INSOMNIACS place to talk in the wee hours

dutchiris

Thanks ladies. I had a massage at 9am.  I'm still at the cancer center.  I've been here since 10 am.  I had to go in to work at 3:30am and never got back to sleep.  I'm exhausted.  Might be online later or maybe tomorrow.

sas-schatzi

Dutchy,please, read the stuff on the 2d6 thread. Allot is gooblygook techninical stuff. But it may give you ammunition to get your doc to get you tested. The AI's were abysmal for me. Pain off the charts. I finally chose QOL over the unrelenting pain.  When you talk with him talk him into the testing of all six. 

The importance of all six will be understandable when you read about all the drug reactions I had, and my DH. Once you are tested, you never need to be retested. Every drug you receive after that you plug into the system and it tells you "what's up".

I do prefer Genelex/YouScript. The ability to get the drug info as it directly relates to YOU is invaluable. Genelex/YS is the ONLY company in the world right now that provide this service. What happens with the other labs is they send the results of the test to the doc.

The doc is then supposed to figure out all the problems. If your doc studied what the system could do for him/her. The system would reduce their workload. Reduce patient problems. EVEN save some of their patients lives b/c it would identify a major problem before it happened. If a doc doesn't want to listen to this what kind of doc are they?

Pharmacies do not use this, they leave it up to the doc.

For me 3 of the six major drug path enzyme players are abnormal. All the AI's go through one of my abnormal paths. My dose should have been reduced. I was overdosed, that's why my s.e.'s were so bad.

The most recent testing that I got the results for in January, confirmed all the problems of the past. AND it identified that I had a major drug interaction between Wellbutrin and Coreg going on right as I received the results. I stayed on Wellbutrin one more week. But it's history now. Here's the link

http://community.breastcancer.org/forum/73/topic/7...

Hope you can talk him into it. Insurances are majorly getting on board b/c it saves them money--------

sas-schatzi

H-1, ZIGGY AND DUTCHY,  JOINING YOU, BUT IT'LL BE WINE.

EVERYONE PLEASE TYPE LARGE, BLUE IS HAVING TROUBLE SEEING. ....WHEN I HAD MINE IT WAS PRETTY LONESOME, NOT BEING ABLE TO READ OTHER FOLKS POSTS WITHOUT THE MAGNIFYING GLASS. IT'S JUST FOR A LITTLE WHILE LONGER:)

WE AREN'T YELLING , WE ARE LOVING

TEKA OMG THAT'S SO TRUE, I FINALLY GOT A LIP WAX AFTER CRANI ------YOU WOULD THINK I WOULD NOTICE OR SOMEONE WOULD TELL ME I HAD THIS 3-4 INCH FACE HAIR THINGY.--------GROSS. NOW FACIAL WAXING AND EYEBROW WAXING AND SHAPING ARE A REGULAR THING.------PLEASE, PUT THAT PIC ON THE WARM AND FUZZY PAGE

MADDY-YAY IT'S OVER........VERSED IS THE BESTEST DRUG IN THE WORLD.........YOU WON'T EVEN REMEMBER WRITING WHAT YOU WROTE. LOL. AND THE ABSOLUTELY DELICIOUS SLEEP -----NOTHING LIKE IT........SLEEP AND THE DEEP MUSCLE RELAXATION  HHMMMM.

sas-schatzi

ZIGGY-------I DO ADMIT THAT I GOT WACKO THE LAST FEW WEEKS---TWO IN PARTICULAR, BUT I WANTED THAT DAMN THYROID OUT IN JULY LAST YEAR-----COULDN'T MAKE IT HAPPEN THEN. BESIDES THE SCANS -----HAVE'EM DO A TSH, T3, FREE T4----THE BIGGY IS THYROGLOBULIN AND AUTONTIBODIES.  FROM HERE ON OUT , IT WAS ASKING FOR THAT TEST THAT CHANGED EVERYONES. ATTITUDE. I HAD A WEIRD SHORTNESS OF BREATH THE LAST TWO WEEKS------DIDN'T TELL THEM----BAD NURSEY...........MAYBE THIS DOESN'T FIT HERE ......BUT BETWEEN THE WINE AND THE CHEEZ-IT'S .........I KNOW YOU WON'T CARE

JUST FOUND SOME CHEEZ-IT'S -------DIG IN

WREN, OH YES THE PREP IS THE WORST-------------LOVE THE VERSED>>>.WITH THE POST POLIO/FIBRO PAIN , THERE IS nothing LIKE VERSED.

MYRA THANKS

sas-schatzi

DUTCHY, OKAY --BITCH HAS PUT FEAR INTO YOU BY IMPLYING IT MIGHT BE BONE METS. WHEN THE TEST COMES BACK NEGATIVE FOR METS. USE THESE WORDS "IF YOU HAD DONE THE PROPER TESTING FOR MY ENZYME PATHWAYS, YOU WOULD HAVE KNOWN MY STATUS BEFORE I EVER STARTED THE FRIGGEN DRUG. BUT SINCE YOU PREFER PAINTBALL THERAPY AND SURMISING CLINICAL DIAGNOSES, DO YOU THINK YOU CAN NOW ORDER THE PROPER TEST TO SEE HOW MY BODY IS HANDLING THESE DRUGS"

DUTCHY ONE OF THE HATEFUL THINGS ABOUT BC IS METS. BUT SINCE ALL THE DRUGS CAUSE SOOOOO MUCH PAIN. WTF. HOW CAN WE TELL. .......SO WE GET SUBJECTED TO SO MANY MORE TESTS. JUST WHEN YOU THINK "I'M NOT GOING TO REPORT THAT", IT COULD BE THE THING THAT BRINGS YOU DOWN.        HUGS SASSY

sas-schatzi

ADJ-----ANITA........ WELCOME---I'LL BE SENDING YOU A NEWBIE LIST. IT'S A BUNCH OF THREADS , PUT THEM IN YOUR FAVORITES. THEN READ'EM WHEN YOU NEED THEM.  BUT YOU'VE BEEN THROUGH THE WRINGER FOR AWHILE. IN YOU'RE POCKET FOR SCANS TOMORROWL&H&P"S  SASSY

camillegal

WELCOME ANITA--U'LL LIKE IT HERE.

DUTCH WHY ARE U STILL THERE? SOMEONE EXPLIN WHY TO ME--WHAT'S GOING ON. SAS DO U KNOW?

OH MERCY ME WHAT A CRAZY DAY, NOW WHO'S GETTING THE SCAN TOMORROW. WELL WHEN WE GO IN POCKETS  I WANT SOME IRISH COFFEE WITH WHIPPED CREAM--JUST SO U KNOW. THAT IS GOING TO BE MY CHOICE OF BEVERAGE IN THE MORNING.

dutchiris

I HOPE YOUR RIGHT SAS.

I'LL BE IN YOUR POCKET TOMORROW WITH SNACKS AND PRAYERS IF YOU HAVE ME ANITA. 

BLUEBIRD...I HOPE EVERY DAY IT'S BETTER THAN THE DAY BEFORE.

camillegal

Dutch  r u home? what took so long.

sas-schatzi

DUTCHY ME TOO, ABOUT IT NOT BEING METS, IN CASE SOMEONE'S LOST ON WHAT WE ARE TALKING ABOUT.

DUTCH.......ALYSON AND I HAVE POST POLIO-----MUSCLE, BONE, AND JOINT PAIN WITH MUSCLE SPASMS AND WEAKNESS THAT CAN BE MADE WORSE BY TOO MUCH ACTIVITY/EXERCISE. ALYSON ALSO HAS RHEUMATOID ARTHRITIS.-----------HOW THE HELL DO YOU KNOW WHEN THERE'S A CHANGE. 

SPOOKIE'S IN THERE WITH FIBRO SO SHE GETS THIS.

I'VE HAD A BRAIN TUMOR-----I HAVE OPTIC MIGRAINES, TINNITUS, HEARING LOSS, VERTIGO, CONTINUING VISION CHANGES, ONE CATARACT, LOSS OF SMELL, HIGH BLOOD PRESSURE(USUALLY VERY WELL CONTROLLED, BUT SOMETIMES GOES KAFLUEY), HEADACHES(NOT BAD BUT MIGRATORY----MOVES AROUND). CHRONIC SINUS. ALLERGIES OUT THE KAZOO. HOW THE HELL AM I SUPPOSED TO TELL IF I HAVE NEW SYMPTOMS.

IT'S GREAT FOR THE DOC TO BE RESPONSIVE, IT'S NOT GREAT TO CAUSE FEAR.

WHEN THEY ORDER TESTS ALWAYS ASK FOR WHATEVER TEST THAT CAN BE DONE THAT DOESN'T EXPOSE YOU TO RADIATION. I.E ULTRASOUND, MRI. 

sas-schatzi

DUTCHY , PLEASE, WRITE DOWN THAT STATEMENT ABOUT PROPER DRUG ENZYME PATHWAY. SO, WHEN SHE SAYS THERE'S NOTHING UNUSUAL, THAT'S THE TIME TO STRIKE AND GET HER TO DO THE PROPER TESTING.

sas-schatzi

OMG BLESSINGS.......... HOW FUNNY........IN CASE YOU MISSED IT..........GUESS WHAT I FOUND OUT WHEN MY THYROID DOSE WAS INCREASED AFTER SURGERY..........OH MY, I REALLY DIDN'T THINK MY POOP DIDN'T STINK.

camillegal

OH TALKING ABOUT POOP ALTHO I AM ITALIAN AS EVERYONE BY NOW KNOWS I REALLY CELEBRATED ST/ PATRICKS FOR WEEKS NO AND CONTINUING WITH MY GREEN POOP. I KNOW IT'S NO BIG DEAL BUT I THOUGHT WOW AM I DEDICATED TO THIS HOLIDAY. 

dutchiris

I'M HOME CAMI.  I GOT HOME ABOUT 4pm. SORRY I WORRIED YOU.  DR WAS RUNNING LATE, HAD TO WAIT FOR A TREATMENT CHAIR, ZOLADEX INJECTION AND ZOMETA INFUSION.  THE FIRST ZOLADEX INJECTION FAILED.  THE IMPLANT WAS PART IN AND PART OUT.  THEY CALLED THE COMPANY AND THE DOCTOR.  DECISION MADE TO PULL IT OUT AMY GET ANOTHER IMPLANT INJECTED.  I WAITED SO LONG FOR EVERYTHING THAT MY EMLA CREAM WASN'T EFFECTIVE ANYMORE SO NEEDED LIDOCAINE FOR THE ZOLADEX INJECTION.  I'LL GET A BONE SCAN NEXT WEEK BECAUSE OF LEFT HIP/SI JOINT PAIN EVEN THOUGH I HAD ONE TWO MONTHS AGO FOR LOW BACK PAIN.  I'M SO TIRED. :P

camillegal

OH DUTCH I'M SORRY U HAD SUCH A BAD DAY---U DO HAVE TO BE EXHAUSTED JUST REST--I HOPE U DON'T HAVE TO WORK OR ANYTHING NOW--U NEED DOWN TIME FOR SURE--THANK U FOR LETTING ME KNOW. I GOT MYSELF UPSET JEEZ I GET MORE UPSET ABOUT U GALS THEN I EVER DO ABOUT MYSELF LOL

dutchiris

GREEN POOP FOR ST PATRICK'S DAY.... YOU CRACK ME UP...DON'T EVER CHANGE

camillegal

DUTCH IT'S TRUE TOO

dutchiris

I HAVE BEEN UP SINCE 3:30 THIS MORNING BECAUSE I GOT CALLED IN TO WORK.  I'D TAKE A NAP BUT I WANT TOO ENJOY A LITTLE OF THE EVENING.  I HAVE TO WORK IN THE MORNING.  I DO NEED TO GO TO BED EARLIER THAN USUAL.

camillegal

Well at least relax for sure--u had a long hard day---and the hard was not a good thing.

dutchiris

IF I PUT MY FEET UP AND/OR GET WARM, IT WILL BE ALL OVER.  I NEED TO NOT FALL ASLEEP IN THIS CHAIR.  THAT WOULD BE BAD.

dutchiris

BTW I WOULDN'T SHOWER WITH ANYONE WHO HAS GREEN POOP LOL.....FORGIVE ME TRYING TO BE FUNNY...I BLAME IT ON FATIGUE

ziggypop

NOW DUTCHIE, YOU REST AND FEEL BETTER. DON'T GIVE CAMI A COMPLEX ABOUT THE COLOR OF HER BM. IF YOU'RE IN THE SHOWER WITH HER, JUST IGNORE IT. 

SASSY, I HOPE YR NOT DRINKING THAT 47K VIRTUAL BOTTLE OF WINE I GOT YOU WITH CHEEZITS. THAT WOULD BE SO DECLASSE. AT LEAST GET YOURSELF SOME VIRTUAL GOUDA. 

Spookiesmom

WhoooooHoooooo

One year ago tomorrow my RO stuck a fork in me and said YOURE DONE!!!! Done with everything, the year from hell. 

It's my cancerversairy and I had a tshirt made. 

 

camillegal

camillegal

So Dutch if my poop wasn't green u might take a shower with me---Holy chit r u tired.

dutchiris

ZZZZZZZZ

camillegal

Hahaha I'm trying to stay awake a little longer to.         Had a long day no nap and I wanted to go to sleep a while ago, but I'm trying to waithaha I did a lot today (for me) anyway

MinusTwo

YOU KNOW, I KEEP THINKING OF GREAT COMMENTS, BUT BY THE TIME I GET TO THE END OF THE POSTS I HAVEN'T READ - MY BRAIN HAS FORGOTTEN.

LOVE THE POO COMMERCIALS.  GREAT LAUGHS FOR THE DAY.  THANKS BLESSINGS & LUV.

tangandchris

GREEN POO?? WE REALLY DO TALK ABOUT IT ALL HERE!!

SO BS SAYS SHE THINKS I HAVE FLUID ON THE LEFT SIDE, BUT STILL ISNT SURE WHY I HAVE THIS RAISED UP HARD AREA ON MY CHEST. SHE IS ORDERING AN ULTRASOUND WITH ASPIRATION IF THEY FIND FLUID. SHE SAYS THAT SHE ISNT TOO CONCERNED ABOUT THE LUMP/MOUND AS IT ISNT ON MY CANCER SIDE, BUT STILL NEEDS TO BE CHECKED OUT. WHATEVER IT IS, THE PAIN AND PRESSURE FEEL LIKE IT IS GETTING WORSE.

DUTCHI-GET SOME SLEEP!

((HUGS))

 

Teka

I am so tired, doing light housework, after damn nasty cold.

Many Owlettes are suffering through the worry & misery of BC.   *Hugs*

Spookiesmom, love the tshirt.

Time for me to roost!