Meeting with Hospice 1st time

waves

My onocologist has dropped me like a rock. I am am hospice bound.  I am scared.  I do not know what to expect. Nothing humbles you like cancer. I hope I can die in my own bed.  

reesie

oh, waves, I'm so sorry to hear this.  It sounds like you aren't ready to give up on treatment?  Have you tried a second (and third...) opinion?  Is it possible to combine the best of both worlds (palliative and treatment)?  I don't know, I'm just throwing ideas out there for you. 

I can only imagine how hard this decision has been for you and your family.  I hope you have a pain free transition from the nasty world of treatment and SEs to enjoying time with your family. 

Know that we are here for you no matter what - if you need to vent or just a shoulder to cry on give us a "yell".

scuttlers

Why has he dropped you? That just sucks! We are here, sending cyber hugs.

chainsawz

{{{waves}}} We are here for you.....

Sunflower430

My mom is also stage 4, triple negative.  We met with hospice today.  Everybody is really kind and seem to be there to help you achieve whatever goals you have (my mom wants to be pain free and to go on one last family trip next week).  They will work with you and manage pain.

steelrose

waves...

I am so sorry you are facing this. I don't know why your oncologist "dropped you like a rock." You should find another oncologist if further treatment is possible and desired by you. If it is your wish to stop treatment, then hospice should fully support you and keep you comfortable and pain free. In either case,  your wishes should be granted!!!! You live in a beautiful place, and we were born in the same year. Like so many others, we are too young to be facing this! Please know that you are in my thoughts and prayers... as others have said, we are here for you.

Sending you love...

Rose.  

palaminoridesagain

Waves:  I am curious what he said to you.  Is did he say there is no more chemo?  Sometimes I see palliative care as an option although when my doctors bring it up I seem to freeze.  I am hopining If I were you I would schedule another appointment.  Bring someone with you.

Nicki/chemosabi

RealtorJackie

((HUGS)) and love your way.  Sometimes oncs can be insensitive.  I have had one like that.  We are here for you.  Keep your chin up!

momofthree2011

Waves,   Praying for you and for your peace! I agree with Phila.. Knowing we will be in Heaven with the Lord and our loved ones gives me peace. No more suffering.

thatsvanity

Dearest Waves,

I understand how you feel about your oncologist dropping you, I was my younger sister's main at home care person during her cancer journey. We both felt very close to her oncologist, radiologist, chemotherapy nurses, pain management but we never felt the hard core love as we did with her docs compared to her hospice doctor and his team. It's not the end believe me the most beautiful, spiritual, palpable love we both felt was her time with hospice. Of course I miss her terribly, but dying is inevitable for us all we are all fellow travels on a journey to our true home. I wish I could be with you and hold your hand. My sister wasn't scared and the holy spirit was with us, there was no fear or pain. is there someone that can be with you, hospice has the best people who will be with you as little or as much as you want. Your honesty is a reflection of your beautiful spirit. Love to you and your journey.

thatsvanity

Of course you can die in your own bed!

reesie

Waves, just thought I'd check in on you.  I hope you're having some quality pain free time off chemo with no SEs.  Let us know how it's going.  If you need to vent - we're here for you.

K-Lo

What's the arrangement some wonderful women made to keep tabs on our peeps? Does anyone have Waves on their radar? Can I help by keeping track of someone around these here parts.....Alabama.... Lynn is in GA she and I can keep phone numbers. Sh*t where's Waves.