ACS heard us

kira66715

After a flurry of emails, the medical website content person, removed the line about waiting two weeks with swelling to contact your provider.

It was frustrating at first, but I give them credit for emailing and calling me and making the change quickly.

http://www.cancer.org/Treatment/TreatmentsandSideEffects/PhysicalSideEffects/Lymphedema/WhatEveryWomanwithBreastCancerShouldKnow/lymphedema-with-breast-cancer-signs-of-lymphedema 

Signs of lymphedema
Some signs of lymphedema may include:

Swelling in the breast, chest, shoulder, arm, or hand
Area feels full or heavy
Skin changes texture, feels tight or hard, or looks red
New aching or discomfort in the area
Less movement or flexibility in nearby joints, such as your shoulder, hand, or wrist
Trouble fitting your arm into jacket or shirt sleeves
Bra doesn't fit the same
Ring, watch, and/or bracelet feels tight but you have not gained weight
Early on, the swelling may be relieved by raising the affected limb and the skin usually stays soft. But over time, the swollen area may become hot and red and the skin hard and stiff.

If you have had any type of breast surgery, lymph nodes removed, or radiation treatment, look at your upper body in front of a mirror. Compare both sides of your body and look for changes in size, shape, or skin color.

When to call your doctor or nurse

If any part of your affected arm, chest, breast, or underarm area (axilla) feels hot, looks red, or swells suddenly. These could be a sign of infection and you may need antibiotics.
If you have a temperature of 100.5°F or higher (taken by mouth) that is not related to a cold or flu
If you have any new pain in the affected area with no known cause

Last Medical Review: 10/25/2010
Last Revised: 10/24/2011

A big thank you to the ACS for hearing us, and acting quickly. 

Not to be utterly ungrateful, but how long have we asked bc.org to update the LE pages?

Kira 

Binney4

They told me that their medical review board reviews the pages annually, so they were due to do that soon, but they didn't even wait to convene their board and make the change, they went ahead and revised it. YES! THANK YOU, ACS! If it keeps even one woman from sitting home watching her arm for a week when she should be reporting to the ER immediately, it was worth the effort.
Binney

OneBadBoob

Thank you Kira and Binney!,



You two are like David against Goliath and you knock him over every time!!

Lunakin

Thank you!

sushanna1

Much appreciated.