QUESTIONS PLEASE HELP

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tanya01
tanya01 Member Posts: 74

I was diagnosed on April 4.  At the young age of 29.  I am almost done with chemo. I have 4 AC treatments and 6 out of 12 taxol treatments

I have some questions, but at the same time I don't know how to ask them, I am hoping someone will understand what I am trying to say.

I am basically triple neg. IDC sage lla grade 3.  I had no nodes involved and clean margins when I had my double mastectomy.  Does having no nodes involved and having clean margins a better chance or survival? I also carry the BRCA1 gene.. Does having this gene reduced my survival rate or higher my chances of a recurrence.  I cant really find much info on recurrence online for the type of cancer I have

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2011

    I think there are threads for triple negative that might be helpful to you. I am just the opposite...triple positive. It is good to have no nodes and clean margins. In my case, ther HER2 component negates that a little as there can be rogue cells in my bloodstream that hit other organs.

    From what I understand on Triple Negative, if you go three years with no recurrance, there is a good chance that it is not coming back, whereas estrogen positive folks have to watch longer.

  • tanya01
    tanya01 Member Posts: 74
    edited September 2011

    Thanks everyone for the kind words and sharing your story. I had chemo today and had a long talk with my Doc. He told me today that my cancer has an 81% chance of NOT coming back. I was relieved to hear this news. I go next week to see the gene counselor. I am a little worried as to what they are going to tell me. But baby steps are good.  I am working on my low fat diet.. But it's a little hard. I love food, but if it betters my chances for survival I am going to do whatever it takes to make it. Wishing you all the best and thank you sooooo much for reaching out to me.

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