questions for first ONC appt Tuesday

mags20487
mags20487 Member Posts: 1,591

I had my bmx on Aug 23 and am meeting the ONC on tuesday..  Any suggestions as to what I should ask?   What are the usual chemo meds for TN and the SE of those meds?  When can I anticipate the loss of my hair?  I have tried to google treatment programs but cancer centers just pop up.  I am meeting this week at MD Anderson in Orlando and then the following week with a local MO to get 2 opinions on treating me.  Radiation I guess follows the chemo since it was in my lymphs--yuck. 

Comments

  • RJ70
    RJ70 Member Posts: 21
    edited September 2011

    I think most of us it taxol and AC. If you have AC I call it the red devil. You will loss your hair, but not all chemo make you loss your hair. I did a clinical trial I had taxol and carboplatin for the first three months the 4 ac. I am real glad I got to do the trial. I could not got the carboplatin if not in the trail, and the nurse I had from the trail help me more the the nurse in the office she really watched out for me. I could askes about a trail. The reason I did the trail is I got two girls and I hope there is a cure soon. My wish is for no one else to have to join our club.

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