I won, I won, I won!!!

Options
kim40
kim40 Member Posts: 904
edited June 2014 in Stage III Breast Cancer

Ladies, I did it!!  I finally won!!  

As many of you know, I've had a battle with my onc, gp and gynos all over this damn city to get my ovaries out and no one, and I mean no one, would touch me.  One reason I got was that I was over-reacting and the other reason is because my private insurance pays for my Zoladex shots, I'm not a priority.

I got a name of a new gyno from a fellow BC sister.  I only met her once or twice but she told me her gyno didn't even blink when she asked to get her ovaries removed.  I got his name and my GP sent my referral.

My appt was today and it was 4 hours away.  My DH drove me to my appt and met with the gyno and you know what??  He told me that he was 200% in agreement with me to have them removed.  I was so happy to hear him say that, I could  have kissed him!  Now I wait for the call for my surgery!

I guess what I'm trying to say, is that if you believe in something -  go for it.  Don't let it go, someone, somewhere will listen.  This gyno did. 

· Share on FacebookShare on Twitter

Comments

  • mrsnjband
    mrsnjband Member Posts: 1,409
    edited March 2011

    I'm happy for you! It's your body & your life. We shoud be the ones in control of "our" ship.

    God bless, NJ

    · Share on FacebookShare on Twitter
  • Bugs
    Bugs Member Posts: 1,719
    edited March 2011

    Great news, Kim!

    · Share on FacebookShare on Twitter
  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited March 2011

    Way to be your own advocate Kim!!!! 

    Sharon

    · Share on FacebookShare on Twitter
  • karen1956
    karen1956 Member Posts: 6,503
    edited March 2011

    Kim....congrats on finally getting what you want...you're so right, if we don't fight for ourselves, no one will...keep up posted

    · Share on FacebookShare on Twitter
  • jennyboog
    jennyboog Member Posts: 1,322
    edited March 2011

    Congrats, I know it's been a long time coming...so happy for you!

    · Share on FacebookShare on Twitter
  • KerryMac
    KerryMac Member Posts: 3,529
    edited March 2011

    Kim - I am delighted for you. And 4 hours is still closer than having to come to Toronto! Let us know when your surgery date is!!

    · Share on FacebookShare on Twitter
  • apple
    apple Member Posts: 7,799
    edited March 2011

    the things we are happy about.. oh my

    Congratulations!!!

    · Share on FacebookShare on Twitter
  • lindaa
    lindaa Member Posts: 119
    edited March 2011

    Kim, I am in awe of how you are controlling your own destiny and being proactive with your disease.  I myself, and a now deceased friend of mine, have been led astray by our doctors and we will never understand what they were thinking.  I was 'misdiagnosed' as a stage IV, but I did not have it on any bones or organs???? They said because of my lymph.  Because of that they gave me carbo/taxol/avastin which is more of a stage IV drug combo for lung/liver mets.  They just look in the guide book and look under stage IV and the type of cancer you have and pick what ever is the first drug listed.  My primary doc told that to my DH.  I should have been given the DD AC and then DD taxol as is what most people get at the first dx.  I was not proactive and did not understand and now my cancer is resistant to treatment.

    As for my friend, she started with stage I, slightly ER+, and by the end of 3 lumpectomies she only had 'thin' margins.  She kept requesting a masectomy and they wouldn't do it. Really?  After 3 shots at getting it all out I would insist on a masectomy too.  It was her biggest regret.  She also wanted her ovaries out because of the ER+ part.  She did her research as best she could and the doctors did not agree with her.  They refused and said 'overkill.  What a word.  They called her 'cancer free' but that only lasted for around 18months.  they found a spot on her liver and her onc said it was probably a cyst and not to worry about it.  I think if  you have cancer every spot should be of high concern and not brushed off.  She finally went somewhere else around 3 months later and by that time she had several spots on her liver.  She switched her care to mass general and when she went there she said 'I want my f-ing ovaries out!', and they took them out without question even though she was now stage IV for sure.  She battled another 2 years and just passed in Jan leaving 2 young daughters behind.  She was a vibrant, healthy, very fit person with a cancer caught early and really should have been one to make it. 

    As I look around these boards and read people's bios, I see that most of us that end up on the dark side of this get there because of poor decision making along the way.  It's not that the treatments are not there and if done correctly there can't be a very postive outcome for even the most serious of cases, but you zig when you should have zagged and that seems to make all the difference.  So good for you, you are an inspiration.

    Linda

    · Share on FacebookShare on Twitter
  • clariceak
    clariceak Member Posts: 752
    edited March 2011

    Awesome news!  I'm so happy your persistence paid off.

    · Share on FacebookShare on Twitter

Categories