New, lost, confused, scared

MissyMouse

I'm recently diagnosed, have had an MRI (multicentric), have seen an oncologist and in the process of going through the steps to schedule bilateral mastectomy with immediate reconstruction.  I'm not a candidate for radiation due to my past history of Leukemia (I may be setting myself up for myelodysplastic syndrome if I try).  Based on the MRI and concerns for radiation lumpectomy was not recommended for me.

I'm 51 and am cosumed by what is going to happen to my breasts.

Missy

Mantra

So sorry you have found yourself joining the club.

I had a double mastectomy with immediate reconstruction. I think having immediate reconstruction made it easier for me to handle. I personally have not regretted my decision.

rc778

Missy,

Hang in there.  I had a BMX with immediate reconstruction in Dec and had my permanent implants placed in May.  I also never regretted my decision. Once you gather all the information and make your decisions, it becomes easier to deal with.  Best of Luck to you.

Anonymous

Missy- We've all been where you are and it is so overwhelming!  It can feel like everyone around you is speaking a foreign language.  It does get better, though.  The beginning is truly the hardest as you try to navigate a place you never imagined you'd be.  I'm also 51, had DCIS last year and had a bilateral mastectomy (BMX) with reconstruction (implants) so have been where you are.  The good thing, or less bad thing, is with DCIS you have time- time to educate yourself, see what your options are and figure out what is best for you.  You may not have a choice as far as MX vs. lumpectomy but there are choices with reconstruction and even the type of MX you can have.  (I would urge you to see if you are a candidate for a nipple sparing mastectomy.  If your DCIS isn't too close to the nipple and you're not extremely large breasted you more than likely are.  This type of mastectomy is a lot less disfiguring.  Unfortunately, not all breast surgeons are trained in the procedure so you may have to ask around to find one that is because only they can determine if you're a good candidate or not.   Find someone really experienced as this would best ensure the success of the surgery (as in saving the nipples, not removing the cancer).  I had this type of MX done and have been very happy with the results.  If you have any questions feel free to send me a PM-private message.)  Once you get a treatment plan in place it won't seem like your world is spinning out of control so much.  I know how scary it all is but you have found a wonderful place here.  This site was such a lifeline for me as I was going through everything.  And it will be for you, too.  (((hugs)))  

Anonymous

Missy- I just noticed you're in Florida so I sent you a private message to let you know about another option with reconstruction that you might not know about.