I feel numb, can't believe am going through this again...

kenyohunt1

I feel the samy way, numb. I was diagnosed in 2008. had pagets disease of the nipple and DCIS ( left Breast). only symptoms itching and a tiny chaffed area on my nipple that just didnt seem right. Showed it to my GYN  he said its nothing your mammo shoed nothing see ya next year.....I said dosent Pagets present like this his eye got big and he said yes it does...I told him I wanted a biopsy and then it was discovered yes it was Pagets and DCIS had the mastectomy no other treatment....reconstruction is a long story and I dont type fast enough for that lets just say that most people may go to work and blow out a tire on the way, well I blew out a boob.... thank God for a good sense of humor. This time around I had shoulder pain that kept getting worse went to the VA was told it was nothing, asked for mammo on unaffected side and mri of both, results of both were supposed to be neg, that was in July. Some Dr. tell you every thing is fine as if that will make the symptoms you have go away. Still had the shoulder pain and in Sept a knot appeared  after a 20lb intentional weight loss was told it had probably been there the hold time that I just didnt notice it until I started losing wt. They at the begining of Oct recvd a letter in the mail stating that a second Rad had reviewed the MRI from July and there was a solid area under left arm that they did not know the etiology of  and US is recommended. Had US Oct 18th was told by RAD at VA that it is just fluid. He even went in to detail showing me on US what is would look like if it was Cancer. Rad said it should go away within a month ( it didnt) I requested CA markers from my  Gyn at VA he said I didnt need them if they were done at the time of inital Diag ( 3yrs ago) at that time I set up my 2nd opinion with my breast surgeon myself Appt was Nov 18th. US was repeated because my BS didnt trust the VA either,  new Rad said solid area not fluid, biopsy done on the Nov 21 my BS and and RAD wanted to do biopsy the same day but needed to get order from VA (which I tried to get before making the appt and was told I didnt need) Results Nov 23rd Cancer......A whole list of appointments set for this coming Monday. So strange that my first reaction was relief. I knew it was Cancer just felt it in my soul, as I told my Gyn, BS and RAD I know my body and I know when something is not right with it....God has blessed me with that gift. Coming to this site has been so eye opening, it is teaching just how much I did not know the first time around. Not going to happen this time. I am going in with my eyes open and armed with all the suggestions that I have found on this site. Hugs to all of you and keep me in your prayers.

SAOIsenberg

Kenyohunt1 - good for you for keeping at it, and for following your gut . . . but so, so sorry you're at this again. Keep us posted, and good luck on Monday. I will definitely keep you in my thoughts!

Sarah