AVASTIN Hearing June 28-29th

Options
kidzrn
kidzrn Member Posts: 28

Just found out that that I will indeed get to speak in the FDA hearing for Avastin. A few of my online buddies will as well. I am excited and nervous at the same time. Please pray for all of us and that the FDA listens to the minority who are helped tremendously by this drug our family will all be heading to DC except for josh who has training in Texas for 3 weeks for his job at apple. So excited he was promoted to genius. If anyone knows anyone who would like to be part of the protest, it will be Tuesday morning before the hearing starts. This is such a huge thing when the FDA starts interfering with what an oncologist wants to give on patients that they know it is working on. If you have time please still sign the docket on the fda website;

http://www.regulations.gov/#!documentDetail;D=FDA-2010-N-0621-0143


Speaking for us all of us who want to keep our options open and have our medical decision made my our doctors....This is especially important if you have TNBC as we have less drug options to begin with and it seems from alot of data we have noted on the petiton, that many of the super responders who are doing so well, that many of you are tnbc.

If you live in the DC area and want to join us for the protest, please do. Its not too late to sign in to be there for the hearing. you can do that on the FDA site as well. Getting near the end.....one way or the other.....Its speak now or forever hold your peace!!!! Thanks for all yall's support in this.... christi

Comments

  • Suze35
    Suze35 Member Posts: 1,045
    edited June 2011

    Thank you for doing this, bless you! I was just approved for 12 weeks of Avastin, and I truly hope if I respond, the option remains open to me, for ALL of us.

Categories