INSOMNIACS place to talk in the wee hours

Blessings2011

Nettie – I had the worst joint and muscle pain on Arimidex.
It started at about the six month mark, and by one year, sometimes I could barely walk. That, coupled with a long
list of other serious side effects, caused my MO to take me off it completely
for two months. By the six-week mark, I started to feel better, but it took the
entire two months for the SEs to completely go away. Then she put me on Femara,
and (knock-on-wood) my SEs have been very, very mild. Has your MO said that you
might be able to stand a different drug? Arimidex and Femara work differently
than Aromasin.

Tang – there was a point where I took a three month break
from the boards. For many reasons, I just needed to be away. Do what you need
to do to take care of yourself. Like Holeinone said, we’ll still be here!

Linda – beautifully and profoundly well-said!

Bluebird – keeping you in my prayers for a decision that
will bring you peace in your heart. 

Blessings2011

O.K. I decided that maybe my posts were too long to read! So
now it looks like I just sit here and make posts to this thread and answer them
all by myself… 

Well – I took Melatonin last night for the first time. Not
sure what I expected, but staying awake all night sure wasn’t it!!! Will try it
again tonight… I got the 3 mg tablet and cut it in half for the first time.
Maybe I’ll – GASP! – take the whole tablet tonight. Any suggestions?

We got a nice soaking rain last night, and a huge cold front
came in, dropping our snow levels to about 3,000 feet in the foothills. For
those of you living in the frozen tundra, this ain’t news… but here in the
drought capital of the world, we are happy for any spritzing we get!

Haven’t had an acupuncture treatment for three weeks now,
and I’m feeling it. Time to make an appointment to get stuck. I feel like an
old car needing a complete tune-up… I need a colonoscopy, an eye exam, an appointment
at the Vein Clinic for my varicose and spider veins, an appointment with the PS
to cop a feel of Righty’s port that is just beneath the skin and may prevent 3D
tatts (waaa), and… I forget what else. Oh yeah, a ton of labwork for my MO
and my PCP.

Hope all my Sistah Owlettes are having a great day….

xoxo

Spookiesmom

Netti, are you on cholesterol meds? Sometimes they can cause muscle aches, be best to check in with your PCP anyway. 

ziggypop

Hey you fierce bluebird, I was NOT pole dancing, I was just there spotting the ladies because Cami always tries to do this thing where she's practically hanging upside down, and for GOD'S SAKE I didn't want her to go flying off the back of the truck. And Chevy?!! I can't even go there, first, she insists on 9 inch stilettos even though she wobbles all over the place, and it just gets worse from there. Somebody's got to look out for the old crazy ladies or they'll hurt themselves.

Bluebird, my heart is hurting for you. I read your post and didn't know what to say because there isn't really a way to say the thing that is right, and I don't have any advice, other than mentioning that I remember reading about someone here on these boards who was told WBRT by one doc, but had another say that gamma knife was still an option. So I'll tell you about my day, because I thought a lot about you.

It has been a nasty winter here in Ohio (in case anyone had not heard). Even just this last week, snow & then melt and snow and melt. Everything's been grey and brown except for a few little shoots coming up. But yesterday was glorious - sunny and that perfect temperature when the the sun feels warm and the shade is not too cool. So I went out to examine the gardens - which I do every day. And look!                   

and more! 

  They are everywhere, purple and yellow and white. And I thought about you, blue. I love crocuses, they're one of my favorite, because they pop up just at that time when it seems like winter will never end. And they are like you, delicate and unassuming but so pretty and so resilient. These little beauties just went through a hell of a winter & here they are. And then I thought about Sassy, she's not a crocus - she's a bright tropical flower that just blooms and blooms and blooms no matter how many hurricanes hit. And chevy and cami - those old fashioned wild blousy roses - pretty, not like florist roses at all, careening and flopping over fences, completely unstoppable and with disregard for anybodies ideas of boundaries because they have lived too long to care about that chit. Hole is a more stately flower - but not stuffy at all. Maybe a lily or a delphinium. And 444 - tickseed, so cheery & goes everywhere and anywhere. And blessings, she's a flower that fills out the garden - teka too. Never too showy, those two, but so necessary and with a beauty that you see when you look closely. Linda, she is perhaps a lovely dark Iris. 

So, blue, that's what I was thinking as I raked and dug and planted, which is what I love to do when I'm not riding my Harley or making fun of Chevy. 

Blessings2011

Aw, Ziggy... you da best....  

Thanks for the beauty, and the HOPE!!!

Linda-n3

Ziggy, love the flowers!! What a wonderful surprise for you today! And your analysis and assignment of each of us to a flower is interesting ...

tangandchris

Ziggy....you are such a beatiful writer! ((hugs))

camillegal

Ziggy how beautiful that post was and those flowers are perfect and they are real NOW I'm surprised really.

Blessings I love u'r posts, I might not always answer all he posts but I read them all and everyone does have something special to say and bring vibes to all of us.I am on a few other ones too, but a couple I can spill my guts in and I do here--and I've only pick threads that people are really nice and I'm comfortable with==there are so many I'm sure there are many many nice ones but I stick around here.And for Jiminy Cricket sakes take the whole pill. U know I read where they have Melatonin cream to put on pulse points, ??? I have no idea if it works or not.

My job has been keeping me busy . So that's OK for the most part Oh today I did answer the phone upside down, I thought I graduated from that one, but I guess not. Oh and some customers are starting to ask my opinion about their electrical problems--are they crazy? I told them I could help them with the color to paint a wall but not anything else. Jeez

OK I'll check in later--Hello to everyone and if someone is new and I missed them I'm sorry but Welcome and join us. In this area we reserved for insanity.

ziggypop

Aww, tangy, I forgot about you, you orange poppy. The chemo will  end sweetie. It will. 

Chevyboy

Geez LilShitZiggy!  That is beautiful!  She said me and Cammi are "flopping"..... "over fences"....! Now THAT is a picture!  Ha, ha!  Ziggy, you should have been a writer.... a little creative writer.... That's what one of my English Teachers said I was..... once.....   and YOU are a Blue Orchid!  Wild, and completely in it's own world!   Afraid of no-one.... and standng above the rest!   

So DH has gout today!  And HE is limping..... but that's all the news I have.... Made an appointment for him in the morning.... The Aleve didn't help much.... 

Blessings!  That cane is cool!  Ha!  I tried to make him use my Grandma's cane, but it hurts on the back of his heel, so he says the cane doesn't help....??   But I'll take that cute little injured boy in the morning....  GEEZ, I hate to see him hurting!   He finished sawing down our back Aspen tree yesterday....  He climbed a ladder, and threw a rope around the last loooooooong branch, and I pulled the rope while he sawed....  It worked!  He had been working at it for a month!  Taking down smaller branches.  Then he got out his trusty little electric saw, and cut the trunk off...  And now I have a little stand, for the piece of flagstone on top, making it into a Table!   I'll take a picture when I have that little back garden finished.   

Nettie, I agree with the other gals.... especially Cammi!  I mean it's like everything we take, or they do, or give us, usually causes some OTHER side effects!  Some gals have them worse, some not so bad, and SOMEtimes they kind of get better..... But yes, ask your Oncologist....  See if they know more than we do.....  It's questionable, because WE know a lot, but it's worth a try....   Sorry for all the aches and pains.... And for all you gals going through the chemo....  Oh man.... I just wish you ALL felt better....!

Chevyboy

Our two "little" girls... 

Chevyboy

And us two.... about 57 years ago!

JWoo

<3<3 the photo! is that really you? fabulous!

Nettie1964

OH well, nevermind!  Just wrote a long post, replying and commenting on the above post and it just disappeared!!  

So, I'll just let it go!  Not enough energy to type it out again!!

Enjoyed the post and thanks to those who replied to mine!!

dutchiris

Awww, look at you Chevy.  And your girls, they're beautiful.  

Bluebird...I don't have any advice but I'm thinking about you.  I know you'll figure things out and find what's best for you.

Nettie ....I'm sorry your hurting.  I hurt on and off, here and there.  I don't know what to think of it either.  Isn't it frustrating when posts disappear?  I really want hear what you had to say.

sas-schatzi

Chevy---such a beautiful couple and trendy for the time.-oH

http://www.youtube.com/watch?v=h9ZGKALMMuc

http://www.youtube.com/watch?v=W23P1i-_XUA

HE HAS THE LOOK CREATED BY THE GUY THAT James___________. PLAYED IN GIANT. 

I'm smhossed on wine after being pissed.......tried to do right like Servantes. totally f**cked up It just went a hundred degre opposite----------f*****************g

dutchiris

Wow Ziggy!  How can you write like that.  So beautiful!

Aly..I hope you got some rest.

Blessing....ya...I don't think I'll be reaching social security age.  Don't get me wrong, I'm glad you have that available to you.  Enjoy it

dutchiris

Tang....I didn't have problem with nausea during chemo and had the same chemo drugs. I had dose dense (every two weeks).  I had premeds.  I also had steroids and compazine for the days after chemo.  It was suggested that I take the compazine on a schedule for the 3 days following chemo (10mg every 4-6 hours).  Has anyone at your center suggested this?

Spookiesmom

Chevy nice hat! DH looks like James Dean!

Blueberry4

Hi all, I've been following your thread for a few days now. You all seem so fun and awesome.  Can I join and be awesome too?

Spookiesmom

Sure you can! Chevy will think up a name for you. I have chemo brain right now. Welcome to our fun farm!

dutchiris

Welcome Blueberry!

4sewwhat

Oh my gosh, I don't stand a chance of staying caught up with the kids home on Spring Break.  I am back on page 374 so just gonna jump right in!

Hope the good news streak is keeping up for everyone!  I got my drain pulled today and the PS committed to scheduling and starting my recon over as soon as he gets back from Africa.  He is going to work in a clinic on burn victims.  He showed me some pics and he has his work cut out for him!

Have a good night ladies!  I will try to do better keeping up!

Spookiesmom

Phyloinhuston Where are youuuuuuu?

4sewwhat

Zigster, just saw the gardening post!  I agree you are very inspirational.  Love it.  Thank you!

Anonymous

Sassy, like the new avatar, it says a lot. Sorry today didn't go as planned.

Welcome Blue or BB4, or whatever name Chevy bestows upon you. Come and play with us, when you can.

for the record, didn't make it to the job fair - glad I didn't, I would have arrived as a drowned rat! Was close to Mom and Dad so I paid them a visit. Craziness, but it allowed Dad to get a little nap while Mom was being goofy. Details later, have a 40 mile ride home, hoping it doesn't rain again (major freeway construction as it is)

For the east coasters, wishing you a good night sleep

4sewwhat

Drive Safe 2TA!!

Wren44

Nettie, In addition to Aromasin, arthritis does that come and go stuff. I have it in my wrists and it can hurt a lot, then nothing for days, then back to hurting.

FierceBluebird

Ziggy, your post almost made me cry. You really are a wonderful writer and helped lift my spirits. Thank you.

Chevy, what a cute couple and beautiful girls you have.

I'll try to write more tomorrow. So tired. Thank you to everyone sending positive thoughts.

Welcome BB4!

Teka

*Owlettes*

This is a photo of red-winged blackbirds taken from on-line.

They've returned to the North Country!

COME ON------