LE Improvement After Reconstruction

mspradley

I developed mild LE after my initial mx and node removal in late 2009.  After chemo and radiation, I had a wonderful therapist who taught me MLD and how to wrap, wrap, wrap.  I must admit that I did not follow protocol religiously, and wound up wrapping reactively rather than proactively.

On March 21, 2011, I had a bilateral DIEP flap reconstruction.  My ps noted my LE and told me that the procedure would not likely help my LE symptoms, but should not make it worsen.  He said that because the flap will have lymph nodes in it, there is a very remote possibility that these nodes can work productively once the flap is established and healing.  I didn't get my hopes up, but even my husband noticed that the arm that has had the LE symptoms is smaller than it has been in over a year.  It is still not exactly the size of the other arm, but is only marginally larger.  

Has anyone else had similar experience?  I am wondering if this is temporary, but hoping beyond hope that it is a permanent improvement.

Binney4

mspradley, that is really delighful news! This does happen occasionally following surgery to the area, though not necessarily for the reason your surgeon suggested. When the trauma of surgery occurs our bodies respond by an output of substances that encourage regrowth of veins and arteries. These also affect lymph vessels, so there can be a spontaneous regeneration of some lymphatic tissues. Unfortunately it doesn't happen always, or even most of the time, and it's currently not predictable.

As to whether this is permanent of not, it's most likely a permanent improvement, but not a cure. In other words, you have a chance now to be proactive about your LE and assure that it doesn't progress again. So what you've learned to do to care for your LE can now be used supportively to help prevent a repeat of the swelling you experienced before. A unique opportunity! DO remain aware of your arm, do some regular MLD to aid lymph flow, and be prepared to use garments or wrapping for a period of time whenever your arm feels heavy, achy, tired, or just "funny."

Hoping this great good news only gets better and better! Keep us posted, please!

Happy hugs,
Binney