Feels like the only one...

lele3737

Feels like the only one...

lele3737

I wasn't sure where to post this....



I feel like I am the only one with my tx plan....my onc has me finishing up chemo, then surgery (LD flap with expanders), THEN rads....I know he wanted to get in there, chemo the crap out of the lumps (they were close to my chest wall) so the bilateral mastectomy was easier, but I feel like I am the only one

Titan

lele..you certainly arent the only one to have chemo first....I think it depends on tumor size....I had surgery first but there a bunch of us TN's that had chemo first...they will be on here very soon I'm sure to talk to you about it..you are not alone.

KSteve

lele . . . You had the same path as me.  I had chemo, the BMX with TE placed, radiation, then exchange surgery.  It worked great for me.  You are definitely not alone.  If you have any questions, please don't hesitate to ask!

Take care,

Kathy

lele3737

Thanks so much Titan and ksteve! I am so happy tobe o. The boards wheni feel so alone!

LeannaClem

I was just diagnosed in September with TN, stage IV not sure on grade yet.  Still waiting on one biopsy result to come back. I have a spot on my kidney that was in such a position they couldn't biopsy, but they did biopsy the spot on my spine. Should hear back from that on Tuesday, when I start my chemo.  I had my port put in Wednesday and its stil really really sore.  My treatment plan is 12 rounds of chemo... taxol and cisplatin,  then surgery,  then radiation.   I'm scared sh*tless.  I've been talking about it for weeks, but after having the port put in a couple days ago, and getting close to my treatment, I'm not as prepared as I thought I was.  

gillyone

Lele - you'll find lots of people who did chemo first.

LeAnnaClem - You know, I was so glad to start chemo - to be actively doing something to zap those nasty little cancer cells. Was chemo fun? - no. Was it terrible? - no. It was doable. Am I glad I did it? - yes. Keep chhecking in with us for support. We'll help you get through this.

KSteve

LeannaClem - in my opinion you are in the toughest part right now. Just like gillyone said, once I started chemo I felt like I was doing something and my whole attitude changed. While I won't say it was a cake walk, it was definitely doable. I was in the middle of chemo at this time last year and I can tell you that the time went by fast. You can do it! Just take one day at a time ... Take care!

Kathy

Reality

I also had chemo first - My 3 cm tumor shrunk to 1.5. My tumor did not respond completely to chemo, but at least some. This enabled my surgeon to do a lumpectomy on my very small breast without taking half of it. I told her I would be fine with a mx, but she really pushed for the lumpectomy - so far, so good. I just finished my 2nd week of radiation. Following radiation, I will participate in a research study where I will be taking daily oral chemo in hopes of preventing a recurrence or mets. Similar studies have been done with no significant results, but I figure why not try it. 

Sher 

LeannaClem

Thank you all... I am just getting the pre-chemo jitters I guess.  lol   Scared its going to hurt. Scared its going to make me sick. Scared of my hair coming out (which I already have my wig.. but still...)  Then I get mad at myself for being scared and feel like I'm being a baby about it.  I am not the only one going through this.. but I'm the only one I KNOW with this type, this course of treatment, etc.. so I don't know what to expect.   I do appreciate your support though. I'm sure I'll spend LOTS of hours on this forum soon.

Whatashocker3

Hello I start chemo dec6 and will be going in for my pic tomorrow and chemo class on Thurs. For me it is a wide range of emotions, anger, sad, scared. I contemplated the cold caps to keep my hair but decided against it as I didn't want to take anymore risks. Although lots if women have used them successfully. It just feels like you are the only one living this world and although I have a wonderful husband and 2 wonderful boys 14 & 11. All that is on my mind is this road that I have been put on. Than you read the post about reoccurrence etc and you are scared of that too. I just don't want to be scared anymore and I don't want to feel like I am the only one that is on this ride. But I do.

lele3737

THANKS TO EVERYONE!  Leanna - best of luck to you...you'll find this community is definitely a HUGE help when we feel alone or have questions!  Whatashocker3 - As you can tell, we all have our moments....good and bad.  HUGS to you

Reality

LeannaClem - my thoughts are with you - I also am "triple-negative". Chemo helped shrink my 3 cm tumor to 1.5 to enable me to have a lumpectomy. My surgeon pushed for a lumpectomy. There are times I think I should have gone with a mx., but who knows....I am going through rads now - halfway done. Next I will participate in a research study where I will be taking oral chemo. It is all very scary -This site is truly amazing. I have only found a couple of threads where I am not comfortable. I have made of list of my favorites and feel very connected to many people on those threads.