Is There A September 2011 Chemo Group?

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  • Kimberly1961
    Kimberly1961 Member Posts: 407
    edited October 2011

    Sarah - I am not on your chemo regimen and I get Neulasta instead of Neupogen, but I know the feeling of being hit by a truck.  I had a few days I had to resort to Percocet because I couldn't take it during round 1.  Round 2, I only needed 1 Percocet but that was because I slept for almost 3 days straight.  Some people have to work or drive and that may not be an option for them.  I don't know what your situation is, whether drugs are an option, but don't feel like a whiner if you need something like that.  Quite a few of us do.

  • rjbaby69
    rjbaby69 Member Posts: 349
    edited October 2011

    Mags:  You look great!  I am loving the pictures!

    Kimberly:  I am now thinking yeast type infection maybe in my hands.  You are correct in that my hands have cracked and the skin is peeling off.  It's almost like I got a bad sunburn on just my hands and now they are peeling, if that makes sense.  So, me being me, I tried some yeast infection cream I have here and to my utter surprise, they feel much better today.  I've been using Udderly Smooth on them as well as some Aveeno that my boss has at the store.  Sigh!  I guess it will just take some time but they sure look ugly for me to be handing people back their change at the store.  But oh, well, nothing I can do but keep medicating and go from there.

    So, work today and tonight.  Bloodwork tomorrow then chemo next week.  Great!  Just when I was starting to really feel good again.  At least with this next treatment, I will reach the halfway mark!  Yeah!  And as a bonus, we don't have school next Friday so I am off from drving the bus!  Double yeah!  I will have three glorious, wonderful days to rest before I go back to any job!  I kinda like that.  LOL!

    So my friend stops by my office today.  Kinda surprised cause she works out of town and we usually only visit on Friday nights.  She's as busy with grandkids and working as I am.  At any rate, she tells me she had a Dr.'s appointment today.  She's been having some neck problems and such.  She goes on to tell me that the dr. found a lump under her nipple.  I am very concerned for her.  The dr. wants her to come back in a month.  She told me she just had a mammo in August.  And she does not have dense breasts she said.  She told me that she had felt it but thought it was just part of the nipple.  Of course, I'm wanting her to get it biopsied right away and such but I have to let her do it at her pace.  At this point, I'm worried but hoping for the best.  Told her most of those things turn out to be B9 and it's probably nothing to worry about.  How many times have we heard this same line?  Damn! 

    Rae:  I promise I'll tell the adoption story when I have a little bit more time.  It's kinda long and I think I will have to provide a list of characters first!  LOL!  At any rate, it's pretty fascinating, or at least I think it is.

    Wishing everyone the best today.  I will post some later.

    HUGS!

  • lwarstler
    lwarstler Member Posts: 341
    edited October 2011

    Rae: That's one of those people I would like to insert my own foot when they open their mouth...nice self-control there!

    Maggie: Love the red and it is wonderful that you dropped those 30 pounds...must feel nice.

    Belleeast: My daughter really struggled with shving my head (but she isn't old enough to drink) we did try to make it fun though with mohawks and bozo the clown looks before we completed the deed. Hope you have a great time.

    Sarah: Sorry to hear how aweful you feel...I didn't have FEC or Neupogen but I did have Neulasta and the pain from that went on for about 5 days.  Hope yours will be short! 

  • belleeast
    belleeast Member Posts: 653
    edited October 2011

    rj,i am so glad kimberly was right about yeast infection hope it clears up soon for you,i would still mention it to dr maybe they can give you a prescription med.

    kimberly,during my port surgery since the dr was standing on my good side they put the blood pressure cuff on my right calf worked just fine. with all the horror stories about LE i am very protective of my arm, i'm not sure how long we can still get it i know for a few years maybe longer. it's bad enough to go thru what we are dealing with let alone adding LE we have to speak up for ourselves and not let others put us at risk!

    slept good last nite, still feel zapped, on good note just a little nausea i think the emend in premeds is helping hope it doesn't wear off soon. go for my neulesta shot this afternoon,last time i didn't have bone pain til 9 days after felt like someone was trying to crack open all my bones.

    sarah,my first chemo i felt like i had the flu achey all over,nausea, vomiting,diarrhea. the achiness lasted about 4 days,the rest longer.it is a miserable feeling i hope i pass on it this time.

  • Kelliregi
    Kelliregi Member Posts: 138
    edited October 2011
    Kimberly - Regarding BP readings. They can take your BP on your lower leg. I had it done today. It's not worth aggravating LE to let them do it on your arms.
  • Kayrem
    Kayrem Member Posts: 164
    edited October 2011

    Maggie - nice pictures and you can tell you dropped weight, your arms and shoulders look more compact.  Was it an intentional weight loss or stress induced weight loss like mine?  I believe the intentional weight loss route is the way to go as it develops better habits and is more sustainable!

    Kimberly - glad to hear you got over the nasty SE hump and are feeling better.  Yes I did get chemo yesterday.  My Neutrophils went up from 0.2 on Friday to 1.82 on Tuesday morning.  My husband said it was because he basted the turkey with a neutrophil solution!  So like Rae and Belle I got a vist to the "Chemo spa".

    Chemo went better than last time. No trip to the ER (YEAH!!!) but still a really nasty headache.  They gave me extra dexamethasone at the end so I had not gotten up from the chair before it started.  The nurse asked me if it was a sinus headache (which it was) and she told me the C in the FEC gave sinus congestion and headache as a SE.  So we went and got sudafed before we left the hospital and I think it  helped. The Emend I took an hour before the treatment helped also.  I still had an unpleasant night (laid in bed with cold packs and cold cloth all over my face) and almost threw up when I tried to eat some Basmati rice BUT I DID NOT throw up!  YEAH!!!  I used to get excited about going out for lunch now I get excited about now tossing my cookies. Oh how I have fallen....

    Lee Ann - your deer shot was hilarious.  I am glad that there are so many people on this board with such great senses of humor (I still laugh about your dog story and your halloween costume Kimberly!).

     Rae - I could send him over.  He has always been the one to do the more adventurous recipes in the house.  I am not a very good cook.  In fact I would go so far as to say that I can be a dangerous cook.  I once started a fire in my oven with stupid chinese egg noodle. It was at a christmas gathering and I was trying to impress my brother-in-law's girlfriend with my salad making abilities.  It did not work. I keep thinking what is so hard about this - a recipe is kind of like a science experiment, do what it says and it should work.

    Sorry to hear that Dalores (Probably not real name, eh) was so rude.  It sounds like you had a great reply to her and at least you know to keep a wide berth from her next time as she appears to be so supportive of you decisions and all you are going through.

    CJRT - that is great about BRCA the test result.

    Belle - What patch did the doctor give you that caused all those SE's?  Good luck with the hair cutting - but make sure she cuts your hair before she gets too drunk (do not want any nicks on your ear or anythig!).

    Sarah - I am on day 2 post FEC (same as you).  I will also be recieving Nuepegen shots but for 9 days.  I was a bit suprised because I was only thinking it would be 5.  I sent you a PM a couple of days ago. Now I am DEFINITELY not looking forward to the shots.  I was hoping it would not be as bad as the Neulasta.   I want to go to the corn maze sometime on the weekend but I do not start taking the shots until Saturday night so I should be okay.

    Can anyone tell me what are "Limb Alert" bracelets?  Are they like Medic Alert? Thanks

  • CJRT
    CJRT Member Posts: 524
    edited October 2011

    Kareym, Shawna77, RaeBob, and Kimberly- Thank you!

    Kimberly- Brought in the reinforcements this week. My father-in-law and his wife are retired and came down from Tennessee to help with the kids and just general household stuff since my husband works so much. Not looking forward to the tough side effects this weekend, but will definitely be easier with all the extra help. On a side note, I asked about the tumormarkers to the PA when I was in today, and she gave me a brief explanation of how they will be done after treatment. I figured I will just ask the MO in 2 weeks to get further clarification. Glad you are feeling good enough to go through bills- sorry that's the task you are doing well you feel good enough to get something accomplished.

     Kareym- I felt the same way with my round 2 when I stayed out of the ER. Hoping you will feel more human soon. 

     Neulesta ? for the group- My WBC had gotten so high that the PA said the MO might cut my dose for tomorrow. I will find out tomorrow when I go in for it. I know some of you do Neupogen instead. Anyway have any experience with changing the dosing for Neulesta. Obviously I want to keep up my reserves but avoiding some of the pain and flu-like symptoms certainly sounds good. Any thoughts?

  • CJRT
    CJRT Member Posts: 524
    edited October 2011

    Kareym, Shawna77, RaeBob, and Kimberly- Thank you!

    Kimberly- Brought in the reinforcements this week. My father-in-law and his wife are retired and came down from Tennessee to help with the kids and just general household stuff since my husband works so much. Not looking forward to the tough side effects this weekend, but will definitely be easier with all the extra help. On a side note, I asked about the tumormarkers to the PA when I was in today, and she gave me a brief explanation of how they will be done after treatment. I figured I will just ask the MO in 2 weeks to get further clarification. Glad you are feeling good enough to go through bills- sorry that's the task you are doing when you feel good enough to get something accomplished.

     Kareym- I felt the same way with my round 2 when I stayed out of the ER. Hoping you will feel more human soon. 

     Neulesta ? for the group- My WBC had gotten so high that the PA said the MO might cut my dose for tomorrow. I will find out tomorrow when I go in for it. I know some of you do Neupogen instead. Anyway have any of you experienced with changing the dosing for Neulesta. Obviously I want to keep up my reserves but avoiding some of the pain and flu-like symptoms certainly sounds good. Any thoughts?

  • PinkShirtNow
    PinkShirtNow Member Posts: 134
    edited October 2011

    Just got back from weekly Taxol #6.  Very uneventful, just like I like.

    I can't keep up with all of you guys!  So many posts!

    Kimberly - Thanks for the anniversary congratulations.  Luckily, I bought trip insurance so we got a refund.  First time ever!  We will just reschedule the Hawaii trip sometime in the future when I am finished with all this treatment stuff.  Right now the refund checks are going for my deductible and co-insurance etc.  Oh well.

     Hang in there everyone! 

  • belleeast
    belleeast Member Posts: 653
    edited October 2011

    well, went to get my neulesta shot at the hospital 30 mi away, get there they had no record of me coming, they called the dr to fax order,after 45 mins a nurse asked what i was waiting for told her for the dr to fax order for neulesta,she checked pharmacy and came back said they had to order it ,usually dr calls day before so they can have it on hand! so crap,have to go back tomorrow after they call !!

    the patch,i was given i think was called senusca , dr said to put behind ear but it was huge so put on my arm,maybe they gave me the wrong one! i am real sensitive to side effects of most medicines, took 10yrs of trying different antidepressents to find one that worked with no side effects.

    big D has returned and nausea,too. stopped to eat at pondersosa, barely made it home and to bathroom.

  • belleeast
    belleeast Member Posts: 653
    edited October 2011

    kayrem, limb alert is like a medic alert,you wear it on the affected arm,some say right arm,left arm, both arms. tlc catalog has them, the one thats says both was on sale for $20 ,the others are $40, i'm looking for cheaper if anyone knows where let us know,please

  • mags20487
    mags20487 Member Posts: 1,591
    edited October 2011

    pinkshirtnow...I also had an annverasary trip planned--happy 30th by the way!!  I wish we had bought insurance.  We were going to Mexican Riviera to an all inclusive adults only 5*.  We have vouchers to use but had to pay cancellation fees...oh well some things are just more important eh??

    Kayrem--I lost 15 lbs when I found the lump--perhaps what enabled me to feel it!  So quite possible saved my life.  I continued to lose up to surgery and after by cutting back on sugar and trying to eat well..Have been a very naughty girl since chemo started and have put a few back on.  Gotta stop eating out when I feel good and make up som grub for my family.  I miss my kitchen so much!

    hope all having a tx this week are doing well and having few SE's.  I agree with the LE discussion.  I have terrible cording in my left arm where they took the nodes too.  The other side only had sentinel out and they have been doing the bp in that arm...watch that be the one I get the LE in.  ugh!  Nurses have told me that if it is less than 5 nodes the chances of gettin it are slim. 

    Maggie

  • Kimberly1961
    Kimberly1961 Member Posts: 407
    edited October 2011

    CJRT - Tell your in-laws that the ladies on this site think THEY ROCK for "getting it" and coming in to help you and your family when you need it.  About the Neulasta and high counts, my white counts, segs, and platelets taken the day of round 2, pre-treatment, were significantly above the normal ranges.  One week later, even with a Neulasta shot the day after second treatment I am on neutropenic precautions because of low counts and running a low-grade fever.  I was surprised at the blood work results.  I feel pretty darn good compared to last weekend.  Makes me wonder how bad it was then.  I think no matter how high your counts are pre-treatment, the chemo just takes it all out, cleans out your account.  Not great but at least you know it is really effiicent at taking out the fast dividing cells.

    Belle, Kelli, and Maggie:  I think I will start asking them to do BP in my leg from now on.  I felt funny about asking.  I don't see anyone else getting blood pressure taken in their leg.  Between what you say and the marble in my arm, I no longer care if I sound like a pain in the butt. 

    I had an interesting experience on the blood draw from the port today.  I can't remember who but I know someone has had problems with blood draws from port before.  That happened to me today.  She tried pumping the syringe a little bit, which did not work.  Then she had me hold my breath, which apparently added enough pressure that it did work.  So if any of you run into this problem, before they re-stick you or make you stand on your head or something, try holding your breath.

    Karen - So glad you were able to get your torture on time.  About lowering your standards about what's a good time, what you want and look forward to and you are reduced to....I would be satisfied if.....I didn't vomit too much and end up in the ER.  I would be happy if the BM fairy would visit on time,...or stop coming while I'm 2 miles from the nearest john, if my white counts would come up so I could have this pleasure again,if my hair would fall all the way out so it stops itching, if the shower drain ever starts working right again, if I could stay awake 8 hours in a row, if I could actually taste some food, if I could forget about neutropenia and all the germs trying to take me down, if I could just have a normal bad hair day, if I could just have normal bills, if I didn't need all these pills, if I could look forward with some confidence to a normal life expectancy.  Yes, the standards have changed a bit for all of us.  You are not alone.

  • Kimberly1961
    Kimberly1961 Member Posts: 407
    edited October 2011

    Belle - I don't do Ponderosa but in the old days I used to treat myself to the custard stand after a dentist appointment, gynecology appointment, for a butter burger or custard.  There are so darn many appointments these days, I don't even bother anymore.  I hear your frustration about slips that cause things like the Neulasta not being there as expected and waits that are way more than should be necessary.  I went through this several times pre-surgery with prescriptions that weren't faxed, radiology orders that weren't faxed, and just had to sit on my ass and wait.  I had to call day after day after day, before anything changed.  This happened to me so often pre-surgery, that while I was waiting in a radiology waiting area I thought, I am just going to shoot myself now if this is all my life is going to be from now on, work and making trips to wait in in a crappy room for hours because someone screwed up again, working the phone to be transferred again and again and again and getting voice mail that may or may not pay attention to their own mistakes, if they call me back..Of course some things did go perfectly smoothly, but when time and time again you get big glitches, it wears on someone who is already pretty much at low ebb.  I kept thinking, I have cancer.  Can't you have some pity on me and do your job right?  Yeah, I get your frustration about extra-slow setting up your chemo, no Neulasta, etc, etc (That's my King and I impression). I did not have frustrations in the same place in the medical chain as you, but had a mountain of them just the same as you.

  • belleeast
    belleeast Member Posts: 653
    edited October 2011

    hi kimberly, i know pondersoa wasn't my choice my daughter suggested it and i needed something quick or i was going to throw up should have eaten before i left home,my soup tastes better. lol

    that might have been me that posted about the blood draw from the port,they had me do just about everything except stand on my head plus coughing,finally injected something to clear clot. if it happens again i'll try holding my breath,thanks for the idea.

    while i was sitting at the hospital, i kept thinking" hurry up and wait" where in the world did that expression come from?

    i need a new mantra to say to myself in times of stress that will make feel calm or patient at least.

    ok, ladies, give me some phrases to repeat to myself funny,outrageous, anything to lighten the mood. 

  • lwarstler
    lwarstler Member Posts: 341
    edited October 2011

    Belle: IDK some mantras but I have some funny things my friend emailed me that might pick up your spirits if you think about them while you wait:

    Isn't it funny how the word 'politics' is made up of the words 'poli' meaning 'many' in Latin, and 'tics' as in 'bloodsucking creatures'?

    Why do they call the small candy bars the "fun sizes"? Wouldn't be more fun to
    eat a big one?

    If you mated a bull dog and a shitsu, would it be called a bullsh*t?

    Don't you find it worrying that doctors call treating you their "practice" ?

    Why do people point to their wrist when asking for the time, but people don't point to their crotch when they ask where the bathroom is?

    Who was the first person to say, "See that chicken over there ... I'm gonna eat the first thing that comes out if its butt"?

  • khegidio
    khegidio Member Posts: 100
    edited October 2011

    Rae: You look so great before and after.  You have such a great face and eyes for the bald look.  Seriously.  Funny story about that lady.  My jaw would have dropped to the floor.  Who the hell does she think she is?  So insensitive. You handled her like a champ.... better than I would have. 

    Shawna,Rae, belleast, pinkshirt, and all the other ladies having their second infusion (or any for that matter): I hope you pull through easily enough.  Remember its one step closer to the final goal of being cancer free!! I know that's though to think about now.. but hey.. whatever may help.

    CJRT: Congrats on the BRCA results.  Mine were negative too and I was happy just due to the second breast cancer and ocarian cancer chances.  I would be even more happy if I had a daughter. Eventhough I was happy it left me feeling a little confused about my surgery.  I was convinced that I would be having a double mastectomy.  I am aggressive like that and I thought my BRCA results would seal that deal for me.  BUT, since they came back negative, now I question if I am being too agressive.  I meet back up with my surgeon in a couple of weeks so I guess we'll work it out.

    I had my second chemo infusion yesterday and the SEs hit me almost immediately.  Nausea and fatigue for sure.  I medicated myself and now feel much better - only the fatigue I am dealing with mostly.  I forgot who recommended me getting Ambien CR instead of just the regular ambien.  I did, I took my first last night, and aside from getting up twice to pee (been drinking so much water) I slept the whole night through!! I am so stoked!! It felt so good.  I will take one for the next 4-5 days and then lay off. 

    Off to my Neulasta today.

    Anyway ladies... hope you are all doing well. 

    Kate

  • CJRT
    CJRT Member Posts: 524
    edited October 2011

    Kimberly- I do feel incredibly grateful about my in-laws. I will definitely share with them how wonderful everyone thinks they are. It is hard for me to accept help since I am used to handling it all on my own, but they have made it so easy because they act like it is no big deal. Thanks for the Neulesta info and your experience.

    Lwarstler- Thanks for the morning laughs!

    Kate- We must be on a similar schedule. Had an infusion yesterday and woke up wiped out. I go in for a Neulesta shot this afternoon. Thanks for the congrats about the BRCA too and same to you. I actually feel similarly to you because I had my mind made up with the surgery too and was planning the same type you had in mind. However, the Medical Director of the Cancer Institute was the one who gave me my results and spoke briefly about my surgical decision and seemed to echo my reasons for thinking of going so aggressively. She was saying making that choice diagnosed at 33 was a lot different than doing it if I were 20 or 30 years older. I know I still have time to make that decision and will be doing what you plan to do and speak with the surgeon also. Share with me anything you learn from your team, and I will do the same. Hope you stay ahead of the side effects this weekend. 

  • Sheypres
    Sheypres Member Posts: 35
    edited October 2011

    3rd chemo today.  Flet sick almost right away. Yuck!  Maybe that means the SE will be gone faster since they started sooner.  I can hope, can't I?  Good luck to everyone this weekend.

  • khegidio
    khegidio Member Posts: 100
    edited October 2011

    CJRT: I will definitely keep you posted on what my surgeon says when I meet her again.  I am so excited mostly to see if the tumor has reacted at all.  I can totally see myself jumping up and down right there.  It will be a small victory.  But yes - let's compate notes between our doctors. 

    Sheypres: Hope they do pass faster.  SEs suck.... but once you make it through this round... you are closer than you were before to the end.  Kepp your chin up girl!  As the saying says... "Fight like a girl!" You can do this.

    I feel surprisingly okay but I am trying to remember back to last time.  My SEs didn't really kick in until day 3 (tomorrow) so I am expecting to be in bed.  My mom came over and brought me the comfiest feeling pair of pajamas.  I cannot wait to put them on and lounge around them all day tomorrow.  It's the small things.  My husband has been a dream come true since my diagnisis but nothing can replace a momma. 

    Talk to you ladies soon.

     Kate

  • SCPMadi
    SCPMadi Member Posts: 42
    edited October 2011

    Hello Everyone, I hope everyone is having a better day than their yesterday.

    I am still feeling extremly fatigued. I am finding it strange how differently this round has gone compared to the last. It makes me wonder what the next one will be like. Round one seemed like a breeze compared to this even with the extreme illness. I am day 6 post #2 and I slept for 6 hours today. I could not have stayed awake if a bomb had gone off. When I did get up the energy seemed to disapate really quickly. I wonder though if the fatigue is partially from over sleep. I did sleep 12 hours last night. Thank God for a husband who is so great with the school morning routine.Good news is the bone aches seem more tolerable today. I am feeling a little nausea today I had no issue this far in after #1.  I am reluctant to take more anti nausea meds as they make me even more tired. So I find myself eatting everything in sight to combat the feeling.

    Does anynone else have a fuzzy kind of presure in their head. I can't fully explain it, it makes me feel dizzy. It is like that not fully awake feeling.  It is why I feel so tired. I want to sleep so it will go away. I took a Reactine this morning to see if it would help it didn't. I had heard this might help with the Neupogen side effects. I have been taking tylenol for the bone pain. I feel like a walking drug store.

    Thanks for listening. Take Care

  • belleeast
    belleeast Member Posts: 653
    edited October 2011

    hi all, the mack truck has arrived at my house,too. i woke up with big D and nausea. hospital called got my neulesta shot ,

    this time it hurt,i don't think it was room temp. she asked if i had side effects i said i felt achey,flu like for a few days but didn't know if it was the chemo or shot. she said maybe the shot. told her 9 days after shot had severe bone pain like someone was trying to crack open my bones, she said definately the shot.

    anyway,went to walmart, while there nausea hit full force ,ran to the bathroom to throw up.do you know how hard it is to throw up when other people are in the bathroom,i just couldn't. part of me wanted to yell out "ok people i'm going to throw up ,i don't have the flu,i'm doing chemo" ughhh got out of there,checked out and puked by the van!

    on a good note i bought a cute black hat and pretty scarf to wear under it. hat was 10 and scarf was 4.66,it said 8 but rack was 4.66.

    another handful of hair in shower this am, at this rate maybe i won't have to buzz. lol

    hope everyone feels better soon. leeann, thanks for the jokes!

  • belleeast
    belleeast Member Posts: 653
    edited October 2011

    scpmadi, i have that fuzzy feeling in my head too,is it the chemo or the neulesta shot i don't know. but i know how you feel. we'll make it ,one step closer to being done.

    my neice on my last chemo asked if she could do anything for me, i said i need someone to just shoot me. she said,i can't do that anything else. lol i was halfway serious i felt so bad.but i made it thru and will,again! this too shall pass!

  • mags20487
    mags20487 Member Posts: 1,591
    edited October 2011

    belle--I am so sorry that it hits you so hard.  What chemo drug are you on.  I am doing Taxol every 2 weeks and have 2 more of those then switch to AC...I am so scared of nausea..have been prone to motion sickness since I was a kid--errr!  Feel better soon my sister and sleep well for the next couple of days!  great deal on the scarves!  I just bought some fabric and made my own.  5 made for $25 in different fabrics and colors.

    Maggie

  • belleeast
    belleeast Member Posts: 653
    edited October 2011

    mags, i'm on DD A/C then i do DD taxol. what are your side effects with taxol? i have always been sensitive to side effects hopefully you will do better than me on A/C.

  • belleeast
    belleeast Member Posts: 653
    edited October 2011
    oh, forgot to tell all of you i went to this site www.gailafund.org and requested a free hat/scarf they send to chemo pts. you fill out a form choose 3 ,they try to send 1 of your choices if not something close.
  • mags20487
    mags20487 Member Posts: 1,591
    edited October 2011

    My Se's so far have been mostly from the neulasta.  I requested the taxol first after reading a study that said it helps prognosis (by maybe 2%) so I will take all the help I could get as it was in my nodes  :(  Other than that the Se had been constipation--no nausea, and pain in my neck on the front and back in the glands.

    Maggie

  • rjbaby69
    rjbaby69 Member Posts: 349
    edited October 2011

    Okay ladies, I confess.  I have done the forbidden.  My boss called it the unauthorized!  I have eaten a loaded baked BBQ Pork potatoe!  I can't believe I did that!  (LOL!  Yes I can!)  My onc had told me no spicey food, no BBQ, no chili, no mexican food, etc., etc.  I have done without for so long, that I just couldn't resist and today I gave in to my longing and I ate every damn bite!  Yummy!  So far so good.  Nothing to report gastro or otherwise.  Maybe if I just do it sometimes it will be okay.  Well, maybe!

    Blood work was very good today.  Everything is back within normal ranges and I am feeling very good.  My hands seem to be healing nicely and don't hurt like they did a couple of days ago.  I am still using the cream I had for a yeast infection on them.  My friend brought me some Corn Huskers Heavy Duty hand lotion to try today.  I could not find the Okeefe's Hand Cream.  So I am trying the Corn Huskers.  At any rate, just when I'm feeling good, I remember that this time next week I will have received TX #3!  Then the SE's kick in.  At least I will reach the halfway mark with the next treatment.  Time seems to be moving right along.

    I feel very fortunate that I have had no nausea and have not thrown up any, knock on wood!  Hopefully, I will do well again through the next treatment.  It just seems to me that with each treatment, I am more fatigued than the last one.  The hoarseness should set in about Wednesday following next Thursday's treatment.  It will be interesting to me to see if it happens again.

    Belleast:  You are so right!  This too shall pass.  Got to keep believing!

    SCPMadi:  I know exactly what you mean.  This last treatment put me on my butt, literally!  I was so exhausted!  I sure hope this next treatment is not worse than the last.  I haven't had the fuzzy, dizzy feeling in my head. 

    Sheypres:  I am so sorry the SE's are kicking early this time.  I hope they leave as quickly as they came!

    I wish all of you well through your treatments and I hope there are no or very little side effects.  Talk to you ladies soon!

    HUGS!

  • belleeast
    belleeast Member Posts: 653
    edited October 2011

    rj, what treatment are you on,so glad your hands are better.

  • Suz39
    Suz39 Member Posts: 125
    edited October 2011

    Hi Ladies,

    Just getting ready for my 3rd infusion tomorrow.  I'm pretty sure I am getting hot flashes now.  So far they are not too bad, but I am glad the weather in cooling down.  I just get hot all over, but it is hot enough that it wakes me up in the night.

    SCP, I am getting neupogen as well - I wonder if it is a Canadian thing?  I was set up for 10 shots, starting 24 to 72 hours after chemo.  My boney pain was the worst after my first chemo.  I found that moving around relieved the pain enough to be bearable, but when you are fatigued, it is hard to be on your feet all the time.  I took a claritin one day, but was able to get through the other days okay.  The second round, the bony pain was less.  I had a blood test at day 7 to see if I could be reduced to a 7 day regimen for future treatments, and my WBC counts were not high enough, so they have kept me on a 10 day plan.  Not too happy, because my life gets way better once those shots are done.  Also, I felt great, so I was surprised with the result.  They told me that they want to elevate the WBC to way higher than normal, so that they stay elevated enough to last the rest of the cycle.

    Take care everybody! 

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