Fuzzy's Romp Room

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2012

    GG had the puter problem some months ago, lots of advice I think here(???). Ended up buying a HP laptop from a puter repair shop. Wish I'd have gotten one with a camera. Missing the nieces and nephews baby & toddler times. BUT very happy with this little thing. Chose the route of buying from the puter repair store b/c I figured if I ran into trouble they were close by to solve the problem.

    Delilah--glad to see your back--Sorry about the rotator problem. Have always felt that shoulder surgeries were one of the most difficult to get through when prolonged immobilization was involved b/c they are buggers to get mobile again with the attendant pain to effectively get them unfrozen. Add to that you're one armed. Erghhhh. Vent away!

    Lovely thoughts to everyone for the beginning of the Season. :))

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited November 2012

    Well I didn't offend anyone with the language and the mods didnt kick me off soooo ill just keep using it with my NJ,Ny and NO accent.

    I'm feeling much beta.finished the antibiotic and hardly using the inhaler AND I'm goin home on Tuesday..been on the run since the bitch sandy came to shake me up.

    Veggy...Ill be back Christmas.I hope you will be able to visit.

    Ill be in anyone's pocket who needs me

    Huggs sistas

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited November 2012

    Hugs Granny.....

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  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited November 2012

    Grannydukes, you got that right: the bitch Sandy. Tomorrow I will start prepping the living room for the drywallers to come do their drywall thing later this week, when I will have to give them MORE money. Oy! Going deeper and deeper in deblt and starting to just think "eff it" I'll dig my way out when I can. Or not. LOL

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  • Alyson
    Alyson Member Posts: 4,308
    edited November 2012

    Popped over here to see how Veggy was doing cause I hadn't seen her in a while. Veggy big hugs. I know where you are cause I have lost three friends this year fron cancer and another is Stage IV, not all BC but cancer sucks and it's hard being close to someone and to watch them go through the final stages.

    Big hugs to those who need it especially those who are still dealing with Sandy - don't know how you have coped.

    Having real trouble with pain. Pain from SE's of chemo and rads, pain from rheumatoid arthritis and pain cause I suffer from post polio syndrome. Having trouble getting it under control at present and so feel very grumpy.

    Just a warning - nice one - I will be in PA next September/October, not sure exactly when, its still in the planning. Will also visit Canada (Toronto and east then down through New England to PA) That does make me smile, really looking forward to this trip.

    Summer is beginning in this part of the world.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    Where in PA?

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  • leggo
    leggo Member Posts: 3,293
    edited January 2013

    Cindy, just started to catch up on some reading and sorry to hear about the setback. So glad that things are looking up and you're healing. Thinking about you.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    Growling today! My scalp felt weird last night. Today the sofa is covered with what is left of my hair. I'm going to be totally bald soon. At least it is winter and I can wear hats or I can scare everyone and wear the wig I bought. BOO!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    Rubbing of the heads!

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  • Alyson
    Alyson Member Posts: 4,308
    edited November 2012

    Veggy, I remember my cat getting angry because I was dropping hair all over him, he got up from my knee that evening and walked off in disgust. I reminded him that he was the one who left hair everywhere.

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited November 2012



    Alyson..good to see you...as veggy said where in pa will you be?

    lots of sistas in this big state.hint hint.

    veggy....you look great.I showed my GD the pic.and she said WOW...very supportive..

    It's all around u.....soak it up.Love ya

    Thanks for the language acceptance..now watch out!

    Hugggggs everyone K

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    Phone call this afternoon.

    Surgery tomorrow to take out the tissue expander.

    We're going to let it heal up and try for plan 2 another time.

    This happened too fast.

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  • Delilahbear
    Delilahbear Member Posts: 466
    edited November 2012

    Veggy - thoughts with you for your surgery tomorrow. Will be in your pocket for support.

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited November 2012

    Veggy...I'm still here so make room for me

    Or

    Anyone need a ride on my broom?

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  • ptdreamers
    ptdreamers Member Posts: 1,080
    edited November 2012

    Hopping in your pocket Veggy.

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  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited November 2012

    Granny...I'll ride!

    Veggy....Holy crap! With you alllllll day tomorrow. Hugs sweetie.

    Sassy...just received #4today and I'm already almost through #2. If you're not busy tomorrow, give me a call...I know you had a busy weekend.

    Well, I got my second denial letter. Guess that's the way it goes. Gotta figure out the next step. There's always a next step, right? I kinda feel like the world is spinning and going and I'm just stuck...not spinning, not going....very weird. But, this little punch in the kisser needs to be met with a nice solid plan...a plan that helps me to spin with the rest of the world.

    Going to try and clear my head now...anyone ever just lay there and let the thoughts just run on their own? That's what I've been doing lately. I think it helps...that way they are not buried and its a quiet place to interact with them...I'm not sure that makes any sense to anyone but that's the best way I can describe it. LOL

    Big big hugs to everyone!!! Sleep sweet.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    I doubt if I will sleep. I'm not worried about the surgery. Strange, huh? I'm worried about my dark places.

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  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited November 2012

    Dark places are very worrying!!!! ((( Veggy )))

    Fuzzy, are you using a lawyer. I handed it right over to one after my first denial letter. I hope they will make it happen. I guess they are working hard on it. If they don't win, they don't get paid. I need to be more patient. This is still early in the process. No way could I do it without the lawyer though. The initial application took it all out of me. Hopefully, I won't have to go through that again on my own.

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  • ridergirl
    ridergirl Member Posts: 443
    edited November 2012

    For anyone who's interested, we will be going to Ottawa on Wed for CT scan. Strange but I am not worried about it, at least not yet, right now I am more feeling like I`ll just be glad to know where we are at.  Still time tho lol.  Also got a call today with my appt for port insertion, and told them I didn`t want it although my dr was pretty insistent. the nurse said it is my choice and as long as I am not having any problems with ivs that there`s no reason I need it.  She said lots of people go through chemo without one, so I feel better about my choice.

    Also got most of my Christmas shopping finished and did a little baking and decorating today. Tomorrow`s the big day Mom and I will do most of the decoration except for the tree.  Yay! Good day today.

    (((Hugs))) to all

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  • crog234
    crog234 Member Posts: 801
    edited November 2012

    Veggy I am in your pocket.....



    Dune. I know it is easy for me to say don't get discouraged... My friend hired a lawyer after she got denied disability. He also got a denial letter but filed again for her and she got it. Here's hoping you don't have to wait to long for it all to happen for you...I never had patience and still don't have a lot at times but I think I am getting better.....



    Cindy

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  • crog234
    crog234 Member Posts: 801
    edited November 2012

    Ridergirl. Will be in your pocket on Wednesday for your CT scan....



    Cindy

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  • crog234
    crog234 Member Posts: 801
    edited November 2012

    Thanks gracie1 Thought I had responded to your post but I don't see it anywhere.... Things are looking up and I hope and pray they stay that way.... Visiting nurse comes today to change the bandage and hopefully it will still be looking good....



    Cindy

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  • leggo
    leggo Member Posts: 3,293
    edited January 2013

    Ridergirl, good luck on Wednesday. Hope it's all good news. Don't blame you for not wanting a port. When I was still getting chemo, onc and nurses insisted I get a port. I never did get one (mostly because a nurse let it slip that it's more for their convenience than the patient's). Even when they had to poke me three or four times, I didn't change my mind.

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  • ridergirl
    ridergirl Member Posts: 443
    edited November 2012

    Veggy I am in your pocket today.

    And yes Gracie that was sort of the feeling I goot fromm the vascular nurse I talked to yesterday, she kept stressing that its "my" choice.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    Dune~Crog is absolutely right! SS expects you to give up. DON'T !!!

    They usually turn down most people in the beginning, hoping you'll give up. The deal is, once you're approved they have to go back to the day you first applied and issue a retro check. Hang in there!



    Blessings

    Paula

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2012

    Okay I'll be on a rant. Hit a true nerve and I'm pissed.

    Those nurses have their collective heads up their ass. Hmmm was that strong enough. Anyone espousing this garbage was never trained properly regarding IV therapy and the indications, contraindications(not to be used), and complications of there use. I would consider them not only improperly trained , but lazy. Because any true attempt at reading/studying the subject, they wouldn't say something ssssssssssooooooo STUPID. Very scary b/c this is entry level nursing knowledge. So, what else did they not bother to learn !!!

    Ports were developed because veins were getting fried by chemo. Tissue that is infiltrated with some chemo's dies and sloughs off. Chemo that doesn't cause tissue death, can discolor the tissue for a very long time. Back to fried veins. You may get through a course of chemo, but the internal vessel damage is being done. Long term affects may NOT be seen for awhile. What it means longterm is that one may NOT have veins available for fututre use, thus putting one at risk in lifethreatening situations for no immediate access. In this situation, those idiot nurses, wouldn't see you dead from a preventable reason had the veins not been fried. This is the worst case scenario. Other non-emergent situations, that are situational dependent, you will end up with a PICC line, Central line, or Port anyway b/c arm veins aren't available.

    Reason for PICC's, Centrals, and Ports is they access veins that are larger in diameter, thus the medication administered is diluted in the blood quicker. The faster the dilution takes place, the less internal vessel damage. Less damage to the vessel less likeihood of long term negative consequences.

    Anesthesia risk: Docs or CRNA's administering anesthesia drugs will only use Ports, centrals or PICC's as a very, very last resort. They will go to leg veins first. Leg vein usage for IV's, puts you at risk for thrombophelbitis or embolism. Not likely while under anesthesia, but can happen.  Risk is predominantly after surgery. Even after removal of the IV. Leg veins don't respond well at all to IV therapy. 

    The peripheral IV access of choice for anesthesia is the arm veins b/c the drugs used are administrered at a slower rate in a smaller diameter vein to prevent the drugs from entering the central circulation too fast. Too fast of arriving at the heart in this scenario can cause the heart to NOT work right. HMMM need a further description of what can happen then?  Google "speed shock when administering drugs". Plus with the arm veins , the patient is positioned so that anesthesia Docs/CRNA"S can visualize the insertion site. Some drugs administered in this situation that infiltrate can cause serious consequences for the tissues i.e death of the tissue. Besides if they infiltrate, the drug can't accomplish the expected response for administration.

    Wasn't too hard was it. Now you know more than the STUPIDS. ERGHHH. Hate it when medical professionals don't learn what they should.

    In answer to convenience of use of centrals/ports/piccs ---yes, they are incredibly convenient.

    When they are ordered by the Doc, it is b/c of what I have written above. The first consideration for choice of route of administartion of an IV therapy drug is SAFETY of route. NOT CONVENIENCE.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2012

    Sas-schatzi~Very well said!



    My onc looked at my arm and said, " your veins look pretty good, but chemo will ruin them, lets get a port!" I was relieved. Knowing so many people who had gone through chemo for other cancers, I knew they were ALL glad they had a port.



    I get my port next Tuesday the 4th.



    Blessing

    Paula

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2012

    Hellooooo Alyson, hope you stay for good. Yes veggy and you kept OMG alive for so long.

    Rider babe in your pocket! Yes we care

    Fuzzy okey-dokey

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2012

    To anyone getting a port: This thread was written by TBird 57 quite sometime ago. She hasn't posted for a couple of years. The info in her header is very accurate. I've tried to bump the thread and monitor it, to keep it going.

    http://community.breastcancer.org/topic_post?forum_id=69&id=721889&page=1

    Soleria Thank you . Always nice to have supporting and complimentary statements after a rant. Especially when the material is so important. Definitely look at tbird57's thread. Her header totaly prepares you for the process of insertion. I added my rant as a post.

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  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited November 2012

    Sas - totally spot on.  I was kinda shocked when I read that too...it's quiet the process to have that port put in...and will leave me with a nice scar once the little sucker is removed...but I also had to be "talked" into it.  I'm very glad that I chose to get it and I don't mind scars at all...but we all get to chose - I'm just throwing in my vote to have one because it served me so well - never any problems other than it just being in there.

    I accomplished one thing this morning.  It was kinda big and I'm super happy about it!!!

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