reoccurance of ILC soon after mastectomy

mtks

Has anyone had pain come back in area the invasive lobular carcinoma

was found. The pain that brought my decision to have lumpectomy vs. aspiration!

It's only been 5 1/2 months since my mastectomy! Do I bring this up to my surgeon or am I just being paranoid? I haven't even thought about reoccurance until this  particular pain.

Still in expanding stage!!!  Any thoughts or facts?

SAMayoFL

MTKS, yes, I have pain in the area of my tumor spot as well.  My mx was in September, 2010 with no reconstruction,  The whole area is sore, I have rib pain and under arm pain in the entire area.  I hope you are doing well!

Susan

Shrek4

Definitely talk to your doctor. But if you say you had a mastectomy, that area is definitely gone and you are probably experiencing phantom pain.

momof2greatkids

mtks - i had ILC and mx (bmx, but other one NED!) and just finished rads today (hooray!). I mentioned to someone at work last week that it felt like my body was trying to grow a new breast (on ILC side) - didn't know how else to describe the uncomfortable (but not necessarily painful) feeling that started 2 weeks ago. Recurrence has crossed my mind too, and it freaks me out. Am afraid my onc will really think I am nuts if I mention this, so hoping I get a PET in the near future just for general follow up and then I can avoid mentioning this (and of course hope and pray that it is nothing.)

BikerBabe1

I just finished my final fill for my TEs,  and I still have pain in and around my breast, which I think is caused by the TEs.  I can't wait for my exchange, which isn't until May but hopefully the pain will go away.  I think it is important that you keep your surgeon in the loop and updated on the pain you are experiencing.

slinky

I am only into my 8th week post BMX, but I still have pain where the tumor was.  I think everything is still sore and my TE's are probably rubbing against it.