For Older People with Sense

macatacmv

Hello everyone,

Lane, my DD lives in CO and she went skiing today. Closing day on the mountain. (beavercreek) They are closing her resturant tomorrow. She is coming home in a week and then we're going on vacation together. YAY!

infobabe, I am pretty new.  I wasn't sure if I fit in the older or with more sense group, but have found this group very welcoming. I think at one point we talked about calling it (formerly wild) older women with more sense (now). LOL

Up late tonight. I am taking prednisone to reduce the inflammation in my lungs and it is driving me crazy. I am hot and my heart is beating fast and I am still coughing. I am working a jig saw puzzle to keep me calm.  Thought maybe some complaining would let my mind stop spinning. 

I haven't worked in two months. I have to get this breathing issue settled and recover from the rads. It is a business I have had for 30 years and I love fixing shoes and helping people out. Not sure if lung issue is from infection or damage from work related chemicals. And right now my health comes first. But I am sad about it and don't know what to tell people when they ask (if or) when I will reopen. Last week at PT the therapist asked if I would come help them measure for a patient's leg length discrepancy in the assisted living part of the hospital. They wanted me to do the repair but I suggested someone in another town. But being there and knowing I have the knowledge and experience, but not the energy or strength made me really sad. I worked hard at building this business and it allowed me to own a house and raise two kids on my own. Well, late night rambling, tomorrow will look brighter. 

So Sas I have an idea of how you feel.  

(((((Chrissy)))) 

Isabella4

Chrissy...how are you doing ???

Anonymous

Chrissy, So sorry you ended up with a DVT since it did not have to happen.....I cannot believe they sent you home without being on a blood thinner.    When I had my knee done and that was a long time ago even, they had me taking coumadin and someone from home health care came to the house every day or maybe it was every other day to do my INR testing.  I am glad you were smart enough to know something was wrong and are back in the hospital getting it taken care of.

Isabella,   Are you having better luck with signing on.   I sent the mods a PM and they said they are addressing the problem.   As you can see, I am on here, but still am unable to get on by clicking on the tool bar and going right to the site.....still get that maintenance message when I try to do it that way.

Hope you got some sleep Mac., and that your breathing improves soon.

  Sleep seems to be something I get a lot of these days.....cannot finish an entire episode of Game of Thrones to save my soul and now there have been three. 

Have a good day, Ladies.     Marybe

sas-schatzi

Marybe what a hoot about Game of Thrones-My son specifically got HBO so I could see series 1 and see the new season.  The second week after my brain surgery my brother who was here said "you are going too have to watch episode ten with someone else, b/c I can't stand to watch it a 4th time." I kept falling asleep.

 Mac sorry we are sisters in "understanding". But have Hope, after a time things improved. I think it took longer for me b/c DH had cancer at same time and then passed. Grieving so many things and Dh at the same time----bless my PCP and councilor and priest. . But now that the Brain tumor is gone I have a different attitude. Physically, feel so much better and am in complete control of energy expenditure. Please, put that on your "List of Rules" when you consider opening again. Think shorter days and perhaps a half day Fridays or even closed on Fridays. This would reduce your energy expenditure that would allow your body to recover.  This next thought isn't scientifically based just an empirical observation ( fancy way of saying --- I observe and think ______). After you have finished all treatments and surgeries, by 4-6 weeks. Observe what your natural time for waking is. I think that if we are getting proper sleep are bodies wake at a time that is natural for us. Each being different. Since you are in control of opening your shop. Consider basing opening time after your natural waking time. I think this will add to your feeling of well being. Hope these help. I'm not working , but this natural waking time thing my whole body feels so much more relaxed------It's not a feeling I have had in my entire life. But it took 2 3/4 years to get here. BUT as I said there were additional things going on --very serious issues. So, it's important that you believe your time to ----WELL BEING--will be shorter than mine.

elimar86861

You poor thing, chrissyb!  I hope the DVT will get resolved without further problems and you can get along with your recovery in a more uneventful way.   You'll be back kicking the football in no time!

                                      

macatacmv

Sas, thanks for the imput. I have been reading about you for a bit and admire your fortitude. I am sorry for all the loss you have endured. I had been caring for my parents and they both passed. My father just a year ago. My kids are finally off on their own, but back every so often. So I am re-evaluating my life anyway. I know I have to give this recovery stuff time. Patience has never been my strongest virtue. Getting into a natural sleep rythumn would be wonderful. Yes I need to re write my "list of life rules"

when I was visiting my DD in Co in Nov between mammos (I had a feeling of what was to come, but didn't let kids know) I bought a poster in a gas station convience store Called "the A.B.C.s of living life consciously" It is on my refrigerator so I read it everyday.

Marybe I try to watch Game of Thrones with my son also. He gets real impatient because he, of course, read the books and I'm always asking him who is that? What family is he from? I feel like I need cheat sheets. I should have tried it by myself last night to see if it would have put me to sleep.

I've just been outside snoozing in the sun on the deck in a lounge chair.

P. I give myself permission to be happy.

Missing some ladies here. ((((((hugs)))))))

sas-schatzi

Thanks Maccatacmv--we all have our somethings here. Cancer is such a thief. Being here on BCO is so good b/c of so many reasons.. I wouldn't have survived without it or I don't think I would have. The friendships with others experiencing the same thing, everyone looking out for one another. Helping us in bad times, Saying Hurrah in the good. Please share what your poster says?

 Chrissy's actually the one that got me into a better sleep thing . I'm taking Melatonin . She takes it and we talked about one night on the Insomnia thread, DUH which I started. Haven't been to it in months. Check with your doc to see if they have any problem with you taking it. Their is the rare night versus the usual night.  That oh so changed things for the positive. Sleep glorious sleep !!!

chrissyb

Hi girls!!!   Thanks so much for all the good wishes they are much appreciated!  I'm still in hospital with the promise of a possible release tomorrow.........but I also had a possible release for today.......lol.......we are just trying to get the Warfarin levels right and then I can be as free as a bird........lol.  DH is coming down to the city today so I get to see him for the first time in two and a half weeks and I am so looking forward to it!  Can't wait for the big bear hug I know is coming with him!  The knee is healing but of course having this jolly DVT has set me back a little as there were a few days there that I couldn't do the exercises nor the walking so am now having to put up with some extra pain as we loosen it all ap again................oh well, at least I'm still here to winge about the whole deal..........lol.

Infobabe welcome to our thread and a really great bunch of gals.  Grab yourself a comfy chair and a cup of coffee or tea and join in where ever your mind feels like.  Diversty is the name of the game but underlying that diversity is the sisterhood of our BC.

OMG I've done it again, I wanted to respond to everything but if I go back I'm going to loose this..........you'd think after all this time I would remember to start my response in word so I can flick....lol

Eli!  Lovely to see you!  It takes a lot to keep this old bird down for very long as I get too bored........lol......you are right when you say I'll be kicking the football around pretty soon and if not I'll still give it one hell of a try!

Hoping your days are fine and your nights are better, your fears are few and your joys many!  Have a great day all!!!!

Love n hugs.  Chrissy

sas-schatzi

chrissy, so glad things are improving. So whom is accepting responsibility for sending you home without a blood thinner?

chrissyb

Sas, no one has put their hands up and I suspect no one will.  They are just saying 'one of those things'..........yeah right!

sas-schatzi

Chrissy----I know you won't want to pursue it by your nature. But it must be pursued to prevent it from happening to someone in the future. I know you know how serious this was. I'm so happy that we are exchanging posts----do you get my hidden meaning? The facility as well as the doctor has a responsibility of discharging total knees based on the cookbook discharge process used worldwide for almost 4 decades. Many facilities have a discharge paper that is effectively a preprinted form with all the choices a doc can make. They simply put a check mark or x by what they want. They then would have to write the prescriptions. The staff should receive training that cover the Standards of Care for discharge.--these exist. As do Standards of Care from admission to discharge. That's the beauty of Universal or at least Countrywide Standards of Care---from Perth to Melbourne the care for total hips/knees, other procedures are the same across the country and more frequently the standard world wide..  So, dear friend , after you have recouped with no further events.  Please, be a thorn.

chrissyb

Sas I get your hidden meaning and I will surely be asking a lot of questions as to why, after being on clexane for a whole week I was sent home with nothing else only to be re-admitted four days later.  I'm pretty sensitive as to what my body is doing and to how I feel and I started to not feel 'right' a couple of days after being discharged.  It wasn't until my 2.00am scare that I followed it up with the docs and then landed right where I am now.

Oh poo!  Nurse just came in with my INR for today and I'm now too high so there is a possibility that I won't be home tomorrow either!  Oh well, one day at a time!

Love n hugs all!  Chrissy

sas-schatzi

Chrissy, Have them look at your other drugs for drug interaction. Coumadin/Warfarin has an unbelievable number of drug interactions. AND some of those drug interactions can prolong the INR. Easiest drug checker on this one is to look at the Black box warning in the PDR--Physicians Desk Reference. If nothing you take is in there, then they should run a computer program. Each pharmacy has at least one computer software program.

sas-schatzi

win'r be posting till incision stops misbehavig

macatacmv

Chrissy, so glad to see you back on here. I pray they get your levels leveled. 

(((sas)))) here is A of the poster "Ask for what I need"  

 I am feeling a bit better today. I have not had to use the rescue inhaler and the cough seems to be lessening. Hallelujah!! When the fatigue hit today it hit me in the face instead of in the chest. Very strange feeling to have heavy cheeks. Maybe it was the sinus cavities. 

I met with my new GYN today. I like her and the nurse alot. They were very reassuring and interested in my recovery. Just a routine exam and covering the bases. She discussed exercise and vitamins. I said I have to be able to breath before I can exercise. LOL 

Like you say Chrissy Just one day at a time. 

Infobabe

Wren44,  If I don't have clean margins or any recurrence, I will go for the mastectomy.  From what I have read, it is not such a physical hardship. Again, much harder when one is young.

3jaysmom

1st: welcome, info babe, here's hoping you good margins, and good progress...@Chrissy, i think we're all horrified, the healthcare we get sometimes boggles the mind!!!i'm really glad your doing better, and so glad you knew that something was wrong, before it got worse!!!you know the rule, right?? two steps forward, one step back.. you'll be back in form , in no time.. glad that DH is coming to give you that bear hug.. tell him you need another one, from all the girls.. im sure he won't mind...

  Isabelle; isabella: im so glad your on again. im going to pm you, so watch for it..

  my eyesight is suppossedly 20/30; but i totally relate, i would be the one who saw a cupcake, too.. did you have more dental work done?? im so proud you're actually showing up, with your needle phobia..@mac: thaks for the pic of the ferry. i really was homesick for a moment.. but, with mom and dad gone, it just wouldn't be the same..

  My neice was down from Daytona this weekend. she also vacationed every summer in west tisbury.. we had the who's gone, how is so ad so.. all weekend. my parents lived by roger blakes, and she saw him last summer. he's apparently gone blind.. and, she told me Beas' is still on state road.. God, don't get me started!!!!

  i do understand your wanting to help that patient with a new leg.. but, you HAVE to get YOU straight, before you can help anyone else..

  have you had the test for your lungs yet? the in/out one (forget what they call it) i have one done every yr for my asthma.. funny, i breathe WORSE right after using an inhaler.. ten minutes later, im much better. i empathize with you about the prednisone. i have to take it to take the synthyroid. i don't even fool myself into thinking i'll sleep, or even be sane (whatever THAT IS these days) the day after...i have a funny pic i'll look for. i pass out the cards.. it says "WARNING 3jays on prednisone"... hang in there. now, its summer, and its always worse then. so, take it easy.......missed you guys. glad you're all pretty much negotiating the problems with the site......3jays

3jaysmom

3jaysmom

does that look familiar Mac??? 3jays

sas-schatzi

3 Jays--what ever message you receive let it be a good one. trying yo do this without reading glasses. Hour by hour seems better.. I can go over the top of the keys and find them. Whew!

Bless you sweetie and Mur----love you're  love for each other........very much. Superlative. Namaxte sheila

macatacmv

3jays, so good to hear from you!!!

Yes, I have a pin that the kids gave me at Christmas time that says "It's been lovely but I need to scream now!"  Do my kids know me or what?

Oh, everything changes so much!!!! I grew up in Orlando. I still have friends that live down in FL. They send me pics of our old places and everything has changed so much since Disney. When I left and moved up here it was just opening up. My best friend from high school is now in middle management at Epoc. I plan on coming down in Nov. Wouldn't it be cool to be able to meet?

I had all my breathing tests. It proved that I am having trouble breathing/ LOL I had a positive reaction to methacoline. So we are trying the pills then switching to a different inhaler and seeing if it works. Don't we love modern medicine? Let's try this next.....

The best medicine is all the ladies on this thread!!!!!!!!!! 

chrissyb

Well girls, when it rains it pours!  I have now developed an allergy rash to something that has been given to me and it is driving me nuts!!!  It covers most of the front of my torso and the back of my left thigh as well as under the arm and over the only boob I have left and down the groin................YUK!!!!  All I want to do is scratch but it is waaaaay tooooo sore!!!!  Doc saw it tonight and has ordered an anti-hystermine but it hasn't arrived as yet................I sure wish they would hurry up!!!...........Not that I'm impatient or anything...............lol.   He also told me that if my INR stabilises I can go home Friday.....YAY!!!!  Not sure if it will happen or not but I will look forward to it anyway......lol.  DH gave me the best bear hug both when he arrived and when he left!  It was soooo good to see him!  I'd best go and ring him and let him know what the doc said tonight.

Hope you are all doing well!

Love n hugs.  Chrissy

Wren44

Chrissy, My deepest sympathy for all that itching. It's worse that pain IMO. Hope they show up with the antidote soon AND that you get sprung on Friday. (((((HUGS)))))

SoCalLisa

For Chrissy

macatacmv

Oh Chrissy, I'm praying for sunny skies for you! No more rain or surprises!

Those roses sure brightened my day.

Lots of love for all

3jaysmom

hey chrissy: you're in the hospital!!!wy can't they give you a shot of steroids, or will that bother the dvt??

  here's hoping they bring the antihisamine, soon.. hey to your DH from me... will check to see how're doing tommorrow@mac: i don't think I'll be uo to driving in Nov, anymore than i am now, but ime casa en tu casa.. i have a spare room waiting for you, if you'd like to come and stay..

  mur can even meet you 1/2 way, on the TP.. so, we'll see what we can do! id love to meet you!!!Orlando's about 5, 51/2 hrs away from me. im right next to ft. lauderdale...3jays

lwd

Chrissy,

Well, darn it all.  Now an allergy??  Just hope you're released tomorrow.  Maybe you're allergic to the hospital???  Just scared 8 deer off our yard.  They've been eating my pansies and columbine.  They don't spook easily!  Ivy says hi..........  On my way to the onc in a couple of hours for my monthly visit and results of my PET. 

Love you,

Lane

Gingerbrew

LWD I hope your reslults are all good.

 Chrissy, hoping for your health to be restored. Prays going up. 

Hugs Ginger

sas-schatzi

Chtissy, Typing without glasses.    We Need to get to wotk again. Insist that a drug interaction checker be run.  A full body rash, isn't a minor thing. What new drugs did they give you? Remember I said Coumadin/Warfarin was a bad boy for drug intersctions. Ask if you can look at the PDR.

Lwfd isn't off base about being allergic to the hospital. If possible have husband bring in soap you usually use.  Have chat with charge nurse. Here in USA hospitals will have pacjets of specialy laundered sheets and pillowcases for situations like yours. Allot of nursed don't know they exist.and even charge nurses. Have them call the head of laundry. Next best request is packets of laundry used for burn patients.  Don't use any of the hospitals toiletries. don't use any of your own either, like moisturizer etc. When the skin becimes inflammed like yours, there is a tendancy to be unhappy with everything topical. So don't add anything to the soup..

 Icr pacjets put on particularly itchy places for a few minutes at a time can help. 

Well it'd be nice to now what's causing the rash before you leave the hospital. Remember It's not minor. It's screaming at you actually. Chtissy sit your ground---get an answer befioe you leave. Ask for  department manger of pharmacy to bring the results of your drug interaction report to the bedside and review it with you.Get your doc to orfer it----your nurse may have to call him. This may be unusual in Aussie. Land , It would be usual here too except if I were the patient. Why? The last  3 years have taught me that pharmacies aren't running these programs. So if you ask to review it . You will know it's been done. I'm going out rerview coumadin. I'll be baxk L&H's Chrissy don't miss next post.

sas-schatzi

chrissy, Rash with C/W is considered a " severe" SE. Multiple references. Go to Drugs,com and Mayo clinic. Epocrates is very good to, but you need to register. Worst case scenario is the become bullous(latge blisters). Or  tissue starts dying-----Necrosis.  Per usual not trying to frighten you. But someone needs too take this rash serious. you   don't want to get home again , and have a problem that should be addressed now. Use your own computer and google  keywords --warfarin and rash..... L&H's good luck............ Must go find the sleep fairy Namaste  aheila-------------------doc should  be managing it fifferently than just anti -histamunes.