mastectomy - no rads no chemo - now worried

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red64
red64 Member Posts: 13

Hey there - first post - I read the boards all the time but haven't seen any other threads that really match my situation - I was diagnosed July 1 with IDC and DCIS in my left breast.  I also had 4 areas the surgeon recommneded be biopsied in my right breast.  I decided to go with a double mastectomy and had surgery on 7/27 (bilateral sentinel node biopsies on 7/17).  No cancer on right just atypical ductal hyperplasia.  The left mastectomy specimen had clean margins for invasive cancer but the DCIS was < 0.1mm from the deep margin.

Final pathology reports indicated Stage 1, Grade 2, node negative, ER+/PR+ tumor.  HER2 was equivocal X 2 and negative X 1.  Oncotype Dx 13. 

So we considered radiation for the close margin but decided against it since there is no clear evidence that it is indicated and passed on chemo due to the path and low oncotype.  I started Tamoxifen about three weeks ago - plan is 5 years on Tamoxifen and 5 years on an AI.

Problem is I feel like I haven't done enough and I am terrified that I will have a recurrence.  I know that I am so fortunate to have a small, early, less aggressive breast cancer and should be thankful I don't need chemo or rads.  I know I am making the right treatment decisions but I also can't stop worrying - constantly on the Internet reading, researching, etc.  

Are there others who did not need to go through chemo or rads post surgery and felt this way?  How long does it take to just feel grateful that you are doing well and start moving past this fear?

 Thanks

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