Supraclavicular mets

dee8ace

Ok... here i go again.... 1999, grade 2 invasive ductal, no node invasion, chemo, radio, tamoxifen, basically all the trimmings... 5 yrs on.... bilateral invasive ductal, no node invasion,  double mastectomy, no trimmings this time, not even hormone therapy... just new boobs...3 yrs 6 months on,left oophrectomy,( unusual cyst not related but who knows).. 4yrs 3 months on.... supraclavicular mets... does anyone else have the same experience i'm a bit confused, been surfing the net... i know not a goodish idea... but... some places say its rare, some the prognosis isn't good... some say agressive chemo.. i don't even feel ill... love to hear from anyone who might have had the same experience... waiting on the Her2 results... 

SpunkyGirl

Dee,

I'm so sorry you are going through H with this beast again...I have heard of this occurring, and I would say that the most important thing you can do is get a second and third opinion before starting any therapy.  I knew a gal who's sister had a recurrence to one supraclav node, and she did have to do chemo again.  She was doing very well a year later, but I've lost touch with them.  I see you are in the United Arab Emirates.  How is cancer treatment there?

Good luck to you in finding the right treatment.

Hugs

Bobbie

sharalou

OMG! Just found a lump above right clavicle, and it hurts. Had CT.SCAN yesterday, and onc. called today, and wants it biopsied. SHIT!  Just finished chemo in dec. for breast cancer. OMG!

dee8ace

Hi Bobbie,

Thanx for your reply, i came to the UK because i wasn't sure that the protocol they gave me in Dubai was right, Radio first then injections to shut down my ovary, femara (anti estrogen pills,). The UK protocol is almost the same except, i'm getting the injection, pills first, then seeing if the tumors shrink, if not chemo then radio, i guess they know what they're doing, my Onco is head of Cancer research here, so fingers crossed. Hate walking around with this in my body, thanx for your suport hun..

luv n huggs..

dee 

Sharalou Hunny, my thoughts are with you, i know what i'm going through, i pray its not Cancer again.. take care hun..

luv n huggs 

sharalou

I am crying 24/7!!!!!!!!!!!!!!!!!!!!!!!!!! This is awful. I just finished chemo in Dec. for my second episode of breast cancer.  WTF-excuse my language. Thinking, okay I had open heart surgery in 2009, maybe scar tissue? But it feels like a lump!  Need something positive. HELP!