INSOMNIACS place to talk in the wee hours

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited January 2014

    Thanks you guys!  I am soooooo happy!   And yes Cammi..... I PROMISE! 

    2nd....  Oh that's right!  I completely forgot my thoughts, Ha!  Dang!  But I also love their little veggie 1/2 sandwiches...   They were so nice there...!  I think they ordered those candles in by the gross!  Just for me...Loopy

    But it sure made sense what the ENT said....  No-one took the time to explain this to me... And I just thought it was okay!  Just goes to show you what I know...Ha! 

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  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited January 2014

    Phyllis - Shasta Daisies - Is it Spring? Oh please say it is. Please, pretty please.

    I think getting blotto sounds like fun. Can you make mulled wine out of sangria? I have all kinds of whole spices because I was going to make my own chai tea or chai hot chocolate. But alas I have almost eaten the good chocolate I was planning to use. I don't think I can drink anything cold. Brrrr. You're not a lot colder than us. Says North Platte is 37 (just a guess on where you live) and we're 44 and totally socked in with fog/mist.

    Chevy - wow, sounds like your cleanout was successful.

    I want the owl house in my backyard. Send it please. I will pay postage. Nice nook for reading, festicating, blottoing.

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited January 2014

    Thank you again girls!  And Phyllifromthebighouse, I just couldn't HEAR you before...Ha!  Yes!  A chocolate coke!

    Damn, I'm just so glad that is over!   

    And GG!  That was FUNNY!  Yes!  I CAN hear you now!  I am just so thankful that SOMEthing worked!

    Oh wait till Sass hears this....  She might say "I told you so"..... Ha!  But it's okay....  she was right.... 

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  • Teka
    Teka Member Posts: 10,052
    edited January 2014

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited January 2014

    ok, how do you make a chocolate coke?

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    Chevy I'm so glad you're hearing better. A few years ago after struggling for years to hear, my Pastor finally went to get hearing aids. As he & his wife were leaving through their garage that Sunday morning for church, he asked, " Miriam, what in the world is that noise?" She said, " David, that's the birds singing. You just haven't heard them for years."

    Paula

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  • camillegal
    camillegal Member Posts: 16,882
    edited January 2014

    Paula that's so true.

    Great now we can't whisper about Chevy anymore, oh yea she can red tho.

    CHOCOLATE COKE  All we ever did was put chocolate syrup in a glass with ice and pour the coke and stir. It was super popular back in the day. All the soda fountains were busy making those, unless Chevy has a different recipe????


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  • Enerva
    Enerva Member Posts: 3,162
    edited January 2014

    OMG, i always wanted to try the candle thing, now i am glad i never did. lol

    image

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited January 2014

    Cami, remember going to the dime store as a kid, and getting a chocolate or cherry coke for a dime? Now Chevy might be slipping something special into those chocolate cokes, hard to say....she is a resident of the state of Colorado, and there is all sorts of funny business going on there...

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    I had a mastectomy October 2012 followed by Adria/cytoxan and 12 weekly taxol. I finished chemo in May, and rads in August. I've been on arimidex since August.

    I've been noticing a tiny lump just above the mastectomy scar. I still have minor pain post rads that I figure may be where it's still healing inside. I lost all the skin when I had rads. It was actually much harder on me than chemo was.

    Do you think this could be cancer that was missed, or could it be scar tissue?

    I had a clean bone scan last week, and in June I had a ct scan, pet scan, & bone scan. All were fine. I will be seeing my MO on January 27.

    Paula

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  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited January 2014

    My undergraduate degree is in Audiology, so I knew the ear candling was dangerous, but I didn't want to say anything, because after all, I had a stupid octopus on my back that gave me a dozen hickeys, so what do I know? 

    But just think, chevyboy - had you left that wax in, you could have just stuck wicks in your ears and lit them and been a large, talkative, decorated candle. What a birthday surprise THAT would be!!!

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited January 2014

    Paula,   Normal to worry, I think that will be with us forever, but I really believe it is scar tissue. Sounds like your poor skin took a beating with rads, if you lost skin, there has to be lots of scar tissue built up. The 27th will be here soon, hopefully MO will be able to assure you...

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  • Enerva
    Enerva Member Posts: 3,162
    edited January 2014

    Paula, i had rad in june and lots of hard scar internal tissue. Do not stress until you get a test that says something is wrong cuz Rad does lots of damage, I hope it all turns out ok sending hugs your way.

    :) 

    image

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited January 2014

    Blessings, I have not googled your hickey, voodoo hoax yet, but I will....will you consider doing it again?

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited January 2014

    Enerva- I work in healthcare systems and know a lot about medical records. You can request your complete medical record from the HIM dept that will include labs, scans, etc. as well as doctors notes from the surgery. Usually they refer to it as the Release of Information (or ROI) area. As others have mentioned, there will be a fee, and I have done it through doctors offices as well. None of it can be withheld from you, it is a right to have access to your records.

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  • Smaarty
    Smaarty Member Posts: 2,951
    edited January 2014

    Paula-it's easier said than done but try not to worry, your appt is soon. If you can't wait, can you email your doc ask him/her to check the scan before your appt?

    Love all the owl pics, especially the little bitty one. I'll have to try the choc coke soon. 

    Not really likeing the new feel with the TEs but what can I do??  Time will pass and before I know it, it will be February. 

    Glad everybody seems to be doing well. Do you guys stay in your pjs during the day if you don't go out? 

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  • Holeinone
    Holeinone Member Posts: 2,478
    edited January 2014

    No, I cannot sleep with pj bottoms on, too confining. I live in yoga pants, & soft fleece shirts in the daytime, that way if someone pops in I am dressed. Also another sweatshirt or vest, as it is cold....I am always cold....

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  • StaceyLeeH
    StaceyLeeH Member Posts: 124
    edited January 2014

    Sorry takes so long to respond... Between recovery, casing Austin, and now returning to light

    Duty I am crazy...

    Sue thank u for sharing you are right not too bad... I pre-medicated before I went in bc they were doing the fill and removing drains. But OMG that night it hurt like hell!! Today not to bad took Ultram and that was all I needed. It was scary looking at the needle and 60cc syringe... Ugh what a long road....

    Maddy thank u so much for your kind words!! U are my inspiration!!! Austin is so handsome, cute, sweet. Smart, funny..., I don't know how I would ever have gotten through this without him. Him and my wonderful husband and God have gotten me through some very dark moments.

    Jazzygirl thank u for your support this transition period is so weird... May I ask what is routine for you with follow up scans ??? I want to be proactive not obsessive...

    But I don't want to wait till I have this weird symptom then find out the cancer has spread to multiple places....

    Blessings that is too funny... Cupping does leave you with a hickey appearance. I am a cardiac RN and my poor patient get a local

    Skin reaction to the adhesive on the electrodes... One guy told me he went for a massage and the lady wouldn't touch him bc she thought he had ringworm...

    Paula I am hoping just scar tissue but.... After going through all of this have them ultrasound the area and if

    suspicious have them biopsy.... I regret not going in sooner when

    I felt the lump breastfeeding

    Everyone said oh u are lumpy and engorged don't worry.... Three month later after checking it was cancer and it grew into an adjacent lymph node. So I say u have he RIGHT to have anything looked into. I am so proud of u for noticing and being your best advocate!!

    Healing hugs xoxoxo

    Sweet Pea

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  • Alyson
    Alyson Member Posts: 4,308
    edited January 2014

    image

    Evening all pleased to see some owlettes out playing.

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  • chabba
    chabba Member Posts: 5,065
    edited January 2014

    Snowy_owl : Pair of Snowy owls, male and female Stock Photo

    Snowy Owl pair

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    love all the owl pix! So darling!

    Enerva, love the new avatar! Glad you could get your records. How long till they get them to you? 

    Stacey/Sweet Pea, ah shucks, you make me blush! Just reminder we don't have an expiration date and that medical professionals give us their best view of the situation and they may or may NOT be correct. Try to get the stress factor out and keep dreaming your dreams!

    Paula, try to settle your mind as it's probably nothing and you have an appointment scheduled. Keep busy and keep your mind busy. Don't go down the negative path if you can help it. 

    Smaarty, have to admit there are days I don't get out of my pj's. Too bad, it doesn't matter at this time what I wear. I know it will be different when I get a j-o-b so enjoying it now. 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    Luv, chai hot chocolate? That sounds really yummy! Would you share the recipe?

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    I used to buy a decafeinated hot chocolate at Kroger that was called Goodnight Hugs. The white chocolate was especially good. I haven't been able to find it for some time now.

    We just watched the first episode of Chicago PD. It's a spinoff from Chicago Fire. It's pretty good. I DVR everything so DH & I can watch it together when he comes in from work at 2:30 am.

    It's almost 4:30 am now and I think I hear my pillow calling.

    I hope you all have excellent sleep.

    Paula

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  • honeybair
    honeybair Member Posts: 746
    edited January 2014

    Just stumbled into this thread and realize there are other insomniacs.  Ever since my surgery last August I am awake in the middle of every night caused by pain on my mastectomy side.  My chest wall burns or my right arm aches.  Does anyone know if this torment will end?  I go to bed each night and then around 4 hours later have to finish sleeping in my recliner.  Thankfully my AI does not bother me.

    Paula, glad you will see your doctor soon and so sorry that you have new fears to face now.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    honeybair, is this pain since rads, or just since surgery in general. I didn't have any lingering surgery pain except for those first few months when the nerves were regenerating. That felt like electric shocks to the area.

    Paula

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  • camillegal
    camillegal Member Posts: 16,882
    edited January 2014

    Hi Everyone my first time up, then u know I go back to ZZZZZZZZZZZZZ

    Honeybair sometimes everything takes so much longer than u realize to feel better, and waking up during the night because of discomfort is so natural.

    Paula it does sound like scar tissue, but please don't worry  few more weeks and u will know for sure.

    GG I remember going to the soda fountain everyday after school with everyone, every drugstore had them, who ever thought the drug part was really important. LOL

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited January 2014

    Okay..... first of all.....

    "CHOCOLATE COKE  All we ever did was put chocolate syrup in a glass with ice and pour the coke and stir. It was super popular back in the day. All the soda fountains were busy making those, unless Chevy has a different recipe????"    (I high-lighted you!)

    First you get a glass, then chill it if at all possible.... like set it outdoors for 5 min. Loopy Then put ice in, then syrup, then the Coke!  Just like Cammers said...   And be careful whilst stirring, so you don't have to slurp it all up when it runs over the glass!  "Back in the day!"  What are you, the old man  on American Pawn?  He always says that...ha, ha!

    GOOD one GG!  I HEARD that!  Remember when those cokes were served in those cone shaped little plastic cup things, and set in the black holder?  Man they were tiny...  But mine were only a nickel!  I would get one after dance class when I was finished, and walking to the bus... I think I was about 13. 

    You know what ELSE is really good?  Okay, heat up Dr. Pepper in a cup until pretty hot.... Then add a slice of lemon!  I workde for Pepsi, handing out samples of pop, and in the Winter, we would set up a huge pot of Dr. Pepper.... I mixed it with their syrup and water!  It was sooooooooo good!   I would cut up fresh lemons

    Enerva.... cute picture!  No...  best not try the ear candles...  I could get wax out, but didn't know some was going through the other end, and staying there forever and an eternity! And becoming hockey pucks!  And who said charcoal?  That was funny..  About right though!  My ears STILL are sore...  they've been traumatized... I put them through hell...   They whined all night....  sniff....

    Paula, that is RIGHT!  It's like my Daughter not being able to see very well.... After she got her glasses, when we stopped at the store, she said "It looks like a Circus in here!"  She could finally see definition and colors!   She was just in about 3rd grade...  But YES!  I could hear my floor squeak, and the refrigerator running this morning!

    DH always said "Can't you hear that?"  when a huge truck would drive by, or go down the alley...   Are you kidding ME?  I couldn't hear a bomb go off.... 

    I'll show them ALL, ha!   You know what is loud?  When you flush the toilet!  Good Lord that almost scared me!   I could do without THAT one....   

    But Paula, when you can't hear, you just don't know what you are missing!  I have my hearing aids in, but for the last 2 years, I got such a build-up of wax, that I lost MOST of my hearing...   I just want to hear a flea fart in a wind-storm like DH can.  He can hear......  a whisper from the next county!    He's such a show-off.

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited January 2014

    OMG!!!  There is a whole nuther page!  And yes Blessings!  That was so funny!  I would be my own candle!  I'll miss "that guy" though...  I was rather smitten with him....  See, that's what they used to say in the old days...Ha, ha!    But DH always went in with me, so there was not a chance in hell of any hanky-panky goin' on.

    You guys sleep in WHAT?   Am I supposed to be wearing something?  I WEAR my panties....  and that's about it.... sometimes my compression stockings...   So do you guys SHOP at Walmart in your Pajama bottoms too?  I'm going to tell! 

    Have you SEEN those people shopping?  Even the guys!  Maybe that's a new dress code or something?

    Sweet Pea, so good to hear from you.... these guys are saying silly things to me....  I need help..... shut up Cammi.

    Oh Honeybair?  So are you any relation to that sit-com, or reality show with that family and that obnoxious kid called Honeybear?    You CAN'T be!   You sound more sane than the rest of them anyway....    You will get better someday....  sorry you are having pain now....  You have been through a lot....  so just take it easy, and give it time... We are always here....

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  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited January 2014

    image

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