Positive nodes with long term survival

Options
167891012»

Comments

  • Lexica
    Lexica Member Posts: 259
    edited March 2020

    Wonderful, KiwiMum - thanks for the inspiration!

  • lkc
    lkc Member Posts: 1,203
    edited March 2020

    coming up on 15 years , Stage IIIC 12 out of 14 nodes pos, axillary and sentinel nodes completely engulfed in tumor and extraencapsulated, er/pr neg and Her2 pos, never did get clear surgical margins. Geesh!

    Livin Life Large with much gratitude.

  • Kiascia
    Kiascia Member Posts: 20
    edited March 2020

    Hi congratulations ! You are an inspiration for me. May I ask how long were you on hormone blockers?

  • Fitz33
    Fitz33 Member Posts: 243
    edited March 2020

    I’m going on 10 years and almost 9 years of Anastrazole. I had all nodes removed, 9 were cancerous, didn’t have a clear margin and the surgeon had to go back in for a second entry. My ONC still sees me about every 6 to 7 months since she considers me high risk, I have a mammo once a year. Had MRIs for I don’t know how long. Chemo was terrible for me and I was also part of a study but no one knew if it was the study drug and I ended up hospitalized after the 4th round, waited 2 months and then finished with a light chemo for the final 2. I thought rads were so easy after chemo but after 7 years I developed radiation induced pulmonary fibrosis and a year ago Radiation induced brachial plexus. The RIPF is well under control but the RIBP has taken me an entire year and I’ve now got back the use of my arm and hand. The hand will always be a little problem but that’s okay, I can write, stir, make a fist, wave, what more do I need? Stage III isn’t so bad after all!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2020

    Fitz33: Your story is so close to mine! Although I was not in a "study" group, chemo eventually took everything out of me and I ended up in the hospital for a week with a nasty infection. It delayed the last 3 treatments of Taxol (which was fine w/me). I also had a nodule on my right lung from radiation that the docs wanted me scanned for about 3 years and then took a biopsy to be sure it was stable.

    IKC: Keep living life LARGE !!

    PS: Everyone please take precautions during this corona virus outbreak! We survived BC and we can get through anything!

    Shelly

  • TxMom3
    TxMom3 Member Posts: 18
    edited April 2020

    Thanks for sharing your stories. I am at the beginning of my journey and am encouraged. My kids are 24, 22 and 19 and I am hoping to meet my grandkids someday.

  • victoriasecret
    victoriasecret Member Posts: 333
    edited July 2020

    11 years out read my stats...everyone has a path walk your own


    love n light Cheryl

  • KingdomSurvivor77
    KingdomSurvivor77 Member Posts: 3
    edited July 2020

    Hey! It's so good to hear of your long survival, congratulations!! Are u currently on any immunotherapy?

  • KingdomSurvivor77
    KingdomSurvivor77 Member Posts: 3
    edited July 2020

    Hey! It's so good to hear of your long survival, congratulations!! Are u currently on any immunotherapy?

  • lovujja
    lovujja Member Posts: 119
    edited July 2020

    congratulations! my son was 3 and half and daughter was four and half and now they are 12 and 13 years old. I pray and wish I can see them going college. It will be 10 years for me in November.

  • KiwiMum
    KiwiMum Member Posts: 704
    edited February 2021

    12 positive nodes and just reached my 10 year milestone! I come back once a year to post as I was so grateful for positive stories in the early days when I was diagnosed.

    I wish you all well

  • LaughingGull
    LaughingGull Member Posts: 560
    edited February 2021

    Thanks kiwimum, so encouraging

  • karen1956
    karen1956 Member Posts: 6,503
    edited February 2021

    02/03/06, I heard those dreaded words - 15 years later I'm living life and have been blessed to see my children grow and reach many milestones. 8/12 positive nodes post surgery but nodes were also biopsied during my second set of biopsies. More and more of us are living longer and longer. To the next 15 years.

  • hopefour
    hopefour Member Posts: 459
    edited February 2021

    This May is 10 years...so very grateful. I am still on hormone blockers as I am highly ER PR positive!

  • DutchieGirl
    DutchieGirl Member Posts: 103
    edited May 2021

    My mother was diagnosed in 1998 with Stage 3c, hormone positive ILC. The tumour was 7 cm and she had 13 positive nodes. She is alive and well, and turned 80 last August - no recurrences, no metastases. I certainly had great support from her when I was going through my own cancer

  • windwalker27
    windwalker27 Member Posts: 50
    edited August 2022

    Thank you so much, ladies, for sharing your stories. I read your posts the entire night. I am not even sure I am stage 3. I know lymph nodes are involved. I am having a CT scan today and bone scan tomorrow to rule out mets. You gave me hope

  • ktsmitty
    ktsmitty Member Posts: 15
    edited September 2022

    I'm with you windwalker27. I had my surgery on 9/12. I was moved to from Grade 1 to Grade 2 and had one lymph node micromets positive. Start radiation in about a month. Reading these stories have been very helpful to me as I always believed that spreading to the lymph nodes was always considered Voodoo and bad for BC. I guess that's no longer the case anymore with the advancements in treatment. I feel a lot better now. Thank you all.

Categories