Treatment for Lymphadema - Dr. Marga

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whippetmom
whippetmom Member Posts: 6,920
edited June 2014 in Lymphedema

I have heard of Dr. Marga's surgical treatment for lymphadema, but I just came upon a video where she discusses vascularized lymph node transfer in depth.

http://nilymph.com/news/dr-marga-discusses-treatment-lymphedema-healthbeat

Deborah

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  • geewhiz
    geewhiz Member Posts: 1,439
    edited April 2011

    Great info from you as usual. Thanks whippet mom.

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  • christine47
    christine47 Member Posts: 1,454
    edited April 2011

    thanks for sharing!

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  • ---
    --- Member Posts: 197
    edited April 2011

    Thank you Deborah for sharing.  I just got back from my Axillary Dissection and am really hoping that i don't develop LE at all.  Thank you for the info!

    Laureen

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  • Binney4
    Binney4 Member Posts: 8,609
    edited April 2011

    mangosteen post above reported as spamTongue out
    Binney

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  • Nordy
    Nordy Member Posts: 2,106
    edited April 2011
    hmmm... Binney - it was posted from Kenya. Well now there's a surprise (NOT) since that is one of the countries that has a high incidence of scamming people that are selling things online - by sending fake checks for too much money, then asking you to refund the difference. I had a friend that got scammed that way... although I asked her WHY in the world she would ever send money back to someone before she made sure the check cleared... but herein lies another story...Wink
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  • Katarina
    Katarina Member Posts: 386
    edited April 2011

    I had an axillary dissection on one side with my bilateral mastectomy. Now I notice my armpit and the flap under my upper arm (you know that wobble area all women hate) are painful all the time. They aren't swollen but just constantly feeling like their chaffed or sunburned like. Could this be early lymphedema signs?   What is quick home remedy for relief if so?

    Any advice would be appreciated. 

    Best, Kat 

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  • Binney4
    Binney4 Member Posts: 8,609
    edited April 2011

    Hi, Kat,

    How rotten that you have to worry about this!Tongue out I'm so sorry.

    Couple of thoughts. First, yeah, it could be an early sign of lymphedema, in which case you'd want to get a referral from any doctor on your team to a well-trained lymphedema therapist for evaluation and some risk-reduction tips. Here's how to find a well-qualified one near you:
    http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm

    Another possibility is Axillary Web Syndrome, or cording. A good lymphedema therapist would be able to treat that as well.
    http://www.stepup-speakout.org/Cording_and_Axillary_Web_Syndrome.htm

    Check in with one of your doctors on this, and do let us know how you're doing.

    Gentle hugs,
    Binney

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  • ---
    --- Member Posts: 197
    edited April 2013

    -

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  • cothi76
    cothi76 Member Posts: 45
    edited April 2011

    Katarina- I had 6 nodes removed and I got the same feeling. I asked a friend that had 13 nodes removed and she said it doesnt go away. But she said if you run your hand lightly over it, it would help. It does help for a minute. I also got like a sticking feeling. The hospital I'm at actually has a lymphedema class twice a month. Think this is something I will be joining soon.

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