IDC (Infiltrating/Invasive Ductal Carcinoma) 2011 Sisters

Kaara

coronamom:  It was going to be done at Sylvester Cancer Center in Fl, "off protocol" because my prognosis was too good to participate in the clinical trial.  My BS did put in a clip at the site, but apparently this wasn't enough for the RO to plan properly, because she told me she couldn't do it.  I was a perfect candidate..age, tumor size, location, etc.

It was their only shot at doing rads treatment on me....when I heard that, I opted out of the lengthy version because IMO it is an overkill for my stage and grade of bc. 

Joan811

Kaara, I think it is amazing and great that you have healed so well that there's little evidence of the site!  You should have a good shot at being cancer free long term.  Studies are being done now to support the premise that in early stage BC, if there are any cells that leave the site, they do not go far and are usually contained within the margins that are removed.  So that could very well be your case.
Blessings -- it sounds like you got a good report and are healing well.  I hope that you have peace with your decisions and that you continue to be well.
Best thoughts and prayers to all here,

Joan

Kaara

Joan811:  I've done everything possible to make sure I'm cancer free short of chemo and rads, so I hope you are right.  I will probably try tamoxifen because I can always go off it  if the SE's are terrible, and there will be no long term damage.  I'm still on my rabbit food diet and will continue because it actually makes me feel and look better and I have more energy.  I'm taking a lot of supplements as well to keep my immune system at optimal levels.  Beyond that, I'm just going to live my life!

Prayers and hugs to everyone..have a great Sunday! 

Joan811

Kaara, you are more brave than I; however, we have a similar diagnosis and stats are good for our group....I admire your commitment to good health. 
stay well!

Joan

jap62

so prior to my 50 bd I was dx with IDC, hard to take in at first.  The fog is finally lifting, now waitng on insurance. They denied my scans.  I do wonder who decides these things.. they don't feel necessary for me to have a ct of abd,chest & pelvis, nor a bone scan, since I have no pain in my bones. Can u believe that!  If I did it most likely would be so far advance it wouldn't matter.  I have heard that they only care about the shareholders, I swear if anything is found that could have been adverted I will be all over those morons.  Ok, I feel a bit better, thanks

mommarch

I would also be all over my Dr. and clinic.  My RO ordered a PET Scan right away, he said he would not take a NO from the insurance company. 

If they do not go to bat for you I would be looking at going elsewhere for treatment.

jap62

My oc office is working on it. right now it is in the appeal stage.  Mt nurse is pretty cool, speaks her mind and I like that.  I have a so called nurse advocate w/the insurance company, but isn't much of an advocate.

jap62

yea, I got an appointment for the 8 @ John Hopkins

Joan811

jap,
Sorry to hear about your recent diagnosis.
As if BC isn't enough, you have entered the world of endless ups and downs. I hope this scan brings you good results and the peace of mind you deserve.  Do you have a treatment plan for the IDC, or are you waiting until after the scan? 
Sending good thoughts and hugs your way...
Joan

jap62

Joan, I am going to wait and see what the drs at JH have to say.  I doubt I will wait for the scans before I proceed, if I wait the cells could spread, so I will get my bmx then proceed from there.  I think my onco is going to speak with the insurance co herself to see what their problem is, being that this is standard to proceed with treatment

Joan811

jap62,
I can undertand why you want to proceed quidky.   But please make sure you are comfortable with your decision...as comfortable as you can be with a BC diagnosis. 
Keep us posted on your updates....and best of luck

borntosurvive

I am 33 years old diagnosed on 11/11/11.  I have a 19 mon old and 3 year old at home.  I had a double mastectomy 22/11/11 and am currently having chemo.  I am having dose dense ACT and I am on round 4 of 8.  I won't need any radiation as the breast tissue was all taken and clear margins.  I live in Canada so things are a bit different here it seems then in the US.  I am having some side effects of the chemo and not fairing as well as I was told I would.  I have my good days and bad but try to remain positive that once my treatment is over, I'll never have to go through this again. 

chickintpa

Just finish my second round of chemo-- I feel a lot better then the 1st -- I got my Pet Scan back 2weeks ago- the cancer has not spread to my body-- Thank God! Also, my tumor has reduced after my first round -- another good sign.. my onc hasn't spoken to me about my onc score? I did ask about my Stage - and he said it is hard to tell since we are doing the chemo first and I have dense breast  so it's harder to see where the tumor starts and stops-- could be 1.2cm or 2.5cm- he said when they do the lumpty and put the dye in me to see if my lymph nodes are involved they will have a better idea??? I am having a hard time with the tamoxifen decision to take it or not-- maybe doing a more natural way to shut off my estrogen might be the better way to go-- I was also going to ask my Doctor about shutting down my overies.. has anyone done this.. I understand there is a shot that can do this? Anyone know of this? I do take d3-- and my juice plus pills which I double for max nuturient.. at least till the chemo is over - oh and one more thing, has anyone done the Neu adjucant procedure -- how many rounds of chemo did you do ??