DCIS facts and misconceptions

CLC

I agree with Shayne...if you want to stay in the DCIS pages, scroll up to the top of this thread and you will see

All Topics → Forum: DCIS (Ductal Carcinoma In Situ) → Topic: DCIS facts and misconceptions

Click on "Forum: DCIS (Ductal Carcinoma In Situ)" and you will find lots and lots of dcis threads!

LAstar

Terri -- don't feel bad!  You are in the right place, the DCIS forum.  This particular thread was started by Beesie to provide general information about DCIS.  If you go to main forum heading: 

http://community.breastcancer.org/forum/68 

you will see the option to "Start a New Topic."  This might be a good way to start a thread based on your own experience, ask specific questions, get feedback on your path report, etc.   I agree that BC is personal -- it's a collection of our personal stories and this is one way to learn about the larger problem.  The research summarized here is another.  As you browse through all the topics in the DCIS forum, you will see lots of personal stories and some of these threads will also be good places to talk about your personal experience.  I certainly have, and I have gotten so much helpful information from it.  I only mentioned this because Beesie had said something and I have appreciated her help.  

Shayne

Its not a big deal - Beesie started this thread to post "facts and misconceptions" regarding DCIS.  Many have posted questions or comments regarding their own situations..... not posting facts and misconceptions as the topic stated.  It happens on almost every thread.  

Its pretty easy to go to DCIS and start a new thread - Ive had great success with people answering my personal questions about my diagnosis and its a lot quicker.    Dont feel bad.....this forum is for you!   

LAstar

YES!  Don't feel shy!  I certainly wasn't pointing you out specifically, just reiterating Beesie's request.  

terrikoala

Claire, so this thread is not for DCIS after all.  I really didn't want to be on several threads about the same type..too confusing to keep up with. What is the real purpose of this thread if I may ask.

LAstar, obviously I am in the wrong place. There are too many threads as it is and in my mind having one  started by each of us is way too much.  Just to be clear I did not ask for my path report to be explained. The nice ladies on here ask me some questions about my diagnosis and I could not answer and suggested I get the biopsy report so I took it upon myself to post the results so they could help me understand. Did not understand until now that my path report was too personal to share here. I just wanted to understand it..thats all. Now I have no place to share the surgery path report. I was all warm and fuzzy over this thread helping me but now I am feeling quite a chill in the air. 

 

Shayne

oh no!  Sharing whatever you want is fine!  path reports, sex, whatever.......

This thread IS for DCIS.....

maybe someone else can explain it better.......feel like im repeating myself.   

CLC

Terri...this is a thread within the DCIS forum, as are many others.  There are many forums, one of which is DCIS.  Within each forum, there are as many threads as people create there.  If you click on the link I gave you, you will go to the forum for DCIS and you will see this thread listed there, as well as many others.

You are NOT in the wrong place and you have done NOTHING wrong!   

LAstar

Well, that was not my intention at all. I meant absolutely no animosity. Please do what feels right for you and what helps you get the information you need.  Best wishes in your journey!

terrikoala

Shayne, there has been a back and forth on here in the last hour or so about this NOT being the place to discuss JUST DCIS and  not to share personal info.  Heck..our signatures share personal info! I am really confused and sure don't want you to repeat yourself. I see where you said "Many have posted questions or comments regarding their own situations..... not posting facts and misconceptions as the topic stated." so I have been in violation of the the topic for sure since its ONLY for facts and misconceptions and being newly diagnosed I don't have know enough to post facts but I sure have a lot of questions and comments. I am all about questions these days...lol.

I searched again on DCIS in all forums and this one keeps popping up. I don't see one where the intent is to post questions and share info. WOW...this is intense.

terrikoala

Claire, I think I am using the wrong  descriptive 'words' especially when I say thread.  This  Breast Cancer Discussion board (or forum)  is full of topics with indiv. threads. I need to be in a topic about DCIS where all things DCIS are ok to start threads about  or to post to existing threads. I think I used the word thread when I meant or topic.

Sorry and even if I am not where I should be you have provided me lots of great info and I really appreciate it. I will try to find another forum to keep finding out what I need to know about my paths,etc

Shayne

Hey terri  - there's no violation.  No animosity.....just us ladies, trying to keep it real.  LAstar only mentioned keeping on track with the topic because the person that started it, Beesie, chimed in a page or so ago, wanting to keep it to facts and misconceptions, maybe wanting people to post links - so that a newbie could come and read info.  People do it all the time, steering the conversation here and there.....its not a violation.  We are all here looking for info, and some of us are past that and wanting to help other newbies with advice etc.  

Not that we are trying to scare you away......but the suggestion of starting your own thread is not to be mean, but just advice on getting you the answers you need.  but we all have commented on this thread and many many others like it, posing questions on our own diagnosis.  ITs not wrong, it does not violate anything.  The only violations or rules here is being rude, or personal attacks.  Neither of which is going on here.  Im so so sorry if you feel anything but helpful suggestions coming your way.  We are all here for the same reason......dealing with this horrible disease.  Happy to answer you questions or send sympathies your way.....lots of ((HUGS))) to you!! 

terrikoala

To all the wonderful ladies on here: I am creating havoc and I think its a navigation issue on my part. Many of you are very familiar with the structure of this  Breast Cancer discussion forum so  If you could kindly tell me the topic I should post to for these I will try not to post any further on this one.

1. Share my surgery outcome and path report and ask questions about them

2. Radiation support

CLC

http://community.breastcancer.org/forum/68/topic/790980

Here.  I just made one.  We can finish the conversation there, if you like.  If you don't like that thread, we can let it just drop off into nothing, too.

Claire

Beesie

I think I started the confusion with my post last week and I apologize for that.  I also appreciate the efforts being made to get this thread back to the original intent, which was simply to be a place for general information about DCIS.  At this point though there is so much other discussion going on here - good and important discussion for those involved - that if you want to keep the discussion going here, that's fine.  

Seeing where this had all gone over the past few days, I decided to use this as an opportunity to update my original post in this thread.  I figured that I will start a new thread with the update.  I'm adding quite a bit... as if it wasn't long enough to begin with!... so it's taking me longer than I expected to update.  But I hope to have it posted by later today as a new thread.

LAstar

Would it be possible to get the Mods to pin your new thread so that it is always right up top for new people to see?

Infobabe

 Beesie

All these threads go off on a tangent.  It is the nature of the beast.  

If you follow all of Terri's posts you can see she has been helped enormously and that is worth it.  I agree that after a while it is a good idea to get a new start with a new thread.  A page that is not meant for general input should be an article in the BC.org main diagnostic pages.  That is not possible for us users to do, so we figure a way around it.

I don't like Terri feeling embarrassed that she did something wrong when she did not. 

Moderators

Beesie, I'm happy to pin a thread if you think that would be helpful. 

Terri, you were just perfect here. I'll message you more info on the how the boards are structured. Please stick around and get the help you need.

terrikoala

Moderator,

Talk about frustration for a newbie...A  couple of  very kind members PM'd me so I could get some help without messing up Beesie's thread any further and now I can't even use that functioin because I exceeded some limit? I  replied to a few PM's that were sent to me and now it won't let me reply to any more. What is the limit and is it per day/week? I am happy to conform to rules but I can't find anything about the limit for PMs.

When I get your structure message I won't be able to reply....lol

TX

Moderators

Oh, Terrikoala. Our apologies. We have it set that "newbies" can't PM too much in the beginning ONLY because we had many spammers joining and sending out mass PMs. I switched something so that you can PM more. Hope it works. 

Also, we do have a help section, which is at the bottom navigation (go to bottom of the page). http://community.breastcancer.org/help

So, we have something called "Forums." The forums are the main categories. Within each Forum are Topics. You can start topics, or resond to topics that are started by someone else, as you have here.  

So, this topic is within the DCIS Forum. There are many topics in this Forum. Same for the forums "Radiation" or "Surgery". You can search within the forums for a topic that may fit your needs, or start your own. Either way. 

Does that help at all??? 

kylin8

Thank you so much Beesie! My husband was helping me research and he is the one who led me to this post. Very informative!

terrikoala

Thanks for the help on the PMs. I  did use the Help section but found nothing about the limit before I asked you. I completely understand about the spammer thing. I am just gabby and sol excited about people being so helpful  but finding it best to use PMs until I find which topics I belong on as I seem to have muddied some members' waters and don't want to do that. I just need help on certain subjects and need to find my way to the right places without stepping on any more toes.

Thanks for the lesson as to how this board operates. I am actually on many  discussion boards and forums on many subjects and thought I knew all there was to know about navigation/posting,etc but these really confused me.  I just could not find the 'main' topics; lots of threads but not main topics so thanks for showing me the structure. 

Thanks again

marie5890

(Im one that thinks this thread should be pinned if Beesie agrees. Im always sending newbies here who have just been Dx-ed with DCIS)

Beesie

Terri, don't worry about having posted here.  Everyone who's new posts in other threads. I know I did! And there have already been lots of other 'side bar' discussions in this thread in the past. The difference over the past few weeks is that the side bar discussions - yours and others - have turned into 3 or 4 pages of posts.  My only concern has been that the general information and discussion about DCIS has gotten lost in with all these other discussions. The onus really should have been on those responding to you to suggest that the discussion be moved to another thread, ideally one that you start yourself so the entire focus is on your questions.  

Mods, thank you for offering to pin a thread.  Let me post my new thread and then I will leave it to you to decide if it's worth pinning or not.  

terrikoala

Not to worry...I am done here after being told my path report is not medical but is anecdotal (short and amusing or interesting story about a real incident or person).I was also told there is another definition but the first 20 hits on Google are the same as what I just shared and I was highly insulted hearing  that about my biopsy from a breast cancer survivor.

I think your original  topic should be bumped to the top as it is wonderful and was the first thing I read when I came to this website and it  prompted all my posts. I do think newbies should be  educated as to what is acceptable to ask/share  BEFORE they get all tangled up like I did.

Bless you

Infobabe

terrikoala

This is an abberation and I have not seen it before.  You were not tangled up.  You were fine and about ideal.  

There are others, and Beesie knows who they are, who post incomplete nonsense and we do not have a clue what their medical condition is.  

Moderators

okay, Beesie. I pinned it!

Beesie

Infobabe, yes, that's certainly true!

Terri, of course your pathology report is medical.  But it's also personal, since it's specific to your diagnosis.  It's entirely appropriate to post and ask questions about your pathology report.  And as I mentioned in my earlier post, when we first arrive here everybody posts in other threads - usually whichever thread we happen to land upon.  It's all part of the process of figuring our way around this website.  I'm truly sorry if you are upset by the suggestions that you start a new thread that focuses on your pathology and your questions. Nobody wants you to leave or stop asking questions about your diagnosis and what might be ahead for you.  The fact is that you'll probably get more answers in a thread that you start yourself.  The old-timers who hang out in the DCIS forum have already read my thread and don't often come back to check it out, so they haven't been here to see your posts and answer your questions.  So please stick around!

Mods, thank you! 

Infobabe

Beesie

I have seen your new pinned page.  I will be reading it from time to time to see what you have discovered.