For Older People with Sense

chrissyb

Can't see it either Ginger...

Leah, that is so funny about your DD!

Love n hugs.  Chrissy

barbe1958

Can't remember if I told y'all here, but my DD has two BIG Bouvier dogs. She was in the mall weeks ago and as she turned the corner, there was Santa up in his chair. Zach (15 months) gasped "DOG" while my daughter quickly strolled him away laughing.

chrissyb

That's hilarious Barbe!    Out of the mouth of babes............

Kaara

Well...it's Thursday morning and I've already put a call in to my BS's office about my final pathology report.  He told me to remind him because he didn't want it to go over the weekend...me either!!  He's in surgery, but I told the nurse that I want my file on top when he comes in.

 This waiting is beginning to wear me down.  I'm feeling better each day, but couldn't sleep well last night...kept waking up and thinking about all the options if I didn't get clear margins and/or nodes.  My mind was spinning like a top...something it does when I'm not taking hormone therapy which I was taken off of when I received the dx.  This will now become my new normal unless I can find a substitute other than sleeping meds, which I refuse to take.

Supposed to have visits from grancchildren today...that will keep me busy, but no picking them up which, of course, they won't understand at all!

Have a spectacular day everyone! 

chrissyb

Kaara, if you don't like sleeping meds, have you tried Melatonin?  It's naturally produced in our body but with menopause the productions get less and we have sleeping problems.  It is available at Walmart and Walgreens is the USA.  Just a thought.........

Love n hugs.  Chirssy

Gingerbrew

I think I will try that myself Chrissy. I have used Lorazapam but I found that I was sort of sleepy the next day. I am not sure if it was linked or I was just still tired?   I want to be on a normal sleep schedule.

Kaara I am thinking about you this morming as you wait. Be sure to ask the doc to email the complete report to you, or snail mail it. Even if you write it down you won't get it all.  It took me some time to really take it all in. 

Hugs GInger

3jaysmom

ginger.. see if you can use photobucket, to get that picture up..

   we went last wkend, some of you know, it was a disaster!i haven't got a poc yet, bFinley was scraming her head off!!(its her fav thing right now) terrible two.. Fischer brought his letter for santa, the first one!!!!

 top of the list: a Dog! that's one thing i told him, santa can't bring a dog, till daddy says yes... (and he'd better not hold his brathe for that!!!)3jays

Kaara

Chrissy:  I tried the Melatonin and it seemed to be working fine, but then one morning I woke up with a bad case of vertigo and was afraid it was caused by the Melatonin so I stopped taking it.  I may cautiously try it again...maybe just a coincidence.

Gingerbrew:  Good tip on the e mail....sometimes I can't read my own writing so that will help!

3jays:  Sounds like you're up and around, so hopefully you're feeling better.   

chrissyb

Kaara, please excuse my memory, but are you taking an AI?  Vertigo can be caused by them and if you can get by for awhile, it does pass.  I has that also, it lasted about two to three weeks with varying degrees of severity and nuisance value and then one day it just stopped and I haven't had it since.

Ginger, that sleepy, groggy feeling that you get from Lorazapam is the reason I don't like them and chose to do the melatonin as I get no hang over at all.  Hope it works for you.

Love n hugs.  Chrissy

3jaysmom

hey  gals.. chrissy: i loved all the pictures from your b.day at the paark!!!even the visiting pooch was cute, and your grandsons, what a blessing!!!!

  Kaara: i hoe you're feeling well, and enjoying your grands WITHOUT picking them up...

   so, i went to the good dr. today.. and he decided, since we dont know what a good baseline for my thyroid is we are.." , cautiosly   moving in a slighter direction.. he said he'll think over the next few days, call him when ive increased the thyroid med to 25, 2 xa a week just barely in the range.. thank God, he's not one of them that goes by TSH only!!

    Interestingly, i don't have the anti bodies i would if it was sub acute thryoiditis; but; he's going to follow the guuidelines, as if i did... stiill use thhe t4; but added a prednisone daily, with it.. he hopes he can "trick" the thyroid and hide any allergic reaction to it... he said, "he loves a mystery, and my bodys reaction certain  is.. so, he said 13.6mg (which im taking now) add 10mg of prednisone with that for a week.. if myy symptoms are better, spec. the fatigue, and hoarseness get better, we'll add to 25 mg a wk, then 2 xs 25 a week.. then, a ck back.. that will take me thru the holidays, (and i hope will give me more stamina) then, we'll take the prednisone down, when i see him in January... of course, he's stumped..

  He said if this doesn't work, he's going to call some dr he knows, i'll have to go inatient, (robably) and get full body work up...

   Here's hoping i have " atypical thyroiditis.. which DOES straighten out, in a few months, and we'll keep an eye on my "baseline #s, which will be when i start feeling better.. He increased my vit d.. im taking 4,00 a day, so, he wants 6,00. not too  much at once. He said vit d def wouldn't CAUSE the TSH problems, but can confuse them..so, we'll try this.. he is amazing!!!he just keeps trying, till he gets my body to get better.. i can't say enough about him!!!(and strictly speaking, he's ONLY an ent.. has done ear surgery, throat surgery, and hopefufingers crossed, prayers said........3jayslly will get this, also...

Kaara

3jays:   That's wonderful.  I'm so glad you've found a doctor that can work with your symptoms and try to find a balance that will work for you.  Heaven knows, they are hard to find these days!  Most just tell you it's in your head and send you on your way...totally frustrating!

Chrissyb:  I'm not taking Al's or any kind of treatments yet.  I'm still waiting for my final pathology after my surgery on Monday.  As of today I am officially pissed that I haven't received a call back, and am going on a mission to get my results before the weekend sets in.

 I have already called the "Breast Health Navigator" as she was introduced to me the day I went to the breast clinic and met all these people that were "there to help me".  So far, no call back.  I called the nurse yesterday who assured me she would put the file on the dr's desk...no call back from him either!  I really hate getting into the bitchy mode, but since they have taken me off all my HRT, it won't be too difficult to pull off!  I was in business for so many years, and I know that when someone wants an answer, all they need to hear is that someone is working on it.  A simple call to tell me that they don't have the information but they are working on getting it would be nice.  Gurrrrrrr! 

Gingerbrew

Hi Kaara,

You might give them another call and ask for an explanation for the delay. Tell them you want the information now before the weekend. Maybe it will get you somewhere.  

Hugs Ginger

Kaara

Ginger...I did what you suggested, and they called pathology, got the report faxed over and it was good news!  Clear margins and nodes..YEA!

Now I can relax for the weekend...thanks for the help and prayers everyone! 

barbe1958

Great news Kaara. That's how I got my results after 10 days. I called and left a message that I wanted to know if my biopsy (thyroid) was cancer, because if not, I'd like to get on with the rest of my life. Merry Christmas!

I got an answer within the hour. Why do we have to push them?????????

Gingerbrew

Kaara, that is great news. I am so happy for you, now have a peaceful weekend!

I am pretty good at getting info over the phone. I think it was the years of experience as a case manager and needing info to get help for homeless families. 

Hugs GInger

Valjean

Kaara, great news on the clear nodes & margins!!

3jaysmom

yeah Kaara!!!so glad its done, and correctly!!!....3jays

Kaara

Thanks again everyone!

 We celebrated last evening by going out to an italian restaurant (not exactly on our diet...hehe) and having something other than rabbit food!  We refused the garlic rolls that they usually bring to the table, but wouldn't you know, the waiters kept trying to bring them to us...they just couldn't believe that we were turning them away....they are soooooo good!  It got to be a joke!

When we returned home, we were still in a festive mood, so we went online and booked a cruise to the Caribbean that leaves on New Year's Eve!  It's easy to do that when you live in the cruise capital of the world....Ft. Lauderdale/Miami.  You just drive to the port on the appointed day and get on the boat....no hassel with airlines!  Seven days of relaxation...good entertainment....healthy(?) food....and some good books to read.  We're excited...it's our Xmas present to each other.  Sorry kids, but we're spending your inheritance!

I'm going to quote something from thats-life's blog....one of her tips for living with Stage IV bc.

 "Remember, you always have this moment in time....and the next....and the next"  I want to enjoy those moments!  Thank you that's life for putting it in perspective.

Have a spectacular day everyone! 

dragonflymary

Kaara, good news!  Congratulations!  We had a celebration last night as my husband's bladder biopsy came back negative.  He's had bladder cancer and is now on follow-up.  We had Ahi tostadas that were great but they were out of guacamole!  

Making hi-fat cookies today and decorating with grands tomorrow--a busy week ahead.  Wish I could just skip it all!

Love,

Dragon 

Dilly

Great News Kaara!!!! And a good celebration too!

BarbaraA

Kaara, Dragon and L-C - happy dancing!!!

Kaara

Dragon:  That's great news!  This "C" thing is a pain in the a$$...you never give it a thought until you, someone in your family, or a friend gets it, and then it is on your mind constantly!

dragonflymary

Kaara, that's true.  I keep forgetting that other people don't want to hear about it--it just scares them to death!  I think they're all wusses.

lassie11

It's funny how what we see as normal is quite frightening to others. I had to call the auto service on account of a flat tire on the way to my last radiation appointment a couple of years ago. It was an hour's drive each way. When I told the woman on the other end of the phone about my appointment, she almost freaked. I was trying to emphasize that it was the last appointment and what a good thing that was. A service truck got to me really really quickly!  When I tried to call the clinic to tell them I'd be late, I somehow got the wrong department in the hospital. Even that person sounded worried and quickly transferred me to the right number rather than telling it to me so I could call back. I just wanted to get going so I could get back home in time to play bridge that afternoon - made it but didn't play very good bridge.

Kaara

lassie11....  LOL....that puts it in perspective!

macatacmv

Laara

I am so happy for you! Have a great time on that trip, relax and regroup! We' re having ocean effect snow here, makes the holiday seem more real.

I'm having trouble telling my relatives about my diagnosis because of what my sister went though, they all tend to swing to a sad place and I end up comforting them.

So on to a Christmas party tonight and just enjoying this moment in time.



What BC doesn't make us better card players? What's it good for?

Anonymous

  Congratulations to all of you who have recieved good news.  Now you will really have a happy holiday.  The cruise sounds wonderful Kaara.....except for the healthy eating ( she says as she wipes cookie icing off the beater and takes a big lick) 

Mac, tell your relatives that there are new treatments being developed every day and that not everyone has a bad time with it. 

QCA

L_C, Kaara, and Dragon, I'm so happy for all of you.  Now, enjoy this Christmas season!!

Marybe, wish I had some of your cookie icing.  I haven't made cookies yet and may, against my better judgment, attempt to make them with my GS tomorrow or Tuesday.  

Mac, hope you have a great time tonight! 

AmyJo, hope you are well.  Miss you on here.

Kathy

Alyson

So pleased to hear of good results.

Today we made Christmas truffles about 100 of them. Now I have to deliver them to some of the older folk at church and will probably make more before Christmas to give as gifts on Christmas day. Both DDs were hereand of course the grandchildren so another hectic day.

Have been to physio today as I have torn the rotator cuff in my shoulder something I must have done about 6 weeks ago when I fell whilst holding GS. It has been extremely painful but at least I didn't break anything. Have a friend in Denver who slipped on the ice and has shattered the head of the humerus. Hope she gets it sorted quickly.

Must go and change as we are off out for dinner with friends tonight.

Big hugs.

Elisimo

Just popping in to let you all know I am fine.  Have my next Aredia tx on Tuesday and it will be interesting to see what my blood counts are now.  I have been feeling better since my last surgery and I am still sewing away and loving every minute of it.  Getting through a lot of projects that I have had to do for years.  Got all of the Christmas presents for children and grandchildren finished!  Now I am working on things I just want to make for other special people in my life.  Glad to hear all the good news lately.  Hope everyone had a wonderful weekend.  Off to bed before it is time to get up again.