For Older People with Sense

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited July 2014

    I have SO much respect for realtors!!! Well, didn`t my DH come home from golf with a sore back. Seriously????? I still made him do some things with me to finish up the best we could before the photographer arrived. Of course the photographer was an hour late and I just wanted to lie down, but I followed him around and checked each picture he took to make sure I liked it. He humoured me and showed me all, but did mention that I was the only one that had ever done that. I told him it wasn`t HIS skill I was concerned about, but whether my house was showing well. They should be live in a couple of days and I`ll link it here. We signed the listing today as we both think the realtor already has someone in mind - she did admit that there are two people who have been asking her about new listings in our development, and a neighbour who`s sister-in-law is in real estate said she had a list of 14 people waiting for new listings. Our realtor said she wasn`t going to do an open house unless we wanted, so that`s another reason we think it will sell fast. We don`t really want our neighbours nosing around our house and the realtor said we had a lot of pretty, small items that could easily disappear....yikes!! I told her about where my narcotics are so she would know but told her I had no intention of locking them up as I need easy access at least 3 times a day. I`ll keep y àll posted....

  • QCA
    QCA Member Posts: 1,539
    edited July 2014

    The empty nest syndrome feeling was short lived even if it was acutely felt!  Yesterday we wound up keeping DGD and his 19 month old brother while DIL went to parent orientation (DS had to work) and also kept them both for a while tonight while DIL had a photo session.  (She has a small photography business.)  Also kept DGD Anna for a few hours yesterday too.  The boys' other grandmother lives about 4 hrs from here and Anna's other grandparents live about 45 minutes from them.  That's why we're asked to babysit so often.  

    Wilsie, it's good to have such fun times with friends, isn't it?  And congratulations on your coming retirement!  Everyone I know who's retired loves it and eventually wonders how they found time to work, and I imagine being a realtor has been a rather stressful occupation.  Here's to no more work stress!

    Chrissy, sure hope the new antiB's do the trick!  This infection has dragged on way too long and I'm sure you're getting very weary of it.  That's exciting news about your new camera.

    Oh Barbe, I'm so sorry about your back and also sorry your DH managed to play golf!  I so hope the drugs are helping.  Back pain is horrible, and I've been fortunate to experience only 1 or 2 bad episodes with it.  Hope you improve quickly.  And do post the pictures of both the old and new houses!

    Kathy

  • 3jaysmom
    3jaysmom Member Posts: 4,266
    edited July 2014

    hey glas, as always, glad you're all here when my life is full of crappiness.

     I had a bacterial infection that took over 2 mos to go; it's now in my bladder, and isn't fun!

      last thurseday, we had a big bit of crappiness with the con do here, again.. the upshot is :I  got upset, and by nightime, I was having a medium size stroke. More crappiness!

     the neuro said the Ms is so far in the brin stem, it will be a slide from ere, but if my "luck holds' it will be a slow one.

      Tommorrow is the dreaded MRI> They are now adding oxygen to the tube, and it helps, but I'm so claustrophobic, it's still hard!

     I'm counting on all of you for a "pocket party" haha

      anyway, I'm just p;anning on going on with my life as usual, with little roadblocks in my way right now.

     Not planning on reg PT;as I know what to do already, after so the right words don't always many,

      This was a signifigant one, but , if  i'm careful, I can still type, and reach out to people! I type, therefore I  am!l I

    Lily Rose, get thru chemo, and it's al; downhill.  from here. If/when you feel the need, cry. I didn't in the beginning, and paid for it later. It's the wthanks for being there It's Gods way of letting us (literally) cry out to Him without words!..

    Chrissy, I hope the anti bs chase that infection outt a you!

      Hugz, 3jays

      . 

  • chrissyb
    chrissyb Member Posts: 16,818
    edited July 2014

    Barbe, so sorry about your back but your DH back is what I call self inflicted and requires no sympathy at all......lol.  I can relate to wanting everything to be perfect with the photography but usually the people who do it are pretty good at their job.  Checking is still a good idea as others don't always see what you do.  I am so hoping you get a quick sale for as close as possible to your asking price.  Selling houses is so nerve wracking, I guess that is why I stay so long in the same place.........I also hate the packing bit but the unpacking and setting up the new house is so fun!

    Wow Kathy!!  Busy girl!!  Having little ones around is lovely but when it's a constant it's very tiring. I guess like everything in life you do get used to it and cope very well.

    Lillyrose, haven't heard from you for a while, are you doing okay?  I know that later chemos are hard as it is cumulative in your system.  Sending gentle ((((hugs))))) and hoping you feel better soon.

    Yay 3jays!!!!!   I just love it when you pop in!  Not so happy to hear that your MS is in the brain stem and you are having mini strokes and are still battling that infection!  Oh my! I am in awe of your tenacity!!  Glad you are still able to type so you can reach out.  Do take care and say hi to Mur for me........I still go over in my mind my time with you both.....I had such a good time.

    Feeling a bit better today although not terribly active but that's okay as eventually I will get back to normal.

    Hoping you are all doing well.

    Love n hugs.   Chrissy

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited July 2014

    3jays, what hell are they causing you now in the condo?? I thought it was all good once you moved to your own unit. You should tell them they caused you a stroke and maybe they will back off? Sometimes we have to use what we can to get results. We will be in your pocket tomorrow making such a racket with the MRI that you won`t even realize you are in the machine! Our machines up here always blow air on our faces in case of tickles and stuff. 

  • chrissyb
    chrissyb Member Posts: 16,818
    edited July 2014

    Oh 3jays!  I forgot about the pocket party!   I will be there with bells on and if you here them bells ringing you know I'm dancing like crazy so I can distract you.

    Love n hugs.   Chrissy

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited July 2014
  • Wren44
    Wren44 Member Posts: 8,585
    edited July 2014

    I'll be there too, but with my eyes closed. Little claustrophobia here also.

  • QCA
    QCA Member Posts: 1,539
    edited July 2014

    I was there too, 3 jays!  We're waiting for news when you're able to post.  Hope it wasn't too nerve wracking.  Sorry I didn't know this ahead of time, but I didn't come back to this thread after I posted last night.

    I did get some good news today---had the annual mammogram and all is well!  

    Kathy

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited July 2014

    Great news Kathy...it will get to be boring news soon. I NEVER had a normal mammo, right from 21 to 50. I always had call-backs or biopsies!!

  • Leah_S
    Leah_S Member Posts: 8,458
    edited July 2014

    I've barely been on here since I've become a news junkie lately. Really, it just gets me upset but I can't stay away. I so much appreciate your good thoughts and prayers, it really helps.

    My son and son-in-law both received emergency call-ups today. My son goes in Sunday and my son-in-law Monday.

    Leah

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited August 2014

    My father, my husband and myself are all military veterans...I know what this means, Leah...hugs to you

  • lilyrose53
    lilyrose53 Member Posts: 216
    edited August 2014

    3jays - Thank you for your kind words.  It has been a rough go for me, but I only have 4 more infusions to go.  Then on to rads.  I think you are right, I never cried.  Not when I received my diagnosis.  Not when I had surgery or even when I started chemo.  But I did cry this week.  I think it helped.  I'm sorry you are still dealing with a nasty infection.  I hope you can shake it off soon.  Sorry to hear that the MS has gotten to your brain stem.  You are an inspiration to me because you just keep on fighting!  Sorry about the MRI, they suck!  We are all there with you.

    Leah - Sorry your son and son in law were both called up.  I'm sure it's nerve wracking.  My son is currently deployed and was in the Persian Gulf.  Not sure where his ship is now as he cannot tell us.  At least he is fairly safe at sea.  I pray for you daily, as I do for all in Israel.  stay safe!

    Barbe - I'm sorry you are having back problems.  I know it's awful.  I hope you sell your current house soon.  The new one is exactly what I would want-minus the stairs.  I'm sure you will love it!

    Chrissy - I have been MIA for several reasons.  I was having a bad week and didn't want to inflict my misery on you here.  It seems my SE's have been piling up and wearing me down.  My neuropathy has been getting worse it's now in my fingers and my feet.  Sometimes my feet go numb and I can't walk without tripping.  My fingernails are quite dis colored now and trying to lift off.  I still manage to crochet a little when they are feeling a bit better.  Fatigue is unreal.  Between my RLS and my high resting heart rate (120) I feel like I'm 91, not 61.  Haha!  DH was gone all week for work and I was feeling sorry for myself.  I finally broke down and cried for the first time.

    I decided a few nights ago because I couldn't sleep, to go back to the beginning of this thread.  I wanted to get to know all of you ladies better.  Once I started. I couldn't stop.  I laughed and cried!  I think it was hearing that We lost Marybe and Isabella that finally set me on my crying jag.  Marybe was such a sweet, inspiring soul.  And Isabella!  What a life!  Between her crazy gypsy wedding and all of her animal stories...I wish I could have met her in person.  Can you imagine sitting and having a cup of tea with her?

    To everyone else - I wish you all a peaceful, pain free week.  Hugs,  lilyrose

    image

  • chrissyb
    chrissyb Member Posts: 16,818
    edited August 2014

    Oh Leah......prayers for your son and your son in law, may they return to you safe and well.  Sending (((((hugs))))) from one mother to another.

    Lilyrose, coming here to put into words about how you are feeling is what this thread and these boards are all about.......it's friendship and laughter in good times and love and support when the going is not so good.  Never think you are inflicting anything as we have been there and done that and know just what you are feeling so can sympathize and send you loving encouragement when you need it most. Tears are good for the soul and the psyche but unfortunately we as women tend to hang onto them to be strong for others when we really need to let them go in a flood........it actually helps relax and destress us.

    Have you thought of using a walking stick as a security when you are walking?  It wouldn't stop you from tripping but it will help to stop you from falling.  Have you shown your hand to your onc? Hopefully he will have some advice for your nails.........I know they are lifting but once you are done your nails will return but in the meantime, hang in there.  Rest when you need even if that need is all day and don''t worry about cleaning or doing the house.......it's not going anywhere and if it gets bad enough get your DH to do what annoys you most.  Right now is when you need to be wholly selfish and look after yourself to the exclusion of all else.

    Oh my, that resting heartrate is so high!  No wonder you are feeling like you are ninety!  Is your doc addressing it?  I sure hope so as that is really not good.

    Remember we are here for you not just when you are feeling so so but when you feel like you can't go on.  I love that you are still managing to smile, the above cartoon tells me that in buckets and made me laugh out loud when it finally dawned on me where the lemons went!  Loved it....lol!!!

    I'm glad you read through the whole thread.........it has gown over the time and we have had some wonderful women visit us.  The stories of Marybe and Isabella kept us laughing and wanting more and I for one miss both of them very much.  I am thankful that I did actually get to meet and spend time with Marybe and she was as sweet and funny in person as she was on the boards.  As we say here in Australia, I think Isabella would have been a real cracker! (ie a person who is such a live wire you never know what they will do next.)

    Take care all!

    Love n hugs.   Chrissy

  • Wren44
    Wren44 Member Posts: 8,585
    edited August 2014

    Leah, Hugs for you and yours. I hope it's over quickly and you are all safe.

    Lilyrose, Chrissy is right. Come here when you're down and need some cheer to get you back on keel. I hope the last 4 sessions go well and you're done soon. Hugs.

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited August 2014

    Lily, those months of chemo never seem to end do they....trust that we "get it"..and are wishing you the best. The best part is that all the sudden out of nowhere you feel you can see the light at the end of the tunnel getting closer..I just kept thinking just one step at a time...one day at a time. You have alot of great women pulling you along...or is that pushing you along...lol

  • lilyrose53
    lilyrose53 Member Posts: 216
    edited August 2014

    Chrissy, Wren and Lisa,  Thank you for your kind words and support.  I tend to keep my moments of sadness to myself.  I don't like to think that I'm bringing anyone down with me.  But I realize that sharing my feelings have taken a burden off my shoulders.  But I am learning to live one day at a time.

    My DH has been great about doing all of the vacuuming and heavy housework.  I still do easy stuff like laundry and unloading the dishwasher and making the bed.  I have lived for years with him traveling for work and it never bothered me too much.  But since my diagnosis, I have been having a hard time with his being gone so much.  It's weird because I always felt so independent.  Now I rely heavily on him.  

    I keep telling myself that this too shall pass!  So I will just keep on fighting.  My MO always asks how I am feeling not just physically, but mentally.  He said depression is common in cancer patients.  I have been telling him I'm fine...so I think next week I will be truthful.  He isn't too concerned with my nails.  He said they should come back normal.  However, he is concerned about the neuropathy.  We discussed and he said if it gets too bad he would consider ending my chemo early.  I said I'd rather live with neuropathy than cancer!  He said it's my decision.  He is keeping an eye on my heart.  He said a high heart rate is not uncommon, as long as my heartbeat is steady.  It does go down when I lie down.  So I do that a lot.  Lol!  I am just looking forward to being finished with chemo!

    I have NO idea how I posted that funny pic!  I was looking at it on another thread and laughing!  I must have pasted it on here somehow.  I'm glad you found it funny too Chrissy!

    Hugs to all!  lilyrose

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited August 2014

    Lily. I didn't realize just how dependant I had become over the course of the treatments. It was so slow in developing I missed it all together. When it hit me was when I just blurted out to my DH  I was going to drive myself to the doctor with out him. Wow I was in shock. At any rate I did it alone from then on. I think he was even taken aback. In the meantime he had retired and was maybe feeling a little bit left out.

    Sending hugs. 🌼🌹

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited August 2014

    image

    Chrissy. I just came across this photo and thought of you. LOL

  • chrissyb
    chrissyb Member Posts: 16,818
    edited August 2014

    Lilyrose you are not bringing us down by sharing, not at all.  I know how you feel about relying on your DH, I am so independent that I forget to ask......lol. Like most of our DH's mine will do anything for me but I have to ask as he doesn't 'see' dirt or dust.  If I pick up the broom he will take it from me and continue on with the chore.......the only problem is I have to do it again when he is not around as he misses half the dirt and never moves anything to sweep under.  I am learning not to look but be thankful that he attempts. I understand about your DH being away for work, mine traveled for years........he was away every second week and it got that way I actually enjoyed the time on my own but I always looked forward to his arrival home.

    So glad your doc is keeping an eye on everything but do be honest with him as he can only do something to help if he is aware and that doesn't happen unless you tell him.  Never be upset that you may need a little medication to help get you through....it's quite normal and doesn't need to continue once your treatment is done if you are feeling okay.  Dealing with the dx of BC then all the surgery and treatment puts such a burden on us both physically and mentally that all help should be gratefully accepted.

    Yes living day by day is a great way to live, not just when going through treatment but all the time.......it has a way of creating a calm within.

    Keep coming and chatting and releasing your feelings and emotions........as the old saying goes, 'a problem shared is a problem halved' and if the sharing makes you fell better then it works.

    Love n hugs.   Chrissy

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2014

    lilyrose, when you post of how sad you are it can remind the rest of us how far (or not) we have come. Put that spin on it and you can see that it HELPS us to remember our progress. We are also here to help you through the stages we have already done. This is not a fair-weather thread where you have to be positive, this is reality. Hugs to you, sweetie, and I am glad you finally cried! Let the tears wash some of the angst out.

  • Wilsie2
    Wilsie2 Member Posts: 441
    edited August 2014

    Barbe, I have been wondering about your eye. Seems you have appointment soon. Let us know. 

    Hoping all of you are having a good week and upcoming weekend. I am going to be 70 on Monday, never thought I'd get there!  My onc was less than encouraging when I was diagnosed 2 years ago. Fooled them all!  Wilsie

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2014

    I had the appointment on Tuesday and he has to send me to a sub-specialist!!! I am adjusting to the blurry double vision and get less headaches but that isn`t resolving the problem. Thanks for asking Wilsie and HAPPY early birthday!!!!

  • 3jaysmom
    3jaysmom Member Posts: 4,266
    edited August 2014

    Hey ladies; Thanks so much for the pocket party!! 

    I wasn

    t done with the mri till after midnight last night, if you can imagine!!! I didn't know they'd stay so late!!!

      Instead of the normal pre-meds they usually give me; I put together a "cocktail" of the meds I have here. I added nuerontin, which always makes me sleepy, and it worked well for me.

     They got good pictures, and we'll see what the nuero says in the next week or so.

     I've come to the point with my ms; there's not much now they can do, but watch and hope it slows down the progression by itself.

      We're in the middle of a huge lawsuit with the condo: they "thought" they could just change their minds that they approved "service animals " in 2008. It's been a mess, and a lot of stress; but it's federal law here, so we'll win when its' all over.

      Good luck to them; they're trying to "disprove " I have ms.. wish it was that easy.. lol

      So, life will go on, as it does.  

      Lilyrose, I'm glad you had a good cry; whatever the reason. It's good for the soul!

      This is the place to come with all your "crappiness" with chemo.. we all have done it, or know someone here, that did.

      Marybe's nails fell off twice; but when she was here, she had beautiful ones, painted and all!

      As far as the hand/foot syndrome, I was a lucky winner with that. (sarcasm) I find lidocaine cream helps with the "tingling" pain; and I take generic neurontin.. A trick one of the drs. taught me ( it works!!) I wear warm gloves always, and socks.. not a great fashion statement, but it really  works! Leah, You, and your family, have been in our prayers, so much trouble near you now, is so scary!

    Hugz, 3jayselps with that nerve pain..

      

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited August 2014

    3jays.I don't have MS but do have neuropathy. I tried amytripiline and neurontin but they didn't help. Lyrica really helps me but we are all so different in our responses to meds.I also take a vicodin in  the early afternoon. I have to get off my feet for a while so I have my siesta. I pay the penalty at night if I deviate from my routine. 

    I bet you are relieved to have the MRI. over with. I just hate them. 

    Did anyone else get a heightened since of hearing?  I have had that for many years now.

    Hugs all around. 

  • lilyrose53
    lilyrose53 Member Posts: 216
    edited August 2014

    Hi ladies!  I am feeling much better today.  DH and I went out to dinner...that's been rare these last several months.  A good friend stopped over to see me today and brought me some of her homemade zucchini relish.  Between that and the wonderful support you have shown me, I feel much brighter!

    Barbe,  Hugs right back to you!  You are so kind.  I certainly hope the eye specialist figures out your trouble.  It must be difficult dealing with headaches AND blurry vision!

    3jays,  Glad you made it through your MRI.  I get so claustrophobic.  What a pain to be dealing a lawsuit with the condo.  Stress you sure don't need!!!

    Chrissy,  I am thinking of getting a walking stick.  I think it would  be helpful.  Thanks for the suggestion!

    Wilsie,  Wishing you an early Happy Birthday!  Keep on having LOTS of birthdays! 

    Hugs to all,  lilyrose

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2014

    lilyrose, I used a walking stick for YEARS before I could call it a cane!! In fact, I have to go to our new storage unit to drag out the cane I haven`t used for 9 months as my back has crapped out on me pretty bad. I am back on my Fentanyl patches and still not getting much relief. I know it`s not worth going to a doc, but I think I might have broken myself. I wouldn`t be surprised to find out I have a cracked ______________ bone. 

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited August 2014

    I love the term, walking stick...

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2014

    Let me know if this link works. It`s the virtual tour from our current place:

    http://homesite.obeo.com/viewer/unbranded.aspx?tourid=920503

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited August 2014

    I can't get it on my phone, Barbe, but that is Operator Trouble...

    image

    cactus flowers

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