INSOMNIACS place to talk in the wee hours

Wren44

Welcome back Blueberry! I'm happy that you're feeling better and can post.

Nettie1964

Thanks Chevy, you let me know when it's time to worry and I'll try to leave it all up to you!!  LOL  I did have a friend tell me it was time for me to go out and loosen up!!  Never was much of a loose kind of girl, unlike you pole dancers and 900 number gals!  LOL   But I'm trying to learn how to enjoy every minute!!

camillegal

Blueberry welcome back and come a lot--we'll keep u'r spirits up if u need that or u keep ours up.

GG I like that "stupid tomatoes" hahaha It's a lot of work.

OK the jig is up yes I do have the 900 number and u can make money with that, cuz they don't see u just hear a whiskey like voice then entices one to enjoy themselves alone. Good job I tell you. Chevy just wants a part of this, but she has to do it on her own, silly broken hip person.

tangandchris

Hi Blueberry!

I wish I knew how to can stuff, sounds like alot of work though.

Went to ID today, she says something is definately going on. She saw the pink/red area and said it also feels warmer than the rest of my skin. They drew blood work to check CBC and some other things that I'm not sure how to spell. I'm going to start Clindamyacin for now. She suspects it is not psedomonas again, but not sure. She just said this since I had been on IV antibiotics for a total of 6 weeks for it. Doc also said that my left side is going to be more susceptible to infection.

I'll know more tomorrow. I'm glad she confirmed what I thought was going on, although I don't like that I'm STILL dealing with this.

 

Holeinone

Hello to all, 

So much to say & I will forget 1/2 of it....just like Cami...

Smaarty, Kohls is a 2 hour drive, so I do not get there very often, but I do enjoy going in there. They would carry pants in talls. Which I needed for work. Shopping after weight loss is fun !

Tangadang, hope you check in today...we are concerned for you...

PhylissinHouston, so glad you like the RO....Good luck with the radiation....

Blueberry, WELCOME BACK ! Nice to have A/C over...I thought it was legal torture...

Nettie, I hear progress in your tone. Believe me, I am a worrier. Also do the if I worry about this non-stop, then I will be prepared when it happens. I had a cat scan right after my lumpie, because of the nodes. I just don't trust them. The cancer would have to be a certain size. So, I am over wanting more scans. I am moving forward, doing my best to eat healthy & enjoy life. 

Ok, DH is improving. Home health has been here 3 x & physical therapist 2x. What a nightmare last week was, 7 days in hospital, staph in elbow & knee...

New problem, we got 2 1/2 inches of rain in 24 hours. I live in the high desert. This never happens. Our basement flooded. We have had a few small floods, this was a river. DD was sleeping down there, her one night a week home.( for work ) Got a restoration guy here quick. Of course never dealing with this before, Insurance never covers outside water coming in to your home. You would need a special flood policy from the government. I think that is the way it works. Why they couldn't tell me that on the first phone call. I had 4 insurance calls, talking about furniture, water in the walls before those idiots said that nothing would be covered..I was stinkin pissed....Now we have 10 huge fans & a dehumidifier in the basement, the fans are $200 a day ( total ), not sure about the dehumidifier...

Major equipment failure at the ice business.....arrrgggg....

Sorry to ramble on, life, the good, bad & ugly....

Envera, when is the b-day, lets us know so we can par-tee..

Holeinone

Tang, there you are, glad you got in to the doc. Also, sorry to hear you are back on the antibioctics, but better to find out soon. Sorry your runaway did not work out....rest...which I know you are sick & tired of being sick & tired....

PattyPeppermint

Holeinone. Wow your plate runneth over. So very sorry. Hope things slow down for you soon. So how is dh ?  I imagine mine would be going crazy to have so much going on but yet unable to be up and about. Sounds frustrating for both of you. Come here often and blow off some of that frustration or just  get encouraged by others.  

Hi all.  

Anonymous

I'm in!  I met yesterday with Dr Strom, my RO, regarding the clinical trial. I'm in!  He said I'm a great candidate for it.  I have only one spot of metastasis AND (here's the good part) NO CTCs.  CTCs are Circulating Tumor Cells. 

This is such great news that I almost cried right there. I'm putting NO CTCs as my wallpaper on my tablet when I'm having chemo. 

The test for CTCs is not one that I've had before and I had never heard of it.  I'm glad someone, somewhere invented it.

Dr Strom confirmed that this is a curtive trial, not palliative.  I'm really hopeful about this trial. 

My first round of chemo (carboplatin/gemzar) starts tomorrow.  I'll  get 3 to 4 months of that and they will do new scans to be sure the tumor is shrinking.  Then they will assess whether to do rads and chemo simultaneously.

It's finally good to be the science project!

P

dutchiris

Welcome Blueberry!

Woohoo phylliwithnoCTCs!  I'm doing a happy dance for you.  Good thing you can't see me.  My daughter didn't get her dance moves from me.

Netty, I feel ya.  The only thing I was worried about was that I wasn't worried when I went infor the breast lump.  I had several cyst in that area over the years.  I thought it was another one.

Tang, glad you saw the doctor and they are taking care of you.

Hole, Insurance not covering flood damage sucks (sorry but it does).

Cammi, you go girl!  $3.99/min?  You don't have to be all limber and flexible like Chevyand much less risk of break a hip.

Spookiesmom

Phyllo!!!! What great news!!!!! I am so happy for you!!!!!

Smaarty

yeah phyliiedoinghappydance!  Sounds like positive outcome. This doesn't sound like a blind study/trail. You know you get the drug? 

Booooo, hIO, sorry for the flooding and crappy insurance people.  Take it one day at a time and don't forget to breathe.

Tang, hope this treatment does the treat for you.

I have made jelly and jams years ago. My DS had a nectarine and plum trees in the back. When we'd get done caning we go jump in the pool. You couldn't pay me to do it now!

Welcome blueberry.

susan3

phillisocoolforyouyeah !!!!!!!!!!  Go get them bad guys . Good luck...hugs and prayers your way

On the " worry" note...I don't worry about cancer, seriously I don't. The times I worry is when I screw up. If " something " is not in my wheelhouse of control, I don't worry. We are all wired differently, no rhyme nor reason why, it just is that way. My husband is going to kill me if he here's me say..it's all good...one more time...lol.  But I am happy that I feel that to,the depths of my soul.

Ok, done with being serious ......I want to see the movie, a hundred yards from here...might go tomorrow.

Tang...I hope they finally get the infection gone for good..such a pain for you to go through  for so long

Smaarty, hope you had fun shopping

Hello to everyone else.  Hope you all have some fun plans for the weekend

2nd...hope you are getting rest .  Hugs and prayers your way..

camillegal

Phylogettinbetter I'm so happy u have been excepted into this. Sounds perfect for u--It'll be good all the way around.

Hole I can't believe all this chit then u get flooded and not ins. for it. WTF Literally when it rains it pours. I'm sorry.

Tang good the Dr. is in control now.

Dutch I like to see u posting again really.

 

Smaarty

Susan, got 3 tops, no pants or bra. Turns out I was looking for the wrong brand. Going to try at a different store tomorrow and were going to see 100 foot journey.

Had a question about hair. If I want to go gray/silver, can the reddish brown be stripped out and my natural color be matched. How much hair would have to grow out so someone could tell what color it is? It's all gray in the front around my face but the back still has a lot of salt and pepper. Been thinking of stop coloring my hair but want to keep the length.

Spookiesmom

I used to "frost" my hair to blend it in. A good colorist should be able to help, won't be cheap!

camillegal

My DD has foiled my hair which was a good way to see just wht was growing out--I don't do anything anymore cuz my hair is more salt and pepper then when originally grew out, I was all white and I didn't like that, a lot is still white but enough is dark brown to make it look like that what I wanted and Im lucky the white is a bright white not yellow or dull. So for now I'm leaving it alone. And my grandson loves to bush my hair and I tease him that my hair is newer than his, he thinks its so soft.

I had a goofy day today, its not that I don't want to share it's just so jumbled it's stupid but anyway I felt sad for a while. Thank  God that feeling doesn't stay with me long, I don't like sad so it leaves me alone pretty much--but my day just was all out of whack and I again thought it was Friday. My DD and her DH have to go to WI for the weekend. One my my SILs very good friend father died and he wants to go--so Joey and iI will go to my other DD's from Sat. nite to Sunday morning and the neighbor will take care of our dog--the cats fine alone for one night. Well that's my weekend coming up. She's having a party anyway so all kinds of people will be there, most od them are goofy as hell. So I ignore them but polite always. If it wasn't for Joey, I wouldn't go at all--he love to go. Oh well.

Anonymous

before I get caught up, want to share with my Sister Owlettes who have gone thru or are going thru chemo

http://local21news.com/news/features/around-the-we...

Anonymous

I'm seeing owls everywhere

tangandchris

2nd-thanks for the video...very touching. Loosing my hair was very hard for me. Lately though I see it more and more as a badge of honor. I leave the house w/o a hat all the time now. Of course some of it could be that I'm just too damn hot to care anymore too

PattyPeppermint

Cami - that joeys sounds so sweet. My youngest ds lives to comb my hair also. And braid it and clips , hairspray. The whole works. I love it. What a sweet time for us.  I know any day now he'll be too mature for all that so I am soaking it up like a sponge.  I think you told me ehere you live in IL before but I can't remember. Are you close to Susan?  I was born and raised close to Champaign-Urbana IL.  Just thinking wherever you are they sure like to party ALOT.  My life is way more boring than that. So love to read what everyone is up to . It encourages me that maybe just maybe I can have a life outside these 4 walls again now that the pain has finally been almost nonexistent. 

Tang - you go girl. Its way to hot for a hat. 

Good morning insomnia people.  Anyone up ? 

PattyPeppermint

welcome blueberry 

Blondie. - hope you are either sleeping peaceful tonight or out dancing in chairs.  Hoping breathing is better and no pain. 

Susan  love your "it's all good " attitude. 

sas-schatzi

Blueberry-- welcome, Stick around. May seem daunting at first to keep everyone straight, but it will be easier as time passes

Maddy what a great video. What great friends Gerdi has. I have this pic with DH when both of us were bald. Mixed feelings about it. I didn't mind being bald. It was just hair.

Patty, Life without pain is very different. There was a post either here or on W &F's, that said after the pain of all the cancer stuff, previous debilitating migraine pain was now more of an irritation. I'm taking quite a bit of license in paraphrasing the post b/c I can't quite remember it exactly. Pain is so friggen controlling. I' m with you. I thought post polio pain was trouble until I met the pain induced by Aromatase Inhibitors. Now back to the pre- AI level pain. It's a different world   If the Prius induced hip pain would settle down life would be sweet. But it will in time.   How's the Nausea?

camillegal

Good Morning---

Patty I think the same about my GS, he's 10 already and I think any day now I'll just be a hi-bye type of situation and it breaks my heart cuz he and I have so many long wonderful talks about everything. Oh well

Susan lives about 40 minutes from me and I know cuz when we went to my cousin house my cousin lived a little further than the sign I saw for Lake Zurich and I was in the car and I said OMG Susan live here and my sister say whos Susan?  Hahaha  she cant get over all my names I bring up. But she still works full time with Stage IV so she's like my hero and is to tired to go on a computer at home cuz she's on one all day. And yes I love Susans attitude and she would be fun to go to for a hair redo.

Patty everyone goes thru so much and yet so differently, I think everyone who comes here is so brve and then u notice a little funny comes out and courage galore (well, not me) I just don't think about it, thats called ignorance--I started here when I was done with surgeries and chemo, so I think it's good to be here during so u know ur not this crazy person thinking WTF is going on.

sas-schatzi

I said I drilled the Endocrinologist hard the other day. He is Chinese, very mild mannered. Pressed him hard, very hard. We now have a different plan. After the encounter my mind was pressing me LOL. It was harder on me then I was on him. But came to a moment of insight that was very cool. The question that kept pressing me was why were the docs so adamant that because the lab values of TSH, FreeT4, and T3 were in the ranges they wanted them to be, and yet I felt like shit with head to toe signs and symptoms of hypothyroidism. The labs say I shouldn't be.  Two words popped in my thinking. Resistant and thyroid> the Oh Chit moment>>>Thyroid resistance. 

Never saw any reference to thyroid resistance, but theoretically it seemed possible. Circulating hormones can only work if they get into the  the target. The cells are the target. The cell wall is the barrier. It's been accepted for about 20 years that Insulin resistance is one  cause of  type 2 diabetes. Insulin resistance occurs at the cell wall. So, why couldn't the cell wall be resistant to thyroid hormone.

Put the search terms in google. Voila! There is research on it. It is not mainstream yet. So, not mainstream that when I asked the ENT doc about it the next day, he knew nothing about it. He's no slouch. We've joked for years since he came to town about how many patients he had. Now 31,000 patients of record. In the area of the thyroid, he basically does the surgery and the passes patients off to the Endocrin docs for drug management. But it was very telling that he hadn't heard of thyroid resistance. He's had to meet all the existing knowledge requirements for board certification in ENT. The thyroid is part of that certification testing.

Only in the beginning phase of learning, but have learned 1. Thyroid resistance at the cell wall level exists 2. The T4 drugs used to manage low thyroid are involved-synthoid, levoxyl,  levothyroxine. 3. T4 in the conversion to T3 produces two chemicals, not just one. 4. Both of those chemicals bind to the cell wall receptor. 5 One is good the other bad. 6. The bad one prevents the good one from working. 7. There is a blood test to measure the bad one----have never heard of the test. 7. There is a formula to measure the ratio between the two 8.Use of the T3 drug cytomel bypasses the problem of the bad chemical produced in the conversion of T4 to T3. 9. mainstream medicine isn't paying attention to the bad chemical RT3.

What has been known for decades is that many people do not respond to T4 drugs. That using T3-cytomel either alone or in combination with T4 drugs, has a positive affect on resolving symptoms. The driving force behind this has been patients saying they felt unwell and that their s/s's weren't resolved.

Why bother you with all this my dear Owlies. Thyroid problems are common. 

Blessings hope you see this

Paws in the reading there was a description of interaction/ effect/affect of iron and thyroid hormone. It would be a study unto itself. I'll keep an eye out for info.as I learn. The minimum that I picked up, was that having your thyroid tested would be a good thing. TSH, T3, FreeT4 and RT3. The RT3 ...your doc will likely look at you like you have two heads and say it doesn't exist. Will let you know as I learn, where it can be done.----------------Found stuff:)

Nettie--------Found stuff on hashimoto's------I've studied the mainstream stuff when I was dx'd earlier this year, this is non mainstream stuff.

LOVE the internet, you plug in search terms and maybe a little comes up. Then a re-look in a couple of days and oodles of stuff APPEARS. This is a link to a web site that is called "Stop The Thyroid Maddness" There is a book available with all the stuff I mentioned above.

http://www.stopthethyroidmadness.com/things-we-hav...

Chevyboy

OKAY! All you gals talking about going back to
silver/gray, or whatever....

You could always go try on wigs of that "color" and see if
that's REALLY what you want to do...

OR you could just wait for all the color to grow out, and
then cut it short!

Now me on the other hand have no thoughts of ever doing
that..... at least not yet. I just like the body that the coloring gives my
hair... I just color the same color I have always had, and no-one even
notices....

Except one time I tried something special, and in the Sun,
my hair radiated PURPLE of all the damn things! And it was brought up to me by
one of my co-workers! I just said, "Yes I know.... I just thought it was
"different!" Well it WAS, but I THOUGHT it would only have a hint of red....
or auburn! Oh HELL no....! As purple as a ..... okay, what's purple? It was
THAT purple! As purple as a Mardis-Gras mask! With feathers!

Yes Welcome Blueberry! I know I probably "met" you, but
I'm trying to remember! Tell me something that we should know about you....
Ha!

Cammiwhatisthiswiththeblues! Listen here little
Sister.... You KNOW this will never happen with Joey! You and him have a
bond... a bond that will never be broken. You KNOW how much I care about my
Grandsons! And now they are young men... 25 & almost 28. I was with them
almost every day when they were little... From the day they were
born!

I took them EVERYwhere with me on my days off. And we
just grew-up together! "MY BOYS!" When the oldest was 11, my DD sent him to SF
to be with me, while I was visiting my Dad... That trip was the BEST! I got to
show him things that meant so much to me... And he loved my
Dad!

We went on a tour of Alcatraz... ate in a fancy
restaurant on Pier 39, and I told him to order anything he wanted! He saved a
spoon.....from that dinner!

He still has a little rock from the "wardens house" from
Alcatraz! He remembers everything.... Same with my second Grand-son! He made a
memory note-book of his trip when we went there together... He still has it.
And I talk to them about every couple weeks.

Your Joey is with you forever! He might move, or get
married, ...... and no, you can't move in with him.... but he will live in your
heart, the same as you will always be there with him.

You will only be a phone call away.... you
know that little grasshopper.

Chevyboy

Oh Hey Sassy!  WTH you doing up?  You are NEVER up this early?  I have to go watch the Sun rise.... get back to you later!

You are talking all medical stuff....  of which I TRY to understand, but my little brain is not awake yet...

camillegal

Sas what can I say except good thing the Drs. understand u, I try but it beyond my scope of life and words. LOL

susan3

didn't read everything yet, gotta get ready for work. My cushion buzzed my hair off..lost so much I started looking like my aunt, you'd be laughing if you knew what her hair looked like. Time to pull,out the big earrings again. I feel if you don't like it....decorate it !!!!!!!

Smaarty, good luck shopping again....that's the movie I am seeing today too !!!!!  About hair. Couple ways to do it. It will take a few years or more since your hair is long. I would not strip it cause it's to long and the bottom part of your hair will prob end up trashed. So you can highlight it for now. When you get enough outgrowth you can start highlighting and low lighting . You would lowlight with the color you have on your hair now.         My hubby's cousin wanted to go grey..and I tried a different approach and it worked. We used a semi permanent color that matched what she had and ONlY did the outgrowth at the scalp. We even added some thick conditioner to the formula to weaken it more. These types of colors wash out...so we got a blend every time we did it. She wasn't completely grey, so when her natural outgrowth got about 6 inches, we stopped the semi color and just let it go. If you have a lot of grey, when you get to that 5 or 6 inch point, you can put a few lowlights in of you colored hair color, and then you are done. It will continuing growing perfectly.   Pm me if you don't understand

Cami....I even could come out by you and do your hair

Ok..I am going to catch up now

sas-schatzi

Cami and Chevy, LOL Lovey's. I'm up b/c I was done sleeping LOL.  Already boiled potatoes for salad. Did some researching--yup for two hours already. I'll straighten my docs out. Gwad, i've found out I've been misdiagnosed and managed for YEARS. But now on a mission.

sas-schatzi

Susan Morning what's the best product to make the hair shine?