INSOMNIACS place to talk in the wee hours
Comments
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Give 'em Hell, Vinnie!!!
Remember, you're speaking for all of us!!!
What you say is very true. But sadly, there is a huge difference between science and art. Most docs feel if they get the science right, their job is done.
The first time I went back to my PS after Exchange to discuss some distressing issues with one of my implants, his answer was "I think they look really good. What is it that you want?"
WTF?????? ( Excuse my French...)
He really is a good doc, but that innate sensitivity, that intuitive understanding that what HE thinks is good may have no correlation with what MY expectations were was missing. And that made me sad. The good news is that thanks to an awesome Myofascial Release Massage Therapist, the ornery implant began to behave in only two visits.
BTW, I called Richie the other day and got on your Cali list. WOOT!
We will all be there with you at Georgetown on Thursday.... we are your TATA cheerleaders!!!!!
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Dutch, Blessings and 4So, thanks for the good words, they musta helped!
So, good report! Little blips (polyps) but no problems, am on the 5-year plan now! Yay! Feels like I get to close the chapter on my fear of cancer. Huge weight lifted off my shoulders.
FierceBB, love the story!
Blessings, I'm envious that you get to see Vinnie and his magic hands, er, I mean artwork
Linda, good to see you here.
sassy, hope the bathroom is coming along.
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Vinnie-Your last post made me sad and empathetic (shut up Chevy-it happens) with the women who go through that process with no direction except what the PS tells them. Thank you for being such an advocate. Good luck with your talk. I'm looking forward to your report on the shit storm.
Also, I did look at your nips and fish online. Well, maybe not your very own nips, but your work. Very nice! I'm not in the market for a nip (although I could use some pretty big tucks) or a fish tattoo, so I'll will just admire your art. And your heart! Ha I'm poet!
p.s. sorry about your lack of head hair. Most of us can sympathize! I won't judge the rest until I see it.
Cammi-you have a good personality? You have the BEST personality....even though we aren't sure what that is exactly....due to your pathetic spelling and grammar skills. The BEST! I don't care if you don't have boobs either.
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Second! That is awesome news!! So happy for you!
Vinnie, I agree. Give them hell! Smart going after the ones that are not set in their ways yet! I got lucky, my guy is very humble, especially for a PS. He told me after exchange that once they settled if there was anything I didn't like we could fix that. Unfortunately, I'm down to one and starting over again with the other one.
You are not alone on the hair thing! DH begs the thinning hair to stay on his head and tries to curse it from growing everywhere else!
Calling it a night ladies! Hope everyone is tucked in and comfy for the night!
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Holy Canolli! I am gone a week and have 500 pages to read!
Since I have tamoxifenbrain, everything gets a little jumbled, so sorry if I miss anything.
FBB, so glad that you are feeling better, and I hope you gave that rude doc the what-for! Blessings, I hope you did too! the nerve of some of these people! you have to wonder why they don't think about what it would be like to be in our shoes. Cancer doesn't pass over doctors- chances are they will be a patient one day.
Vinnie- it isn't only the PS, the initial BS needs this info even more as they make the initial cut. I know their main concern is getting the cancer, but they should be thinking of our quality of life after and how the best recon can happen. Thanks for taking up the cause for us! Also- we all understand what being bald is like
bald is beautiful!
I see there are quite a few here that have been having a rough time lately. I hope things get better soon for you. <<hugs>>
I have been busybusybusy as the yard is a disaster from me not being able to take care of it since last May. The BF is wonderful, but landscaping is not his forte. We are also starting up on the house renovations again. So much to get done! We love working on our house, but cancer sure did throw a big wrench into all our plans. Sometimes it is hard not to be terribly angry about it. I know you all understand what I mean.
In PT with lymphedema in my arm and trunk- on my prophylactic side, of course! But saw my Onc. yesterday and she said I am doing great medically. That made me feel good. I don't have to see her again for another 4 months now, unless something comes up. Hooray!
I am hoping that all of you have the same kind of good news from now on.
xoxo
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PGE 361-
Chevy---now you have me worried. Never say you are worried about an OCD person----only intensifies their OCD--which voice was I using. I have a bunch---the friend, the nurse, the teacher, the goofy, the wine, the"that's a no"--reserved for dogs, and children, and DBF, the serious/concerned etc. Many many more. Very animated. Makes people crazy. But the dogs are happy b/c they now what each sound means.
I honk the car horn for come. If I have to honk several times it means they have done wrong and the run is over. Dini is much more sensitive to this. He's so happy to run free. AND sniff. He still turns his head frequently like he's saying "okay Mom am I doing okay, huh am I". Today he got to far ahead, made him get back in the car-----consider the matter. Let them both out again ----got the behavior I wanted.
BTW Chevy's voice is absolutely laughing all the time. Hard to explain it , but it's up all the time. In the Irish, we would say "lilt".
Chevy honest I'll let you know when I'm not okay, Promise
Yes I have lots to worry about---but this place keeps me sane.
One of the bestest things is you all allow me to get really serious and off into science stuff- and wandering in to the realms of the unknown without restraint or complaint.
We each have our thing-----to be able to express it and be supported--cool
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Must go spend some squishy time with DBF, so, still on page 361. If someone needs help PM. L&H&P's sassy
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Sweet Dreams!!
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Jwoo , I ditto that.....I am out of state, 5 couples golf thing....Miss you all, have not been able to keep up. I have kept up for months, this thread is my salvation of honesty & acceptance.
Hello Newbies....
Fierce bluebird, kicking butt, taking names....you are a rock!
Ziggster, are you are writer? We all were so touched with your sweet, caring words to BBird.
Hello, hugs to all.....BBL....
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Vinnie, do you take photos before and after your artwork? Maybe that ca help the PS you talk to, get the picture, so to speak
Jwoo, Hi1, and Sassy: love the new avatars! Sassy, is that one of yours?
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Gee have missed pages was in basement then had to deal with turning 65 which makes me officially an old owl. and now I get a government pension. First time since retiring I have any of my own money.
So now I can grow old disgracefully.
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Vinnie
Bald is beautiful! Especially totally bald naturally. I do have one problem with bald men that have the narrow fringe around the bottom. My father and my favorite uncle had the fringe. Uncle would sit at the kitchen table with his coffee and a book. I would sneak up behind him and kiss the top of his head. All dad's brothers were bald and all of them had beautiful skulls.
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I've been up all nite with my D so I'm probably going to be sleeping on and off thru out the day but I'll check back later, so I hope I can get some sleep now.
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Cami, I can really empathize regarding the D. I have/had irritable bowel. I would avoid eating out and always had to know where the nearest bathroom was located. The kids kept me leaving home so lots of antiD meds and familiarity with public restrooms. It was also difficult to manage it and my work assignments. Things are better since some of the treatments/meds have constipation listed as SE.
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2ta, great news!
Aly, welcome back from the basement. Congrats on 65 (Happy Birthday) and government pension.
Chevy.... shameless, simply shameless
Hope your feeliing better and got some rest, Myra. We moms dont always have to wear our supermom capes. Make sure you rest and don't overdo. We all know you're a strong woman with a great family.
Sorry if I missed anyone. I must get ready to go to work. My hip is less bothersome these last couple of days but onc want bone scan even if it feels better.
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Okay, okay..... I'll share.... THIS time.... And Vinnie, Phylli googles them ALL.... It's just how she does it!
Myra, hope you are feeling BETTER....! You hear me? xoxo
Lilshit! I CAN tell the difference.... that's why I am.... um....... "talking" to Vinnie~
And yes Sweetheart.... It WAS a lovely night for a swim.... But now that you know I can't SWIM, we won't try THAT again.... okay? BAD boy! I know.... ! That guy WAS a pest, wasn't he?
But other than that "dinner" ..... oh wait!...... Never mind.... The night was beautiful!
We will have to try it again, as soon as I recover from the near DROWNing, and seeing YOU with all that FUR!!!!!!!!!!!!!!!! Good Lord man! I have a jar with soap, a razor strap, and a straight edge razor!
I'll just carry it in my purse......
And I can't say anything more, or they will lock me up...
Smaarty! What's this with you and VINNIE? Sokay though, I said I would share.... And you TOO Camminottooshy!
Wait.... Vinnie.... Just have to say you should be commended for what you are doing, and how you are trying to change "things".... You are just a little piss-ant, and so fun to read! We actually admire your determination, AND dedication! I loved you writing about what you are trying to do.... Yes... let us know what goes on! Never met a guy quite like you! Okay, dinner and........at 8... okay? Thought you would like to have a small token of me to carry with you....
And that's as serious as I'm ever going to get.....
Morning Jwoo, and everyone.... I've just been so tied up with Vinnie, it's hard to think straight....
Sassy.... Don't ever get worried about anything I ever almost say! You KNOW me by now.... I just always worry when you don't post! You have MORE things going on in your little life, and brain than any of us ever THOUGHT of doing! So what is OCD? JUST kidding! I know it is OverlyConscientiousDecisions. So there! About the same thing, right?
Morning littleDutch.... Yes... you nailed it...Ha! Good to see you again!
Okay.... guess I'll go behave now.... It's getting light out, so have to get this day whipped into shape.....
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At MDA waiting to get my port popped (stuck? accessed?) and drinking that delicious contrast! CT scans first. The FUN!
Phyllopian
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Owlettes!
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Phylliopiusminor2...... Thinking of you..... Geez, we should all be there..... with drinks or SOMEthing!
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Oh Phyloallovertheplac--u drive that far just to get u'r body violated. Hell Chevy doesn't even leave her block. She of course likes her violation as she's noted.
Dutch u know how I live, it's actually disgusting, it's going on 7 yrs now and it doesn't stop. (not daily) but whenever--still have it this morning--ha ha I think everyone can tell I'm really getting aggravated I have a scan Friday and it better be gone-
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hiya! I'm here and happy to see that Vinnie stopped by...and Chevy you are just working it! Holy Toledo I'm free Friday after chemo!?
Scan was a snap, just getting some GI side effects throughout the day now...I guess from taxol? I had to leave the car shop cuz I could not wait around to have it fixed. Sad to think that this may be the onset of more side effects for the next 9wks. I'm am getting close to not eating at all cuz the pain:( my expander is now hurting where my rib is cuz it fell. They are going to fix it in a week and half...really hoping that it all goes smoothly.
Thank you for posting, y'all have me laughing! Much love!
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Hugs to all getting scanned, poked, prodded and probed this week!
phgraham, I'll pass you whatever you want to eat if you can just drive me far away from my teenagers! I'll eat caramel creams, you have caramel bugles.
chevy, I am so happy that I finally know I have OCD. I cannot make decisions without examining every angle!
funny drunk girls video
Vinnie, doing my rain dance right now for a powerful shitstorm for you during your lecture. They need to hear it. Anyone can use a scalpel, it takes a true artist to see a vision. I'm convinced half the surgeons in this country go into it for the prestige factor and don't truly have the skill. You can give someone a lump of clay, but only an artist with skill can make it into art. Education, medical degrees, Internships and Fellowships won't do a thing for you other than add letters to your name if you don't have what it takes.
By the way, it's a known fact that testosterone is what makes men lose their hair. Men that have full heads of hair are a little on the light side if you know what I mean. Ask Chevy, she knows every kind of man out there.
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Hello to all you cray cray women and Vinnie. Myra, lots of liquids - you sure have a great attitude. Tangelo, where are you now? Are you doing okay. Hole, I thought you were in jail for a minute there, and while I would expect that of chevy, cami, phillopiantubes and many others, not of you. Vinnie - hope it all goes well today.
Running late, will update later.
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Chevy made me pee my pants.
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Your kitty?
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OK I didn't know if I could copy that--that's my Katie-Kat--she never got her pic on her, Joey took it.
Phylowetpants Chevy also makes me chit my pants--she's multitalented.
OK whatever I say, I say remember I'm pretty much dehydrated---yes I'm drinking like crazy but I can't keep up with the flow--so I'm here but not in all aspects. I'm not thirsty but I know better so I'm drinking like a lunatic---Did I ever tell u how my great grandfather dies? He died in a vat of wine fell in, I think he thought he could drink more that way--but it didn't stop anyone from ever drinking wine.
OK enough history for now Hope u have a great or at least a tolerable day.
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Please, also public post the Katie-Kat photo on *The Hermit Club* thread!
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