Need Help Please

Options
IllinoisNancy
IllinoisNancy Member Posts: 722
edited June 2014 in Stage III Breast Cancer

Hi Ladies,

I don't know if I have checked in this site.  I used to be Stage I, Pleomorphic ILC in 2006 but in October of 2010 I had a local recurrence in the same area where I had the lumpectomy and rads. Because it also went to a couple of small spots on the breast skin it turned me into a Stage IIIB, I think.  The BS said they don't like to stage local recurrences but because it surfaced on the skin I'm Stage III.  I'm so scared it will spread to other parts.  I had chemo followed by BLMX and now I'm on Armidex.  My PET scan was clear but so was the mammogram that was taken the day I was dx with the new cancer.  Also, after my BLMX, they said there was still some ILC in the breast that they removed even though I had received chemo.  I can't seem to find any women who have had PILC on the breast skin.  Am I a freak who is one of a kind?  I really wish I could find someone who has been through a similar type of recurrence.  Thanks for listening ladies.  I pray we all have long lives. 

· Share on FacebookShare on Twitter

Comments

  • bak94
    bak94 Member Posts: 1,846
    edited June 2011

    I don't know what pleomorphic is. I hope someone has some answers for you. I think it is common for other types of bc to have a bit of residual cancer int the breast after chemo.

    · Share on FacebookShare on Twitter
  • lago
    lago Member Posts: 17,186
    edited June 2011

    Hugs Nancy. I would discuss this with your onc further. Just remember there are lots of women that do an oncotype test and find that chemo won't do much good for them. The just do Tamox or Als. Arimidex is a very powerful gun against hormone positive cancer. It should starve of those strays.

    I don't know anything about Pleomorphic either.

    · Share on FacebookShare on Twitter
  • jennyboog
    jennyboog Member Posts: 1,322
    edited June 2011

    I'm so sorry you had to join us here.  I'm no help but just wanted to welcome you and let you know we're here for you.  Hugs going your way.

    · Share on FacebookShare on Twitter
  • YATCOMW
    YATCOMW Member Posts: 664
    edited June 2011

    Hey Nancy....

    I had pleomorphic ILC and it was in my skin.  I am seven years out and doing well.

    I have read a number of articles on skin involvement and many recent articles say that skin involvement (not IBC) doesn't seem to have a worse prognosis like they originally thought.

    I hope this gives you a bit of peace......hang in there.

    Jacqueline 

    · Share on FacebookShare on Twitter
  • IllinoisNancy
    IllinoisNancy Member Posts: 722
    edited June 2011

    Hi Jacqueline,

    You just helped me more than you could ever know!!!! I am so happy to read your response.  I don't feel alone anymore. I wish I could give you a big hug right now.  I would love to stay in touch with you.  Thank you....thank you.....thank youLaughing

    · Share on FacebookShare on Twitter
  • bak94
    bak94 Member Posts: 1,846
    edited June 2011

    Nancy, I knew if we kept this thread going someone would come by! Glad you found support and comfort!

    · Share on FacebookShare on Twitter
  • YATCOMW
    YATCOMW Member Posts: 664
    edited June 2011

    You know...fortunately or unfortunately..........I can just about help anyone feel good (smile).....
    had a huge tumor 8cm by 6cm.......in the skin......at least 17 nodes......cox-2 3++++..... 
    blah blah blah of bad news......
     
    but last week makes 7 years out....
     
    Jacqueline 
    · Share on FacebookShare on Twitter
  • YoYo44
    YoYo44 Member Posts: 203
    edited June 2011

    Hi Jaqueline,

    Thanks from me too. It's great seeing someone ahead breaking the trail.

     Take care,

    Yo

    · Share on FacebookShare on Twitter

Categories