was back to all activities.
The first 12 hours post mast. Was really rough for me. I think it was because I could only get pain relief by hitting my IV every 8 minutes to release pain meds. When they pulled the IV, and gave me pill forms of pain relief it helped a ton!!! I didn't use anything that I brought to the hospital until I was getting ready to leave (it was easier to stay in the hospital gown - the nurses & doctors want constant access to the drains & incision areas). The drains are not fun. Just know that the drain phase will pass (hopefully within a week). I took tons of colace but was completely bound up. My visiting nurse recommended Milk of Magnesia for the constipation. I took the max dose and it worked! Get a bottle (flavored) before surgery & take when you get home. The only other thing that I wanted to put out there is that I had a hard time seeing the TE 'breasts' with my first shower (I have been much better with the rest of the showers but the first is a little bit of a shocker). I didn't realize until I went back to my PS yesterday that a lot of what I am seeing is glue with blood in it (sorry to be so graphic!). The surgical glue will flake off naturally in the next couple of weeks... So just be easy on yourself!!! Best of luck to everyone getting their surgeries!!! -
Hello All,
I'm thinking about Galsal and winniethepooh today. I'm hoping to see how PelicanGirl, Sadie524, Likeachickadee, elliegk, dragonfly, Rose_d are faring. I hope they are well.
Layla2525, you make me smile.You have a great sense of humor. It is very interesting to me to see the variety of experiences even with the "same" procedures. For example, when I first saw my TE, I was amazed at how there was zero blood etc. I wonder why that was?Even the sentinel node biopsy, the blue dye, the radiation etc. my experience was a little different than what I've read for others. I was lucky. No problem. No pain. Even the "wire" insertion into the the tumor and DCIS a couple of hours pre-MX was not painful. I didn't get to have the blue dye and radiation the day prior. I had it hours prior to the MX.
What I am learning is that there are numerous of us who were able to have a "relaxer" pre surgery. For those of us that did, we were thankful. For me, it was one pill- a generic for one valium. It did allow me to sleep.
We all seem to have had constipation (as in for days). A consensus of Milk of Magnesia (PS recommended to supplement RX of stool softener in my case) is a good item to have on hand.
I would suggest you have a box of alcohol wipes (individually packaged) on hand, a box of some latex or surgical gloves and some hand sanitizer wipes in a plastic cannister. Avoid infection. Keep those drains clean and your hands and anyone else who touches you to assist. I followed another BC woman's advice and set up my drain station in advance.
Pain. I'm pretty sure your surgeon has prescribed a pain medication. I was able to fill mine PRIOR to the surgery. All my RXs were ready at the house. I haven't had to use even close to what is allowed. The fact that I have them, is reassuring. In fact, I purchased an am and pm weekly pill dispenser PRIOR to surgery. I loaded it up with all the different prescriptions (except the pain pills). I was in no mood post surgery to fiddle with 4 different RXs (anti-biotic pills, stool softeners, my daily thyroid medication etc.) I keep a paper and pen where I write time and date of taking a pain med even if a Tylenol. I drink plenty of water- all day. I have a bed tray in my bed beside me. Lots of pillows of various sizes (to prop up my arm) etc.
It helped me tremendously to re-focus on the cancer and not the breast a couple of days prior to the MX. The waiting was far worse than the MX for me. It sounds like you have someone to help you. That's wonderful! He can run and get anything you need.
I can tell you the MX was not nearly as bad as I had thought. The pain has been very manageable.I cannot speak to a BMX. I am tired, but I am very, very happy and am in great spirits. I would definitely inform your surgeons of any previous bad interactions with medications (pitocin) etc.
Basically, try to prepare your recovery areas for when you get home, take a relaxer, focus on the cancer rather than the breast, and don't be afraid to utilize the medications available to you after the surgery. Unfortunately, this is a common surgery these days and your physicians should understand that having you calm and with minimal pain leads to a better surgery and recovery.
We are all in this together and truly wish you well and a speedy recovery.
Deborah2012
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Had left MX on Feb 6th. Doing ok. Drains are the worst part for me. Uncomfortable under my arm. BS called and said one of the five nodes she took had cancer so now she has to go back in and take more. They told me after surgery that they looked good. She was surprised by this. Anyone else have this done?
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MMA59 - Sorry you have to go back for more nodes. Hoping there are no more to be found. Hope you feel better and better with each passing day. Jill
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Bad news on nodes for me too. I had all on the left cancerous side removed, and 10 of 16 were cancerous. I have already had chemo, so on to rads which now takes on even more importance. I am feeling pretty good physically after my 2/6 BMX, but this news yesterday about the nodes has been upsetting. The surgeon also said they looked good in surgery but cautioned me not to rely on that.
Regarding anxiety, I found it very helpful to take an Ativan the night before to sleep and then a Valium the morning of the surgery which I had pre-approved. My surgery was early, and I only had to rely on the Valium from about 5 a.m. to 7:30 a.m. However, it really cut off the worry and anxiety a lot. -
Hello MMA59,
Many posts ago on this thread, another BC survivor reported that the preliminary tests done in the operating room, indicated lymphs were cancer free and then later, the test showed cancer was present. Apparently, a preliminary test is done on the samples during the surgery. The samples are then sent to a lab for a more exhaustive and thorough range of tests. In the operating room, they could have caught a cancer free margin, but when the entire node was tested in the lab, they could find cancer in another area of the same node. So, you are not alone.
For what it is worth, we each have our own little "setbacks" or "worry hurdles" to surmount.
My next one is that my oncologist will deviate from her initial prognosis of she fully expected my nodes to come back clear (they have) and as such I would NOT need chemo or radiation. Hormone blockers would be likely instead. I see her this week.
I have learned with my cancer that there always is some "surprise". Sometimes it feels defeating. Then, upon further examination, it turns out to be a choice I would actually prefer or at least accept/live with. For example, personally, I'd rather have a MX with no chemo or radiation than a lumpectomy with radiation. The MX decision was automatically made for me as soon as multi-focal cancer in same breast (IDC & DCIS) was discovered via the MRI within days of the intial lumpectomy with radiation DX. I recall feeling how unfair it all was. Now, I'm relieved.
Anyone out there with input as to TE pain period duration (as in months) of pain at night when trying to sleep? It's not that the pain level is so bad, it just keeps me from being able to fall back asleep after waking up in the middle of the night to urinate. I also need a pain pill each night to be able to sleep for the first 6 hours with the soreness etc. I believe the majority of my discomfort is from the lymph removal site and the TE- not the mx. My range of arm motion from the MX is not a problem at all.
What do my February friends find is their source of pain?
Anyone out there who already had an elective implant that was removed during a MX and the space was filled with a TE during the MX? Sort of like parking my TE in an existing "garage" from a previous elective implant. Point is that the initial skin stretching likely isn't as bad as someone who had no "parking garage" at all for the TE?
Deborah2012
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Anyone in IL? My bmx is in less then 2 weeks! 2/24... Im getting so nervous
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Thanks ladies. I have been on here reading posts since Dec. when I found out but never joined till now. Katiep1388 try not to be nervous. The surgery will be over before you know it. Pain was managed. Sore throat after but had an awesome roommate and her husband got us popsicles which helped tremendously! We never even used the stuff we packed in our bags. I was discharged 24 hours after surgery. I think the thing I hate the most is seeing my kids be sad and worried. They are 29, 27 and 23 but it's still hard.
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Katie - I used to live in IL
My BMX is the 21st. Yep the anxiety is def rising.
Thanks everyone about the tip of taking anti anxiety med before. I think I'll ask about that.
MMA - I know what you mean about the kids. That is one of the main things motivating me to have surgery.
Good to hear how well everyone is doing from early feb surgeries.
Blessing to all. -
Farmer lucy- where are u having your surgery? Ahh its approaching fast. Im definitely going to need antianxiety meds!
Mma- im in the reverse situation my mom is worried sick, and feels like it should be her not me at 23... You gotta do what you gotta do though right -
Hello All,
I too had a sore throat (temporary) when i awoke from surgery. I think they must place a tube down one's throat during surgery while under general anesthesia?
Ok. Went stir crazy yesterday. Had DH drive me to ocean (15 minutes away). Sat in truck and watched waves. Promptly fell asleep on drive home and then took an hour nap! I never even got out ofthe truck!
I had bathed myself in tub from hips down, removed all dressings, and steriilzed, replaced, cleaned all drains, DH had washed my hair, I blow dried it, styled it and put on makeup for first time. I wore street clothes for first time. Then it hit me. I have nothing in my wardrobe for street clothes. I have exactly one long loose-fitting blouse and one gigantic cowl necked sweater (I wore that over jeans) for truck ride. My arm range of motion is practically unrestricted.
Question: while having TE playing catch-up to remaining breast, what under garment (bra, sports bra?) will I be wearing? Am I supposed to stuff socks or something in my smashing/compression bra until I have my eventual "change-out for "squishies"?
I wear biz suits to work, but the turtlenecks underneath them aren't going to work- all clingy. I'm expecting at some point in the near future I will be able to return to work. It just hit me. I don't have anything to wear (other than PJs and sweats) for my current" foob in training" situation.
BTW, took one Tylenol last night- no pain pill. Did fine. Been walking daily a little bit, too. I swear it takes an entire day to bathe in two parts (sponge bath upper), change and cleanse all dreassings, change garments, feed myself, and pay/log the incoming medical bills! I do have to take a nap.
Deborah2012
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Katie - OMG - 23 - you've got to be kidding. Bless you baby girl. My surgery is in OKC, OK.
Deb - I bought a camisole from TLC for drains and it came with little puffies, so I imagine you could put puffies in one side. Also how does the whole not raising the arms thing work. My PS said I would need to be like a T-rex, but does that mean no elbow movement at all?
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Farmerlucy- i wish i was kidding, look like i was dealt the seriously unlucky card, first in my whole family too. I blame it on birthcontrol but im not sure thats logical..
Ive heard of some people being able to raise arms and some not... Im curious too. -
l'll take a stab at describing the arms. I am 6 days out of surgery. The muscles running from my underarms down my side and also down the back of my arms feel very tight and like they wil not stretch fully. They are very sore. I can bend my elbows without any problem. What is a problem is to try to reach above shoulder level with a straight arm. I'm finding myself using my tippy toes for the first time in years! I am able to put on shirts and jackets that button down the front by myself and do many other things. I'm showering by myself if someone takes the removable shower head down from the holder. I can scratch my head. I am looking forward to trying to increase my reach once I get the drains out, hopefully Wednesday. I don't feel like I'm having any shoulder or range of motion issues.
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For those with a PMX, can you use your arm OK if no nodes were taken? I had a lumpectomy and SNB in January, so no more nodes will be taken in my MX. I'm waiting for MRI results tomorrow to know if it will be a UMX or BMX. The second tumor was invisible and found accidentally in the quest for better margins. Today is about a million hours long. I haven't been this anxious since waiting for the biopsy results.
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Yep farmerlucy I got the cami with the drain pockets like you were writing about and breast pockets you can put in the molded liner or the fluffy falsies. I took those out and put in the silicone braless chicken cutlets that everyone was wearing last yr that glue on from the Sallys beauty supply and guess I will wear those til my TE get big enough to be boob-like. Surg tommoro so guess I will wear the cami there and back or should the cami be wrapped up for germ prevention? BS says they're gonna bind me up and later when I get better can wear a sports bra from Walmart but I already got 2 online,one zip and one hookup. Who had a boob in traing? LOL I guess we are doing that phase tho,looked at the bra exchange thread and some PS are telling them to wear a bra to train the implant to stay in a spot and form scar tissue on it so it will stay in place.. Yep mma.....was not gonna tell my son cuz he's in premed at UPMC and didnt want to worry him and his @ girlfriend who texts me all the time and I told her to wait and we would tell him later after the bmx & TE but she told him that I already had the surg and was fine! The dumb little thing,what if I get out and I am not fine...then whats she gonna tell him? Last call for sex with the fiance....no more for how long? (should I go on the RAW thread for that question?)OK bed broken,gotta get to sleep early,Bmx first thing at dawn...maybe they could just shoot me instead?
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I went and found some button up pj's and soft flannel shirts for after surgery. I have also been worried about what to wear when I go back to work. When I went to get fitted for the camisole and after surgery bras, I was super surprised when the woman gave me the softie stuffing. She said the te's can look boxy and reminded me that I may be pretty small for a while. For some reason, that really hit me with the reality of this whole thimg. I guess it was denial, but I thought I would look "normal" when I went back to work. Luckily, I can be off for 6 weeks after surgery, so things may be fine. Just in case, I went and bought some cute shirts that are made of a nice gauzy material that flows and won't cling. I swear I am not vain, I just don't want to feel too self conscious.
I am also getting really anxious. I meet with the ps on Tuesday to get the final details. The more info the better. Thanks to all of you for sharing. -
Katie, I am sorry that you are going through this at your age. I am 43 and they say I am young. May I ask how Yours was found? I know it sucks, but let's be thankful for early detection.
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Katie, I am sorry that you are going through this at your age. I am 43 and they say I am young. May I ask how Yours was found? I know it sucks, but let's be thankful for early detection.
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LLinAZ - they say cancer doesnt hurt, mine did. Infact it was so deep and small it wasnt palpable... It hurt so bad i couldnt function, but if it hadnt.. God only knows where i would have been
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Layla we love ya! So glad no one is messing with your fingers and you'll be able to post when you feel up to it.
So where did everyone buy the cami? Mail order?
I have two buddies who are years ahead of all of us in this "same BC circus different clowns" show. They said they'll take me to the cancer shop this week and I can pick out forms and all kinds of stuff! Woo hoo! Won't that just be the best shopping splurge EVER! I am truly grateful but it is so unreal.
And yes, I don't know why when I had three nodes removed from my right side with my rt. MX 8 days ago that I swear I have full range of motion of my right arm without pain or soreness. I did elevate that arm from the moment I was in the hospital room. Probably had zero to do with anything!
Layla, I would be soooo irritated over the misinformation spread to my kid. I had enough trouble with my mom falling apart. I always remembered her as being very strong. I would be feeling as you. I've got so much on my head right now, just knock me out, do the surgery and maybe all the reindeer games will resolve themselves when I get out of hospital. Or, I just won't care because- for once- it's all about me. A difficult concept to grasp as a mom. My two BC buddies put that thought in my head from the get-go. They were absolutely matter-of-fact about it. "You need to take care of your body, you need to be concerned about you". No guilt, no drama- just plain as day. "it's all about you" this time-so act accordingly.
I hope you take a pill and feel as I did the day of my MX. I couldn't wait to get it started. I practically leaped off the gurney onto the operating table. It was my last memory before waking up.
I am so happy. I'm happier than DH (who better put a smile on his face pretty soon because I deserve to see one). BTW, I am not a vapid woman who just thinks that if I keep apositive attitude, all will be well. I am genuinely thrilled to be on the other side of this MX, BC caught early and I'll gear up for the next scientific peer review article I may have to read when the next BC surprise befalls me.
Best of recovery, surgeons, and good meds to you Ms. Layla dear!
The February Pack
Deborah2012
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Wren - Praying that the MRI goes your way.
I still wonder about the arms with no nodes taken but with the TE. PS is putting in alloderm and she said I need to move as little as possible to let that make a good pocket.
Layla - Interesting re:training bras. I can see where that could help. The suppport should feel good on the pecs, too.
Katie - No one should have to go through this, especially at your age.
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Hi all, Rose here. I'm back from having my bmx on Wed Feb 8th and am doing ok. I think the few hours before the surgery were the worst. I was a wreck. Changing into the hospital gown was the worst part. My doc came in, took one look at me and prescribed a Xanax right there. I wish I had called the couple of days before and asked for that.
I didn't have the surgery until about 3:30pm which was tough and the first night in the hospital room was very rough. I'm not sure there is a more uncomfortable place in the world than a hospital bed. And the self controlled pain pump sounded like a good thing but I think when I fell asleep and missed a few of the 10 minute pushes it made the pain much worse. So I finally just stayed awake to keep pressing it right at the 10 minute mark. About 4:30am my husband realized what was going on and stayed up while I dozed to press it. I also told them at 3:30am that it wasn't working and they called the on call doc who doubled the dose which helped.
About 5am they made me get up to go to the bathroom which I thought would be horrendous but actually made me feel better. I was dizzy though and unbelievably thirsty.
About 9:30am I ate a piece of toast, kept drinking water and promptly threw up everywhere. Not fun but actually made me feel much better. No more dizziness which I think means it was the anesthesia getting out of my system.
The hospital gave me a bunch of the camisoles that hold the drains. Which I'm sure are good,but the worst part now is the pain right under my armpits. I'm not sure if it's the drains or the bra but I'm afraid to move too much to find out.
My husband has been amazing changing the drains, giving me sponge baths and arranging pillows.
It's 4 days later and I'm debating moving from the recliner to the bed tonight but not sure yet
The output from the drains is relatively small now which I am really hoping means the drains will come out at Tuesday's appointment.
I had a slight breakdown today during my husband's bandage change but he didn't flinch.
The sentinel node biopsy came back positive so they took more nodes on the right side. Still waiting for the results. I'm really trying not to think about that now, I was really hoping and somehow expecting the sentinel to come back clean. So now have to rethink what this all means.
Overall I'm encouraged by my progress and starting to think I may actually feel better at some point soon!
Hang in there everyone going this week, I really think the anticipation is the worst part.
A few pieces of advice -
1. Complain if the pain is bad, they will up the dosage and you need it.
2. Ask for Xanax ahead of time
3. I didn't pull a single thing out of my bag at the hospital other than my glasses and toothbrush
4. Find someone good at giving back massages. My sister has been doing this and it has really helped with general soreness from sleeping in a chair.
That's all I can think of at the moment!
Rose
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Rose,
Glad to hear your are on the other side and beginning to feel better!!!
Lots of hugs and payers to all of you going this week and update us as soon as you can:>
Carolyn
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How are all the February gals doing? For those who have not have surgery yet, it is the waiting that is the worse part...my drains (2 left) come out on Weds.
I have been out and about already (my surgery was 2/1) - went out to dinner with cousins on Saturday - felt good being out.
Has anyone had to make an appt. with an oncologist? Mine is a week from today and I have tons of questions before I make any decisions about course of treatment as a preventative recurrence of the BC. She may not like me.
(((((hugs))))))) to all the Feb. Gals!!!!!!
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Layla--you crack me up with your sex question. I was told on discharge "no sex until healed." I don't know exactly when that will be! I hope you're doing well this morning as I think this is your surgery date.
To all on the camisoles...I am liking the one I got from TLC best. It has a velcro opening down the front. The only bad thing about it is that the velcro is sometimes right up under my chin when I sit down. The other one is a fail. I got it from Nordstroms and it is made by Ameona. It feels great and has a zipper down the front, but it has an odor that I cannot wash out of it, probably because it says it was infused with aloe and Vitamin E. I cannot wear it while sleeping as it causes a nasal allergy.
I did not have the pain pump. From what people have told me with all different kinds of surgery, no one has been very happy with it. I had two shots of morphine through my IV (no idea of dosage) and then went on to Vicodin later on that evening after surgery. Getting up and walking around was not so bad either. No nausea, but I asked for Zolfran in my surgical IV, as well as Pepcid. You may wake up with a catheter. I was told that I would, but would not have known it was there otherwise as it was very comfortable. As soon as I demonstrated I could walk to the bathroom, they pulled it, which was completely painless. Then I had 6 hours in which to void which was thankfully not a problem. I had to do all of my peeing into a plastic thing they call the hat and they measured it. -
Thanks for the info ladies. It really helps to read everyone's experiences. Please keep posting away!
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Rose, G;lad you are doing better. Thank you for all the tips re:the hospital stay. I am taking any and all tips.
My surgery is schedueld for THursday and I am working today and Tuesday. Wednesday will be the day for my breakdown. A week ago my soon to be X had a major heart attack, so on top of my stuff now his stuff. We get along well and his family all lives out of state,so I was his go to person. He was discharged on Saturday and came back to the house. His brother arrived from out of state yesterday. I cried (not something I do readily) when I saw him come off the plane.Just such a sensed of relief. They are boht staying at my house,it is just more comfortable than my H apartment. So now my BIL is his point person, driving, cooking for all of us, getting his meds and MD appointments all taken care of.
So overhwnlmend, just want to sleep. Feel bad for my kids 13 and 18 with this stuff for both parents.
Finishing up things at work and then packing for hospital stay.
Gentle day for all and quick recoveries for all as well.
Nel
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