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ColeJ
ColeJ Member Posts: 1
edited June 2014 in Triple-Negative Breast Cancer

So after being diagnosed with TNBC 2 months ago I have finally gotten up the nerve to join this site. So much has happened since July I'm not even sure where to start. Long story short, we are doing 18 weeks of chemo to shrink the tumor (which was 5cm), followed by lumpectomy or mastectomy depending on tumor size.  I am also awaiting BRCA results, which could determine surgery route. I decided from the beginning not to do any online research so as not to "freak myself out". I am a nurse and already know way too much!!  My husband and I have put our faith in our oncologist and so far we are seeing great results. After a month of chemo the tumor has decreased to 1-1.5cm. I feel like I am handling things very well but a support group can only help right? Sometimes I wonder if I am somehow still in denial about the whole thing.......

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  • Babs37
    Babs37 Member Posts: 455
    edited September 2011

    Welcome ColeJ. Feel free to come join us on the "calling all TN" thread. Alot of good women there ready to support and help you through all this. Hugs.

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  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited September 2011

    Welcome!  I'm sorry you are here, but I can tell you I wouldn't have made it through this year with out my sisters here! 

    Like you, I feel that I'm handling this bad boy pretty well!  I'm a Crispy Critter from Radiation right now, went through all the really tough stuff from January thru July!  I was so positive that my doctors wanted to test my thyroid and told me I wasn't being realistic....????....ummm...

    ((((HUGS))))

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  • Titan
    Titan Member Posts: 2,956
    edited September 2011

    Hey Cole!   Glad you decided to join us!    You are not alone any more ok?   I say stuff here that I would never tell my family because we all know what we are all going through...not that our families/friends dont' care but we get it here...they don't..even though they try.....glad to see your tumor in being KILLED..good stuff...

    As a nurse you know more than I ever could but I do know that "shrinkage" is a good thing when it comes to tumors...

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  • TifJ
    TifJ Member Posts: 1,568
    edited September 2011

    Hi Cole! You will find an amazing group of women (and some men) here. Like Titan said- no one gets it like we do and yes, please check out the "Calling all TNS" thread. I think we are all in denial a bit-who really wants to know this crap is reality?!

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  • LRM216
    LRM216 Member Posts: 2,115
    edited September 2011

    Welcome Cole - sorry you had to join us, but know that from this point on you have us traveling this road with you. You have many arms to now help hold you up and venture forth.  Yes, do come over to the "Calling all TNs" thread - that's where we spend most of our time.

    Wishing you an uneventful gentle journey with a wonderful outcome,

    Linda  

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  • SandraB
    SandraB Member Posts: 5
    edited September 2011

    Hi ColeJ,

    I am new here too, so if I don't understand all the lingo, sorry! I was just diagnosed this week. The tumor is 2cm, IDC, triple negative, node involvement, grade 3... I know there is more stuff to know, but I just don't know what that 'stuff' is just yet. I have been teary and feeling sorry for myself and worrying I won't be here to see my 3 kids grow up.. yes, 'woe is me' at the moment. I guess it was all such a shock to find this because I am 39, youngest child is 2yo, oldest is 7yo and I was cruising along without a care in the world. Now I have had the wind knocked out of me.

    Meeting with an oncologist today and have a new doctor, a Prof of Med at a Uni here in Melb, Australia and he is going to oversee all my treatments, so I am sure I will be in good hands.

    Hugs to you and to everyone that has had to join this nasty club. 

    Sandra 

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  • bevdurrant
    bevdurrant Member Posts: 68
    edited September 2011

    Hi everyone, my name is Bev I have joined a few groups on this site, everyone is great..............Im still struggling with the lingo, is there a list somewhere??????.  i was diagnosed in March T3, grade 2 5 cm tumour, her positive, had chemo and recently underwent bilateral M, had expanders put in but unfortunately due to infection out those buggars came, so now i have to heal so i can do 5 weeks of radiotherapy, then think about surgery after.  I have a question but am unsure where on the site i would go...................when i had my BM they found a small lump in the other breast, so good choice of surgery i think!, does anyone know if that side would need radiation?????, my surgeon said it probably wouldnt have shown on a mammogram for sometime.................if anyone has any info i would be grateful.............thank you so much Bev :)

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  • TifJ
    TifJ Member Posts: 1,568
    edited September 2011

    Hi Bev! You might want to go back to the discussion board home page and look under Forum Topics for a section called Similar Diagnoses (or something like that) and find a thread that discusses Her2 neu positive. This thread is for those that are triple negative- no receptors for hormones or her2. I'm sure you will find some great ladies there to help you with your questions! Best wishes!

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