Moving to stage 4

lassman

Dear Ladies,

Disaster has struck. Got rushed to hospital the other day. They thought i had had a stroke but a CT scan showed cause was mets to the brain (7 in all). I had a battery of tests to check for further spread in the body. Got the results back this morning and they confirm no (no) spread elsewhere. Bones/lungs/liver etc all clear. At least that is something.

I start radiotherapy next week on brain. They will try and shrink the buggers. Hope it works. I will be moving to the stage 4 forum now and hope they can offer me some sage advice...I am well gutted...

Best of luck to the rest of you - hope you don't end up in my situation.

Lassman 

jdeking

So sorry to hear this Lassman.

 I hear that they have wonderful treatments for the brain, and the ladies over @ stage IV seem wonderfully supportive.

Big hugs, and will keep you in my thoughts and prayers that you will kick those 7 spots right where it hurts!

~J.

J9W

Best to you and yours.  Cancer sucks.

peggy_j

Oh lassman, I am so sorry to hear this. If it helps, I also have heard wonderful success stories of treatments for the brain.  So so sorry. We're pulling for you. (((hugs)))

pippilotta

Im so sorry. I did read about a young lady in Hong Kong who had brain mets and was cured after AC chemo. Dont give up

mom2one

Just wanted you to know that my mother-in-law's friend had met to brain and at 7+ years still going strong.  Stay positive!!

lassman

Thanks for the posts ladies. it's making me feel so much more positive. I am still feeling numb at the moment..how could this awful thing have happened to me!

Encouraging to hear about your mothin-in-laws friend - trying to stay positive but v hard when i see how upset husband is. Never wanted to hurt him...

Lassman

profbee

Oh, Lassman.  I'm so sorry.  I can totally understand feeling numb.  Isn't that what we all fear?  I hear you about your hubby too.  Even at Stage 2, watching hubby worry is so sad for me.  I guess it means we love the hell out of them, eh?  So, that's awesome.  Hang in there, hon.  One foot in front of the other and just doing what you have to do to get well.  I'm thinking of you tonight and hoping for the best.  

lassman

Thanks for your kind words profbee - I was gutted for my husband when i first got diagnosed as he was so upset then- Now he is devestated and keeps bursting into tears when he looks at me. I guess i am lucky to be so loved - we have always been soulmates.

I'm hanging in here - just. I know these posts worry others as well - we all dread hearing this sort of thing and the "sword of damocles" hangs over all of us.

Lassman

greenacres

Oh my goodness...I am so sorry to hear of this.  This is my worst fear being Her2+++ is the spread to the brain.  My thoughts and prayers are with you, my heart goes out to you but you will BEAT THIS there are so many medical treatments out there nowadays.  GOOD LUCK to you sweetie.

Sandra

profbee

Lassman, not that hubby doesn't have every RIGHT in the world to cry over this, but if he's really feeling awful maybe going and getting a little medication to help him for a bit wouldn't be a bad idea.  It just may help.  Lots of love to you both tonight.  

lassman

Profbee/Greenacres,

Thanks for your kind words once again. I had a consultation with the ONC yesterday and they seemed quite upbeat. I start 5 WBR tomorrow and then they will monitor progress with an  MRI when all has settled down. I will also be getting Tykerb afterwards since I am HER2.

Hubby seems more cheerful after the consulatation as well. It gave him some hope at least.

God, please let this work!!!

Louise 

profbee

Yay! Glad to hear that, Lassman! I'm taking Tykerb (Lapatinib) now (on a trial with earlier stage Her 2 positives) and it's not bad. There's a rash that looks like zits on my forehead, but really that's the worst of it all told. (I'm on Taxol too so I am bald as well!)

I know this was a blow,but yes there's a LOT going on with meds, we're lucky to have a "popular" cancer!   Keep us posted when you can, and PM any time you need an ear. I just know it's going to be alright. 

C

lassman

Thanks profbee, i'll let you know what happens. You are right, at least we have a very "popular cancer" so they chuck everything at it.

I was wondering what the Tykerb would do - guess different for everyone though.

I am soon to join you in the bald department! I have been there once though - so dust off my wigs...

Lassman 

hrf

Lassman, sorry you are going through this. I was just reading about a clinical trial for people with Her+ that is showing amazing results. It's a vaccine. I believe they are moving to a stage 3 with the trial very soon. I get these articles from my "google alert" so you should be able to find it as it is recent. best wishes

edwards750

I am so sorry Lassman. I have heard the same thing about mets to the brain. One of my friends has a similar problem although didnt evolve from BC. Still, she is doing fine and you will be too. We all have that fear factor but we all have the optimistic one too. Good news is they have come a long way with treatment and the mets didnt spread anywhere else. We are all praying and pulling for you. Let us know how you are doing. Even though you are moving to another forum we are your support team too. diane